Made it to Houston with hubby, mother-in-law, cat, and 4 yr old. But the day before we left for Houston, after 4 days of incredibly severe migraines, I got very sick. The surgeon wouldn't do surgery bc it's way too dangerous. Unsure if flu or undetermined virus but even a cold could cause pneumonia & very severe complications, a week of forced intubation & much longer ICU stay. Been in the hotel bed since consult Thursday. We were all incredibly disappointed. You all have been so supportive & now need prayers/positive thoughts please to survive the trip home. Took 5.5 hrs to get here. Hopefully it'll be a quicker trip back. My surgery has been rescheduled for March 20th. Thank you all for your support and hope everyone is faring well.
We are set to leave this morning for our 5 hour trip to Houston for my consult & surgery on Friday. I have been suffering badly with an unusually vicious 4-day long migraine that's left me mstly bedridden, unable to do much to prep for the trip. Waking up now to my whole body incredibly achey and sore. Not allowed to take any Advil or Tylenol pre-op. Is there a chance the surgeon will say no to surgery? I don't have a fever, but I really don't know what's wrong. Sometimes I feel like this before the flu or a bad virus...
Hey all! 3 days out until it's time to pack up the car with our 4 year old, my hubby & our cat to head out of town to Houston for surgery. What should I pack for the hospital? I'll be alone most of the time, as my husband will be working remotely & will also have to care for our son. Trying hrd not to be too upset about not having constant support while in ICU &hospital. I'd really appreciate any advice!
I'm 11 days away from minimally invasive mitral valve repair (hoping it isn't replacement) by a pioneering surgeon in the field. His method is one he's pioneered & developed his own instruments for. We are travelling to Houston at great expense & difficulty because I thought this approach would lead to an easier recovery. Can any of you speak to this? Just read someone's journal who had a really rough experience, and said she wished she'd gone with a sternotomy. Really don't know what to expect. Ive had 4 spinal fusions & already suffer from significant daily chronic pain- being inactive & resting is the absolute worst thing for my body pain-wise, so I was really hopeful about a reduction in down time. I know have to have the surgery, as I am suffering daily with such bad chest pain & feel like I'm being strangled or am trapped under a wave, about to drown. Just trying to properly adjust my expectations & put my fear in check!
❤Wanted to focus on being positive today- my two reasons for going through with surgery. Looking forward to being able to read bedtime stories to my sweet Asher!
Update posted on...
January 30, 2018
Hi all! I'm new to this community, and hoping there might be some of you that can lend some support , advice or reassurance. I just scheduled surgery, and I am really struggling. I've read Adam's book, which sometimes makes me even more anxiety-ridden. I'm not a newbie to surgery (4 spinal fusions)- it's all the logistics. Travelling 4 hours to Houston with my amazing, strong husband, our sweet 4 year-old son, and an elderly cat. I've already got severe chronic pain issues, and the drive alone will be incredibly rough on me. But I really worry about our son being with us. He is sweet, kind, and patient, but he is only 4. He's never been apart from us. We don't have family to leave him with, and neither of us feel comfy with just getting a stranger from something like care.com while he's in a strange city, in a strange environment, under strained circumstances. Any tips on dealing with my anxiety levels? It doesn't help that I can barely make it up the stairs without hours of chest pain & feeling like I'm being strangled. Just overwhelmed. Sorry for sounding negative. I really do love all the positive energy on this site!