Pin It
Home > Adam's Blog > “Dizzy After...

“Dizzy After Heart Valve Surgery?” Asks Rick

Posted by Adam Pick on September 9th, 2009

I just received a very interesting question from Rick about dizziness after heart valve surgery.

Rick writes, “Adam – On August 7, 2009, I had mitral valve repair surgery. Two weeks after surgery I am home and walking four times per day around our neighborhood. Everything feels good except when I first stand up from a sitting position.  I get dizzy even when I stand up slowly. Do other patients experience this? Thanks, Rick”

Dizzy after heart valve surgery

To answer Rick’s question, I can share that I too had bouts of dizziness after heart valve replacement surgery. The dizzy spells were very similar to how Rick described it… When standing up, I would become slightly off-balance for one or two seconds. To learn more about dizziness after open heart surgery, I did some research. According to MedHelp, “Dizziness is not a common post-operative problem in patients who have had heart valve replacements, so this problem may be unrelated to the valve surgery.”

That said, The Society of Thoracic Surgeons (STS) suggests that “being dizzy” after heart surgery may be related to medication. The STS notes that medicines used in the hospital can cause several side effects. The STS then lists a series of side effects (shown below) which explicitly includes “dizzy or lightheaded when standing”:

  • Excessive nausea, diarrhea, constipation, or stomach pain
  • Vomiting
  • Dizzy or lightheaded when standing
  • Confusion
  • Tingling in hands and feet
  • Extremely slow or fast pulse
  • Skin rash
  • Unusual bruising or bleeding

If you are reading this and you already had heart valve surgery, I’m curious… Did you experience any issues with dizziness following heart valve surgery? Please click here to leave a comment!

Also… You can scroll down to read over 125 comments from patients.

Keep on tickin!

Adam Pick
Written by Adam Pick A dad, a husband and a patient, Adam Pick founded this website in 2006 to educate you about heart valve surgery from diagnosis to recovery.
You can get the latest updates about heart valve surgery from Adam at his Facebook, and Twitter pages. Click here to email him.

 


jerry says on September 9th, 2009 at 10:39 pm

I get dizzy too, not when standing up from sitting but when standing up when bending low (like when I examine something on the bottom shelf.)

I had that before the surgery, and my various docs have attributed it to both the ace inhibitor (enalapril) as well as the beta blocker (metoprolol) that I take.

I wish I could say the cure for me was to really get into it, like back in the days I really enjoyed the playground merry-go-round. But I don’t enjoy it the dizziness, not at all.

 


vicki says on September 10th, 2009 at 2:14 am

The only dizziness I experienced was when I was taking Lortab/Vicodin while in the hospital. I just needed to take it on a full stomach. After a couple of weeks, I would only take Vicodin just before bedtime (even on an empty stomach) so I didn’t experience the dizziness then.

 


David says on September 10th, 2009 at 1:20 pm

I too have been slightly dizzy when getting up from a squating position since my mitral value replacement Dec ’08. My cardiologist says it may be a drop in blood pressure (I am not on any BP meds). I did not have this prior to the surgery. I initially thought it was vascular, as I through a clot to my leg and had to have surgery there as well, but they assured me that was not it. Cardiologist said to keep monitoring it.

 


Brian Arrington says on September 10th, 2009 at 1:30 pm

I’m 8 weeks out of aortic valve replacement. For the first several weeks I experienced dizziness when standing, as described. I have always associated it with coumadin, but the further I get away from surgery I have fewer and fewer instances of dizziness, and am still taking coumadin, so I believe what the STS is saying is accurate. That is it is a side effect of the other drugs used during surgery etc.

 


debbie Berman says on September 10th, 2009 at 3:40 pm

I definitely experienced dizzyness after my heart valve repair. I had about 5-6 really scary episodes lasting just a few seconds each time. I lost my balance and felt really weird. This lasted for several months and then one day it just stopped. I was told that it wasn’t a typical side effect, but have read about a lot of people having this problem after the surgery. Hope this helps. Debbie Berman

 


Fred says on September 10th, 2009 at 3:47 pm

Yes – I am 4 months out from mitral valve repair surgery and I am still experiencing regular bouts of dizzyness/light headedness. It is not too severe but more of an annoyance than anything else. It could be the cozar medication that I am taking, my eyes or something else. Just not sure. I exercise regularly and have no other symptoms. So I’m just not worrying about it but will mention to my doctor next time I see him.

 


Robin Hirsch says on September 10th, 2009 at 3:54 pm

I have had several dizzy spells since aortic valve replacement surgery. I am taking atenolol for blood pressure and it is a listed side effect. One trick the physical therapist taught me is that before standing up or sitting up after an extended time in the position is to move your legs and arms, flexing and unflexing the muscles before standing. The contraction of the muscles force the blood to circulate and raise your blood pressure. This should ease the dizziness.

 


Linda Garbett says on September 10th, 2009 at 3:58 pm

I also got dizzy after my mitral valve repair. But the reason for me was that the beta blockers had my blood pressue pretty low. The trick is to move slowly specially when getting out of bed also when standing up from a sqatting position. It has been 6 weeks and while I am still on the meds the dizziness is less.

 


jeff stoveken says on September 10th, 2009 at 6:28 pm

hi, i am one year post surgery and i still have some dizziness especially when im looking up and my eyes are closed. sometimes its bad when standing up from sitting at the computer.it does seem less and less each month though. is anyone experiencing any vision problems too? like changing from far and near with bluriness? jeff jeffstoveken@yahoo.com for any questions or comments, thanks!

 


Paul says on September 10th, 2009 at 6:40 pm

I had dizzy spells for about 6 months. Now at one year post aortic valve replacement, I look back and don’t think I have had an issue for six months or so. There was a string of questions about this issue sometime last winter (February or March) that was pretty informative. I was told it wasn’t a typical side effect and that if the feeling was of the room turnign around me, it was more likely an inner ear imbalance rather than a side effect. Either way, they got less and less and seem to have disappeared about six months post surgery.

 


Donna Pulvirenti says on September 10th, 2009 at 6:41 pm

I was “unsteady” and felt light headed when I was finally able to stand and walk during physical therapy at the hospital after my mitral valve replacement surgery. I was told this was normal. At home, I did feel a bit dizzy when I got up from bed after resting, but that was due to the pain medication I was taking. Since then (its been almost 2 1/2 months since the surgery) I have not had a problem. Sounds like blood pressure (high or low)?

 


John O'Neill says on September 10th, 2009 at 7:48 pm

I am also having bouts of dizziness when standing up from a kneeling position. I have been told that it is a side effect of the beta blocker metapropyl which acts as a governor on the heart to prevent it from speeding up quickly. I can go out for a six mile run and never get dizzy but everytime I stand up from a squat position I have momentary dizziness.
Four and a half months after bicuspid aortic valve replacement things are going well though. i am working full days on the farm but still get very tired.
John O’Neill

 


Sean R. says on September 10th, 2009 at 8:19 pm

I am one year post-op for aortic valve and root replacement, and I still get dizzy once in a while, but only for a few seconds. It was much worse soon after surgery – for the first few months. The only medication I’m on now that I wasn’t on before surgery is Metoprolol (50 mg). I absolutely blame my dizziness on that medication! But… better a little dizzy than…
Sean R.

