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Diagnosis: Aortic Regurgitation, Mitral Regurgitation, Tricuspid Regurgitation

Member Since: August 14, 2017

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Paul Jenkins posted an update

7 years ago (May 27, 2019)

Has anyone here had heart surgery at the Mayo clinic Rochester in the last few years? I'd asked, in a previous post, if anyone had any experience with a specific Mayo surgeon but got no hits. So I'm now interested in general about any comments, experiences, issues people may have... Read more.

Mike Roskowinski

Hey Paul. I just had OHS at the Mayo on May 6th. I had Dr Pochettino as my surgeon and everything went great overall. My body went through a few issues while I was there with C Diff and complete heart block. Ended up with a pacemaker and a two... Read more.

Paul Jenkins

Sorry about the infection man! Looks like you're getting back to normal now. Thanks for the post and all the best for the future. - paul

Tom McDonald

Hey Paul, Will be having aortic valve replacement surgery June 5th at the Mayo. The experience has been great so far, second to none in my opinion.

Paul Jenkins

Thanks Tom - very best wishes for your surgery!

Marjorie Murphy

Yes. I had my aortic and mitral valve replaced at the Mayo in Rochesrer in September 2018 My surgeon was Juan Crestellano. He specializes in 2nd heart surgeries. My first OHS was also at the Mayo. The Mayo Clinic is the best as far as I am concerned.

Paul Jenkins

Marjorie - thanks I keep hearing good things about OHS at Mayo. BTW I looked at your story etc. and I can't believe that you are 76. Interesting that you had no symptoms prior to surgery since you appear to be quite active. Hope you have a brilliant future -... Read more.

Susan Lynn

Paul - There's an absolutely compelling documentary on the Mayo Clinic on Netflix. If you get a chance to watch it, you will see why this facility draws patients from around the world for their superior research and care. Best of luck!

Rose Madura

Yes, I'm glad you found this site. It was very helpful to me. All sounds familiar and trust your doctors. They will figure out everything. I was on so many different medications and now I'm on very few. It will all work out. Please keep us posted.

Paul Jenkins

Hi Susan, I've been visiting Mayo Rochester for a variety of things since 2001 and I can confirm that it's definitely a class act. I really like the way the docs involve you in the treatment planning and decision making process. However I've never had open heart surgery at Mayo,... Read more.

Paul Jenkins

Thanks Rose - I'm glad that you're doing better. I'll keep the updates coming as events unfold. Best wishes - Paul

Paul Jenkins posted an update

7 years ago (May 24, 2019)

hi guys, I have a bioprosthetic tricuspid valve installed in 2017. I've had problems since installation and following a bunch of tests at the Mayo clinic it turns out that my new valve doesn't open properly (stenosis). I Visited with one of their surgeons this week and he wants to... Read more.

Marie Myers

I am so sorry to hear of your latest complication. I hope someone can give you the info you are seeking.

Barbara Wood

I remember following your story Paul, you've been through so much! I don't know anything about Dr Cicek, but I wish you all the best!

Paul Jenkins posted an update

7 years ago (March 28, 2019)

Hi guys, Back in October 2017 I had my tricuspid valve replaced. Six months later I was still suffering from shortness of breath and reduced exercise capacity. After an extensive diagnostic journey, initially focused on suspected phrenic nerve damage, I ended up at the Mayo clinic. Two weeks ago they... Read more.

Catie B

I am just so sorry to hear this, Paul. You have been through the mill and I hate that a new, serious problem has cropped up. I have no experience but my heart goes out to you. Prayers for you.....

Don Brown

I have had 2 bovine tricuspid valve tranplants and i can tell u that after my second OHS i still felt bad and have been simce 2016. So i am in the hospital now with a new hearr team and looks like a third replacement might happen. It looks too... Read more.

Paul Jenkins

Catie - thanks I appreciate your kind thoughts.

Paul Jenkins

Don - seems like you're in a worse place than me buddy. I hope that there's a fix for you on the horizon. The guys at Mayo are looking at two options for my bad replacement valve, OHS, or valve in valve replacement through a catheter that does not involve... Read more.

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