First Blessings to Everyone on this site. With out your inspiration, prayers, insightful wisdom, thoughts, and sharing I am not sure this ole single girl could ...Read more
First Blessings to Everyone on this site. With out your inspiration, prayers, insightful wisdom, thoughts, and sharing I am not sure this ole single girl could have made this journey. I want you all to know that I never felt alone in Cleveland. It was such an incredible and amazing place. Lots of Walking Angels at the Clinic and at rehab plus two very very special Heart Warrior Women- Amy Dorsey and Bridget Fitzgerald Sawmiller! These two women brightened my journey and shined with all their Love and Light. Incredible to be able to meet them as a result of this site! Heart Sistas forever! If any of you ever get a chance to be in the same hospital at the same time please please make the effort to find one another. I can guarantee to you without a doubt it is life changing- emotionally, physically, and spiritually. Lots of Love to share.
Waiting now for home healthcare to pay a visit. For some reason my blood pressure and pulse have decided to explode with pendulum numbers yesterday for the first time! Happy I am going to see primary doctor on Monday. Rehab was a great decision- made climbing those stairs so much easier when I got home!! Learned how to do things differently and has made a big difference. Still have sternum pain. Only on Tylenol. Can't take painkillers which is just as well. One day at a time.
Blessings and prayers also to those of you who are about to have surgery. Just know there are a whole lot of us to cheer you on!!! Peace and Love.
Bridget Sawmiller Love your attitude, blessed that our paths crossed and it was exactly what I needed before my surgery ... Read more
Bridget Sawmiller Love your attitude, blessed that our paths crossed and it was exactly what I needed before my surgery, physically, emotionally and spiritually. You are amazing, continued prayers for your successful recovery, love you heart sister!!!
Catie B Congratulations on your homecoming! And I'm so glad CC was a tremendous experience and gave you the c ... Read more
Catie B Congratulations on your homecoming! And I'm so glad CC was a tremendous experience and gave you the chance to meet Amy and Bridget!
Hope heart rate and BP come back to baseline quickly, PJ.
May I ask, how did they get you through post op pain, if you can't take painkillers?
Amy Dorsey Ditto sweet lady! You were the Angel I needed at exactly the right time! Heart sisters forever! Love ... Read more
Amy Dorsey Ditto sweet lady! You were the Angel I needed at exactly the right time! Heart sisters forever! Love you! 💗💗💗💗💗💗💗💗💗💗💗💗💗💗💗
PJ Fugitt Catie thank you for your well wishes. In ICU they gave me Fentanyl but it made me very nauseous with ... Read more
PJ Fugitt Catie thank you for your well wishes. In ICU they gave me Fentanyl but it made me very nauseous with roller coaster effects and horrible shakes. They took me off that and ended up putting lidocaine patches on either side of my incision and Tylenol of all things! Hah! Not exactly the painkiller I expected after OHS but all other painkillers have the same effect except morphine which I have had for other surgeries. I asked the surgeon about it before the operation and he said they no longer use morphine at the Cleveland Clinic.
I have 2 lidocaine patches left to use for the pain from the incision after 3 weeks. Guess Tylenol it is!
David C Welcome home! I am sure your BP will get to normal. I think we all have a few funny spikes along reco ... Read more
David C Welcome home! I am sure your BP will get to normal. I think we all have a few funny spikes along recovery.
The funniest thing I had happen in the step down room was a little [half an hour?] of Afib when my family was in the room. My mom who has afib, just turns green and the rest of my family just start staring at my monitor. The nurse saw them and just turned it around so they'd stop looking at it, as it's a totally normal occurrence and usually very brief.
As for your Tylenol, I actually laughed at the ICU nurse when she came with Tylenol the first time. I said "you just cracked my chest open and pulled it apart, and your are giving me tylenol?" I am surprised at how effective it is, though. I was bummed to give up the lidocaine patches when I was discharged but they were like $45 each and not covered by my insurance...crazy!
IF CC doesn't use morphine, what was was the drip in the green lock box I had the first few days? Was that the Fentanyl?
Regardless, glad you made it home safe and sound. I hope the rest of recovery is smooth sailing.
Barbara Laurie PJ, so glad you're back home in the Great State of Texas, alive, on the road to recovery and , it see ... Read more
Barbara Laurie PJ, so glad you're back home in the Great State of Texas, alive, on the road to recovery and , it seems, ready to take on the world again! What a blessing for everyone here to know you a bit and share this journey. ❤️❤️❤️
Catie B Thanks so much for taking the time to reply. I hope your BP is behaving itself now. I'm sorry you ha ... Read more
Catie B Thanks so much for taking the time to reply. I hope your BP is behaving itself now. I'm sorry you have so much trouble with medications. It's surprising to hear Tylenol helps much--it's one of the few things I can take. But it doesn't "sound" strong and you wouldn't expect it to do such a big job! I would not have envisioned lidocaine patches, either. Hmmm. That's interesting.
