Marie's Posts

Diagnosis: Aortic Regurgitation, Mitral Regurgitation, Tricuspid Regurgitation

Member Since: August 21, 2016

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Marie Leighton posted an update
9 years ago (December 1, 2016)
First thank you all so much for the prayers and concern. I'm here at Mayo in MN. It is the most amazing medical complex I have seen. The level of precision and care was inspiring. Yesterday I had the most comprehensive and impressive echocardiogram of my life, and I have... Read more.
Wow, Marie! That is very, very impressive. I'm so thankful to hear after the difficult times you had in the last few weeks, that the outcome is now so positive. And that you found doctors you can trust. Wonderful!
I feel like you found the best level of care you can get! That's so important to feel good about and have confidence in your team! It makes a world of difference in the whole experience and recovery. Alrighty my friend, you are getting closer to the other side.....imagine in... Read more.
I'm glad that you have found peace and confidence with the doctors there. How will you be monitored going forward to make sure you know when the time is right?
Marie Leighton posted an update
9 years ago (November 5, 2016)
For those of you having surgery on Monday and Tuesday: may God keep you in perfect peace, guide each surgeon's hands and thinking, and bless the patient and the entire care team. I pray for a quick and complete recovery, an excellent inpatient experience, and a happy and fulfilling life... Read more.
I am not having surgery but an angiogram on Tuesday and you just gave me s smile and a sense that I am not alone. 💖
Thanks Marie. Confident and optimistic about the future.
Patti, you are never alone in this group. We are all in this together. I did have the angiogram already, it was not bad at all.
Marie Leighton posted an update
9 years ago (October 19, 2016)
Well Dr Gillinov is going on vacation tomorrow and I no longer have a surgery date, a surgeon. Or a hospital. He has decided that "trust has been compromised" and if I am lucky he will suggest another surgeon, possibly NOT at Cleveland clinic. All this because my poor frustrated... Read more.
What??? That's terrible!!!! I think you should absolutely not go back to CC. There are many, many more wonderful surgeons and hospitals. I know that will be rough on you at first, but you need to put your absolute trust in this person and that includes every member of his... Read more.
What on earth happened? I feel so badly for you. I had such a wonderful experience at CC and it makes me sad that you have had this happen. Seems like Dr Gillinov, being the renowned surgeon that he is, maybe has gotten a little haughty. There are many excellent... Read more.
OMG! How horrible for you! I can't even imagine what you're going through. I just saw your post below that you were pushed back, but this is insane.
Wow! How uppity is that? There are many hospitals and surgeons that are highly trained to do these surgeries. They don't hold the only knowledge out there. I think it's pretty irresponsible to leave someone hanging who needs surgery. I truly lost respect for CC. TOTALLY UNACCEPTABLE. I'm praying you... Read more.
Wow that is unacceptable! being in healthcare, the patient comes first and always first!. I would definitely bring this up to the Chief Medical Officer or whomever heads the CC.. There are many, many hospitals in this country that could and would do your surgery and would understand frustration from... Read more.
Still not sure what we are going to do. Can't get a flight home until Saturday. This morning The nasty mean staff member grudgingly gave us the name of another surgeon we never heard of, who's list of experience says nothing about open sternotomy
As it turns out Dr Gillinov is leaving this afternoon for this sudden vacation. Right now however someone slipped and told us What they didn't want us to know: that he is in the OR doing another persons surgery this morning! His team is now hanging up on us when... Read more.
Marie, do not have your surgery there! Get on that flight and put CC in your past. There is too much history. Gillinov and CC might have a great reputation, but clearly he isn't the surgeon for you. Please find one that will listen to you!! This website is full... Read more.
I am soooo sorry, Marie! My heart aches for you.
Wow, Marie, that is awful! You have had such a road. I think it would be hard for you to trust Dr. Gillinov at this time, so you probably should seek a different surgeon. There are other great valve surgeons at CC and elsewhere. I cannot imagine what you are... Read more.