 


Doug says on September 11th, 2009 at 12:33 am

I had some MAJOR dizziness after my AVR. After a couple of weeks of misery it was found that the lasix I was taking to prevent the fluid build-up in my legs was making me extremely de-hydrated and my B.P. went way down. The lasix was stopped completely and in a couple of days the dizziness went away. Of course, my legs then swelled up like giant sausages (there’s always something new and exciting!!) but I started on a much reduced lasix prescription which got things back to a manageable level. Now, 8 months later, I don’t take lasix, I don’t get dizzy and I only get slight swelling of my feet, so things DO get better, it sometimes just takes a while.

 


Patrick Fox says on September 11th, 2009 at 10:01 am

I had mitral valve repair surgery on 9/3/09 (annulus repair) using the Davinci Robotic minimally invasive procedure. I have had a few spells of light headedness but I have not experienced any dizziness, in fact, I used to experience dizziness quite regularly when rising from a prone position and that seems to have gone away.

 


Joe says on September 11th, 2009 at 6:38 pm

At nine months out from AVR I still experience a few very slight dizzy spells. It’s less frequently now than the first few months. I am not on any meds related to the surgery and don’t take anything for blood pressure either.

Very infrequently I would notice something strange like dizzyness, and by the time I stopped to wonder what it was, it would go away within a few seconds. Very strange. It wasn’t when standing, sitting, or anything I could tie it to. Just out of the blue, maybe once a week. My cardiologist couldn’t suggest any causes since I’ve been in perfect health otherwise.

Yes, things like this are a little scarey until you get used to them and decide it’s nothing to worry about. It’s nice to see I haven’t been the only one with odd goings on, but I feel bad for those who have had it much worse than me.
Joe

 


chris says on September 13th, 2009 at 1:57 pm

I have experienced dizzyness while standing up after have mitral valve repair. Outside of the repair I have not had any other health problems. It is now more than four weeks after the surgery and it seems to happen less , but it is still happens enough to be disconcerting. When I tell my healthcare professionals they kind of shrug and say, hmmm, but there does not seem to be a clear answer why. Anemia? Dehydration? It also seems from their reaction that this is not common. My wife points out that I’m getting a lot stronger with time but the light headedness is a little worrying and it would be good to know what other people have experienced and what the explanations they may have heard.

 


Lisa says on September 14th, 2009 at 2:36 pm

I was told by an electrophysiologist the other day regarding my dizziness (for 9mos now) that there are a lot of unexplained neurological symptoms that can occour from exposure to anesthesia, being in the ICU, and being attached to the heart lung machine. He seems to think most issues resolve with time, but no one knows for sure why people are affected so differently. I am adapting to my dizzyness, and it can happen at anytime, so I am very aware of my movements, nothing too quick, and monitor my surroundings at all times (I have tripped over curbs and stairs with my disorientation). My doctors said they wish there was an easy answer for everything, but unfortunately that is not the case.

 


Joan says on September 17th, 2009 at 5:34 am

Hi Adam,
First of all, thank you for this blog. I was beginning to think (three weeks after aortic valve replacement and single by-pass) that I was nuts. Now, I know that I may still be nuts but I have company.
Secondly, yes, I was dizzy in the first week after surgery. I had had high blood pressure before the surgery and came home on a beta blocker. I suspect that it was the medication that left me dizzy and sometimes lightheaded. I also had one episode of double vision that was very frightening but may have been caused by stress.
Thanks for the chance to help others. Joan

 


Daniel says on October 9th, 2009 at 12:29 am

yes I had dizziness when I am walking around my neighborhood, which I am almost over, my next question is did you have sever aching in your side, after 6 mnths has passed? why am I having this issue now.

 


Dorothy Wilson says on October 10th, 2009 at 2:49 pm

Yes, Adam, I too have been dizzy/lightheaded/spacey since my aortic valve replacement at the end of July ’09 It seems to happen at random times. A couple of times I’ve had double vision which is alarming, but doesn’t last long. Also other visual annoyances – hopefully this too will eventually just go away?

 


Cheryl says on October 22nd, 2009 at 5:08 pm

Hi Adam
I am 22 days post-op for MVP with regurgitation. My valve was repaired. I just started getting dizzy spells a couple of days ago and have been searching your site for some answers. My spells happen when getting up from a resting or sitting position and sometimes they are severe enough to have to hold onto something and wait for them to go away. Sometimes I feel just like I’m not all here. I am on very few meds now and am taking no painkillers whatsoever. My BP seems normal. They were worrying me but I can see I am not alone. Cheryl, Ontario

 


John O'Neill says on October 23rd, 2009 at 6:13 am

Hi Adam
Two weeks ago I installed a new kitchen floor in my daughters house. It was made up of sixteen by fortyeight inch composit board pieces cut and then snapped into place. After kneeling down and getting up thousands of times to measure, cut and place each piece I soon realized I was no longer dizzy when I stood up. This would of been five and a half months after aortic valve replacement, anerism repair and one bypass. I have not had any dizzyness since then. I am still on the same dosage of Metoprol (correct spelling) so my body must finally be compensating for it. Maybe this is one of those things time cures?
Thanks again for allowing us to share our experiences to help each other.
John O’Neill

 


COACHBILLDAVIS says on October 23rd, 2009 at 1:38 pm

ADAM,
I AM GOING TO CLEVELAND CLINIC WEDS,10/28, FOR AN AEORTIC ANEURYSM [GROWN FROM 5.1CC TO 5.6CC IN 3 MONTHS ] LOCATED BEHIND HEART, A REGURGITATING AORTIC VALVE REPLACEMENT & THREE BLOCKAGES.
THANKS TO YOU, YOUR BOOK & THIS SITE, I AM LOOKING FORWARD TO THE SURGERY BECAUSE I’VE LEARNED WHAT TO EXPECT FROM THE INFO PRESENTED.WE FEEL BLESSED TO HAVE FOUND THESE PROBLEMS EARLY ENOUGH TO REPAIR THEM.
I WILL GET BACK TO YOU AFTER SURGERY & HOPEFULLY ADD TO YOUR OTHER RESPONSES.
THANKS AGAIN,
COACH BILL DAVIS, ESTERO,FL

 


Frank says on October 25th, 2009 at 2:03 pm

Hi Adam,

My mom had a valve replacement and a by-pass procedure done nearly six weeks ago. Over all she has been recovering nicely. The one thing that has been bothering are these coughing attacks that she gets once a day. She says she feels a flutter in her chest which them makes her cough uncontrolablly. Once she has finished cough she needs to rest.

This fear of coughing has caused her to stop going out for fresh air and at time stop from exercising. Is the cough a post procedure side effect?