May your strength keep building and building, PJ. You sound like you're doing so well.
Have especially appreciated your sharing your journey as another TX girl planning the pilgrimage to CC on my own.
Surgery 5 days ago. Starting Day 3 in step down. Stayed extra day in ICU due to pain meds - rolling nausea and completely out of it. Now in own room getting ...Read more
Surgery 5 days ago. Starting Day 3 in step down. Stayed extra day in ICU due to pain meds - rolling nausea and completely out of it. Now in own room getting a little sleep. From reports all went well with OHS. Very very grateful to all of you and your prayers and wisdom for sharing. My brain is still a bit foggy so please bare with me. Cannot believe I am even writing this at the moment. Feeling very blessed to have now waken up on the other side. I know it is a very long journey- one of this lifetime but you all should now how you presence in this blog has sustained me. Gratitude and blessings to the doctors, nurses, caretakers, everyone who works at this hospital. The old saying is one moment, one day at a time. I do believe in God's grace especially at this time in my life. Today's goal is to wash hair, take a walk, any kind of shower or bath they will allow, and of course breathing!
Will check in later when I am up. xoxoxo
Amy Dorsey So happy to hear from you. I'll be there Wednesday💗
Lise Bowles Wow PJ, I had no idea you would post so soon, isn't it wonderful that you are on the other side! One ... Read more
Lise Bowles Wow PJ, I had no idea you would post so soon, isn't it wonderful that you are on the other side! One day at a time to be sure! Washing hair sounds like something I would want to put on my list of goals as well, I was wondering about that. Enjoy your day as much as possible, Lise 😍
Susan Schweter Glad to hear you are through the rough part. Soon you will look back and think, "that wasn't so bad" ... Read more
Susan Schweter Glad to hear you are through the rough part. Soon you will look back and think, "that wasn't so bad". I'm sending prayers that your recovery will go smoothly and quickly.
Rita Savelis You're doing great PJ. My first shower/hair wash was 15 days (!) after OHS and I needed much assistan ... Read more
Rita Savelis You're doing great PJ. My first shower/hair wash was 15 days (!) after OHS and I needed much assistance.
Take care!
Kate Watson So glad to hear everything went well, PJ! Hope your recovery continues to go smoothly!
Amy Dorsey I didn't get to wash my hair until I came home 7 days later! Good thing I brought some dry shampoo ... Read more
Amy Dorsey I didn't get to wash my hair until I came home 7 days later! Good thing I brought some dry shampoo which helped a little bit. I'm sure you will feel so much better if someone can help you wash your hair! See you soon! 💗
Mary Wagner So glad you are on the other side now! Prayers for continued healing and no complications!
Catie B So pleased to see your post and that you've come through and are on the mend. So sorry for the early ... Read more
Catie B So pleased to see your post and that you've come through and are on the mend. So sorry for the early nausea! Walking and washing sound good and your attitude sounds great. May you get stronger each day!
Joanne Casserly PJ they kept me in ICU too long, kept telling me they wanted to watch me and that is all, all these p ... Read more
Joanne Casserly PJ they kept me in ICU too long, kept telling me they wanted to watch me and that is all, all these people were coming and going and I was there and everyone telling me, I looked great, well long story short, I went into A Fib and back into OR for pacemaker, I stayed too long, at the prom and got what is known as ICU psychosis and thank heaven my cardio recognized it, but not 1 dang surgeon did. Long story short they got me out of ICU and into step down next day, I was home in about 9 days. Best of luck and relax and it will all be fine. :hugs
Steven A Husted i agree with what you said i know it will feel great to have your hair washed may you have a smooth r ... Read more
Steven A Husted i agree with what you said i know it will feel great to have your hair washed may you have a smooth recovery best wishes and prayers
Wanda Mroz Wonderful! Welcome to the other side! I'm so glad everything went well.... Continued smooth recover ... Read more
Wanda Mroz Wonderful! Welcome to the other side! I'm so glad everything went well.... Continued smooth recovery!💞
Bridget Sawmiller So, so great to meet you yesterday and spend some time with you. You look fantastic! Continued prayer ... Read more
Bridget Sawmiller So, so great to meet you yesterday and spend some time with you. You look fantastic! Continued prayers for a wonderful recovery and a great rehab. Do you know when you are getting discharged yet?
Mary K Dry shampoo is a godsend. All that Cleveland Clinic would allow me was a shower cap thing with a Terr ... Read more
Mary K Dry shampoo is a godsend. All that Cleveland Clinic would allow me was a shower cap thing with a Terry liner infused with some kind of cleaner. Yuk. Did little or nothing for my hair. The dry shampoo at least absorbs the oils and then you can scrub it out the best you can with a towel. Salon Graphics Invisible is very good. And as a bonus it gives your hair volume.
