First Blessings to Everyone on this site. With out your inspiration, prayers, insightful wisdom, thoughts, and sharing I am not sure this ole single girl could have made this journey. I want you all to know that I never felt alone in Cleveland. It was such an incredible and amazing place. Lots of Walking Angels at the Clinic and at rehab plus two very very special Heart Warrior Women- Amy Dorsey and Bridget Fitzgerald Sawmiller! These two women brightened my journey and shined with all their Love and Light. Incredible to be able to meet them as a result of this site! Heart Sistas forever! If any of you ever get a chance to be in the same hospital at the same time please please make the effort to find one another. I can guarantee to you without a doubt it is life changing- emotionally, physically, and spiritually. Lots of Love to share.
Waiting now for home healthcare to pay a visit. For some reason my blood pressure and pulse have decided to explode with pendulum numbers yesterday for the first time! Happy I am going to see primary doctor on Monday. Rehab was a great decision- made climbing those stairs so much easier when I got home!! Learned how to do things differently and has made a big difference. Still have sternum pain. Only on Tylenol. Can't take painkillers which is just as well. One day at a time.
Blessings and prayers also to those of you who are about to have surgery. Just know there are a whole lot of us to cheer you on!!! Peace and Love.
Surgery 5 days ago. Starting Day 3 in step down. Stayed extra day in ICU due to pain meds - rolling nausea and completely out of it. Now in own room getting a little sleep. From reports all went well with OHS. Very very grateful to all of you and your prayers and wisdom for sharing. My brain is still a bit foggy so please bare with me. Cannot believe I am even writing this at the moment. Feeling very blessed to have now waken up on the other side. I know it is a very long journey- one of this lifetime but you all should now how you presence in this blog has sustained me. Gratitude and blessings to the doctors, nurses, caretakers, everyone who works at this hospital. The old saying is one moment, one day at a time. I do believe in God's grace especially at this time in my life. Today's goal is to wash hair, take a walk, any kind of shower or bath they will allow, and of course breathing!
Will check in later when I am up. xoxoxo
Well dear heart sister Amy Dorsey and other heart travelers- reporting to hospital at 5:15am. Open heart surgery. Cannot do robotics. Femoral artery too small and bypass would blow out plaque found on aorta and could reach brain for stroke. So going for 6 inch middle cut and try repair. If not pig valve. That is the update. Blessings and prayers to you Amy and all our heart families. Shine your lights beautiful ones! Can not believe tomorrow is the date- no wait it is already 12:08am. Today is the day. . .reporting in. Lots of walking Angels. We certainly are a tribe of Blessed Children upon this Planet Earth. xoxo
Spent the night in Short Stay for Cardiac. Great staff and nurses. All good news from yesterday's cath. No blockage. Hurray! And thank you to the excellent staff, nurses and Dr. Cho and Dr. Albert for their laughter of my stupid jokes to create less stress to me, their thoughtfulness for allowing me to say a prayer and blessing for all of us before the procedure. No problems but did somehow end up with a pull or strained muscle running down the left side of back. Very strange. Went from sharp 8-9 and now down to a 2-3 with all kinds of pain relievers and probably a dozen heat packs! But all is good. At peace.
Meeting with anesthesiologist 8:00am,
The CT scan with iodine contrast (allergy again but did excellent in cath lab with it), then meeting with Surgeon Dr. Gillinov to see if I have passed my test for robotics. Afterwards going to Vascular lab for test and to review bruit carotid artery. That is it for today. Looking forward to a feast before the biggest day tomorrow. Amy Dorsey if you are reading this- Happy Trails Heart Warrior Woman. It would be wonderful to see you heart sister or I should say daughter! I am old enough to be your Mom! On Monday when you make your way back to the clinic. You will know where I will be! Blessings to everyone who has posted and prayers be with each of you, encircled by the Light. Namaste- meaning for some of you- I honor the divine within each of you. xoxo
Where is Betty White? How I would love to meet her in Cleveland! Now she is a true inspiration!! She just makes me smile and laugh and giggle!
Getting it together to go to clinic for heart cath and spend one night due to iodine dye allergy.