 


Tim says on November 14th, 2009 at 1:14 am

Hello Adam,
I have a question for the panel?
I had my mitral and aortic valves replaced this past July ’09 and have been dealing with dizziness for the past few months. Most of it seems to start when I walk or exert myself in a sustained activity. My original valves were damaged from Endocarditis and I now have two St. Jude mechanical valves. My problem is that I am suffering from dizziness spells. This is frustrating because I am very active, 35 years old and work in wood shops for a living. Dizzy is not a condition you want when you work with power tools all day. What I would like to know is what to expect from recovery 6 mo. to a year post surgery and if anyone else has encountered this issue?
I am currently on no medication except blood thinners. (warfarin)
any input would be great.
Thanks

 


Jill Lindsay says on January 1st, 2010 at 3:18 pm

Hi Adam,
I’d first like to thank you for your website. It was very helpful before my aortic valve replacement in February 2009. I too have been experiencing intermittent bouts of dizziness and being lightheaded. This is the last troubling item from my surgery. I have been attributing it to my recent change in medication. I developed a retinal occlusion related to my surgery. As a result, I am now on coumadin. But now that I read that others have experienced it, I am rethinking this. Out of curiosity, are any of the other suffers on warafin as well?
Thanks you!

 


Rita Mezzavilla says on January 13th, 2010 at 10:49 am

Yes, I’m experiencing mild dizziness 3-1/2 months after mitrala valve surgery. I also have vision issues, ie, light sometimes causes gray spots which disappear quickly. I’ve also experienced sudden changes in focus causes problems.

 


Marty says on February 9th, 2010 at 7:23 pm

Hi all,
I have constant dizzyness since a prostrate bi opsy turned septiic last week (Feb 2010) I spend 3 days ICU and 4 days in a hospital ward although thankful to be alive I have this horrible dizzy feeling and room spinning 24/7 when out of bed. Has anyone had this same complication as me and do you know is it as a result of all the medication (anti bio,s etc) how l long did it last.
Kindly,
Martin (Australia)

 


Marti says on February 19th, 2010 at 7:48 pm

Hi Adam,
Thanks for your website, It has been very helpful as was your book.

It has beem 6 months since my aortic valve replacement and for the past few weeks I have been experiencing dizzyness and chest tightness. I am not sure whether or not the chest problem is the result of opening my chest or something else. My blood pressure is also higher than it has been for years 140/80. I am travelling and presently in San Diego. Anyone know a good cardiologist out here?

 


Terry says on March 14th, 2010 at 10:40 am

I have had all of these except vomiting and skin rash at one time or another since my surgery.

 


mihaela says on March 28th, 2010 at 5:37 pm

Dear Adam,

Thank you for your book. It saved me from many down moments. One of my friends bought me your book after I had valve replacement surgery at the end of last July. After I finished reading the book, I donated it to the library where I work, and it is now part of our collection. I am on Warfarin, and I do experience dizziness, every day!! My cardiologist put me on salt pills as well. He believes my dizziness is a result of the CVA I suffered only two weeks after I was released from the hospital. It could be. Although, I strongly have a feeling “my” dizziness is a side effect from taking Warfarin. Thank you again for all your work and blessings to everybody.

 


Helen Galván says on March 31st, 2010 at 2:49 pm

I am a 62-year old woman. It is now four and a half weeks since I had my aortic valve replacement (mechanical) and in these last few days I have been experiencing dizziness with what seems like very little exertion: going up the stairs, walking at what I consider a “normal” speed. Is it still early days, and is my general state still a bit weak, or should I be concerned? It is a real nuisance. I am expected to go back to work in another week and a half, and I am feeling nervous about that. In general, my recovery has been fine although I do find the thumping of the heart, right up to my throat, a bit disconcerting. I would appreciate any comments. This blog is a great thing.

 


peter says on April 8th, 2010 at 12:00 pm

It’s been exactly 1 year since surgery for valve replacement. I’m 57. I still get dizzy spells. I have pacemaker as well.

 


Helen Galván says on April 9th, 2010 at 1:25 pm

6 weeks after surgery for my aortic valve replacement and I am still getting the dizzy spells, which are not easing up at all. So much so, I went to see the cardiologist again last night. He saw that the valve was working OK, no blood clots or such things around it. He spotted a slight leaking of the pericardium with some inflammation which maybe could account for the problem. I started immediately on anti-inflammation treatment. Tomorrow I will get checked for anaemia and to see if my thyroids are OK (I have had treatment for those for 28 years.) Basically, the doctor could not think of what could be causing these dizzy spells which can last up to 5 minutes and which, once I have had one, seem to leave me disposed to have repeated spells within the following few hours leaving me trembly, weak and feeling pretty bad.
Interestingly, looking at what people have commented about their eye problems, I did have one occasion a couple of weeks ago when I lost all my peripheral vision and could only see what was in the centre of the eye, like looking through a tube. That has not been repeated, thank goodness.
My doctor has suggested going to Mexico City (we live in Puebla, Mexico) to have one of these explorations down the oesophagus in order to see very clearly how everything is working in the heart area, IF this doesn’t clear up. Let’s hope it’s not necessary. The great thing is that my doctor really wants to get to the bottom of this and is thinking about all the things that could be causing it, so I don’t feel so alone. I am grateful for that.
I am taking Sentrum as my anti-coagulant and Danzen to reduce some inflammation in the lungs, product apparently of the surgery. What I note most of all from other people’s comments is the other doctors are saying they don’t know why this happens. I would love to hear from any doctor who DOES have an idea. Thank goodness at least it is recognized by the STS as you mention above.There must be someone out there to throw a bit of light, as I don’t fancy the idea of this continuing. I am taking another couple of weeks off work to see if it will clear up.
I am also feeling a lot of tension in the shoulders and neck and back of the head and will take something like a valerium tea to relieve that. Could all these tense muscles be contributing?
Apart from all this “negative” stuff, I feel great!!!!!!! That’s the trouble, I can’t wait to get back to my busy life, get back to teaching all my lovely students whom I have neglected for the last 9 weeks, and get back to my zumba classes. That’s not asking too much, is it???!!!
The thing is I didn’t feel bad before I had the surgery, except for a cough which has disappeared and having to stop for breath in my exercise classes. So, when people say “You must feel so much better now!” I say, “Well, not really”, but once this dizziness has gone, I am sure that’s when I will feel like a new person again.
Any comments welcome. Maybe someone can identify with something I have said. I would be particularly interested in other people who have had their surgery in Mexico.
Thanks again, Adam for this forum. I had to laugh at your comment “Europe and Heart Valve Stress Do Not Mix”. In the autumn of 2008, I went on a 10-week trip to Europe: UK, France, Germany, when my stenosis was still in the “light to moderate” stage, travelling on endless buses, planes and trains, lugging bags around, up and down underground stations,visiting friends from school and university days, taking French and German language courses and much more, and then a few months later got back into a full time teaching job back here. And then in January this year, I was told my stenosis was in the “severe” category. I wonder if there was any connection! (I don’t want to know the answer to that one!!)

 


Jocelyn says on May 5th, 2010 at 4:46 pm

Thank you so much for this blog! (And for your book Adam! I read it to prepare for the surgery and it helped so much!) I was beginning to worry and/or think I was losing my mind because of recent dizziness/vision problems I have been having. My eyes seem to strain so much easier now and I almost feel cross-eyed sometimes! Being on the computer for too long is really hard on me. Anyway, thank you all for your input. I am a 31-year-old woman and 5 months out of my mitral valve repair. Otherwise I am doing great.

