Caroline's Journal

After several years with a bicuspid aortic stenosis diagnosis, I have my surgery date at the Cleveland Clinic. I will have surgeon Dr. Lars Svensson and feel very lucky to be scheduled for Jan. 6, 2023. More than a little nervous, but this website has made me a very informed patient. I'd love to hear more from those who have had the "J" incision, or mini sternotomy, or had their surgery at the Cleveland Clinic. Thanks!

My first post. I was diagnosed about 1 1/2 years ago, however the reading of the last echo put me in the severe category for bicuspid aortic stenosis. I felt "big" heart beats, that's about all. Over the past few months, it's harder to do some of the things I enjoy...distance bike riding on the hills of NY and Maine...80-100 miles a week. Much harder. So...I have another appointment in late Nov. and am curious to see where things stand. For me, being largely asymptomatic, it's pretty scary. I have been researching the different valve replacements (thanks largely due to this incredible newsletter!) and am pretty confused. At 73, with a physical self that's probably not typical of someone my age, it's tough for me to know which direction to go. Surgery is probably within a year or two, I would guess. The valve is really "chunky," according to the cardiologist. I'd appreciate any input on merits of types of valves or procedures for an athletic senior.