Hi all, almost six weeks since my aortic valve replacement. All my vitals (bp, pulse ox, heart rate) have been normal for weeks, and even stopped the weekly ...Read more
Hi all, almost six weeks since my aortic valve replacement. All my vitals (bp, pulse ox, heart rate) have been normal for weeks, and even stopped the weekly in-home nurse visit two weeks early because that is going so swimmingly. Saw my cardiologist last week and got a clean bill--valve sounds great, no fluid in lungs. Got the OK to drive and even go back to work, not just behind a computer but also bartending. So that's nice. He said to take it easy with lifting anything heavy for a while, which is fine. Said to see him again in a couple of months.
Did my stress test yesterday as a baseline for the upcoming cardiac rehab. Still have some sternum pain, but take only Tylenol or Advil; been off the oxy for weeks. Doing my full walk in the morning, which is around 7,000 steps. Before surgery, I would have to stop because of shortness of breath and burning sensation in chest. Have none of that now. So it's going about as good as can be expected.
The only thing I wonder is when will I get back to "normal." Doc said I'm as good now as I was two or five years ago, which is good to hear, but I'm not so sure. I'm still not quite there stamina-wise, and I do get tired more easily. I'm hoping that's normal post-surgical symptoms that will get better with time. Or is this the new normal for me, three OHSs later? I guess we'll see. But it sure could be worse, that's for sure, and everyone is happy with my progress. Me included.
Thank you for indulging me.
Deena Z It took 12 months for my vital signs to plateau, that is stop improving. And that is not unusual, al ... Read more
Deena Z It took 12 months for my vital signs to plateau, that is stop improving. And that is not unusual, albeit last 3 to 4 months the improvement was small.
J Alexander Lassally Echoing Deena, for me more than 12 months for BP and pulse to simmer down.... As I always say, it is ... Read more
J Alexander Lassally Echoing Deena, for me more than 12 months for BP and pulse to simmer down.... As I always say, it is a new normal post surgery... for everyone that looks different...
Rose Madura Same for me. I think it was about a year before I felt fully recovered.
Corey Potter Glad to hear you are doing well, John. I was a week ahead of you and the biggest thing for me has be ... Read more
Corey Potter Glad to hear you are doing well, John. I was a week ahead of you and the biggest thing for me has been stamina. I healed up nicely and have been walking two miles per day and haven't felt this good for a long time. Keep healing!
John Cook Iβm on Week 12 and I didnβt start feeling normal at rest until about a week ago. Coughing and sne ... Read more
John Cook Iβm on Week 12 and I didnβt start feeling normal at rest until about a week ago. Coughing and sneezing still suck.
Iβve got a long way to go to get back to normal when exercising. Iβve been fine when walking on flat surfaces for a long time. But for stairs, inclines, & running, Iβm maybe around 60-70%.
Kimberly Eisenhut I am so glad to see how well you are doing! You will keep getting better as time goes on. Great post ... Read more
Kimberly Eisenhut I am so glad to see how well you are doing! You will keep getting better as time goes on. Great post and update John :)
Dan Fouratt Great to hear your story and thanks for sharing, amazing that this is number 3.. I am 18 months post. ... Read more
Dan Fouratt Great to hear your story and thanks for sharing, amazing that this is number 3.. I am 18 months post. Sometime in the last twelve months I got to where I was before my (first) OHS and I would say I have continued to improve. Good luck on your journey.
Pamela Gregory Sounds like you are doing amazingly well especially after surgery number 3!!! Impressive and hopeful... Read more
Pamela Gregory Sounds like you are doing amazingly well especially after surgery number 3!!! Impressive and hopeful for everyone. I hope you will feel even better as each week moves forward
Thank you to everyone for your input and words of support. I am slowly getting better. I'm walking a lot farther than I was just last week, although I am not ...Read more
Thank you to everyone for your input and words of support. I am slowly getting better. I'm walking a lot farther than I was just last week, although I am not breaking any land speed records. My gas/bloating issues are pretty much gone. It was weird how persistent and severe it was, I mean to the point of my not having an appetite, which is news like man biting dog. But that's gone now.
My vitals are all good, although I am a bit sluggish. I'm thinking that's due to my increase in my Coreg to keep my bp and pulse low. They doubled it since surgery, so I'm hoping that goes back to its regular dosage soon. I still have the occasional sternum/incisional pain, but I'm taking only OTC pain relief for that. And I have a follow-up telehealth meeting with Northwestern tomorrow. I am certainly interested in what he or she has to say.