 


Leslie Timewell says on June 5th, 2010 at 2:40 am

Yes – I am having ongoing light headed and dizziness problems since my Aortic Valve Replacement 14 weeks ago. I believed it might be due to the Beta Blockers I am taking (which still might be the case) but a blood test has shown I have a low blood count since the operation. The doctor has given me Ferrous Sulphate tablets (Iron). I have only been taking these for 3 days and so far no noticeable result.
The dizzy light headiness is really slowing me down and leaving me unable to do anything physically challanging at all.
Fingers crossed.

 


Sally says on August 3rd, 2010 at 10:47 pm

I had been having dizziness when standing, when rolling over quickly in bed, also had hissing sound in my left ear. This was happening 3-4 times a day, would not know where I was. Called my cardiologisst who changed the times of my medications a month ago. I have since only had two incidents, so hoping that is the answer.

 


Sharon says on August 11th, 2010 at 8:08 am

My father had a bypass and valve replacement over a year ago and is still experiencing the dizzy spells. He has been back to the doctors who confirm all is well and really it is something that they have no answer for. My father did have a tough time coming out of the anaesthetic and had to be sedated for several weeks before they could bring him round. We are not sure if all the sedation contributed to this condition. He is finding it hard to deal with and when he has one of these spells he does feel really ill and frightened. I was wondering if anyone else knew how long these dizzy spells will continue and when he may expect to feel the benefit of having this major operation.

 


john c. says on August 29th, 2010 at 8:08 pm

this is a great forum to read about people who have had the same surgery as I. I had my aortic valve replacement surgery in may 2010, this following my near death experience in march of 2006 where unknowingly i had an anuerysm dissection occur and needed immediate surgery. i have been getting slightly dizzy since the 1st surgery, but now i get extrememly dizzy at times and experience some dizziness everyday. i have slight pain spots in my head when the dizziness occurs. i have been told it could be the meds, the bypass machine, nerves that were hit, the effects of having open heart surgert, then referred to a nuerologist whom i see tomorrow august 30th 2010. i also have a patch of hair missing from my head that no one can explain.the hair hasnt grown back and it was a black and blue burn mark for 3 months. one nurse said the halo used to free my brain may have been to tight and the electrode shocked me, another said maybe they tried to pull it from my head and it was stuck and ripped the hair out…oh well. but my dizziness is more than a nuisance, it comes with nausea sometimes, headaches, blurred vision and the worse episodes come with all of the above with a dose of the world spinning in my head!

 


Carole Wiley says on August 30th, 2010 at 4:35 pm

I received a bovine aortic replacement on June 11, 2010. Fortunately, I had no complications. However, on occasion I have experienced dizziness. In my case, it seems if I have not been drinking enough water or other liquids, I can become dizzy, particularly since this has been a long hot summer. For example, I was at a bakery counter and I became so dizzy I had to hold on to the counter. I immediately ordered an iced teas and drank half of it while I waited for my change. The dizziness stopped and I was able to go on my way. A visiting nurse told me that if I do not keep the liquid intake up, my blood volume is more than likely to drop and cause this feeling of dizziness.

 


Jacque Bilyeu says on September 8th, 2010 at 5:54 pm

I stumbled onto this website by googling for answers to my questions/concerns. I am 49 years of age and lead a very active lifestyle. My surgery on 8-6-2010 was to replace the portion of my ascending aorta where an aneurysm developed above the root and replace my bicuspid aortic valve with a tissue valve. I’ve been monitored for many years, knew this was inevidable but only experienced some shortness of breath just prior to surgery. Always have had low bp 90/60 on average with 50-60 bpm. My husband and I had 3 wks. to mentally prepare for the operation, if that is possible! Following surgery, I remained in ICU for 5 days until my heart was functioning well enough to take me off the temp. pacemaker. I was home 7 days after surgery; immediately I noticed I could not see as well; have to wear my readers constantly and I can’t be on the PC for very long or read without experiencing dizziness & headaches. On day 11 my heart rate dropped low enough that I passed out; I believe self-induced for trying to do way more than I should at that point not to mention I was severely dehydrated. It is believed that my heart rate dropped extremely low to onset the black out. I am now just beyond 4 wks. and more frequently experience dizziness, being light-headed, dull headaches above the brow line & some more intense where light & noise irritate me. Some feelings of nausea accompany the dizziness. Most recently this happened while riding in the car, and it was scary. Yesterday I felt so terribly dizzy, I put on my bp cuff and recorded to incidents of 40 bpm, which I am certain now that is why I am getting dizzy. Back to the cardiologist & surgeon tomorrow, maybe we can get to the bottom of this. Granted it has only been 4+ wks. May need a pacemaker? The only med I am on is oxy-codone (1x/before bed) for the past week or more. Any suggestions out there? I hope this is just a time-issue….thanks!

 


ben says on September 23rd, 2010 at 6:50 am

Yes I too experienced dizziness along with numbness and tingling in my extremities, after my mitral valve repair in November 2006. I also noted some periodic “double vision”

 


harold says on October 8th, 2010 at 7:17 pm

8 months after mitral valve repair, I still have dizzy spells. They are rare ( rarer as time passes). My pulse remains normal throughout these spells. I am on Toprol and Lipitor. The Toprol has been used for blood pressure for years. These dizzy spells are frightening because they can happen at any time ( not just when getting up from a chair or bed.)

 


James Vaughan says on November 15th, 2010 at 11:20 am

I had aortic valve replacement surgery two weeks ago on November 1st. I had one very bad dizzy spell in the hospital. The doctors attributed it to medication. I was discharged on Sunday, November 7th and since coming home, I have had two episodes of lightheadedness and one whopper of a dizzy spell. I returned to the hospital where I received every possible test. My valve is okay and so is everything else.

 


Kathy White says on November 29th, 2010 at 7:52 am

Thank you, thank you! We thought we were missing something. My husband had AVR little over a month ago. He has had dizziness, nausea and vomiting and sweats. It appeared to be the meds but sometimes after taking meds no problems, others (most)problems. The “events” continue but not as long and not quite as often. Sounds like there is “hope out there” which is very encouraging. Thanks so much for your blog.

 


Pete Hanauer says on January 21st, 2011 at 2:45 pm

I had mitral valve repair surgery four months ago and I am still experiencing dizzyness and lightheadness, mainly when standing but also sometimes when sitting. Recently, I have had stretches of 2-4 days without any dizzyness, but then it has reappeared after any strenuous exercise. I am not on any heart or blood pressure medications and, as so many others have experienced, my doctors have no real explanation for the dizzyness. Several tests I have taken to find a cause of the problem, including one to see if my blood pressure is significantly different while standing than it is while lying down, have come back negative. I am very appreciative of this blog, because it has at least reassured me that I am not the only one with this problem. It seems that the only thing to do is wait it out.