Please know that we are all in your corner
To be this close and then have such a wall put before you is heartbreaking. It's even worse that they are not trying to work with you. Praying that solutions are found and you can move forward.
At this point we are making plans to get home as soon as possible - Saturday- and to pick up again with Mayo Clinic who I had also originally sent my records to. We have been diverted, given conflicting information, avoided, put off, and spoken to in a most disrespectful... Read more.
Thank you all for letting me vent and cry, I will keep you posted on new surgery pace and date. 💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔💔
I wouldn't necessarily say anyone else would have the same experience. I hope sincerely that they do not.
I've known from other experiences in my life that sometimes one person can create an avalanche of problems and attitudes that you just can't seem to get out from under. It's especially hard when you're new to them and their staff member is part of the fabric. I'm shocked how... Read more.
Sounds like CC is getting too big for their britches. I'd look at Mayo in Rochester MN- I'm having a consult there in a few weeks. They're ranked #2 in the nation for Heart Valve surgery right behind CC. You may also want to look at Minneapolis Heart Clinic headed... Read more.
why not try to find a doctor and hospital near las vegas you will save alot of money on travel and might be better off i was thinking about john hopkins but i decided on prmc in salisbury md because it was alot closer to home and now i am... Read more.
Wow Marie. So sorry to read about your situation. Definitely time to put CC behind you for now. Concentrate on what you need - Mayo is a great option. Deal with CC after your surgery. Put your energy into positive thoughts and get ur done. This is a hiccup -... Read more.
I love my ❤️Brothers and sisters - each of you have helped with your insights and I will keep you posted.
He is an inhumane and heartless person who isn't living up to the oath he took. But Marie rest assure he just stirred up a spell for himself. It's called Karma. It will be taken care of by the universe. You just worry about yourself. Like our friends are saying... Read more.
My surgeon is Dr. Kevin Greason of Mayo Clinic Rochester Minnesota. You can look him up on YouTube...😉
Chris thanks for the MD suggestion, I will research that MD. I guess the biggest thing I have to pass on would be to ask "what is plan B?" Ask what happens in case an emergency comes up.
Oh I'm so sorry to hear this...frustrating to say the least!
I want to end this string on a positive note. First thank you all for the incredible support. This blog is amazing. Next, I want to stress that, until things went wrong, we were mightily impressed with CC and Dr Gillinov. CC medical functions like an incredibly well oiled machine.... Read more.
Good luck to you Marie and do keep us posted as to what you end up doing. I wish you the very best.
You've had a rough call with this one Marie, try to see the positive and convince yourself your next choice will be better. It can't be easy when you know your condition and people you have to trust with your life turn against you. So much for Medicinal Oaths! Bur... Read more.
After meeting you and your husband, it was a shock how things turned out for you. I very much enjoyed chatting with you and I know my sister thought well of Danny. I will continue to keep you in my thoughts and prayers. Hopefully, you can get back on track... Read more.
Thanks everyone. You are all the best. My new surgery is scheduled now for December 2 at Mayo Clinic in Rochester MN. They have really bent over backwards to reassure me, they really seem to understand my fears, old and new. God has multiple reasons for everything, including my experience.... Read more.
DEAR LORD BE WITH MARIE AND HELP HER THRU THIS JOURNEY AND GIVE HER THE PEACE AND COMFORT SHE NEEDS FOR THIS SURGERY AND RECOVERY AMEN
Yay! I'm so glad you have a new date and can soon get this behind you. It's awful to have to travel twice. Will Mayo take a lot of the tests that were already done at CC?
Thank you for that beautiful prayer Steven! You are a special messenger on this blog.
Phyllis, they will redo the ultrasound and I think the chest X-ray too. Thankfully not the angiogram.
I'll be praying that everything goes smoothly now and that you have a successful surgery and an easy recovery.
I'm thinking of you tonight, Marie. I hope all went well. Please let us know how you are as soon as you can.

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