This day started out getting out of bed for the first time after surgery. It was a painful experience with a lot of drainage. I had no appetite and was only ...Read more
This day started out getting out of bed for the first time after surgery. It was a painful experience with a lot of drainage. I had no appetite and was only eating jello and ice chips. I was on a lot of strong medicines including Dilaudid, Tramadol, and Toradol. Dilaudid made me feel absolutely horrible. It dried my eyes and throat out so much. My eyes burned if I opened them and my throat was so dry it made me very nauseous. I vomited once during the day and again that night with a belly full of medicine and black bile.
I had my heart catheter taken out. This was the yellow tube coming out of my neck. It was 30-50cm long! This went through my neck into the right atrium into the right ventricle and then into the pulmonary artery. It could monitor my heart rate and hemodynamics from inside my heart. It was, surprisingly, not very painful to have removed.
I met with my physical therapist for the first time and went for a walk. I walked 50ft with about 6 short breaks. I was walking very slowly. I had a team of 3 ladies escorting me on my walk to assist me and bring along my machinery.
Getting into and out of bed was very painful. I think I got more sleep in the chair in the room.
Soggy Rodent I remember feeling completely traumatized trying to sit at the edge of my hospital bed. I had a chest ... Read more
Soggy Rodent I remember feeling completely traumatized trying to sit at the edge of my hospital bed. I had a chest tube and was very anemic. Getting into the chair was huge as was getting back into bed... I also remember throwing up, absolutely awful experience!... I cried a lot too... Ur doing great getting into the chair and going for a walk, no matter the distance! Sending u warm healing vibes smiles :)
Michael Neverisky I remember many tubes and wires... it took a small team of assistants to schlep the hardware so I cou ... Read more
Michael Neverisky I remember many tubes and wires... it took a small team of assistants to schlep the hardware so I could get to the bathroom! Your burden will be incrementally lifted as these things are removed over the next few days. I celebrate each disconnection with you! Wishing you a speedy recovery.
Lilly Black You are taking me back where I don't want to go! I hope it gets easier for you, John! it is very diff ... Read more
Lilly Black You are taking me back where I don't want to go! I hope it gets easier for you, John! it is very difficult, but hang in there and take one day at a time. I know getting in and out of bed is painful, and walking is hard, but it will get easier, and the walking is SO important! It helps with the recovery....I promise!
Rita Savelis It's hard, I hear you. I remember no appetite, I remember how much energy and effort it took to move ... Read more
Rita Savelis It's hard, I hear you. I remember no appetite, I remember how much energy and effort it took to move to the chair. I remember how uncomfortable I was. The hardware will go....and things will gradually get easier. But that first week! Take care John.
I showed up to the hospital at a bright and early 5am. I had to shower the night before and the morning of with a special soap that really dried my skin out. ...Read more
I showed up to the hospital at a bright and early 5am. I had to shower the night before and the morning of with a special soap that really dried my skin out. I waited in the lobby for about 20 minutes before being called up to the 4th floor. I was the first person checked in and got a private prep room. A nurse, Betty, arrived and started a full body shave from neck to ankle. Surprise! I was not expecting that. Another nurse, Shana, entered and started talking me through the morning and what to expect. She gave me a few shots and took some blood. She also applied this jelly like substance to the inside of my nose. We went over all of the paperwork one last time. They called a wheelchair for me and whisked me to the pre op area.
This was a large room divided by curtains. The anesthesiologist stopped by introduced himself and confirmed the surgery I was having. I then met my surgery nurse and gave her my wife's contact information so she could update them with how the surgery was going. A short time later she returned to take me back. I kissed my wife and took a deep breath. The operating room was very large and crowded, probably 15 people total. Lots of lights and tools. I wished my surgeons good luck and told them I would see them after surgery, as the anesthesiologist delivered his cocktail.
Blackness.
My wife received a call about 45 mins later letting her know I was all prepped for surgery and they were beginning now. 8:15am
Another call a while later let her know they were putting me on bypass.
2 hours later I was off bypass. The surgery took a little longer than expected. My bicuspid valve's flaps were large and needed trimming. When they closed my heart I had the usual trace leak, but when my chest was fully closed it removed all leaking. What fortune!
The surgeons visited my anxious family and told them about how well the surgery went and to go get some lunch while I was in recovery. 1pm
Total surgery time was about 5 hours. It would be another 45 mins in ICU recovery before my family could see me.