 


Diane Horsak says on January 21st, 2011 at 7:11 pm

I had a bovine valve put in 2 years ago and still get dzzyness and lightheadness. No one has figured it out yet. I also have constant buzzing in my left ear and soreness that has not left me yet. The dizzyness comes and goes and you really never know when it’s going to happen which is quite frustrating. It scares me to drive and make plans to do much of anything in fear I will get an attack. I was quite active before the surgery and now live a complete new lifestyle. But somehow you still go on and hope beyond hope one doctor could find out the reason for this, all these people experience this you would think somebody could figure it out. Thank You Adam this blog has been such a help seeing I’m not the only one with the problem. It just makes you wonder will this fear ever end. Diane

 


Lee Arehart says on February 8th, 2011 at 12:26 pm

I am a 76 year old male that had an Aortic Valve replacement in late Sept. 2010. A month after getting home I fainted twice in one day. My Doctor said to have a pacemaker with defibrillator to keep my heart rate within proper limits. I have gotten along fine since then. I do however get dizzy sometimes when getting out of bed or up from a chair. Also get a bit shaky after about 4 hours without eating. I check my blood sugar at those times and it is always within limits. Could this problem be caused from one of my medications? Thanking you in advance for your thoughts on this matter.

Sincerely, Lee

 


Jim says on February 8th, 2011 at 2:50 pm

I had AVR on November 1, 2010, and had 1 bout of dizziness in the hospital days after the procedure. The staff blamed this on lasik which causes dehydration. A week after coming home (14 days after the operation) I had another episode and ended up spending over night at the local hospital. They found nothing wrong. Again, another week later the same thing (this time I did not go to the hosiptal). My cardiologist blamed it on dehydration even though I was not taken any medication that should cause dehydration. I have AFib and have had it for 10 years. The Maze procedure during the AVR did not work. I’m on the same medication as prior to my AVR (Coumadin and Diltiazem) so I don’t think its the medication. The 3 dizzy spells I went through were severe with the room spinning, nausea and a cold sweat. Yesterday, just over 3 months after my surgury I had a light dizzy spell – no spinning or nausea or cold sweat.

My own opinion is that it is the body getting used to the valve and the dizziness will eventually disappear

 


Diane Horsak says on February 8th, 2011 at 4:38 pm

It will be 3 years March and I still have dizzy episodes every now and then. I just sta still for a few minutes hold on and wait. They leave you light headed for a while then go away. My fear is I will get one while driving. This all started to happen after the valve operation not before. I have never been the same since the surgery. I have read a lot on this blog that has helped me at least I realize now I know I’m not alone in some of the problems I still continue to have. Hang in there & keep on ticking. Diane

 


jo williams says on February 10th, 2011 at 1:27 pm

I ran across your website when I was googling “causes of dizziness after aortic valve replacement surgery”. My mom had valve replacement surgery about 5 weeks ago. Although she seems otherwise ready to stay by herself, she has continued to have occasional dizzy spells since her surgery. My fear is that she will become dizzy, fall and break a hip or something – she is 82 years old. Due mostly to this very issue, we have kept someone with her 24/7 for the past 5 weeks. Any suggestions?

 


Diane Horsak says on February 10th, 2011 at 8:44 pm

It’s really a tough one to answer. I never know when mine will hit (dizzy). But I can say I firmly believe the surgery had somthing to do with it. I might add that I had two bovines put in on the same day. My blood pressure flew out of contro and the first one exploded and they had to rush me back in I coded and was put back in opened up again for a second bovine each took 6 hours give or take I was 66 at the time and still have problems from it all. Don’t get me wrong I’m really thankfull to be talking about it but like others I was quite active before all this and I know live a changed lifestyle. Quite happy that I discovered this blog and saw that others have some things that are going on with me I know I’m not alone in this. Good Luck. Diane

 


Carol says on February 12th, 2011 at 5:28 pm

My father is currently in hospital – he had aortic valve replacement and mitral valve repair 8 weeks ago. Although he was quite good immediately after surgery after about a week he started to deteriorate and now is flat on his back unable to do anything due to severy dizziness and nausea. Every time he moves the room spins and he feels sick. He is now unable to stand at all even washing and transferring to a comode is a problem. He has has an MRI and was told this was clear and has now been referred to ENT who want another scan of his ears. He has a constant headache which he has had for months – he is sure this is related. I am concerned that nothing is being done very fast to diagnose or releive his problems – he has lost about 2 stone and appears to be just ‘wasting away’ instead of enjoying life following surgery!!

 


Ben says on February 12th, 2011 at 6:19 pm

I had my Mitral valve repaired alittle over 4 years ago and still periodically experience dizzyness. I’m not on any medication other than a baby aspirin a day. Periodically my vision goes askew and it seems as though my eyes are crossing although this is a relatively infrequent occurence. Obviously it’s related to the procedure given the number of patients on this dialogue who raise similar concerns.

 


Jackie JPoynter says on February 24th, 2011 at 6:13 pm

I have had dizziness following valve replacement which is caused by a sudden drop in blood pressure. I am prescribed a vaso dialator to help with these symptoms. I don’t have them when at rest. Does anyone have any advice or experience with this that might help me.

 


Ann says on April 4th, 2011 at 6:45 pm

I had a stent one day and the next a pacemaker, one year ago and for 6 months I have been changing meds regularly because of getting dizzy when I stand, and in general exhausted when this happens. Sometimes I think the Dr. feels I’m making this worse than it is? I’m on Digozin and Rthymol 325. If anyone has an answer to this — I’d love to feel better.

 


Steve W. says on April 5th, 2011 at 9:49 am

I had surgery to repair my mitral valve approximately two weeks ago. Since then I have felt pain in my back, just inside the scapula, dizziness when I stand, temporary loss of control of my right hand, and obscured vision in my right eye. My doctor attributes the back pain to the position in which I was placed during the surgery so his recommendation is to continue taking Vicodin to block the pain. The dizziness I attribute to low blood pressure due to the blood pressure medication he prescribed. The other problems occurred yesterday and after a little research they appear to be symptomatic of a transient ischemic attack, a condition that has me concerned. I plan to speak with my doctor today. Has anyone else had similar experiences?

 


Molly says on April 6th, 2011 at 9:57 am

My husband had aortic valve replacement (AVR) 10/25/2010. He had nonvascular surgery as he had no blockage and no COPD. He is 58. His valve proved to be even worse than it showed on the angiogram. He went home 10/31 and ended up via ambulance in the hospital on 11/7 as he was having continued dizziness, vomiting and lightheaded. This got worse on 11/7 and I called 911 as I was questioning if there was a defect in the valve or something. He was hospitalized for 3 days…nothing different. Went home and started with the same again. The meds he was on prior to his AVR were for bp, diabetes, then a heart drug post surgery and Warfarin (Coumadin as he had a mechical valve put it). They continued to keep him on these meds after the surgery and it appeared he was being overmedicated as he was continuing with vasospasms. His CV surgeon said nothing wrong with valve he felt it was overmedication from his Cardiac doc. I monitored his vitals 2-3 times daily (pulse, weight, bp, sugars). Finally, we took him off some of the meds and cut them down (in half) and low and behold things evened out. He was able to attend Cardiac Rehab again and not be passing out all the time and vomiting and sick.

