Hi Mike, hope you are doing well. There is a person who recently posted questions about Mayo clinic. I couldn't think of your name at the time but it came ...Read more
Hi Mike, hope you are doing well. There is a person who recently posted questions about Mayo clinic. I couldn't think of your name at the time but it came to me last night. Can you find the recent post and reply to him. I think it would be helpful for him to get your good insight. Thank you...
Hi Mike, can u share ur experiences with chess or back pain/ discomfort at about 4 months post-op after full sterectomy, i have a mechenical OnX valve and aortic ...Read more
Hi Mike, can u share ur experiences with chess or back pain/ discomfort at about 4 months post-op after full sterectomy, i have a mechenical OnX valve and aortic root repair, i was supposed to get Echo done but got canceled because of coronavirus and dont know when they will start doing appointments again and would like to avoid going yo ER at all costs. If u can share ur experience and/or complications that u have experienced, it would be very much appreciated
Chris Calhoun Mike - lay on the bench and stretch before using any weight or even using the bar - you are going to ... Read more
Chris Calhoun Mike - lay on the bench and stretch before using any weight or even using the bar - you are going to have to open that motion back up and it will hurt and will be a process - I had a lot of trouble but can now bench press 135 again - pre surgery could bench 225 - I may never get back there
Chris Calhoun or better yet - YES I WILL GET BACK THERE !!
Mike Roskowinski Hey Alex - Sorry have not logged in for a little while been busy with kids at home and working. As f ... Read more
Mike Roskowinski Hey Alex - Sorry have not logged in for a little while been busy with kids at home and working. As for pain I really didn't have much pain. I only took medicine for pain the first 3 days I was in the ICU. I got C-Diff so I ended up being in the hospital a lot longer than I wanted and in the ICU for a long time. The times I had discomfort was when I was sleeping. I am a side sleeper so it bothered me at time with the incision. That if I remember went away probably after 5 months. As for working out it was a little weird feeling and tight when I first started back doing certain exercises. While in the hospital I also got a pacemaker installed since I had some issues with the communication between my chambers. So as the muscle was growing around the pacemaker I could feel it sometimes feeling like it was pulling off the pacemaker. That took sometime to start feeling normal. Otherwise I am back to working out and playing sports like normal. Since the lockdown I have picked up some equipment and still do my workouts at home. My bench is up to 185 but I am not trying to go heavy anymore. I am looking at more reps and less weight as it is better on the joints. I think if I went back to my old lifting routine I would be able to lift just as heavy as I did before all this started. Good luck in your journey Alex. Let me know if you have any other questions!
Alex Sigalov Hi Mike, thank u for sharing that. I get some discomfort in my chess sometimes and not sure if its pa ... Read more
Alex Sigalov Hi Mike, thank u for sharing that. I get some discomfort in my chess sometimes and not sure if its pain from sternum or muscle or chess pain; wanted to increase my expercise load but affraid before i have Echo done, but at this point dont know when that will be since noone is doing any appointments.
Mike, I’m blown away regarding the parallel nature of our stories: “Probable” bicuspid valve, and the...a unicuspid. The difference is a mere 30 years ...Read more
Mike, I’m blown away regarding the parallel nature of our stories: “Probable” bicuspid valve, and the...a unicuspid. The difference is a mere 30 years in age. Were you symptomatic? Was your doctor intrigued when he saw your unicuspid? Was your heart normal size? Glad you found it, considering the rarity of the valve. Adam posted a good article on it.
Best,
Herb
Mike Roskowinski Hello Herb - No I had no symptoms. I remembered that I had a heart murmur growing up and had an echo ... Read more
Mike Roskowinski Hello Herb - No I had no symptoms. I remembered that I had a heart murmur growing up and had an echo once before. So I turned 40 last December so I thought I might as well get everything checked before I turn 40. That is when they found out I had a bad valve and aneurysm. Just got lucky I would have to say. Yes they were surprised that I had unicuspid valve and they took pictures for me of it. But I still have not looked at them yet :)
Herb Greenberg Mike, I was thinking about your situation after I had a bout of some sleepy bowel syndrome. That’s ... Read more
Herb Greenberg Mike, I was thinking about your situation after I had a bout of some sleepy bowel syndrome. That’s an anesthesia-related complication that hits at least 50% of heart surgery patients… The older the more difficult it can become. And one way to treat it is with antioniotics, which can cause c=diff. And then they found an incidental abscess in my prostate, which they’ve never seen before in relation to heart surgery. Of course this isn’t something that occurred because of her surgery. It’s something I probably had a fairly recently or for very long time. And as a result of that now I have to figure out what to do… Because the last thing you want for the first six weeks is a heart issue as a result of an infection.So where as I thought I would be leaving the hospital today I’m now in a holding pattern of certainly several days until they figure out what to do but then I look at you and what you went through and how long it took… And look at you now!
