How are you going, Yumiko ? I hope well. Best regards
Yumiko Ishida Hi, Fidel! I am feeling much better. Thank you for checking in! I had three of my five compression fr ... Read more
Yumiko Ishida Hi, Fidel! I am feeling much better. Thank you for checking in! I had three of my five compression fractures fixed and the remaining two are scheduled for next week. I am able to walk more now, except it is getting really hot already in Phoenix, where I live, so only in the morning. How are you doing? I see that you posted a photo from the Sierra Nevada. Is that recent? Are you in the US?
Fidel Martínez Ruiz Hi Yumiko.
I'm feeling fine (thanks God, as we say in Spain). No, I'm not in the US right
now. The Sierra Nevada is in Spain, near a city called Granada. In the US, I've
been to California, Buffalo, and New York, both on business and on vacation. I'm very glad you walk to strengthen your paraspinal muscles.
Yumiko Ishida Thank you! That makes sense - the Sierra Nevada mountains in the US must be named after the one in S... Read more
Yumiko Ishida Thank you! That makes sense - the Sierra Nevada mountains in the US must be named after the one in Spain
I have an appointment with Dr. Fang, at the end of this month. 👍❤️
Yumiko Ishida Dr. Fang is great! He was the first surgeon I interviewed and I was comfortable with him from the get ... Read more
Yumiko Ishida Dr. Fang is great! He was the first surgeon I interviewed and I was comfortable with him from the get go but interviewed another one just to make sure I was making the right choice before scheduling the surgery. I see that you have afib. I had afib, too, but none after surgery, which is extraordinary, considering how common it is post-surgery. I highly recommend Dr. Fang! I am happy to help if you have any questions. Wishing you a successful surgery, regardless of who you select.
Hello again, Yumico: I think you should walk every day
at the pace you can. That way you can lower your heart rate at rest. They
(doctors) have advised me ...Read more
Hello again, Yumico: I think you should walk every day
at the pace you can. That way you can lower your heart rate at rest. They
(doctors) have advised me to train, walking for at least an hour a day and
reach 105 to 110 heart rate.
Yumiko Ishida Thank you, Fidel! I try to get on my stationary bike. I know it's not the same as walking, but it's ... Read more
Yumiko Ishida Thank you, Fidel! I try to get on my stationary bike. I know it's not the same as walking, but it's easier on my back
Fidel Martínez Ruiz May I ask you what kind of problem you have in your back?
Yumiko Ishida I’ve had on and off lower back pain for over 30 years and it was diagnosed as ankylosing spondyliti ... Read more
Yumiko Ishida I’ve had on and off lower back pain for over 30 years and it was diagnosed as ankylosing spondylitis 4 or 5 year ago. That’s an inflammatory desease, so exercise actually helps, but last year I was experiencing a different kind of pain that came on suddenly and never went away. Most doctors I spoke to at the time just assumed it was my AS flaring up. After 7 months I got tired of having to take two types of pain medication every day and asked for imaging. It turns out I have 5 vertebral compression fractures.
Fidel Martínez Ruiz I think you have to do exercise, perhaps swimming or walking, because is beneficial in reducing symp ... Read more
Fidel Martínez Ruiz I think you have to do exercise, perhaps swimming or walking, because is beneficial in reducing symptoms, improving functionality, and maintaining overall fitness. Besides, it is very good (I you know for sure) for the health care. Kind regards.
Yumiko Ishida You are right. I used to just exercise when I had time, but recently decided I need to make time for ... Read more
Yumiko Ishida You are right. I used to just exercise when I had time, but recently decided I need to make time for it, and added it to my calendar as a way to commit to it. It is hard to stick to it, but I’m trying. I do feel better when I exercise. Thank you for the encouragement!
Thank you Yumiko for your information about mitral valve 2nd replacement (TMVR).In October 2024 I had implanted a biological bovine mitral
... Read more
Thank you Yumiko for your information about mitral valve 2nd replacement (TMVR).In October 2024 I had implanted a biological bovine mitral
prosthesis. Now I'm very well. I am a mountaineer and I continue practicing,
although sometimes I am afraid that "the valve is going to wear out"
before those 10 to 15 years of average life". I'm interested in knowing what
options there are when the valve wears out (if I still alive ). I am hopeful
that by then the TMVR or "valve in valve" procedure will be advanced,
but I have my doubts. Greetings to you.
Yumiko Ishida Glad you are doing well! It is hard to tell where the technology would be in 10-15 years, but we need ... Read more
Yumiko Ishida Glad you are doing well! It is hard to tell where the technology would be in 10-15 years, but we need to live our lives, right? Hope you get as much mountaineering done in the meantime!
