What made you feel better during your hospital stay after your surgery? Or better yet, what made you feel right at home? I would like to gather some things ...Read more
What made you feel better during your hospital stay after your surgery? Or better yet, what made you feel right at home? I would like to gather some things to make my husband's stay at the hospital as comfortable as possible. I thought of bringing a frame with our family photo on it, maybe a robe and some slippers. What do you all think?
Phyllis Petersen I had my sister bring me pajama pants and slip-on footwear for walking around in. I had my phone and ... Read more
Phyllis Petersen I had my sister bring me pajama pants and slip-on footwear for walking around in. I had my phone and a sudoku book, but I don't remember doing much while at the hospital. And she picked me up a cup of Tazo chai tea with honey and milk each morning when she came in, which is my favorite wake-up.
Cathleen Weed Photos of family are good to tape to the wall .... It personalizes a patient for the nurses ❤️. C ... Read more
Cathleen Weed Photos of family are good to tape to the wall .... It personalizes a patient for the nurses ❤️. Comfy soft pjs that button up the front are great. Ear plugs and an eye mask to sleep through the noise and light. Otherwise, it's pretty much just an uncomfortable experience that you just get through. Make sure he gets up and walks as much as possible! Dr Trento will make him do it 😉❤️.
Sasha Saldana Phyllis, that's amazing that your sister was able to do that for you :) I will probably get my husban ... Read more
Sasha Saldana Phyllis, that's amazing that your sister was able to do that for you :) I will probably get my husband a couple of puzzle books in case he gets bored. I'm sure he will be busy plenty though!
Cathleen what a great idea about the photos. I also love the ear plug & mask idea. I will be sure to encourage my husband to walk as much as possible (because Dr. Trento said so) 😉 since he probably won't listen to me haha
Cathy Zuber Great ideas!! Sasha, is yr Hubby interested in sports?? Take a TV Guide with you..baseball, car rac ... Read more
Cathy Zuber Great ideas!! Sasha, is yr Hubby interested in sports?? Take a TV Guide with you..baseball, car racing and Hockey playoffs to listen to on TV could help!!
Pat Bluemel I traveled really light, so that on check out day there wasn't more stuff to worry about. I also aske ... Read more
Pat Bluemel I traveled really light, so that on check out day there wasn't more stuff to worry about. I also asked all my peeps for no gifts to haul around. Must haves: eye mask, ear plugs, deodorant, basket ball shorts/PJ pants and my ipad. That was it!
Kathy Blank Top things for me- digital frame w family pics- eye mask and then my kids brought me my favorite flav ... Read more
Kathy Blank Top things for me- digital frame w family pics- eye mask and then my kids brought me my favorite flavor of popscicles. Used my phone just to communicate w close family and get online for this community- there are always questions that pop up right after surgery and my heart family always helped. I also needed the spiritual encouragement so my holding cross and heart shaped polished stone were on my bed stand. I did bring a fluffy robe w pocket and favorite slippers but only used them on last day in hospital. You need a pocket for the monitor when you are walking.
Civita Fahey to be honest what I valued the most was one of those neck pillows that you use for flying.. I had a ... Read more
Civita Fahey to be honest what I valued the most was one of those neck pillows that you use for flying.. I had a lot of neck pain and couldn't get comfortable in the bed so it really helped me..
Jeanette Davidson I agree ...I like the neck pillow also. I have one that you can heat up in the microwave that I got ... Read more
Jeanette Davidson I agree ...I like the neck pillow also. I have one that you can heat up in the microwave that I got at bed bath and beyond. The nurses would do it for me ...it was so soothing.
Phyllis Petersen I did bring a robe too. I forgot about that. My hospital gown had a pocket for the monitor, so that w ... Read more
Phyllis Petersen I did bring a robe too. I forgot about that. My hospital gown had a pocket for the monitor, so that wasn't an issue. Also, CC had masks and ear plugs available. Of course, I didn't read that until after I didn't need them. A neck pillow is a great idea.
For those with a mechanical valve, when were you required to start taking blood thinners? I have heard of people starting to take them a couple of days before ...Read more
For those with a mechanical valve, when were you required to start taking blood thinners? I have heard of people starting to take them a couple of days before their surgery. Is this true? Or did you start taking them immediately following surgery?
Tyline Scholle I was started a few days after my surgery in the hospital
Marie Myers During your surgery you will receive IV anticoagulants to keep your blood from clotting during bypass ... Read more
Marie Myers During your surgery you will receive IV anticoagulants to keep your blood from clotting during bypass.
My husband has to get two root canals one week before surgery! He's getting one done right now as I write this. The other one is scheduled for tomorrow. Anyone ...Read more
My husband has to get two root canals one week before surgery! He's getting one done right now as I write this. The other one is scheduled for tomorrow. Anyone had this done before their surgery?