Mike Roskowinski Yeah the CDiff was terrible. I ended up asking the doctors if my wife could bring me in food to eat ... Read more
Mike Roskowinski Yeah the CDiff was terrible. I ended up asking the doctors if my wife could bring me in food to eat since the food there was not helping. She brought in lots of yogurts and foods high in starch. Stouffers microwave dinners were pretty helpful. Getting those antibiotics from yogurt helped a lot. I was there for a total of 16 days due to the C-Diff complications. Try to get some food brought to you that is better than hospital food. I hope that it helps you through.
Mike Roskowinski Yeah the CDiff was terrible. I ended up asking the doctors if my wife could bring me in food to eat ... Read more
Mike Roskowinski Yeah the CDiff was terrible. I ended up asking the doctors if my wife could bring me in food to eat since the food there was not helping. She brought in lots of yogurts and foods high in starch. Stouffers microwave dinners were pretty helpful. Getting those antibiotics from yogurt helped a lot. I was there for a total of 16 days due to the C-Diff complications. Try to get some food brought to you that is better than hospital food. I hope that it helps you through.
Hi Mike, my name is Alex you have commented on my post before and have another quick question for you, i also had same procedure as u but only i am about 1 ...Read more
Hi Mike, my name is Alex you have commented on my post before and have another quick question for you, i also had same procedure as u but only i am about 1 months post op from OHS, i still feel like some bones in my chess are shifting if i move my arms certain way, especially toward bottom of the sternum. I was wondering if u had this experience and if yes how did it take to go away. It does not really hurt, but the discomfor is similar to knee cracking all the time but in the chess and feels very uncomfortable
Hey Mike thanks for replying about the pacemaker. I’m not 100% I will need it but I’ve been going in and out of AV block daily and it might be for a minute ...Read more
Hey Mike thanks for replying about the pacemaker. I’m not 100% I will need it but I’ve been going in and out of AV block daily and it might be for a minute or a few hours. Docs didn’t seem to concerned because I’m not having symptoms and when I do CrossFit I can run the rate up to 160 plus which they love. I just hate the feeling it makes me mad more than anything when it’s skipping around.
You said the first 4 weeks are bad? Like painful bad or just not able to workout etc. My moms friend said it was a non even for him. I just don’t want more pain...not right now 😂
Hi Mike, Thanks for the well wishes and right back atcha! I see so many young people on this site and it makes me wonder if the doctors are recognizing the ...Read more
Hi Mike, Thanks for the well wishes and right back atcha! I see so many young people on this site and it makes me wonder if the doctors are recognizing the need to act quicker than in my case. I waited until almost 30 years, barely being able to walk to the car, before my cardiologist said it was finally time for surgery. It seems as if doctors are becoming so skillful and the advances appear so rapidly, this surgery is totally routine. Not to say it isn't dangerous, and anything could go awry, but routine none-the-less. I look at all you young people and see wondrous things to come. I'm glad you are enjoying your full recovery - back to the good life. Good luck. Before you know it, you will be celebrating milestones and darn grateful to do so.
Hi mike, I read parts of your journal. Hope all is well. Thanks for your words of encouragement--I'm still a bit freaked out about this:)
Mike Roskowinski Yeah totally get it. Common thing you will hear around here is that the waiting is the hardest part. ... Read more
Mike Roskowinski Yeah totally get it. Common thing you will hear around here is that the waiting is the hardest part. It is a scary thing to deal with but there are so many of us out here that will tell you how much better everything is when you are done. This website was my saving grace since talking to real people going through it instead of asking Dr. Google to answer questions.