I remember coming to already forcing against my restraints. The breathing tube was the most uncomfortable thing I have ever experienced. It did not hurt. I just felt every reflex and fiber in my body telling me to remove this obstruction from my throat. Once I was fully concious they changed the breathing apparatus to operate in a completely assistive role. The respiratory doctor was caught up in a more serious case. She had to be present to remove the tube. I was stuck focusing solely on my breathing for 2 hours. My wife and mother held my hands and soothed me. I wanted nothing more than to speak to the nurse in the room to make sure everything was going well. I caught myself drifting into pleasant thoughts a couple times only to be interrupted with a command to keep breathing. The doctor made her way to my room and the tube was finally removed in a mix of coughing, gasping and a surprising amount of liquid. 5pm
The rest of this day was a blur into and out of consciousness. I was still on some strong sedatives and pain killers. I did my first breathing treatment and scored over 2000, due to the strong medicine I was still on. My wife stayed the night with me, as she did every night.
Gina Fiorentino Thank you for sharing. Wishing you ease and peace as you continue to heal and recover. I will keep fo ... Read more
Gina Fiorentino Thank you for sharing. Wishing you ease and peace as you continue to heal and recover. I will keep following your posts...
Anna Jones Thank you for sharing this information. It is so helpful to those of us coming up behind you.
Anna Jones Thank you for sharing this information. It is so helpful to those of us coming up behind you.
Best wishes for a smooth recovery.
Susan Killian Yes I really appreciate not feeling like I am going through this alone. Thank you for posting
Kathy Blank John- your journal will be something you read later down the road and will give you a great perspecti ... Read more
Kathy Blank John- your journal will be something you read later down the road and will give you a great perspective on your heart journey! It will
also help SO many others in their upcoming procedures! Hope you are feeling stronger every day and recovery is going well!
I am home doing great. The surgery went very well and my recovery is off to a good start. I had my family take lots of pictures throughout this experience and ...Read more
I am home doing great. The surgery went very well and my recovery is off to a good start. I had my family take lots of pictures throughout this experience and I will begin to share them with you all from start to finish.
Civita Fahey Good to hear..! Welcome to the other side!
Anna Jones Great news that you are home. Thank you for sharing your pictures and experiences for those of us be ... Read more
Anna Jones Great news that you are home. Thank you for sharing your pictures and experiences for those of us behind you on this road. Wishing you continued progress toward full recovery.
Don L Hi John! Great news fellow Texan....I am right behind you in a few weeks for my surgery, and really ... Read more
Don L Hi John! Great news fellow Texan....I am right behind you in a few weeks for my surgery, and really appreciate your posting updates and thrilled you are doing well! I really like that hospital.
Helen Daw Glad to hear you are doing well!! I guess I learned that when you are in good hands, there is nothing ... Read more
Helen Daw Glad to hear you are doing well!! I guess I learned that when you are in good hands, there is nothing to worry about. USA has the best medicine and doctors go through a very intensive training( I know,bc my son is one). For those with upcoming surgeries, I hope with our journals you get some encouraging and anxiety relief. Good luck!!
Clint Bayman I posted some of my pictures and experiences this past week (my surgery was Feb. 2nd). I'll be keepin ... Read more
Clint Bayman I posted some of my pictures and experiences this past week (my surgery was Feb. 2nd). I'll be keeping an eye out for yours. It's quite a journey, isn't it?
Maria Rios-Ramos Thanks for sharing. Hope you will continue to improve.
After a discussion with Dr. Ryan I learned about a procedure I did not know I was a candidate for. I am looking at this procedure and reading whatever published ...Read more
After a discussion with Dr. Ryan I learned about a procedure I did not know I was a candidate for. I am looking at this procedure and reading whatever published studies I can get my hands on. Surgery date has moved a bit closer to Feb. 5th. It seems most unintuitive that they can spare my valve and still use it even though it is bicuspid. My initial readings on this procedure do not seem great and I think I am still leaning towards the Ross.
I am getting all of my work absence squared away. I'm not sure they realize how close Feb 5th is. I am tired lately, very emotionally and mentally drained.
I am going out with my wife this weekend to celebrate her birthday and I look forward to having a break from everything heart related for a day.
Bonnie Stone-Hope Hoping you can get some much needed rest this weekend.