Mary Rae Thewlis Hi
Sasha
My husband had to have MAJOR dental work done before his TAVR procedure. Many teeth pulled. ... Read more
Mary Rae Thewlis Hi
Sasha
My husband had to have MAJOR dental work done before his TAVR procedure. Many teeth pulled. Scary, but SO necessary before a new valve is put in. Apparently dental problems can be a major cause of infection before heart surgery.
Sasha Saldana Wow, Mary! I'm so sorry to hear that about your husband. Is he okay now? And did it affect the surger ... Read more
Sasha Saldana Wow, Mary! I'm so sorry to hear that about your husband. Is he okay now? And did it affect the surgery at all as in did it have to get delayed? That's my biggest concern with my husband getting a root canal a week before his surgery! I'm going to call the physicians office tomorrow and find out. I thought he was just going in for a cleaning. Plus he's on antibiotics now so not sure if that will affect the surgery in any way.
Mary Rae Thewlis It didn't affect the timing of the surgery-there was about ten days in between. The minute the teeth ... Read more
Mary Rae Thewlis It didn't affect the timing of the surgery-there was about ten days in between. The minute the teeth were pulled the gum infection was gone (that's what they worry about.)
It seems overwhelming at times, but you and your husband WILL get through this. Do be sure and check everything with your doctors, though.
Good luck
MaryRae
Jeannette McLaughlin Antibiotics are a lifelong safety measure once you've had OHS, whether it involves dental work or any ... Read more
Jeannette McLaughlin Antibiotics are a lifelong safety measure once you've had OHS, whether it involves dental work or any type of procedure - medical or otherwise - that could involve possible infection. As for having major dental work so close to surgery, I would check with the hospital if I were you. All the best to Sasha! :-)
Met with Dr. Trento yesterday! Hubby's surgery is scheduled for May 31st. Meeting was very brief. His assistant answered most of our questions and Dr Trento ...Read more
Met with Dr. Trento yesterday! Hubby's surgery is scheduled for May 31st. Meeting was very brief. His assistant answered most of our questions and Dr Trento was mainly there to go over what he was going to do. Dr Trento concluded that the On-X mechanical valve would be the best choice. Dr Trento did also mention my hubby would be on blood thinners for only a short while. Lastly, the thing that kind of scared me was that he said his leak is very bad so they have to intervene and get the surgery done right away. Not exactly what I wanted to hear but I suppose if it was extremely urgent, he would have had to do an emergency surgery. More updates to come. Looks like his pre-op tests will be scheduled for next week and then the surgery the week after that!
Hi. Wondering why the doctor said that your husband will only be on blood thinners for awhile if he i ... Read more
Hi. Wondering why the doctor said that your husband will only be on blood thinners for awhile if he is getting an On-X mechanical valve. I understand that a mechanical valve requires life-long anticoagulants ... a little lower for aortic valve than for the mitral valve. Take care.
Sasha Saldana Hi Janet! I was actually wondering the same thing. Dr Trento said the On-X mechanical valve will requ ... Read more
Sasha Saldana Hi Janet! I was actually wondering the same thing. Dr Trento said the On-X mechanical valve will require some anticoagulants the first few months and that he might not need to be on them for life or he may be able to lower his dosage after the first few months. I hope you are doing well!
Shawn Taylor I have an On-X aortic valve Sasha and expect lifelong warfarin until someone tells me different, but ... Read more
Shawn Taylor I have an On-X aortic valve Sasha and expect lifelong warfarin until someone tells me different, but the target inr levels are lower after a few months. And in terms of his schedule, the waiting is really tough, so look at the quick surgery as a positive!
Sasha Saldana Hi Shawn! I'm not too sure if that's what he meant or maybe that he would get a lower dosage after a ... Read more
Sasha Saldana Hi Shawn! I'm not too sure if that's what he meant or maybe that he would get a lower dosage after a few minutes months. And yes the waiting game is hard!! Thank you for your positive words, I will try and keep myself busy these next couple of weeks!
Phyllis Petersen Definitely better to get in there and get it done. The waiting is stressful. All the best for no surp ... Read more
Phyllis Petersen Definitely better to get in there and get it done. The waiting is stressful. All the best for no surprises in testing and successful surgery for your husband.
Sasha Saldana Thank you, Phyllis! 🙏💛 Hope your recovery is going smoothly.
Roger Perkins It's my understanding that the ON-X requires life-long Warfarin. But, at a lower dose after 3-4 mont ... Read more
Roger Perkins It's my understanding that the ON-X requires life-long Warfarin. But, at a lower dose after 3-4 months. ON-X valve *seems* to be the mechanical valve of choice these days. And, yes, the waiting is the absolute worst part. First week post-op. is usually the hardest after the surgery. Sure things will be fine.