Question for Mike and anybody else who has had aortic surgery at Mayo-Rochester: How was the experience (aside from the obvious!)? I'm still in the waiting ...Read more
Question for Mike and anybody else who has had aortic surgery at Mayo-Rochester: How was the experience (aside from the obvious!)? I'm still in the waiting room with 3-month scans, and was pretty much focused on Cleveland (and Dr. Svensson) until flying out to Rochester the other day to visit some relatives, who are well into their 90s and live, breath anything Mayo. They obviously owe a lot to their care and long-life to Mayo.
When I told them about my issue, they insisted I consider Mayo, and put me in touch with a semi-retired cardiologist from there (really nice guy) who gave me a strong Mayo sales pitch. He also said that Dr. Pochettino is nothing short of outstanding with aorta-related surgeries; apparently it is all he does, and my one criteria is a doc who does aorta surgeries day-in, day-out.
I'll need a bicuspid valve replaced and an ascending aorta repaired. This doc, who was soften in the operating rooms during surgeries doing trans-esophageal procedures, made it sound as if Mayo is less of a "machine" that CC, given its midwestern roots. (I once lived in MInnesota, and my wife is from there, so I get it.)
Mike, you had a pretty rough go of it there. But would it have been different anywhere else? Was the C-Diff tied to Mayo? Did you have a mini- or full-sternotomy?
Thanks and continued success with your recovery!
Herb
Hi Mike. First so glad to hear about your progress so far. I had a couple of questions. First, I've known about my BAV since I was 5 and they have been watching ...Read more
Hi Mike. First so glad to hear about your progress so far. I had a couple of questions. First, I've known about my BAV since I was 5 and they have been watching it. the past two years my doctor really tried to limit my activity to hold off surgery. What is your heart rate when walking? Since coming off the amiodarone I feel like mine jump right up to the 90's. My resting rate is 55-62. I was a runner until age 30 when my doctor said I should just walk and hoping to get back to running ASAP. Did you have any A Fib after your surgery? How did that affect you when starting to work out.
Hi Mike. I'm brand new to the community, which I was very happy to find as I prepare for my surgery two weeks from today. Like you, I'm heading to Mayo for ...Read more
Hi Mike. I'm brand new to the community, which I was very happy to find as I prepare for my surgery two weeks from today. Like you, I'm heading to Mayo for the procedure and Dr. Pochettino is my surgeon. Overall were you happy with him and the hospital? I decided to travel to Mayo from Colorado because of the hospital's stellar reputation and the number of valve procedures they do annually. Also, we're from Wisconsin originally and have a lot of family there so mentally it's in our back yard. Coincidentally I was in Rochester in May for my consultation right around the time you were in there.
I've got to have my valve replaced and an aortic aneurysm repaired, so Dr. Pochettino is doing an aortic root replacement surgery and recommended an artificial valve (I'm 55). I think I'm going with the On-X too. I'm not excited about the warfarin or the potential to hear a ticking sound in my chest, but the thought of another surgery 10+ years out is very daunting to me. Do you hear the valve? I understand some people do, some don't.
Also, I see you're very active, as am I. It has been helpful to read about your recovery time/activity levels because the greatest unknown to me is how long the healing will take and how restricted I'll be. I'm afraid I'll be climbing the walls.
Lastly, your positive attitude is great! Thanks for sharing and continued success on your journey to full recovery.
Bradley Dunn I am not Mike but I will try to answer some of those questions (hope neither of you mind).
Bradley Dunn I am not Mike but I will try to answer some of those questions (hope neither of you mind).
I hear it clearly. I hear it more in some positions than others. I even swapped sides of the bed with my wife so I could hear it less based on how I sleep. I woke in the ICU hearing it. It was a little scary as I was supposed to get a repair.
I practice baseball with my kids 5 days a week. At the present time, I have bruises on my inner forearm, joints from swinging a bat too hard and from throwing too much. They are slight muscle tears that you wouldn't see if it weren't for the medicine.
My surgery was Aug 28th of last year. I finished 27 or so Cardiac Rehab sessions and I worked hard. A few times they told me to slow down as my blood pressure was getting too high (I was the only one in the room jogging at times). I threw a baseball in Dec and was on the field coaching a team in the Spring ( while all the healthy fathers sat in chairs watching)!!!
The On-X is the best choice due to your age and the INR levels it allows. There isn't another choice really. Do your research and I am thinking you will come to the same conclusion.