Steve Wykstra Wonderful to see your posting, PJ! Like others, I've been waiting for you to report in! Will be thi ... Read more
Steve Wykstra Wonderful to see your posting, PJ! Like others, I've been waiting for you to report in! Will be thinking of/praying for you!
Well dear heart sister Amy Dorsey and other heart travelers- reporting to hospital at 5:15am. Open heart surgery. Cannot do robotics. Femoral artery too small ...Read more
Well dear heart sister Amy Dorsey and other heart travelers- reporting to hospital at 5:15am. Open heart surgery. Cannot do robotics. Femoral artery too small and bypass would blow out plaque found on aorta and could reach brain for stroke. So going for 6 inch middle cut and try repair. If not pig valve. That is the update. Blessings and prayers to you Amy and all our heart families. Shine your lights beautiful ones! Can not believe tomorrow is the date- no wait it is already 12:08am. Today is the day. . .reporting in. Lots of walking Angels. We certainly are a tribe of Blessed Children upon this Planet Earth. xoxo
Priscila Marino Keep us posted..... May the angels of the Lord be with you, and your doctors and staff..... You will ... Read more
Priscila Marino Keep us posted..... May the angels of the Lord be with you, and your doctors and staff..... You will do great!!!
Alina FH The best to you, PJ. Good thoughts and vibes to you and your heart sister for tomorrow!
Lise Bowles Best of blessings PJ! You are adorable and sweet with all of your encouragement to others, now it's y ... Read more
Lise Bowles Best of blessings PJ! You are adorable and sweet with all of your encouragement to others, now it's your time! May God send you comfort and peace, and a very successful outcome!!! And aftercare! Xoxo Lise
Spent the night in Short Stay for Cardiac. Great staff and nurses. All good news from yesterday's cath. No blockage. Hurray! And thank you to the excellent ...Read more
Spent the night in Short Stay for Cardiac. Great staff and nurses. All good news from yesterday's cath. No blockage. Hurray! And thank you to the excellent staff, nurses and Dr. Cho and Dr. Albert for their laughter of my stupid jokes to create less stress to me, their thoughtfulness for allowing me to say a prayer and blessing for all of us before the procedure. No problems but did somehow end up with a pull or strained muscle running down the left side of back. Very strange. Went from sharp 8-9 and now down to a 2-3 with all kinds of pain relievers and probably a dozen heat packs! But all is good. At peace.
Meeting with anesthesiologist 8:00am,
The CT scan with iodine contrast (allergy again but did excellent in cath lab with it), then meeting with Surgeon Dr. Gillinov to see if I have passed my test for robotics. Afterwards going to Vascular lab for test and to review bruit carotid artery. That is it for today. Looking forward to a feast before the biggest day tomorrow. Amy Dorsey if you are reading this- Happy Trails Heart Warrior Woman. It would be wonderful to see you heart sister or I should say daughter! I am old enough to be your Mom! On Monday when you make your way back to the clinic. You will know where I will be! Blessings to everyone who has posted and prayers be with each of you, encircled by the Light. Namaste- meaning for some of you- I honor the divine within each of you. xoxo
Ben Hyman I'm also being evaluated for a Mitral repair. My current hospital doesn't offer a robotic option but ... Read more
Ben Hyman I'm also being evaluated for a Mitral repair. My current hospital doesn't offer a robotic option but Mayo Clinic in Rochester MN does. I'm thinking about getting a consult with them. I'm curious..what types of tests are they doing to decide if Robotic is a viable option for you?
Catie B Pleased to hear that all continues to go well and your cath brought good news. Laughter is great medi ... Read more
Catie B Pleased to hear that all continues to go well and your cath brought good news. Laughter is great medicine!
Bob Fessler Good luck PJ! You will be on the other side recuperating before you know it. You sure have a wonder ... Read more
Bob Fessler Good luck PJ! You will be on the other side recuperating before you know it. You sure have a wonderful spirit.
Lise Bowles Oh Pj, I will be praying for you and hoping that you have a good experience and as pain free as possi ... Read more
Lise Bowles Oh Pj, I will be praying for you and hoping that you have a good experience and as pain free as possible. I know your doc is good because he is going to be my doc too....God bless you with comfort my dear, Lise
6:02am EST
Where is Betty White? How I would love to meet her in Cleveland! Now she is a true inspiration!! She just makes me smile and laugh and giggle! ...Read more
6:02am EST
Where is Betty White? How I would love to meet her in Cleveland! Now she is a true inspiration!! She just makes me smile and laugh and giggle!
Getting it together to go to clinic for heart cath and spend one night due to iodine dye allergy.