I'm a nervous wreck it seems ever since my husband's aortic regurgitation diagnosis. Sometimes, it feels like I'm the one going in for surgery because I'm the ...Read more
I'm a nervous wreck it seems ever since my husband's aortic regurgitation diagnosis. Sometimes, it feels like I'm the one going in for surgery because I'm the one freaking out over everything while my husband tries to calm me down. Tomorrow is his meeting with his surgeon, Dr. Trento from Cedars Sinai. What's the first meeting like with the surgeon? Do you just go over symptoms? Maybe even establish a surgery date? I'm so thankful for this community. You all have been a real inspiration & you are all warriors! Thanks so much in advance.
Phyllis Petersen I didn't meet the surgeon until two days before surgery! At that point, he went over all the test res ... Read more
Phyllis Petersen I didn't meet the surgeon until two days before surgery! At that point, he went over all the test results, both at his hospital and with my cardiologist at another hospital, made sure I understood the information and my choices, including what would happen if I didn't have the surgery. He was very thorough. Dr. Trento has a great reputation, so I expect he'll put a lot of your fears to rest (there will always be some) and help you and your husband through this process.
Rose Madura Hi Sasha. We didn't meet the surgeon until I was cleared with a Cath from my cardiologist. The meeti ... Read more
Rose Madura Hi Sasha. We didn't meet the surgeon until I was cleared with a Cath from my cardiologist. The meeting was a discussion about what was wrong and how he would fix it. He drew a sketch for us which was helpful. He discussed valves and the pros and cons of tissue vs mechanical. His office called a couple days later to schedule the surgery. The hospital also called to schedule tests ordered by the surgeon.
Civita Fahey It's harder on the family I think. We as patients eventually accept what needs to happen as we have n ... Read more
Civita Fahey It's harder on the family I think. We as patients eventually accept what needs to happen as we have no other choice. The family) husbands, wives) try to be strong but they have even more fear of being left alone. Meeting with the surgeon is your chance to ask any questions you have and gain your confidence in the surgeon. Write down all the questions you have, there's never a stupid question. They expect you to ask and they give you their knowledge and opinion. Tape it if you need to. Take as much time as you need with him/ her. If they don't give you the answers you feel are right get another opinion. I got 3 before I decided on my surgeon. They all had the same info I just needed to find the one I felt comfortable with and I made the right choice. Best of luck.
Sasha Saldana Phyllis- Wow, only two days? Did you stay at a local hospital? And thank you for your comforting word ... Read more
Sasha Saldana Phyllis- Wow, only two days? Did you stay at a local hospital? And thank you for your comforting words. We keep hearing great things about Dr. Trento, so hopefully he will put some of our fears to rest.
Rose- Thank you for your response, Rose. Things seem to be moving along quickly for you on your end! What valve did you end up choosing?
Civita- I couldn't have said it any better, that's exactly how I'm feeling. Thank you for the tips, I will surely take my time and ask questions! How is your recovery going? Hope it's going smoothly for you.
Rose Madura Hi Sasha, We ended up choosing a tissue valve which at my age of 59 seemed the best choice. They can ... Read more
Rose Madura Hi Sasha, We ended up choosing a tissue valve which at my age of 59 seemed the best choice. They can last 20+ years now and you don't have to go on warfarin. I will be getting the Magna valve made by Edwards. I wish you and your husband the best and will be praying peace for you both. It is an emotional ride for sure.
Civita Fahey Hi Sasha.. Thankfully my recovery is going very well, of course I would like it to be faster but I kn ... Read more
Civita Fahey Hi Sasha.. Thankfully my recovery is going very well, of course I would like it to be faster but I know it takes time.. every day gets better and I do things that the day before made me tired.. so, one step at a time. I also got a tissue valve at 55.. I felt that at this point in my life Coumadin was not for me.. I don't like the idea of another surgery but I feel that technology is much further along than we think and my surgeon said that within the 5 years or less TAVR will be the gold standard so I went with that.. If not, then another OHS which I'm sure will even be more routine than it is now.. best of luck.
Phyllis Petersen Hi Sasha, I traveled from Tucson to Cleveland, so my cardiologist was in contact with Dr. Gillinov an ... Read more
Phyllis Petersen Hi Sasha, I traveled from Tucson to Cleveland, so my cardiologist was in contact with Dr. Gillinov and did a lot of testing here. I wasn't sure at first how I was going to arrange pre-surgical testing at the hospital and the meetings with the anesthesiologist, nurses, and the doctor, so I chose to do it all on the two days before surgery. It was a little insane. In the end, I came early and spent time with family about 1 1/4 hours south of the hospital, which was a real blessing. Plus, I was able to spend time at my cousin's after surgery too, so had a little leeway before flying home. I had heard a lot about Dr. Gillinov, and he was texting with my cardiologist, so I felt comfortable I would have few problems.
