Quick update! My recovery from BAV repair and ascending aortic aneurysm repair on 5/12 was going very well and I was walking 9000 steps per day and feeling well. Then I started getting more short of breath, initially with stairs and inclines, then just with walking across the room. I had a pleural effusion which we tried to treat with diuretics but eventually symptoms worsened. I was admitted back to the ICU at cleveland clinic for large pericardial effusion and large right pleural effusion. Almost 1000 ml was drained from my pericardium and the lung continues to drain. I’m feeling better now and looking forward to going to step down. What a crazy trip it’s been tho! Definitely has taught me not to take anything for granted and to be extra gentle with my body. Take care out there y’all!
Hi y’all 👋 I’m reporting back from a mini-sternotomy last Wednesday at CC with Dr Svensson and team. He repaired my bicuspid aortic valve and replaced my ascending aorta with a Dacron graft. I was in the ICU for two days because of a lack of beds o
Update posted on...
May 11, 2021
Tomorrow's the day y'all! Nancy Sells and I met today at Cleveland and we're in good spirits, anxious but ready. Appreciate all your thoughts, prayers and positive energy. Will post updates soon.
Second question of the day - for those who've already been through it, can you comment on any cognitive dysfunction you felt after OHS? What did you feel? How long did it last? Some call it "pumphead" and it's the thing making me most nervous right this second (3 weeks to go as of today - so I'm sure it will be something new in a few days)....
Hi All, I’m meeting my surgeon for the first time Friday. So far, all communication has been through the clinic nurse. I have a list of questions and am not sure how long he will be able/willing to spend with me, but just wondering if y’all have any advice for things to ask specifically of the surgeon ahead of time (maybe things you’d wished you’d asked or things that would have been good to know). Thanks!
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Hi y'all - I'm excited to have found this site and this community! I am scheduled to have surgery (aortic root and ascending aorta aneurysm repair - not sure of specific surgery yet) at Cleveland Clinic on 5/12. We are traveling from Chicago to Cleveland and plan to be there a few days before and for 1 month after surgery in a rental home. Would love to know what items people found helpful during recovery (I've already ordered a wedge pillow, button-front shirts and a few other things but would love to make sure that the home is ready to go for when I am discharged - God willing!) Any and all advice appreciated. Thank you!