Will post later how day unfolds like a lotus blossom. Sending Peace, Love and Light to All. Keeping the faith on this Heart Road knowing I am not alone. xoxo Patricia Jane
David C Hope it went well. Super boring to wait around for 4 or 6 hours while they make sure that artery is a ... Read more
David C Hope it went well. Super boring to wait around for 4 or 6 hours while they make sure that artery is all closed up after. Only so much HGTV I could bear. The doctors performing the surgery, and the nurses after were top notch, though. I'll be thinking of you this week.
12:13am EST. Long Day 1. Exhausted and wide awake! Go figure. Began all my pre-testing. Little mix up on drugs and allergy scripts so ct scan with contrast ...Read more
12:13am EST. Long Day 1. Exhausted and wide awake! Go figure. Began all my pre-testing. Little mix up on drugs and allergy scripts so ct scan with contrast delayed 2 days. Got to meet my Cleveland Cardiologist- Dr. Samir R. Kapadia- absolute dream comes true. A dearest friend- I call him many things but one is he is my heart patron. When all of this began he told me about his mother going to Dr. Kapadia and my own heart doctor went to school with him. First I was assigned someone else then refused unless Dr. Kapadia was my doctor on record and that he would watch over me on my leave from Texas. Was very incessant because in my being I knew this was true and what needed to happen- Ok short version- it did and it was very ethereal, mysteriously magical how Life unfolded today. After meeting with him I began my journey to find Amy Dorsey. That in itself was magical because doors and other people's hearts opened when I told them I was trying to find a fellow heart valve blogger on this site. It was amazing how many people in the "heart district" had not heard of this site. Well found Amy with some assistance I believe in the form of walking angels who led me to her room. The funny part- now no one could figure out how I knew her, that I was not related, did not know her address, phone, nothing! Sheer delight when we met. So happy that our paths crossed and we took a photo to prove all of this was real! She looked beautiful- counting she just had surgery last Thursday. I want you all to know Amy Dorsey is indeed a Heart Warrior Woman!!!!
Wanda Mroz That is awesome! It is wonderful that you and Amy were able to get together,! Wishing you well... ... Read more
Wanda Mroz That is awesome! It is wonderful that you and Amy were able to get together,! Wishing you well... 🙏🏻💞
Catie B So glad your heart's desire for cardiologist was fulfilled. It must have done both your and Amy's hea ... Read more
Catie B So glad your heart's desire for cardiologist was fulfilled. It must have done both your and Amy's hearts good to get to meet and visit. Wonderful!
Priscila Marino Its great you had the opportunity to visit Amy ..... I am sure it was a great support to both of you. ... Read more
Priscila Marino Its great you had the opportunity to visit Amy ..... I am sure it was a great support to both of you. Praying for you this week...... And I know how hard it is to sleep this days..... My procedure is 25 day ls away and I am already having trouble...... wishing you a good night.
Love is not written on paper, for paper can be erased. Nor is it etched on stone, for stone can be broken. But it is inscribed on a heart and there it shall ...Read more
Love is not written on paper, for paper can be erased. Nor is it etched on stone, for stone can be broken. But it is inscribed on a heart and there it shall remain forever.
Rumi
Arrived yesterday with a beautiful rain over Lake Erie. Went to hotel, checked in and started to take a nap. Up since 3:00am and it was now 1:30pm. Decided instead to be adventurous and I would go to the Cleveland Mueum of Art. Experienced not only my first Uber ride, but 2 more to follow! If any one comes this way and has extra time before reporting in definitely recommend Museum- collection and building absolutely outstanding!!!
And great for calming the anxiety! So stayed in the present and enjoyed the beauty of the Lord's Day!
So now it is Day 1, Monday, July 24. Long time coming. Very strange how reality sinks in. One way for certain is seeing your photo on the wall of upcoming surgeries on this site. I repeatedly cannot say how comforting this site is. First appointment is 7:15am and somehow I got here at 5:45am. For a night owl this is pretty amazing!!!
Watching the sunrise over Cleveland Clinic! Later I am going to go find Amy if she is up for a visit.
Darlene Smith Thinking of you this week and leading up to your surgery. I hope all goes well for you!
Amy Dorsey Thinking of you. I'm still here! 💗💗💗 I hope that gives you some comfort so you don't feel so ... Read more
Amy Dorsey Thinking of you. I'm still here! 💗💗💗 I hope that gives you some comfort so you don't feel so alone💗💗💗
Catie B Sooo glad you were able to enjoy the museum. That sounds like an excellent diversion! This night owl ... Read more
Catie B Sooo glad you were able to enjoy the museum. That sounds like an excellent diversion! This night owl empathizes about the early appointment : ) Thinking of you with the appointments and all that's out ahead. Best to you!
Bridget Sawmiller I will be there next week! Praying for a successful surgery and speedy recovery!