Mike Roskowinski Hey Erik welcome to the community. Yes the Mayo was great and Pochettino is awesome. Very nice guy a ... Read more
Mike Roskowinski Hey Erik welcome to the community. Yes the Mayo was great and Pochettino is awesome. Very nice guy and easy to talk to. I got C-Diff in the hospital and ended up staying there 2 weeks and also getting a pacemaker inserted. The entire staff at the Mayo was great and friendly.
As for the valve I agree with what Brad says. Yes you can hear it and so will everyone else when it is quiet. You get used to it. I have been out of surgery 10 weeks now and it does not really bother me. I tell my wife that at least she can hear me ticking and know my heart is still beating. I also went with the On-x valve as that is the best out there. They will recommend that one to you also when you meet with them.
As for exercise and being active that should not change. I started Cardiac Rehab 4 weeks after surgery. I am already jogging and running with official graduation date of 7/23. I walk 6-8 miles a day and lift weights for roughly one hour a day. Last night I went back to playing sand volleyball with my team and played all 3 games. I don't feel like I have any restrictions except for the 12 week weight restriction. They tell you not to lift more than 10 pounds for 12 weeks. The last couple of weeks I have increased my weight lifting little by little as I am 1 1/2 weeks away from being at 12 weeks. Now I am getting ready to go play golf! Good luck I hope you find information out here useful and feel free to shoot me a message anytime.
Carlos Banuelos Hi Erik, I too got the on-x valve. But I’m 44, not 55. If I was 55 getting the procedure done, I ... Read more
Carlos Banuelos Hi Erik, I too got the on-x valve. But I’m 44, not 55. If I was 55 getting the procedure done, I would consider a tissue valve bc in 10-15 years when you might need a new valve, they will able to replace your valve using the TAVR technique. That would likely give you about 30 years between the two balance surgeries. Anyhow, I think it’s something to consider and talk to your surgeon about. I immediately heard my valve when I woke up in the ICU and was told that I will always hear it, but that I should get used to it in the next couple of months. It has actually kinda lulled me to sleep the past 2 nights. Anyhow, good luck with your decision. Either way, I’m sure it will turn out well.
Erik Jensen Thanks guys! Very helpful. Yeah, I'm sold on the On-x. I've been researching the options and it seems ... Read more
Erik Jensen Thanks guys! Very helpful. Yeah, I'm sold on the On-x. I've been researching the options and it seems like the clear winner. I'm a sound sleeper too so I'm hoping the ticking won't be a bother. I'm sure I'll just settle into it like you guys have done. Thanks again for the input. I look forward to staying in touch!
Erik Jensen Hi Carols. I just saw your post. More than anything lately I've been struggling with the valve decisi ... Read more
Erik Jensen Hi Carols. I just saw your post. More than anything lately I've been struggling with the valve decision (tissue vs. artificial). I've contemplated exactly what you've suggested and will talk to my surgeon about it pre-op. When we had my original consultation back in May he was very straightforward about the artificial valve being my best option in his opinion. I think part of that decision was based on the fact I'm already on a blood thinner (Xarelto) because I had an AFib episode last Fall. With the On-x I'll have to move to warfarin but it's still a blood thinner. Tough decision!
James Martinez Hi Erik, have you considered a Ross procedure? I recently had a Ross Procedure as I wanted to avoid t ... Read more
James Martinez Hi Erik, have you considered a Ross procedure? I recently had a Ross Procedure as I wanted to avoid taking blood thinners. I know you mentioned you have AFib. Will the AFib be fixed during your valve replacement? I wonder if both the MAZE procedure and a Ross can be done at the same time? Perhaps this could get you off blood thinners completely. https://www.heart-valve-surgery.com/videos/atrial-fibrillation-valve-disease-concomitant-therapy
Learn important details about Atrial Fibrillation and Heart Valve Disease in this interview with Dr. Johnathan Philpott at Sentara Heart Hospital.
Carlos Banuelos Hi Erik, that makes sense. Yeah getting the on-x at my age was a no brained for me too. At end of da ... Read more
Carlos Banuelos Hi Erik, that makes sense. Yeah getting the on-x at my age was a no brained for me too. At end of day, it just has to be what you are comfortable with since you will hopefully have it the rest of your life. And having just gone through surgery, I don’t ever want to do it again. It’s amazing how incapacitated I am.
