Craig's Posts

Diagnosis: Aortic Stenosis, Bicuspid Aortic Valve

Member Since: December 31, 2020

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Craig Cole posted an update
5 years ago (May 13, 2021)
Wow! What a journey and thrilled to be on the recovery side. The folks here at Cleveland Clinic are amazing. My wife has been my rock! An amazing woman I was fortunate to meet 35+ years ago! Needless to say sidetracked a couple of days, but now enjoying a few... Read more.
5 years ago (May 13, 2021)
Ps- to those who may be curious, I did opt for the Edwards Ispiris Risilia bioprothetic valve. It seemed to offer the best combination of durability and longevity that I was looking for without the necessity of blood thinners. Unfortunately not necessarily a permanent solution but may provide some future... Read more.
5 years ago (May 13, 2021)
Congratszzzzz and welcome to recovery, Craig! It's the best feeling ever to know that the surgery is over with and that your life has been extended successfully.
5 years ago (May 13, 2021)
Craig I also have that valve and yes it seemed to be the best choice so that I wouldnt' have to be on blood thinnners, it can also have a valve in valve if needed with TAVR.
5 years ago (May 13, 2021)
You sound like you are doing great!! Congratulations!
5 years ago (May 13, 2021)
You hit the nail on the head with your comment about the JOY of going to the bathroom without setting off alarms. That was a big highlight for me. I also have your valve ( 9 mos ago) At night I can feel the strong steady beat ( a good... Read more.
5 years ago (May 13, 2021)
Congratulations and welcome to recovery Craig! Sounds like you are doing well. You will become accustomed to the new heartbeat in time. Keep up the great work!
5 years ago (May 13, 2021)
Craig - Sounds like you're doing great! Wishing you continued success with your recovery! ❤
5 years ago (May 13, 2021)
Congrats! Take it a day at a time and listen to your body. Those "forced" naps are awesome! 😀
5 years ago (May 13, 2021)
Congrats. Dr. Svensson did mine over a year ago. That scar will fade and pretty soon you won't know anything had been tinkered with on the inside! Enjoy recovery.
Anonymous, heart valve patient
Anonymous
5 years ago (May 14, 2021)
Yay Craig, so great to hear you are recovering well and soon will be home. God bless you and continued good health.
5 years ago (May 14, 2021)
Congrats, Craig! I had the same surgery with the same valve with the same surgeon in 2018 at age 45 and doing great. Wishing you a speedy recovery 😊
5 years ago (May 13, 2021)
That smile says it all!!! ❤
5 years ago (May 13, 2021)
I love everything about this picture! Thanks for sharing Craig!!! ❤❤❤❤❤
5 years ago (May 13, 2021)
Welcome to the recovery side, it gets better every day but don't push it to hard, it will only lead to side effects, looking good ,
5 years ago (May 16, 2021)
Lisa - you do got this! I think the waiting and nervous anticipation can be the hardest part. You'll be on the recovery side before you know it. Thoughts and prayers for a successful surgery & speedy recovery!
5 years ago (May 16, 2021)
I have 2 week to go, sounds weird to me but I'm excited about it, it's been almost a year since my Dr heard me heart murmur
Craig Cole posted an update
5 years ago (March 31, 2021)
Well...after two years of watchful waiting I guess its finally time~~~ aortic valve replacement surgery scheduled for April 15th at the Cleveland Clinic. With the starting line for this part of the journey clearly in sight, nervous anticipation has replaced that gut-punch feeling I've been carrying since the initial diagnosis.... Read more.
👍 Shannon Gray, David Moore and reacted to this
5 years ago (March 31, 2021)
On-X mechanical valve !! I'm a 60 year old veteran !! Physically fit and don't care in thinking of reopening at an older age !!
5 years ago (March 31, 2021)
Being younger (48) I really didn't want to be on blood thinners for the rest of my life, but the biggest fear was being able to hear the click of the mechanical valve and it driving me bonkers (I have misophonia and repetitive sounds literally trigger an anger response). For... Read more.
5 years ago (March 31, 2021)
When my 62 year old husband was diagnosed with needing a new valve and quickly, I searched this site and found a woman who had done research and suggested the Edwards Inspiris Resilia Valve. It's fairly "new" but built to last longer than previous models and pre-planned for TAVR replacement... Read more.
5 years ago (March 31, 2021)
Cheryl, the Inspiris is what my doc ended up going with
5 years ago (April 1, 2021)
I was 63 and active at the time of my AVR and aortic aneurysm resection. Valve choice was the hardest decision of my life, and I went back and forth many times. I decided on a tissue valve, mainly to avoid Coumadin. Only time will tell if I chose wisely.
5 years ago (April 1, 2021)
I'm physically active 60 years old too. My choice will be the OnX. A friend of mine has the St Jude in him 20 years now. He told me once you get stabilized on coumadin which is not long after surgery. He also told me that he eats whatever he... Read more.
5 years ago (April 1, 2021)
Hi all! Thanks for the quick feedback and perspective. 60 years old seems to be that murky middle... + or -10 years and its kind of an easier decision which way to go. For me its a two horse race: CryoLife/OnX or the Edwards Inspiris Resilia. In the end, regardless... Read more.
5 years ago (April 9, 2021)
Hubby's surgery is scheduled for Apr. 20. He's 50 and going with OnX. He's also very concerned about the noise. We've searched online but haven't really found any good information about who it will bother or if there's anything to predict who will be louder. I'll be following this for... Read more.