Number 3 OHS was tough, no two ways about it. The first two days in particular. I'm so glad it's over, and tomorrow marks three weeks since the surgery. Just hoping that with each passing week it gets better, and by the end of August or sometime in September I will be given the All Clear sign.
Thank you all again for your comforting words and concern, and best of luck in your journeys.
Kimberly Eisenhut John, I am so glad to see you are doing much better now! Thank you for the update. My apt with Dr Mal... Read more
Kimberly Eisenhut John, I am so glad to see you are doing much better now! Thank you for the update. My apt with Dr Malaisrie at Northwestern is Monday the 11th and I am so very nervous, but hopeful for the future and feeling better, so I can live a long life and have the time I want with my granddaughter and family. I am also in process of moving, so it is so very stressful right now. Hoping for some peace and positive things for the future. You have been through so much, and I wish you a speedy recovery from here on out
John Stavrakos Kim, well, you'll be in great hands, that's for sure. I'll be thinking about you on Monday. Make sure ... Read more
John Stavrakos Kim, well, you'll be in great hands, that's for sure. I'll be thinking about you on Monday. Make sure you have all your questions answered, and take comfort in knowing you will be getting awesome care. Good luck.
Kimberly Eisenhut Do you have any advice or maybe questions you wish you would have asked before surgery? I had a consu ... Read more
Kimberly Eisenhut Do you have any advice or maybe questions you wish you would have asked before surgery? I had a consult with Dr Johnston two weeks ago and he was so nice and made me feel at ease. I will be going with Dr Malaisrie for my Tricuspid I believe, as he has more of them under his belt, but I really liked Dr Johnston a lot. Hoping to get the same experience with Dr Malaisrie on Monday. Did any of your family stay close by during your stay, and if so, what otel did they stay at? My daughter, son and sister will want to be there for however long I will be there and looking into a reasonable but close hotel to hospital for them to stay. As you are, we are about 2 hours away from hospital, but up north in McHenry and Crystal Lake areas.
Susan Lynn You're a heart gladiator! We reserve that title for anyone who's had more than one heart procedure a ... Read more
Susan Lynn You're a heart gladiator! We reserve that title for anyone who's had more than one heart procedure and you've had three! You sound like you're doing great for this stage of recovery. I always say, the last post-op symptom to go was the exhaustion. Mine lasted for months, but it seems like you're rebounding very well! Keep up the good work!
Grace Mason Congrats gladiator warrior! Glad to hear you are feeling better.
Rose Madura John, glad all is going well. πͺππͺπ
Kim, I had a list of questions for Dr. Johnston prior to my visit, but he was comprehensive in his presentation that I didn't need to consult them. The good part is the surgeons take into account what you may encounter down the road, and therefore what would be best for you now. Just make sure all your questions are answered before you're done with the visit. Dr. Johnston did put me at ease, as I'm sure Dr. Malaisrie will do for you. As long as you're comfortable handing over control, and you certainly are in good hands, then you'll be fine. Good luck and keep us posted.
Kimberly Eisenhut Thank you for the response John. I will be giving an update on my visit today soon and will have a su ... Read more
Kimberly Eisenhut Thank you for the response John. I will be giving an update on my visit today soon and will have a surgery date by end of this week also.
Kimberly Eisenhut Well, I was last appointment of the day I think, got some questions answered, but feel as though I ha ... Read more
Kimberly Eisenhut Well, I was last appointment of the day I think, got some questions answered, but feel as though I have a lot more. I had a migraine when I was trying to talk to him, so that did not help. I will have a telehealth visit with him again on tuesday, so hoping to get all questions answered then. Hope you are doing well today and praying I can start to calm my nerves a little leading up to this, as it is becoming very difficult. Sleep still eludes me, so going to try some magnesium besylate as cardiologist said it is ok to take with my other meds. They will only tell me to take melatonin, which I have tried, but does not work well for me.