As far as you go though, the back pain and TIA is nothing to monkey around with. I would advise you to get to your doctor. Are you taking fish oil and/or an 81 mg aspirin daily? Good luck to you.

 


Steve W. says on April 6th, 2011 at 10:20 am

I’m looking forward to dropping all the meds once everything settles down in about a month. I spoke with my surgeon and he came to the same conclusion, TIA. God bless the internet, beats the heck out of wandering through the stacks at the library. Since TIA is most often linked to a temporary disruption of blood flow to the brain due to a blood clot, my surgeon prescribed Coumadin. I’m not happy that I’m taking yet another drug but I understand this is the best option for preventing additional TIA’s.

 


Sophie says on April 6th, 2011 at 9:47 pm

I had aortic valve replaced with bovine valve exactly one year ago today. I’ve been interested in reading this blog as I have also experienced some visual disturbances, mainly blurred vision lasting only a few seconds, very sporadically since surgery. These episodes are very random and fewer and further apart as time goes by. I’ve mentioned it to my cardiologist, primary care and opthamologist. They didn’t have any answers for me. I’m reassured that this seems to be a much more common problem than I thought. The only med I’m now taking is aspirin daily. I did experience some lightheadedness during the first 6 months while I was on metoprolol and attributed it to that med. Otherwise I’ve thankfully had an uneventful recovery and am back to my normal life. I am 64 yrs old.

 


vicky says on April 7th, 2011 at 5:01 pm

Hi there, my mum had an aortic valve replacement and 2 new valves to allow blood in, as hers had eroded. I am really concerned as 5 years on she has put alot of weight on, gets extremley tired, and has shortness of breath when walking any steep inclines. My mum is now on beta blockers and blood thinning pills for the rest of her life, and i am really concerned the docters are maybe giving her to much!! I get very worried and would love to hear back anybody who has or knows of anyone who has any of these issues? Many thanks. Vicky.

 


M.E.Oliver says on April 14th, 2011 at 11:18 am

This morning(April 14)I experienced the wildest dizzy spell after waking up to go to the bathroom.I am a female 75 years, I had a aortic valve replaced on Feb 14 2010. I took just this morning my blood pressure and it was high 172 over 90 with pulse 69. It has gone down now and is 145 over 83 and pulse 73. After the operation I was a week in ICU, a week in hospital and a week in physical therapy I went home and was taking half of Metoprolol Tartrate 25mg every morning and half every evening.The side affects were terrible, lost complete control of my bladder, and it seems to block all my brain functions. Just recently did the doctor give me a stress test that was normal and took me take me off the medicine, and now I suffer from horrible bouts of dizziness but I am not taking any heart medicine! Because it is too early to call, I have been looking for an answer on line, and found your blog, in a way, it makes me feel better.
I hope there is a way to heal from this! I will keep on reading, maybe somebody has the correct answer. It does not look like there is a cure yet for the after effects.
Thanks, Mary

 


pauline says on May 13th, 2011 at 4:41 pm

i had triple bypass 3an half years ago an get dizzy spells when i bend down and when i sit down ,i have passed out a few times with face twitching while i was out anyone else get this?

 


Jackie Poynter says on May 14th, 2011 at 5:57 pm

I can offer hope to you who are having the hypotensive episodes. It does get better. I am now off the Medidrine and taking the baby aspirin and coumadin daily. Are most of you valve replacement patients taking a beta blocker. Someone mentioned to me that I should probably be taking it. I had my mitral valve replaced with a mechanical valve.

Thanks and god bless to all

 


Carl Newberry says on June 12th, 2011 at 4:16 pm

Hi Adam

I have one spell of being dizzy it happened five weeks after aortic valve replacement. I have had a great recovery with no problems but this morning I was putting on my shoes getting ready for church and stood up and became dizzy for a few seconds and it concerned me so i looked at what you had to say about it. Thanks for your book and your update posted on the net.

Carl

 


Ruth says on June 12th, 2011 at 9:35 pm

Hi, Adam!
Thanks for this helpful link. My close friend just had aortic valve replacement surgery last Tuesday. Due to complications, he was still using breathing tube through his mouth until this morning. They removed it, but my friend was struggling with too much mucus, so they tried to reinsert it. His airways were quite irritated and swollen, so that tubing could not be reinserted. Instead an emergency tracheotomy was done & now he has the tubing externally connected to his throat. It is all very scary, but I do understand & observe that he is breathing much more easily this way. My concern is that he could develop infection from all that mucus that had collected around the tubing and the inflammation caused by the irritation of the tubing on his airways “due to his size” as his nurse explained to me this morning. He is a petite gentleman-only 5 feet tall.
Why didn’t they use pediatric sized tubing? Has anyone some information about how they or a loved one was able to avoid and/or prevent airway infection?This is my first visit to this site. Also please excuse my typos-I fell on way into hospital last night & injured my hand & wrist,so it is difficult and painful to type.Thank you in advance for any helpful information.Ruth

 


Greg Petersen says on June 19th, 2011 at 11:11 pm

Although one of my symptoms before my surgery to repair a mitral valve on June 9th, was a light dizziness, it is much stronger now since the surgery. I would feel 100 % better if I could focus from the get go.

 


vwarren says on June 30th, 2011 at 10:50 am

My husband (age 61) had aortic valve surgery (St. Jude’s valve) and several bypasses last Aug. On several occasions in the weeks following surgery, he had dizzy spells while standing, at least once while driving, and last night, for the first time, while just sitting in the living room ( after complaining angrily about car salesmen). He said that he thought he would have passed out if he had not put his head down and drunk some water. Then he was ok. He is taking Zocor, wayfarin, and metroporol. I too have mild dizzy spells only while standing or getting up quickly and now only take norvasc for blood pressure. Several pharmacists told me that all blood pressure medicines can make you dizzy, especially if you don’t drink enough water (64 oz.) They also told me (because I actually fainted several times when I began taking blood pressure medicine), that you should sit on the edge of the bed and move your legs several times up and down from the floor before getting up. I had all of the tests done to see what caused the dizziness–no cause was found). Do heart patient feel dizzy before eating (low blood sugar). Most dietitians recommend a healthy snack at 9:00, 3:00 and 9:00. Or could the dizziness be caused by a drop in blood pressure? My husband. a field biologist, works in extreme heat and humidity here in the South and on high hills. Last year before my husband’s surgery at the University of Alabama at Birmingham, I read a lot of your website. It was very informative. Thanks. Other than the dizziness, difficulty getting INR right, and a muscle pain (surgeon says) in his left side, he is doing well, hunting ducks, etc.

 


D. Marie Hough says on July 1st, 2011 at 11:07 pm

After an aortic valve replacement I had a lot of trouble with dizziness, too. Cutting back on the Metoprolol dosage helped some, but not enough. Valve surgery was performed February 10, 2011, but by May the dizziness (and passing out) became a real problem, and on May 27 a pacemaker was put in place. End of problem, and I could drive again!
Marie

 


Debra says on July 29th, 2011 at 1:57 pm

Im 8 months post op from AVR surgery, and I still get dizzy when ever I bend over to pick something up. I sure wish it would go away because it really bothers me.