Question: Was your heart already dilated before going into surgery? My husband's left ventricle and left atrium are already dilated quite a bit and I just want ...Read more
Question: Was your heart already dilated before going into surgery? My husband's left ventricle and left atrium are already dilated quite a bit and I just want to know if any of you have experienced this while you were waiting. My husband will meet with Dr. Trento from Cedars Sinai next week! Hopefully we can get his surgery scheduled soon.
Much prayers to you all. Blessings.
Phyllis Petersen I think it was my left atrium. It went back down right after surgery.
Cathleen Weed Yes my left ventricle was very dilated as well the left atrium. That is from the pressure of the blo ... Read more
Cathleen Weed Yes my left ventricle was very dilated as well the left atrium. That is from the pressure of the blood pumping incorrectly through the valve. Dr. Trento was my surgeon also and he is amazing! All went back to normal after my heart surgery ❤️.
Steven Dean my left atrium was pretty dilated. By 8 weeks post op it was back down.
This is very encouraging to hear about and enlarged atrium and ventricle returning to normal size aft ... Read more
This is very encouraging to hear about and enlarged atrium and ventricle returning to normal size after valve surgery. Thank you for posting your question Sasha and best wishes fora good meeting next week.
Henry Brouwer My left ventricle was also dilated prior to my AVR surgery.
Sasha Saldana Thank you all for your input! It really helps us :)
It's been a while since I last posted, but it looks like my husband was able to get into Cedars-Sinai in Los Angeles. We are meeting with his primary care physician ...Read more
It's been a while since I last posted, but it looks like my husband was able to get into Cedars-Sinai in Los Angeles. We are meeting with his primary care physician tomorrow morning to figure out the next step. It's been a slow process as we were going back and forth with his insurance company as well as running additional tests on him. Also, his surgeon will probably be Dr. Alfredo Trento. Did any of you have him as a surgeon? What was your experience like?
*My husband was diagnosed with severe Aortic Regurgitation January of this year.
Cathleen Weed Dr. Trento did my surgeries ❤️ He's the best and so is Cedars Sinai!
Adam Pick Hi Sasha, So you know, Dr. Trento has helped MANY members in our community, right Cathleen. :) Here's ... Read more
See patient reviews, physician biography, videos and contact information for Dr. Alfredo Trento, heart surgeon, in Los Angeles, California.
Sasha Saldana Oh wow. So good to know! Thank you Adam and Cathleen! We met with my husband's PCP today. She referre ... Read more
Sasha Saldana Oh wow. So good to know! Thank you Adam and Cathleen! We met with my husband's PCP today. She referred us to Dr. Trento this morning so we are good to go it looks like! Just playing the waiting game :)
Hi everyone. So we just found out a couple of months ago that my husband is going to need surgery to replace his aortic valve which is severely leaky. From ...Read more
Hi everyone. So we just found out a couple of months ago that my husband is going to need surgery to replace his aortic valve which is severely leaky. From your experience, is it best for him to get his surgery in our hometown in a standard hospital or travel out of town to do his surgery at Cedars-Sinai? The convenience of getting it done here in our hometown is that he will be nearby and I wouldn't have to drive 2 hours back and forth just to see him. The other upside of getting it done in LA is he will be operated by the best of the best. My husband is only 31 and the doctor found a murmur during a routine check up. My husband's primary doctor thinks he should be fine staying in town for the surgery. But since his brother works at Cedars, he wants us to do it there. Any thoughts/prayers are appreciated as we begin to start making some important decisions. And wishing you all a speedy and mighty recovery!
Phyllis Petersen You really needed to explore the surgeon and his experience with this particular surgery. I chose to ... Read more
Phyllis Petersen You really needed to explore the surgeon and his experience with this particular surgery. I chose to travel halfway across the country to have the type of surgery I wanted (robotic mitral valve repair) with the top surgeon. My sister would have liked me to have it done at her hospital, which has fine doctors, but they most likely would have done a sternotomy, which I had hoped to avoid. My cardiologist at her hospital was extremely supportive and helpful. I did most of my initial testing and my follow-up cardiac rehab at my local hospital. It's a tough decision, but it may be worthwhile to have the best surgeon, plus the input of your brother-in-law and his involvement.
Lynda Ruiz I'm glad you chose a more "expert" Dr and hospital. If insurance and ability to travel are OK, I'd s ... Read more
Lynda Ruiz I'm glad you chose a more "expert" Dr and hospital. If insurance and ability to travel are OK, I'd say go for the best. That's what I did. I came to TX from AZ (I do have family here) and in that consult with the surgeon I found out I had a condition, that will also be addressed in surgery, that wasn't even aware of.
Cathleen what a great idea about the photos. I also love the ear plug & mask idea. I will be sure to encourage my husband to walk as much as possible (because Dr. Trento said so) 😉 since he probably won't listen to me haha