Hello everyone, I'm home after six days from my third OHS. Had some rough patches but nothing the medical folks haven't seen before. Valve is seated well, and ...Read more
Hello everyone, I'm home after six days from my third OHS. Had some rough patches but nothing the medical folks haven't seen before. Valve is seated well, and all numbers look good. All except bp, which is higher than they'd like. But not dangerously high, and it's steadily getting better. I've taken three 10-minute walks each day too. So I'm doing everything I've been told to do upon discharge. Here's my thing, though. Five days post-op I began experiencing severe bloating, and it's still with me. I mean SEVERE. The X-rays of chest and abdomen don't show any issues. Still, it feels as if I'm with child, and for the last two days I've taken everything known to man to get rid of it: 1) Gas-X, 2) Tums, 3) IB Gard, 4) Mylanta, 5) stomach massages used on gassy infants, among others. Now I just drank a small of glass of bicarbonate. I've been told it's because my organs took a shock with the heart-lung machine and eventually it will get better. I sure hope so, because it's tough walking around as if I'm 8 months pregnant. It's something I never experienced before and did not expect this time. Any help would be welcome. Thank you all for checking in on me. We are in a rough stretch in our lives, and it's nice to know there's a support group in your corner. All the best.
Rose Madura Welcome home John! I'm sorry about the bloating. I don't remember having that. Did you call your car ... Read more
Rose Madura Welcome home John! I'm sorry about the bloating. I don't remember having that. Did you call your cardiologist? Is be Leary of taking all that OTC stuff. Could it react with your prescribed medications? I hope you find relief soon. God bless you.
Rebecca Vaughan So good to hear you are back home, John. Iβm sorry about the bloating. I hope it gets sorted out so ... Read more
Rebecca Vaughan So good to hear you are back home, John. Iβm sorry about the bloating. I hope it gets sorted out soon. Rebecca
Marie Myers Is it possibly due to constipation? Taking narcotic pain meds can definitely slow down the gut. Hope ... Read more
Marie Myers Is it possibly due to constipation? Taking narcotic pain meds can definitely slow down the gut. Hope things improve soon!
Melinda Donahue I hope you feel better soon and this is all just a memory!!!
J Alexander Lassally Nice to see your words and not your obituary !! Did you have a sternotomy for the procedure? As ... Read more
J Alexander Lassally Nice to see your words and not your obituary !! Did you have a sternotomy for the procedure? As you say, the process of perfusion is so hard on the entire body - everything must reset. In terms of Gastro - a trusted family doc - very wise steered us to Mylanta which has a combination of what you have taken. It might be worth trying. There are a couple formulations. Also insisted never to speak while eating... Sounds unimportant, but he insisted this helped reduce air intake... Sounds unscientific.
Good luck !
Kimberly Eisenhut John, Glad to see you are home! My advice is to use MyChart portal and give surgeons office a call as ... Read more
Kimberly Eisenhut John, Glad to see you are home! My advice is to use MyChart portal and give surgeons office a call as well, as you will get quick responses to your questions and they can help you get this under control. Never feel like you are being a bother, just get in touch with Dr Johnstons nurse or your cardiologist with Northwestern and they will get you the answers you need; tests, or point you in the right direction to get this fixed and have you feeling better. I havent even had surgery yet and if I call the surgical team with a question (nurse), they are more than happy to answer any questions and ask surgeon or get me the answers I need. When I message on MyChart to my cardiologist, they usually get back to me the same or at most the next day. My cardiologist downtown Northwestern is Dr Vera Rigolin. She is very helpful.
Upcoming Surgeries
Mark Giordano
Bicuspid Aortic Valve
September 16, 2025
Did my stress test yesterday as a baseline for the upcoming cardiac rehab. Still have some sternum pain, but take only Tylenol or Advil; been off the oxy for weeks. Doing my full walk in the morning, which is around 7,000 steps. Before surgery, I would have to stop because of shortness of breath and burning sensation in chest. Have none of that now. So it's going about as good as can be expected.
The only thing I wonder is when will I get back to "normal." Doc said I'm as good now as I was two or five years ago, which is good to hear, but I'm not so sure. I'm still not quite there stamina-wise, and I do get tired more easily. I'm hoping that's normal post-surgical symptoms that will get better with time. Or is this the new normal for me, three OHSs later? I guess we'll see. But it sure could be worse, that's for sure, and everyone is happy with my progress. Me included.
Thank you for indulging me.
Iβve got a long way to go to get back to normal when exercising. Iβve been fine when walking on flat surfaces for a long time. But for stairs, inclines, & running, Iβm maybe around 60-70%.