I just want to let you know how thankful I am for all of your posts and replies to others. Have learned and am continuing to learn so much from this forum. ...Read more
I just want to let you know how thankful I am for all of your posts and replies to others. Have learned and am continuing to learn so much from this forum. Have a great day, week, month, year, decade(s)! ❤️❤️❤️
Hi Yumiko. I read your post on Melissa’s journal. My son also had chorea. I’ve never heard of anyone else with this. He had valve replacement last year ...Read more
Hi Yumiko. I read your post on Melissa’s journal. My son also had chorea. I’ve never heard of anyone else with this. He had valve replacement last year at 18 years old. It’s been a hard thing but he seems okay
Yumiko Ishida Hello, Sue. For most of my life I was told it is very rare, but there are many of us on this site tha ... Read more
Yumiko Ishida Hello, Sue. For most of my life I was told it is very rare, but there are many of us on this site that had/have rheumatic valve diseases. I am glad your son is doing okay after the surgery!
Hi Yumiko How are you? Looking at the older posts I remember you were trying to get the INR right coumadin blood thinner. How has that gone? I keep hoping ...Read more
Hi Yumiko How are you? Looking at the older posts I remember you were trying to get the INR right coumadin blood thinner. How has that gone? I keep hoping there's a good alternative to coumadin, but I guess there will be eventually. How did you surgery go in january? I see below that you said ok but recovery was slow.......
Yumiko Ishida Hi, Trygve! I think the dietary supplements approach helped. There was a time I had to be on 6 mg of warfarin a day, but was able to slowly reduce it to 2 mg and still be in the target INR range, which was 2.0-3.0 for me for the most time. So if you need warfarin / coumadin, there is no avoiding it, unfortunately, but there are ways to keep the dosage low.
I was on warfarin after going into afib, developing a clot, and having a stroke in 2022. I was out of afib after a cadioversion almost a year after the stoke, but was still considered high risk for a clot/stroke, so was kept on warfarin. My biggest fear was going back into afib, so I made sure I got the maze procedure and the left atrial appendage closed off during the OHS, and so far I have not had afib since the surgery! Because of the maze, LAA closure with AtriClip, and no recurrence of afib, my clot/stroke risk is considered low now, and I was able to go off warfarin three months after the surgery, once the new tissue valve sufficiently endothelialized and the echo came back clean. Even with maze there is a chance of afib recurrence, but the LAA closure is what reduced the clot risk considerably for me, since that is where the clot formed two years ago.
My recovery was / has been slow because 1, I developed a skin infection on my chest within a week of the surgery, and 2, foot injury and other muscular skeletal issues limit my ability to exercise. Infection is gone. My heart rate is still high, around 90 at resting, but that is much better than where I started so I know it will improve with time. ... Read more
Yumiko Ishida Hi, Trygve! I think the dietary supplements approach helped. There was a time I had to be on 6 mg of warfarin a day, but was able to slowly reduce it to 2 mg and still be in the target INR range, which was 2.0-3.0 for me for the most time. So if you need warfarin / coumadin, there is no avoiding it, unfortunately, but there are ways to keep the dosage low.
I was on warfarin after going into afib, developing a clot, and having a stroke in 2022. I was out of afib after a cadioversion almost a year after the stoke, but was still considered high risk for a clot/stroke, so was kept on warfarin. My biggest fear was going back into afib, so I made sure I got the maze procedure and the left atrial appendage closed off during the OHS, and so far I have not had afib since the surgery! Because of the maze, LAA closure with AtriClip, and no recurrence of afib, my clot/stroke risk is considered low now, and I was able to go off warfarin three months after the surgery, once the new tissue valve sufficiently endothelialized and the echo came back clean. Even with maze there is a chance of afib recurrence, but the LAA closure is what reduced the clot risk considerably for me, since that is where the clot formed two years ago.
My recovery was / has been slow because 1, I developed a skin infection on my chest within a week of the surgery, and 2, foot injury and other muscular skeletal issues limit my ability to exercise. Infection is gone. My heart rate is still high, around 90 at resting, but that is much better than where I started so I know it will improve with time.
Are you considering another tissue valve? Depending on your risk factors you may still need ro be on warfarin / coumadin, but hopefully you could find a balance.