 


Greg Petersen says on August 4th, 2011 at 11:01 pm

After Mitro valve repair on June 9th I was Dizzy. I was home in 5 days and the dizziness continued for quite some time. But by July 18th when I had a visit with my Surgeon the dizziness seemed to be gone. At that time he took me off of Cumadin and Metoprolol Tart. The only drugs I was on by then, exept a baby aspirin which he instructed me to take forever. At this time I am in Cardiac rehab and am doing fine.
I have to add that before my surgery I was dizzy all the time for some years, but not like I was after surgery. I’m just thankful that I’m normal now.

 


Anna says on August 11th, 2011 at 11:59 am

Hello,
So the Beta blockers and ace inhibitor are causing are legs to swell , dizzyness and a caugh. and our blood pressue to go down to low so then why are we taking it lets ask a Dr. I have always had a blood presure has always been not low but never high more low then high. so i really don.t need this . or do I ?

 


Debby Tomlinson says on October 2nd, 2011 at 11:18 am

Wow, sounds like the sudden onset of dizziness is pretty normal for heart valve patients based on the many comments here. I didn’t have the dizzy spells prior to MV repair on September 13th, they really just started within the last week at home. Now they occur almost everytime I stand up (passing quickly within 5-10 seconds). I’m on Wafarin and Metroprolol. I was on Metroprolol prior to surgery without dizzy spells. My cardiologist doesn’t seem too concerned. Just an annoyance for me that hopefully will pass like so many other people mentioned here before me. Thanks Adam! Very helpful to see that so many have had the same experience.

 


Monica says on October 10th, 2011 at 10:13 am

I am 7 months post-aortic replacement surgery. I had some issues with dizziness to begin with which subsided with the decrease in dosage and eventual cessation of my metropolol. For about five months I was feeling good and almost completely dizzy-free (except for when I would stand up quickly, which the doctor said was normal and nothing to worry about). However, recently I have been feeling much more dizzy, have collapsed once and been on the verge of collapsing numerous times. It occurs with both movement and rest and lasts for up to three minutes. The dizzy spells feel like I am spinning and really heavy. It is almost a nauseas feeling. Do you think this is anything to worry about? Has anyone else experienced something similar? Thanks! :)

 


debbie everette says on October 12th, 2011 at 8:22 am

My husband had heart valve replacement Aug 22, 2011. He had 2 units of blood in the hospital. He was also admitted Oct. 4, 2011 for 4 days and had 2 more units of blood. He is 69 has anyone experienced this?

 


Jack Kunz says on October 19th, 2011 at 12:53 pm

I had aortic valve replacement 6 weeks ago and have been experiencing dizzy spells and some blurred vision. This has not occurred upon standing but usually when sitting and not doing any activity. I have been on Toprol until yesterday but experienced another episode today.

 


Bill Clark says on November 6th, 2011 at 12:10 am

I too had dizziness especailly after exercising. I went to my cardiologist and he suggested that it maybe due to the repaired mitral valve not being able to open as well as it did before the operation (and failure). When the the heart is working hard, the valve does open as fast and wide as it did before. The explaniation makes sense to me and may be why people experiance dizziness after the operation and not before it.

 


Charles Durrett says on November 14th, 2011 at 4:39 pm

I had aortic valve replacement and 4 by-passes 6 weeks ago. Today, I bent over to pick up a tool and almost fainted. I got stable and sat down.

Not a good experience. I\’m walking 2 miles a day.

 


pauline says on November 15th, 2011 at 7:54 am

Hi i had triple bypass 4yrs ago an am still getting dizzy spells an pass out sometimes i get them when i stand and sit down it makes me nervous an depresses me had lots tests and last saw neurologist an she thinks i may have a blockage so scared of going back to hospital

 


Lebo says on December 25th, 2011 at 10:07 am

Hi Adam,

My dad is 73 years of age and had an aortic valve replacement 11 weeks ago. 3 weeks back he started shivering and shaking for about 45 minutes every night. After that he sweats and we have to change his blankets 3 times a night. His GP has done a few tests but cannot seem to pick up the problem. He was in Hospital for a few days but they decided to release him for the Christmas weekend. From 3 days ago he has started having dizziness, confusion then collapses. This last for about 2 minutes. I am not sure which medication he is on.

Please advise what might be causing this whole thing? At first I thought it was old age but your website has given me a bit more information.

Thank you!

 


Richard says on December 27th, 2011 at 1:35 am

I have too experienced these strange dizzy spells, and weak/blurry vision problems. I had my AVR 2007, and have since gotten these strange episodes. I had one really bad dizzy spell the other day while riding in the back of a car, felt the like world was spinning around and around. I often feel slightly sick, and weak after they happen. I am only on 5mg of Warfarin a day. I also suffered from slight hearing loss and tinnitus only 4 months after my AVR. I find this all very odd, and quite suspicious that so many other heart valve patients have all experienced the very same thing. I think there should be a serious investigation into this matter. As this can prove to be a very dangerous situation for patients on blood thinners.

 


jim says on December 27th, 2011 at 9:45 am

I had my AVR done in Nov, 2010 and suffered dizzy spells soon after for several months. I’ve been on Coumadin for over 10 years for AFib. I was also on Diltiazem for over 10 years to lower my heart rate and blood pressure. I convinced my Cardiolgist to take me off the Diltiazem because I felt it was lowering my blood pressure to much. He did so after putting me on a Halter monitor for 24 hours to confirm my lower blood pressure. I’ve been off the Diltiazem since the middle of September, 2011 and I’ve not had any dizzy spells. Every once in a while I will feel light headed but nothing like the dizzy spells where the room is going around and you break out into a cold sweat and feel sick. In addition, I now work out for an hour 5 days a week – I believe this helped getting my blood pressure under control. It is the medications but trying to figure out which one is doing it is the problem.

 


Leigh says on January 1st, 2012 at 11:27 am

I had mitral valve repair on November 9, 2011. My dizzy spells include the room spinning and a very queasy feeling in my stomach (like the drop on a rollercoaster). I’m usually already standing and have to grab something so I don’t fall down. The sensations pass in 3-5 minutes. It helps to sit down if I have someone to help me to a chair. I am not on medications, but the dehydration idea makes sense to me regarding the dizzyness…I’m going to try more water. I’m somewhat concerned about the dizziness since I return to work on 1-3-12 and use the stairs to get to the second floor. These spells just happen…no warning. I’ve had the visual disturbances which have been just like the aura I used to get before a migraine headache. Fortunately, no headache. These are becoming less frequent than right after surgery. I was told that when being on the heart/lung machine a large amount of fluid is pumped into your body. This can make your brain ‘soggy’ and cause pressure on the optic nerve which produces the visual effects. As the fluid leaves the brain the ‘light show’ goes away! I just hope my boss understands that I may be dizzy and seeing things!!