Thank you all for your support. The way I feel about this journey is that so many of you have been on the road for quite awhile. I thank all of you for your ...Read more
Thank you all for your support. The way I feel about this journey is that so many of you have been on the road for quite awhile. I thank all of you for your support and prayers and thoughts and wisdom and just being here for all of us following up the trail. I truly believe the best cheerleaders are the ones who truly understand all of this because they have been through it.
I am a possible candidate for robotics but my lungs are not very strong these days so will have to wait and see what all the tests say. Peace, Love and Light be with each of you.
Patricia Jane
Rita Savelis The road is long, but the support is wonderful.
Take care PJ.
Richard Puckett I hope you can have the robotic approach. I wish I could have. I think you'll recover much quicker ... Read more
Richard Puckett I hope you can have the robotic approach. I wish I could have. I think you'll recover much quicker with robotics. The bottom line is, what will give you the best outcome.
Bridget Sawmiller Prayers for a successful surgery and speedy recovery, hope they can do the robotics procedure. You wi ... Read more
Bridget Sawmiller Prayers for a successful surgery and speedy recovery, hope they can do the robotics procedure. You will do great!
Catie B Wishing you the very best with heading up to Cleveland, all your appointments and pre-surgery tests. ... Read more
Catie B Wishing you the very best with heading up to Cleveland, all your appointments and pre-surgery tests. I hope the whole sha-bang goes smoothly. You're in my thoughts.
I am really not much for words but I felt maybe it is time to speak up. I have shared sporadically along the way since Feb when I first found this site after ...Read more
I am really not much for words but I felt maybe it is time to speak up. I have shared sporadically along the way since Feb when I first found this site after reading Adam's book- which I am so very eternally grateful to- like all of us. This blog is a God Send-through the Universe and brought to Light by Adam.
I guess I will say the countdown for me is on and finally has begun. Leaving San Antonio this Sunday, the 24th and surgery on Thursday, the 28. Since I am not married I am making this journey on my own. A choice which was hard but felt right about it from the beginning. I have a brother who will come for 2 nights and then he will be on his way. I have decided to do rehab for a couple of weeks and stay in Cleveland so that I can gain mobility and a touch of independence before going home and getting on jet plane. Live alone or with 3 cats and a few outdoor neighborhood pets I take care of. Found Cleveland Clinic has an out reach program for those transitioning from hospital to home. So that is the plan. Changed flights today so I am going to stay 2 extra weeks and try to build up some energy. I am originally from Oklahoma so I have to say God Bless Leon Russell. Prayers, Blessings and a Speedy Recovery to him following his heart attack. Sending All to you with the Light of Love. afterwords. So many walking angels on this site. God Bless xoxo
Wanda Mroz PJ. Best of luck to you. I'm single too so I understand totally! Luckily I had the right Dr right a ... Read more
Wanda Mroz PJ. Best of luck to you. I'm single too so I understand totally! Luckily I had the right Dr right at home so it was easier thank traveling. I'll keep you in my thoughts and prayers. 💞
Kate Watson I'm glad that you found this site. It sounds like you have some good plans in place. Definitely seems ... Read more
Kate Watson I'm glad that you found this site. It sounds like you have some good plans in place. Definitely seems like a good idea to get some mobility back before you go home too. What type of surgery are you having? Keep posting, it's therapeutic I think. You will be in my thoughts too.
Catie B Wishing you safe travels, peace and for everything to go exceptionally smoothly. Your plan sounds we ... Read more
Catie B Wishing you safe travels, peace and for everything to go exceptionally smoothly. Your plan sounds well thought out. I hope you'll keep posting as you can.
Peggy Whitecotton Good for you I'm single too and I think it's great that you are going to Cleveland by yourself. You ... Read more
Peggy Whitecotton Good for you I'm single too and I think it's great that you are going to Cleveland by yourself. You have to do what you feel is right for you. I did the same thing I drove to St. Louis by myself to have my surgery (I live in Mississippi). I had a good feeling about doing going there and had a peace about the surgeon and the hospital. However, I did have family there to support me and had 2 daughters come in from out of state. I think you are in good hands and you need to be at the place you feel at peace about. Hugs!!
David C PJ, Cleveland Clinic is fantastic. Truly world class care. There is someone there on staff to help wi ... Read more
David C PJ, Cleveland Clinic is fantastic. Truly world class care. There is someone there on staff to help with travel if you need to adjust anything. It is so worth the extra effort of the trip. Best of luck!
Bridget Sawmiller You will do great, my surgery is August 4th at the Cleveland Clinic, perhaps we will be in the hospit ... Read more
Bridget Sawmiller You will do great, my surgery is August 4th at the Cleveland Clinic, perhaps we will be in the hospital at the same time! Prayers for a successful surgery and speedy recovery!