Trygve Harris Dr Adams suggested a bovine one--the last one was porcine. I don't want the mechanical one. I see wha ... Read more
Trygve Harris Dr Adams suggested a bovine one--the last one was porcine. I don't want the mechanical one. I see what you're saying about warfarin being temporary. I just can't seem to do it. They say "the key is consistency." That's one thing I am not. I'm back on eliquis now, instead of warfarin, and also baby aspirin. I hope, of course, to not have to take any of it. But as I read today, radiation induced valve disease is a a bit different. Also, I had more radiation, although to the pelvis, not the chest, last year. Hopefully it will be ok. The valve took about 30 years to calcify I think, and I had the operation 37 years after the radiation, which was when it was discovered. I feel you about the muscular/skeletal issues that limit exercise. I have nerve damage, pain, weakness and numbness from taxol. My goal is to be able to go back to martial arts. Am seeing a nerve guy too. It's great to hear the ring (agri-clip?) dealt well with the afib. Afib is so scary!
Yumiko Ishida Glad you are able to take eliquis instead of warfarin. Heard it’s much easier to manage. I am with ... Read more
Yumiko Ishida Glad you are able to take eliquis instead of warfarin. Heard it’s much easier to manage. I am with you on mechanical vs tissue. Having been on warfarin for a couple of years, if I can avoid it, I will. I know I will need at least one more replacement in the future, but I am old enough so the choice was not too difficult to make. Mine is porcine, and so far no problems with the valve itself 6.5 months later. Hope your future bovine valve serves you well.
Having other medical issues does complicate things. I was on biologics, an autoimmune suppressant for certain kinds of arthritis, before my heart surgery, and had to pause taking it for several months. I imagine the situation is even more complicated if you have cancer and/or are experiencing side effects from cancer treatments. It’s going take time, but you will be stronger!
Trygve Harris Thanks Yumiko. Yes, Eliquis is way easier--you just have to take it, no other thought required. I don ... Read more
Trygve Harris Thanks Yumiko. Yes, Eliquis is way easier--you just have to take it, no other thought required. I don't think they thought it was ideal for me, but warfarin was a mess. The tissue valves are supposed to last "at least" 10 years they say........And I always think something else, some other breakthrough will come along soon enough.
Hi Yumiko, Thanks for your response. I see that your surgery was in January. How did it go. I hope you are well on your way to recovery. I am not sure ...Read more
Hi Yumiko, Thanks for your response. I see that your surgery was in January. How did it go. I hope you are well on your way to recovery. I am not sure what you believe about what I am about to reveal to you, but here goes. Last night I had a dream. I was walking passed a couple in Japanese grab. I bowed to them, greeted them in Japanese(I have traveled in Japan years ago). The couple returned the bow, greeted me and I walked on. This morning I awoke to read your post (which wasn’t there yesterday). I was stunned. Your post was the one that addresses my concern most directly. I have no rational explanation for the dream and then you reaching out to me. I have to think that more than coincidence is at work here. Wishing you all the best, Steve
Yumiko Ishida Thank you, Steve! My surgery was a success and I think I am doing ok, all things considered. I was f... Read more
Yumiko Ishida Thank you, Steve! My surgery was a success and I think I am doing ok, all things considered. I was forewarned that complete recovery will take a long time. I am glad my post was helpful. It is always good to hear from others that have gone through it as a patient, not just the expert physicians. It sounds like you are talking to the right people and asking the right questions, so I am confident John's surgery will be a success! I don't remember my dream, but we probably were talking in our sleep
Stephen Oelschlager I believe that too, Yumiko. All good thoughts and energy for a continued and complete recovery.
My friend had the same surgeon and MAZE procedure as you are having tomorrow. She was extremely happy with him and he is a wonderful surgeon. He is not... Read more
My friend had the same surgeon and MAZE procedure as you are having tomorrow. She was extremely happy with him and he is a wonderful surgeon. He is not known for the procedures I have coming up so I have a different surgeon who specializes in my diagnoses. I know your surgery will go well and I will be thinking about you tomorrow!
God Bless!
Daneen
Rose Madura Best wishes for a successful surgery and uneventful recovery. 👍❤️🩹
Hi Yumiko , Welcome Before I was discharged from hospital , I was checked by the physiotherapists that I was well enough to walk up a flight of stairs . At... Read more
Hi Yumiko , Welcome Before I was discharged from hospital , I was checked by the physiotherapists that I was well enough to walk up a flight of stairs . At home it will be your choice where you decide to sleep . Some people hire or buy reclining chairs and use them to sleep downstairs post op for a while .
Yumiko Ishida Thank you! I think what I am hearing is to take it slowly. I do have a reclining chair, so will proba ... Read more
Yumiko Ishida Thank you! I think what I am hearing is to take it slowly. I do have a reclining chair, so will probably use that until I feel strong enough.
I'm feeling fine (thanks God, as we say in Spain). No, I'm not in the US right
now. The Sierra Nevada is in Spain, near a city called Granada. In the US, I've
been to California, Buffalo, and New York, both on business and on vacation. I'm very glad you walk to strengthen your paraspinal muscles.