Shannon Gray Hi John! I had the valve sparing procedure, as my greater issue was the aortic aneurysm. I have a bic ... Read more
Shannon Gray Hi John! I had the valve sparing procedure, as my greater issue was the aortic aneurysm. I have a bicuspid valve, too. It’s been two years this Feb. They can only do valve sparing if the bicuspid valve is regurgitating... not stenotic. The reason behind valve sparing is so the patient can keep their native valve as long as possible, especially if you are young. ( I was 42 at the time of my surgery). Most skilled surgeons will not do this surgery if there is potential the patient would need a new valve within 5 years. Trust me... I feel like it’s a sword hanging over my head... waiting to see when that time for another surgery is needed. It’s hard, but in the end trust in your Dr’s, ask your Dr.s your “why’s”, too. They should be able to explain it to you. Wishing you all the best. Thankful you’ve found this site.
Gerald Poulton Valve-sparing does mean another operation down the road but the positive is, many more years before a ... Read more
Gerald Poulton Valve-sparing does mean another operation down the road but the positive is, many more years before a tissue valve or many years that you dont need to be on warfarin if going for a mechanical valve. Sometimes we just have to rely on the expertise of our surgeons.
Leslie Bakos Be strong mate...Make sure you have a full check-up as well...
Consultation with surgeon should be on Wed Jan 10th. Surgery set for Feb 8th, just a few days before my birthday, what a great birthday present this will be. ...Read more
Consultation with surgeon should be on Wed Jan 10th. Surgery set for Feb 8th, just a few days before my birthday, what a great birthday present this will be. I have only a few days to get ready for my meeting with the surgeon. What was the most valuable thing you learned while talking with your surgeon?
Rose Madura We had a list of questions but I believe he answered them all in the consultation. He drew a sketch o ... Read more
Rose Madura We had a list of questions but I believe he answered them all in the consultation. He drew a sketch of what he was going to do. That was very helpful. I wish I took it home with me. He drew it on the paper roll that you sit on! Best wishes. May your birthday bring better heart health to you. Please keep us updated.
Bonnie Stone-Hope Hope your consultation went well and all your questions have been answered.
Great that you have a d ... Read more
Bonnie Stone-Hope Hope your consultation went well and all your questions have been answered.
Great that you have a date for your surgery. Now you can plan and get ready.
Follow up with my cardiologist went well. My aortic root is now 4.2 cm. He is trying to find a surgeon in the area that still does Ross Procedure to see if ...Read more
Follow up with my cardiologist went well. My aortic root is now 4.2 cm. He is trying to find a surgeon in the area that still does Ross Procedure to see if that is an option for me. Timeline for surgery is still by the end of January(ASAP). Does anyone know if Dr William Ryan is still doing Ross Procedures?
Adam Pick John, You are on a great path for the Ross Procedure. I believe that Dr. Ryan is still doing the Ross ... Read more
Adam Pick John, You are on a great path for the Ross Procedure. I believe that Dr. Ryan is still doing the Ross Procedure. He's one of the best Ross Procedure surgeons I know of. Many patients from our community have had excellent results with Dr. Ryan. Here's some of our success stories.
There is nothing better than hearing from one of my readers after their open-heart surgery recovery is complete. Recently, I received a very nice note from M
Doug Atkins and his regurgitating bicuspid aortic valve appeared on my radar about three months ago. (To learn more about bicuspid valves, click here.) I was
CTA Scan done at Medical City Plano. Super easy process, friendly people, only issue was waiting for almost an hour after scheduled time. I follow up with my ...Read more
CTA Scan done at Medical City Plano. Super easy process, friendly people, only issue was waiting for almost an hour after scheduled time. I follow up with my Cardiologist tomorrow and hopefully get referred to a surgeon.
I have been having palpitations the last few days. Not sure if it is caused by anxiety but it is making sleep difficult.
Looking forward to knowing a date for surgery as soon as possible so I can begin to plan. Feels strange having everything up in the air for so long.
Now that I know I need this surgery done so soon i will be scheduling my CTA scan. Hopefully I am a candidate for the Ross procedure.
Don L Hi John, down the road from you in Denton and plan on going to Plano Heart Hospital as well. I met s ... Read more
Don L Hi John, down the road from you in Denton and plan on going to Plano Heart Hospital as well. I met several of the doctors through a Heart Valve clinic they had for future patients and was very impressed. Hoping for the best for yor CTA scan and looking forward to your updates.
Cheers,
Don
Kathy Blank Had mitral valve repair at THHBP and it is top notch!