Dylan's Posts

Update on Dylan. Dylan had the Ross Procedure done on July 19 and was in the hospital until the following Monday July 25 when he had his old pacemaker removed and a new one inserted. They discharged Dylan the day after from ICU. I was not prepared properly when we got home. A blood pressure machine and a thermometer was a "MUST HAVE" which we got immediately. Then I needed a notebook to keep track of medication times and vitals. Dylan was having a hard time keeping down his medications and started developing fevers and the left side of his body started swelling. The pharmacy was very patient me and my calls concerning his medication and symptoms he was having, as well as the on call doctors. It seemed like all h*#£ would break lose after hours. We brought him to the hospital clinic twice. And during the second visit they found out he had a blood clot (DVT) in his arm on the side of his pacemaker and he had fluid and inflammation on his heart which was causing his high white cell count and fevers. They ended up readmitting Dylan last week. His blood was not cooperating and he ended up having blood transfusions. After a week there they felt it was safe enough to discharge him yesterday. His labs are still out of normal range; he is still at risk for bleeding and infection. As they have him on Coumadin and his INR level is still high. He was taking 21 pills a day so hopefully he will be weening off most of them soon. Today he is walking to keep his blood circulated. He is breathing in his spirometer and so far holding down his pills. His temperature is normal but his blood pressure is a little high. He says he doesn't feel right. He has an appointment tomorrow with his primary doctor and Friday the Coumadin clinic. Please could you keep Dylan in your prayers?