Richard Puckett You'll do great! The Cleveland Clinic was great for me four and a half weeks ago. I stayed on for th ... Read more
Richard Puckett You'll do great! The Cleveland Clinic was great for me four and a half weeks ago. I stayed on for three days after my discharge, which means I flew home eight days after surgery. I was able to resume most of my normal routines as soon as I got home. The biggest problem I'm having is not driving for eight weeks. I use Uber a lot.
I did have my wife with me, which helped with all of the little things. Once I got home, I've been pretty independent. If you stay for two weeks of rehab, you'll be ready to come home in good shape! Are having robotic surgery? I had a sternotomey.
Julianne Beatty Good luck with your surgery PJ. im single too, so i get that it's a lonely road at times. ((hugs))
I have questions for those of you who have been to Cleveland Clinic for valve surgery-
1. How long were you there?
2. Did you fly in? If so how did you manage ...Read more
I have questions for those of you who have been to Cleveland Clinic for valve surgery-
1. How long were you there?
2. Did you fly in? If so how did you manage your flights and coming home?
3. Did any of you stay and do rehab in skilled nursing
center in Cleveland area? I live alone on 2nd flight of stairs. Would it be better to stay there or fly?
Shannon Gray Hi! I had valve repair and aorta graft at CC. I was initially in the hospital for 6 days after surger ... Read more
Shannon Gray Hi! I had valve repair and aorta graft at CC. I was initially in the hospital for 6 days after surgery. I still had a lot of fluid and tachycardia that they needed to watch. I stayed in a hotel near by after I was discharged, and then was scheduled for an exit clearance three days later. That appointment is to make sure you are ready to head home. I didn't make it, as I had severe complications that landed me back in the hospital 48 hours after I was discharged. I was in the hopstal for almost two more weeks.
We were going to fly home, but I had air pockets in my lungs that were still clearing up. They won't let you fly if that's the case. I felt safer having my husband drive us home, although it was a very long trip. You just need to ask about that before purchasing your ticket.they have a wonderful concierge who can help with all of your travel arrangements, pick you up at airport, help with making flight switches if needed. Make use of that...very helpful.
I didn't use their skilled nursing center, but it sounds like a wonderful support after being discharged.
Wishing you the best!
Steven A Husted if you live alone like i did it is very helpful to go from discharge to a rehab center or hospital fo ... Read more
Steven A Husted if you live alone like i did it is very helpful to go from discharge to a rehab center or hospital for rehab so that you can manage on your own at home alone i was in icu over night and then to the down unit for 4 days and then they sent me to a rehab hospital for 2 weeks where they work on getting your strenth back so you can walk up and down stairs and take care of your self when you get home and even when i got home they had a nurse and therapest come twice a week for 5 weeks to make sure i could manage on my own and keep up the exercise of walking then i started cardio rehab phase 2 and that was 36 sessions then i started phase 3 and will be in phase 3 for as long as i want yes i would get some kind of help for after surgery to get your strenth back because you will need it to get up and down stairs weather you do your rehab in cleveland or local rehab hospital it is a big help because you live alone hope this will help your heart brother steven a husted
PJ Fugitt Already have return ticket- think I will need to change. Stephen where did yo go to rehab there in
Cl ... Read more
PJ Fugitt Already have return ticket- think I will need to change. Stephen where did yo go to rehab there in
Cleveland ? I am totally clueless and on my own in this journey except for all of you on the blog.
Catie B PJ, I remember seeing your post about going up to Cleveland Clinic on your own. My heart goes out to ... Read more
Catie B PJ, I remember seeing your post about going up to Cleveland Clinic on your own. My heart goes out to you. I will likely be doing the same in a few weeks. I'm doing some local consults now, but did the remote consultation process with a Cleveland surgeon recently. I hope the folks there have given you good information on what to expect and how to navigate after your surgery and during your return trip. I think about half of their heart surgery patients are from out of state, so they must be used to helping people find their way.
Had to take a break from all of this- have been re-reading everyone's posts trying to get all this to sink in. Thank you all for so graciously sharing your ...Read more
Had to take a break from all of this- have been re-reading everyone's posts trying to get all this to sink in. Thank you all for so graciously sharing your stories, excellent info and thoughts. A lot of gratitude. Will keep you posted. Still a long wait till July 28!
Until - Blessings to everyone and thank you Adam for creating this blog for all to share.
Now that I have a date in Cleveland with Dr. Gillinov and his surgical team I am on a countdown of anxiety. I have severe mitral valve regurgitation and prolapse ...Read more
Now that I have a date in Cleveland with Dr. Gillinov and his surgical team I am on a countdown of anxiety. I have severe mitral valve regurgitation and prolapse and need a hole repaired. Hoping for robotic but just read on another hospital site open heart is required for severe patients. Perhaps I am getting overloaded with too much info. Picked Cleveland in hopes for robotic instead of cracking open chest- which they said I needed to take test to qualify. Anybody know what these tests are????