Will post later how day unfolds like a lotus blossom. Sending Peace, Love and Light to All. Keeping the faith on this Heart Road knowing I am not alone. xoxo Patricia Jane
12:13am EST. Long Day 1. Exhausted and wide awake! Go figure. Began all my pre-testing. Little mix up on drugs and allergy scripts so ct scan with contrast delayed 2 days. Got to meet my Cleveland Cardiologist- Dr. Samir R. Kapadia- absolute dream comes true. A dearest friend- I call him many things but one is he is my heart patron. When all of this began he told me about his mother going to Dr. Kapadia and my own heart doctor went to school with him. First I was assigned someone else then refused unless Dr. Kapadia was my doctor on record and that he would watch over me on my leave from Texas. Was very incessant because in my being I knew this was true and what needed to happen- Ok short version- it did and it was very ethereal, mysteriously magical how Life unfolded today. After meeting with him I began my journey to find Amy Dorsey. That in itself was magical because doors and other people's hearts opened when I told them I was trying to find a fellow heart valve blogger on this site. It was amazing how many people in the "heart district" had not heard of this site. Well found Amy with some assistance I believe in the form of walking angels who led me to her room. The funny part- now no one could figure out how I knew her, that I was not related, did not know her address, phone, nothing! Sheer delight when we met. So happy that our paths crossed and we took a photo to prove all of this was real! She looked beautiful- counting she just had surgery last Thursday. I want you all to know Amy Dorsey is indeed a Heart Warrior Woman!!!!
Love is not written on paper, for paper can be erased. Nor is it etched on stone, for stone can be broken. But it is inscribed on a heart and there it shall remain forever.
Arrived yesterday with a beautiful rain over Lake Erie. Went to hotel, checked in and started to take a nap. Up since 3:00am and it was now 1:30pm. Decided instead to be adventurous and I would go to the Cleveland Mueum of Art. Experienced not only my first Uber ride, but 2 more to follow! If any one comes this way and has extra time before reporting in definitely recommend Museum- collection and building absolutely outstanding!!!
And great for calming the anxiety! So stayed in the present and enjoyed the beauty of the Lord's Day!
So now it is Day 1, Monday, July 24. Long time coming. Very strange how reality sinks in. One way for certain is seeing your photo on the wall of upcoming surgeries on this site. I repeatedly cannot say how comforting this site is. First appointment is 7:15am and somehow I got here at 5:45am. For a night owl this is pretty amazing!!!
Watching the sunrise over Cleveland Clinic! Later I am going to go find Amy if she is up for a visit.
Thank you all for your support. The way I feel about this journey is that so many of you have been on the road for quite awhile. I thank all of you for your support and prayers and thoughts and wisdom and just being here for all of us following up the trail. I truly believe the best cheerleaders are the ones who truly understand all of this because they have been through it.
I am a possible candidate for robotics but my lungs are not very strong these days so will have to wait and see what all the tests say. Peace, Love and Light be with each of you.
I am really not much for words but I felt maybe it is time to speak up. I have shared sporadically along the way since Feb when I first found this site after reading Adam's book- which I am so very eternally grateful to- like all of us. This blog is a God Send-through the Universe and brought to Light by Adam.
I guess I will say the countdown for me is on and finally has begun. Leaving San Antonio this Sunday, the 24th and surgery on Thursday, the 28. Since I am not married I am making this journey on my own. A choice which was hard but felt right about it from the beginning. I have a brother who will come for 2 nights and then he will be on his way. I have decided to do rehab for a couple of weeks and stay in Cleveland so that I can gain mobility and a touch of independence before going home and getting on jet plane. Live alone or with 3 cats and a few outdoor neighborhood pets I take care of. Found Cleveland Clinic has an out reach program for those transitioning from hospital to home. So that is the plan. Changed flights today so I am going to stay 2 extra weeks and try to build up some energy. I am originally from Oklahoma so I have to say God Bless Leon Russell. Prayers, Blessings and a Speedy Recovery to him following his heart attack. Sending All to you with the Light of Love. afterwords. So many walking angels on this site. God Bless xoxo
Had to take a break from all of this- have been re-reading everyone's posts trying to get all this to sink in. Thank you all for so graciously sharing your stories, excellent info and thoughts. A lot of gratitude. Will keep you posted. Still a long wait till July 28!
Until - Blessings to everyone and thank you Adam for creating this blog for all to share.
Now that I have a date in Cleveland with Dr. Gillinov and his surgical team I am on a countdown of anxiety. I have severe mitral valve regurgitation and prolapse and need a hole repaired. Hoping for robotic but just read on another hospital site open heart is required for severe patients. Perhaps I am getting overloaded with too much info. Picked Cleveland in hopes for robotic instead of cracking open chest- which they said I needed to take test to qualify. Anybody know what these tests are????
I am freaked out also by being allergic to all the iodine dyes for the cath, and for prep solutions on surgery- allergic to those soaps as well. Anyone else experienced this? Also coming from out of state by self- Any words of wisdom please!!!!
Had a pacemaker installed August 2016 in San Antonio. Had continued tests and now the time has come to have mitral valve surgery due to severity stage. Sent all paperwork to Cleveland Clinic on Feb 24. Today Apr 19 finally got a surgery date for Jul 28.