Rob Sparling Erik, there are other options that are compelling. I am 52 years old and had my aortic valve replaced ... Read more
Rob Sparling Erik, there are other options that are compelling. I am 52 years old and had my aortic valve replaced via Ozaki Procedure. Check it out, too. Whatever you choose will be right for you.
Hi Mike, thank you for posting updates. I am so glad to hear and see you doing so well in your recovery.
I'm 31 going in for a repair or replacement and ...Read more
Hi Mike, thank you for posting updates. I am so glad to hear and see you doing so well in your recovery.
I'm 31 going in for a repair or replacement and deciding on a mechanical or tissue. Which valve did you go with?
Thank you
Mike Roskowinski Hey Joe. I went with the mechanical valve as I did not want to have additional surgeries. I was tol ... Read more
Mike Roskowinski Hey Joe. I went with the mechanical valve as I did not want to have additional surgeries. I was told 9-15 years on the tissue valve. I take vitamins and supplements daily so taking warfarin for the rest of my life is not a problem. Go with the On-x valve. You will find information on this site about it.
On-X Prosthetic Heart Valves Safer With Less Warfarin The only aortic mechanical heart valve FDA approved with less warfarin >60% reduction in bleeding No increase in thromboembolism (TE) On-X Life Technologies is a leading manufacturer of artificial heart valve replacement and repair products. On-X aortic and mitral prosthetic valves are FDA approved and have been…
Joe Tarango Thank you for the quick reply. Your progress is inspiring. I'm nervous to be on blood thinners and n ... Read more
Joe Tarango Thank you for the quick reply. Your progress is inspiring. I'm nervous to be on blood thinners and not being able to be as active as I am now.
Hi Joe, I am 35 and went with a mechanical valve. My surgeon only offered the St. Jude. I was also ... Read more
Hi Joe, I am 35 and went with a mechanical valve. My surgeon only offered the St. Jude. I was also told that the tissue valve wears out quicker for younger patients so that I would almost certainly need additional surgeries. It's been only 4 weeks since my surgery so it's hard to say what the impact of being on blood thinners is. But, it was really hard to sign up for more additional surgeries. I'd rather deal with the dietary restrictions and the monitoring.
Peter Eglinton Hi, Joe. Deciding on a valve was one of hardest things for me. (Feel free to check out my journal.) I ... Read more
Peter Eglinton Hi, Joe. Deciding on a valve was one of hardest things for me. (Feel free to check out my journal.) In the end, the surgeon was able to repair my valve, so I do not have personal experience with either the tissue or mechanical valve. Good luck with your surgery. You've come to the right place for support and information.
Willie Radl I also went with the on-x at age 32. 1.5 years later and I have no regrets. As Mike mentioned for you ... Read more
Willie Radl I also went with the on-x at age 32. 1.5 years later and I have no regrets. As Mike mentioned for younger patients tissue doesn't last as long and I didn't want to be worrying about another surgery in a few years down the road. The Warfarin has not been an issue at all for me, I don't really pay attention to what I eat vit K wise or worry much about the INR. My numbers have been very consistent. Cuts and scrapes may bleed a little more than you're used to but it's not nearly as bad as some people make it out to be. The tick was annoying at first for a month or two but it doesn't bother me at all anymore.
Mike Roskowinski Hey Linda. Yeah it seems heart issues don’t care about your age. It was lucky that I found what I ... Read more
Mike Roskowinski Hey Linda. Yeah it seems heart issues don’t care about your age. It was lucky that I found what I had and was able to get it resolved so quickly.
Mike, thanks for the very helpful advice. I tend to run cold anyway so I will be sure to take warm sox, robe, pants with me to the hospital. I m thinking ...Read more
Mike, thanks for the very helpful advice. I tend to run cold anyway so I will be sure to take warm sox, robe, pants with me to the hospital. I m thinking ski sox. Maybe even ski gloves......
Hey Mike. Yes I had to get a pacemaker after OHS #4 in 2011. I have not had any limitations at all. I still do a lot of physical activity and cross fit type ...Read more
Hey Mike. Yes I had to get a pacemaker after OHS #4 in 2011. I have not had any limitations at all. I still do a lot of physical activity and cross fit type exercise. It just keeps my heart going. I used to only pace part of the time but I think after so many surgeries I now pace most of the time. My battery life is down to only a few years I think, but my doctor says he will know before I do that its time for a battery change. Glad to hear you are doing so good.