I am freaked out also by being allergic to all the iodine dyes for the cath, and for prep solutions on surgery- allergic to those soaps as well. Anyone else experienced this? Also coming from out of state by self- Any words of wisdom please!!!!
Sophia Ridley I had severe regurgitation and prolapse of mitral valve and a hole I wasn't aware of. I am also sever ... Read more
Sophia Ridley I had severe regurgitation and prolapse of mitral valve and a hole I wasn't aware of. I am also severely allergic to hospital detergent especially that used for patient and surgical gowns.
I had full open surgery for a repair six months ago as my surgeon said it was the best option for success in my case. Robotic was not an option given. I went with his judgement as he had done this surgery probably 1000s of times and was also drawing on the experience of others. Me - I was clueless but knew I really only wanted to do this once. It's no walk in the park either approach, the recovery has been long but I'm now able to forgot for hours at a time and see improvements each week even now. Yes, I have a scar from a inch below my collarbone to the bottom of my ribs, it will fade, I'm actually proud of it!
You know you have an allergy, so everything will be done to ensure that your cath scan goes smoothly and prep. I only found out about mine after cath scan after suffering after TEE. Ended up in ER three times :( It's better that we know before "the big one". I was more worried about someone putting a gown on my post op than I was of the op outcome. Everyone knew and we were all well prepared.
Cassie LaFramboise After going through the same problem, I would recommend the sternum instead of going through the side ... Read more
Cassie LaFramboise After going through the same problem, I would recommend the sternum instead of going through the side. The side is very painful especially if you are big breasted. All of my hurses said that going through the side is more painful and the sternum is less painful. That's just what I have learned from my surgery. Let me know your thoughts
Nap Garcia In the course of learning I had to go through surgery, I'm researching like you and going through thi ... Read more
Nap Garcia In the course of learning I had to go through surgery, I'm researching like you and going through this website and other sources in deciding between minimally invasive and through the sternum, and what I am finding with the minimal invasive procedure are yes, they do end up with better cosmetic results but yet should complications occur, they may have to open you up through the sternum anyways. The argument that brought me over to a sternotomy was that why spend 45 minutes to an hour in surgery with minimal invasive and then add another few hours to that should there be a necessity to open you up, when that time could have been saved if you have been opened up in the first place. I also defer to my surgeon's choice as he's the expert but if your surgeon can't do what you want, then yes go to another surgeon. I do understand the healing process may take longer going through the chest, but also read it could be less painful over time. But again, it is your choice. Please search for the article Thoracotomy vs. Sternotomy on this site and you'll see a lot of useful feedback from people who've been through both. Quick question, was an angiogram recommended for you before surgery? Good luck!
Steven A Husted I AM ALLERGIC TO THE DYES THEY USE SO THEY DO GIVE YOU MEDS TO COUNTER ACT THE ALLERGY AND I MADE IT ... Read more
Steven A Husted I AM ALLERGIC TO THE DYES THEY USE SO THEY DO GIVE YOU MEDS TO COUNTER ACT THE ALLERGY AND I MADE IT THRU AND THE FULL STERUM WAS NOT AS PAINFUL AS I THOUGHT IT WOULD BE
Petey Bello I too had a difficult repair. I had hoped to get robotic but my surgeon needed better access & said h ... Read more
Petey Bello I too had a difficult repair. I had hoped to get robotic but my surgeon needed better access & said he would be quicker using his hands. The robotic can take longer verses the doctor using his own hands. I had the mini-thoracotomy which they had said was less invasive. I hadn't checked into the sternotomy or the mini-sternotomy prior to my surgery. My roommate in the hospital had a mini-sternotomy & my incision was the same size as hers. I was in more pain from the mini-thoracotomy then she was. I agree with Cassie. From everything I read, since they have to cut through muscle, nerves etc when doing the mini-thoracotomy, it can be more painful then the sternotomy. But apparently the recovery is suppose to be quicker with the Thoracotomy. I am only one month out & had so many other issues to deal with so I can't comment on that.
I would see what your doctor recommends, you do want them to have the best access to do their best job! It's all relevant in the grand scheme of fixing our hearts! You are going to a top doctor in this field. Good luck!
susan kotansky I had a mv replacement 7 months ago due to severe regurgitation. The plan was for repair and robotic ... Read more
susan kotansky I had a mv replacement 7 months ago due to severe regurgitation. The plan was for repair and robotic minimally invasive surgery....IF possible. When I woke up discovered that they went through the sternum because I was too small for side incision (the surgeon jokingly said, "Have you seen the size of my hands?"). I also had a valve replacement, not repair, as the damage to the valve was too great. In any case the incision never caused much pain, just discomfort. I have no regrets at all. I have had an excellent recovery and a cool scar that I wear with pride and gratitude. As someone already said, your surgeon will know what's best. My surgeon was one of the robotic pioneers and still ended up not doing it. I wish you well whichever method you have. The important thing is your well being.
Peggy Whitecotton I would go with what your surgeon feels is right for you and trust his decision. He is a skilled surg ... Read more
Peggy Whitecotton I would go with what your surgeon feels is right for you and trust his decision. He is a skilled surgeon. I was supposed to have a mini sternotomy but wroke up with a full sternotomy and 2 broken ribs It was the only way he could get a full view of my heart because I have a small chest and His plan had been to do a mini. A sternotomy was really not that bad, better I think then cutting through the muscles and nerves. I still had to sleep in a recliner but would have had to do that either way. The worse part was that first unexpected sneeze about 3 weeks post-op😂
Wanda Mroz I had a choice for mine. OHS or minimally invasive. Minimally invasive has a slight greater risk of ... Read more
Wanda Mroz I had a choice for mine. OHS or minimally invasive. Minimally invasive has a slight greater risk of stroke, requires a groin entry for the bypass machine which means two incisions. I also had two leaflets on my mitral valve needing repair which was tricky, and minimal takes longer than OHS too. I weighed all of these things and then asked my surgeon this question... If it were him or a member of his family, which way would he choose? He said OHS. I weighed it all and chose OHS because I listened to my gut. As it turned out my fix was difficult and the surgeon did it two different ways during the same surgery before it stopped leaking. My gut was right. So get all the facts, talk to the surgeon, and go with your gut. Truly the OHS wasn't as painful as I thought it would be. I had total shoulder replacement three years ago and that was far more painful to recover from. You'll make the right choice for you with your surgeon's advice.💞
Had a pacemaker installed August 2016 in San Antonio. Had continued tests and now the time has come to have mitral valve surgery due to severity stage. Sent ...Read more
Had a pacemaker installed August 2016 in San Antonio. Had continued tests and now the time has come to have mitral valve surgery due to severity stage. Sent all paperwork to Cleveland Clinic on Feb 24. Today Apr 19 finally got a surgery date for Jul 28.
Shannon Gray My experience with the C C has been completely different... Most efficient hospital I've ever experie ... Read more
Shannon Gray My experience with the C C has been completely different... Most efficient hospital I've ever experienced. I did have to wait to see my cardiologist there, and it did take a few weeks to get my spot scheduled with the surgeon once surgery was reccomended. Everything else went like clockwork. Good luck!
Richard Puckett I've been waiting to see a response to your inquiry. I, also, am waiting to hear back from the Cleve ... Read more
Richard Puckett I've been waiting to see a response to your inquiry. I, also, am waiting to hear back from the Cleveland Clinic on a surgery consult. My cardiologist had sent me and CC my records by regular mail. After I received my copy of my records, I checked with CC, and they hadn't yet received my records. So, I overnighted a copy of my records to CC. I also asked to have a particular surgeon review my records and was contacted by his assistant. They confirmed that they received my records, which is a little over a week ago. I am curious about the normal timeline. It would be nice to have a date set so that I can plan around it.
PJ Fugitt Richard-
Happy to see you got a date! Lucky you are ahead of me by one month with Dr. Gillinov. Just ... Read more
PJ Fugitt Richard-
Happy to see you got a date! Lucky you are ahead of me by one month with Dr. Gillinov. Just got packet from them this last week. Seems like a very slow process- at least for me. Not sure exactly what is happening on referrals to a cardiologist. When I received scheduling of appointments- initial contacted cardiologist was not on the list. Have a call in to find out what is happening.
Hope you have had better communication.
Hope heart rate and BP come back to baseline quickly, PJ.
May I ask, how did they get you through post op pain, if you can't take painkillers?
I have 2 lidocaine patches left to use for the pain from the incision after 3 weeks. Guess Tylenol it is!
The funniest thing I had happen in the step down room was a little [half an hour?] of Afib when my family was in the room. My mom who has afib, just turns green and the rest of my family just start staring at my monitor. The nurse saw them and just turned it around so they'd stop looking at it, as it's a totally normal occurrence and usually very brief.
As for your Tylenol, I actually laughed at the ICU nurse when she came with Tylenol the first time. I said "you just cracked my chest open and pulled it apart, and your are giving me tylenol?" I am surprised at how effective it is, though. I was bummed to give up the lidocaine patches when I was discharged but they were like $45 each and not covered by my insurance...crazy!
IF CC doesn't use morphine, what was was the drip in the green lock box I had the first few days? Was that the Fentanyl?
Regardless, glad you made it home safe and sound. I hope the rest of recovery is smooth sailing.
May your strength keep building and building, PJ. You sound like you're doing so well.
Have especially appreciated your sharing your journey as another TX girl planning the pilgrimage to CC on my own.