Mike Roskowinski Thanks Greg. Yeah I have read your story and it is amazing what you have been through. I was really f ... Read more
Mike Roskowinski Thanks Greg. Yeah I have read your story and it is amazing what you have been through. I was really fit and active before the surgery and I really want to get back to doing my normal things. I know it takes time to heal but patience is not one of my best attributes. 4 weeks on Monday so I guess i still have some waiting to do before I can get out and play some sports. Right now I am walking 5 to 6 miles a day. Thanks for the message and being such an inspiration
Hey Mike, sorry to hear you’ve had a few setbacks. Sounds like you’re on track to recovery now. You’ll be amazed at how much stronger and better you’ll ...Read more
Hey Mike, sorry to hear you’ve had a few setbacks. Sounds like you’re on track to recovery now. You’ll be amazed at how much stronger and better you’ll feel each day once you can really get into an exercise routine. Keep plugging along, buddy!
Mike Roskowinski Hey Chris. Thank you so much. Yeah it was a rough start to recovery but so far things are getting bet ... Read more
Mike Roskowinski Hey Chris. Thank you so much. Yeah it was a rough start to recovery but so far things are getting better. Walking a lot and finally got some metropol from my cardiologist and now my heart rate is settled down. I can finally sleep at night. Hope things are going well for you as it has been a long time since your surgery. I am ready for cardio rehab and getting back to normal activities.
Christopher May Yeah, 12 weeks tomorrow for me. I did cardio rehab, but had to cut it a few weeks short once I return ... Read more
Christopher May Yeah, 12 weeks tomorrow for me. I did cardio rehab, but had to cut it a few weeks short once I returned to work. It’s definitely worth it. I feel better and have more energy now than I have in several years. I’m on metoprolol too, but weening it down. I’m so happy that things are falling into place for you! Keep getting better. It’s summertime soon!
I’m sorry to read you’re having a bumpier road to recovery than you hoped for. I hope this is soon behind you, and all starts looking more positive in no ...Read more
I’m sorry to read you’re having a bumpier road to recovery than you hoped for. I hope this is soon behind you, and all starts looking more positive in no time. The human body is quite resilient, and has great capability to bounce back from trauma, so I trust you’ll start noticing improvement very quickly. Best wishes!!
Hello Mike,
So sorry you're having these issues. It's all a part of OHS recovery though. The thing is no one knows beforehand how their body will respond to ...Read more
Hello Mike,
So sorry you're having these issues. It's all a part of OHS recovery though. The thing is no one knows beforehand how their body will respond to the trauma of OHS until they actually have it done.
Everyone's experience is different and unique to them.
For some, recovery is a breeze. For others (such as myself), recovery has its bumps in the road.
The human body, however, is an amazing creation of God.
It is intrinsically by design resilient, adaptable, and restorative. You just keep pushing through this my friend and before you know it you'll be feeling better and enjoying your new heart health!
Look at it this way, the worst is over. The surgery. Now on to recovery and a strong new heart.
Peace and blessings to you!
Hi Mike, how are you doing? I know this a trying time. Keep your faith that God is going to get you through the bumps. Praying for you and your family.
Hi Mike, Psalm 23, Psalm 42. Kept me going. Jesus saying, “Let not your heart be troubled, you believe in God, believe also in me.” (Jn14:1)I’m feeling ...Read more
Hi Mike, Psalm 23, Psalm 42. Kept me going. Jesus saying, “Let not your heart be troubled, you believe in God, believe also in me.” (Jn14:1)I’m feeling for you, but, after reading your journal I can see you found your strength, and you will do great recovering. I’ve had to find a new normal. But, grateful I’m alive. Hang in there Mike! HVS web page is a great place to keep encouraged. Stay in touch!
Mike you have a long journey to take and some of the roads will have a few bumps to get around but you can do it. Your young you are determined and you have ...Read more
Mike you have a long journey to take and some of the roads will have a few bumps to get around but you can do it. Your young you are determined and you have good moral support. Just hang in there Good Luck always! I had mine done on Oct 22nd 2018.