 


Norm says on January 2nd, 2012 at 8:31 pm

There is no reason for this except after cardiac bypass weired things can happen. I am a physician who is a patient as well with aortic valve replacement . I experienced similar symptoms for close to 4 months. They will improve with time. Just do not push yourself. Good luck

 


greg says on January 3rd, 2012 at 1:52 pm

I had a mechanical aortic valve replacement March 2, 2011, went through a 3 month recovery period, then returned to work as an over-the-road driver. 6 weeks later I had to give up driving due to the extreme dizziness, tinnitus, and sudden drops in blood pressure.
This has left me unable to safely perform most types of work, with trying to qualify for disability as my only choice.
I take coumadin, metoprolol, pepcid, flomax, aspirin, and lisinipril.

I believe it to be caused by meds; anyone ever heard of this??

 


John Micsak says on January 3rd, 2012 at 2:40 pm

YES,

I am 4 weeks into my recovery and still experience a lot of dizziness, but it is like you explain. Generally when I get up from sitting or laying around I feel light headed and off balance. This happens several times a day for me. I am assuming it is from the one or more of the 7 meds I am on. I have my appt. with my cardiologist for the first time tomorrow after my surgery, hopefully he will clear this up. I also ruminate about something being wrong, I get a lot of different sensations from throbbing pain to my heart feeling pressured or pinched. Other times I don’t notice it. I also wake up in the middle of the night a lot gasping for air.

Thanks John

 


Kathy says on January 5th, 2012 at 8:18 pm

To the OTR truck driver: My husband had an AVR (mechanical) and underwent most of your symptoms about many weeks after surgery. He ended up back in the hospital per ambulance because as we were told by EMT “his blood pressure bottomed out”. He was having severe dizziness, severe sweating and nausea at anytime whether standing or sitting, doing nothing or something. He put up with this for sometime and then the worst episode I called 911 as he was “out of it”. This is when they came and took him to ER via ambulance and said his bp bottomed out. He was taken off the Metropolol and the Lisinopril (at our insistance) and was fine sometime after this. When his heart was not working right he needed extra medicine to keep the blood going cut with the new mechanical valve it was working superbly. He has since been doing great! Good luck to you, it is a miserable road but then it does get better.

 


Elizabeth says on January 20th, 2012 at 4:59 pm

I had mitral valve repair surgery last April and I had my first dizzy spell about 3 months post surgery. I was not sure if it had anything to do with the surgery or not, but since I didn’t have such spells before, I couldn’t help but think there was connection. After it happened a second time, my cardiologist had me wear a monitor for 4 weeks to see if there were any detectable changes in my heartbeat when I had one of the spells. Of course, nothing happened while I had the monitor. I still get the spells from time to time and I had one today while I was driving. I didn’t think my spells had anything to do with a change in position and the spell today definitely did not involve a change in position. The feeling I experience is similar to vertigo. The weird thing is that the spells are rather infrequent so I don’t know if there is a condition that can be identified to explain them. I plan to call my primary care physician and get some advice about what to do next.

 


Keith Hendrickson says on January 27th, 2012 at 10:43 am

Had mitral valve repair in 2010. Spent approx 260 minutes on by-pass. Post surgery was doing great w/walking 1-2 miles within 2 weeks. Dizzyness started creeping in within a couple of months. Now there are days I feel dizzy for 8-10 hrs a day. Also have episodes of double vision that last from 10 secs to 60 seconds. Occurs every couple of weeks to once a month. Also started having occular migranes. Don’t know if this is related to lower blood preasure due to Toprol XL or is related to the lengthy surgery. Had high blood pressure before surgery – now around 60/110

 


Pete Hanauer says on January 27th, 2012 at 1:25 pm

I experienced a lot of dizzyness after mitral valve repair surgery in Sept. 2010 and my cardiologist sent me to a neurologist. After some tests that did not show anything, he prescribed Fludrocortisone, which raises my blood pressure. As he explained it, my brain had been used to a certain blood pressure for 70 years and then when the surgery drastically lowered the pressure, the brain couldn’t handle it. The medication helped almost immediately, and although I still experience lightheadedness occassionally, the worst of the dizzyness is gone.

 


Ben B says on January 28th, 2012 at 6:11 pm

In the third week of recovery (my first week at home) I woke up and felt very dizzy and fainted. This continued throughout the day until my parents got home and i was taken to a and e. It was found that i was suffering from a common post heart op complaint, atrial fibrillation. I was put on multiple beta-blockers and after they all failed to help I was defibrillated and the condition was fixed. For more info just google ‘atrial fibrillation’.

 


Irene says on February 7th, 2012 at 8:08 am

I had a bovine heart valve replacement in 2006 and felt wonderful. That lasted a few years and then I have started to feel tiredness. I’m not at the point I started out before my operation and hope never to get there, but I was wondering how everyone out there feels after 5 years with any heart valve replacement. All my tests come out good, just wondering how others feel. Thank you for all your help.

 


Diane Horsak says on February 7th, 2012 at 5:16 pm

March will make 4 yrs. since my bovine valve was put in. I still get dizzy spells. I coded and had it twice they think it was due to being put under twice for so long. I’m sorry to say a lot has changed for me since the surgery. The very best to you and I am very happy you are doing well. Still ticking, Diane

 


Irene says on February 7th, 2012 at 5:23 pm

Diane, THANK YOU for your response. I haven’t gotten the dizzi spells everyone is talking about, my problem still is the fatigue, tiredness etc. I’ve been doing Yoga (gentle) for the past year and it really has helped. Hey, we’re still here and like you said, “still ticking” LOL – alot of people wish they could say that!!! Thank You again for a quick pick-me-up!!

 


Malcolm says on February 25th, 2012 at 2:54 am

i had my aortic valve,aortic root and acending aortia replaced 20th May 2011. Got dizzy for the 1st time 3 weeks later. Now 8 months on this still stresses me. So wonderful to stumble on this page. I feel normal at last.. It drives me crazy. The dizziness comes out of no where. I also at time get really heavy feet and this is followed ny a headache. sometimes i get dizzy and immediately get a migraine. Sometimes driving i get a funny sensation and feel the need to hang on tight… I am 47 years old. Does this ever go away? Doctors don\’t really have any answers and sometimes i feel aren\’t sure if they even believe me. Malcolm

 


Kathy says on February 25th, 2012 at 11:18 am

My dad had the aorta valve replaced; he is still short of breath 3 weeks later; very out of breath; had x-rays of his chest, some clotting, don’t have full details, he has been diagnosed with some fibrillation, they have put him on coumadin to thin the blood; has anyone else had similar issues? is it normal to be short of breath yet after 3 weeks?

 


Diane Horsak says on February 25th, 2012 at 6:52 pm

I have dizziness still after heart valve surgry 3 yrs ago. It comes and goes and no one can tell me why.Did not have it before the surgery. I coded shortly after surgery and they had to open me up a second time being under twice so close plus damage from back to back surgery to me probably is the answer for ME. I just take 1 day at a time now and try to live with the situation. LOL still ticking and thank God for that. Diane

 


Elizabeth says on February 26th, 2012 at 1:21 pm

Malcolm, the dizziness you describe is the most similar to mine that I have read. I don’t know how the doctors will be able to figure out the cause since the spells are so random. Unless they become more frequent or get worse, I don’t think there is much I can do. My cardiologist suggested getting a blood pressure monitor so I can check my blood pressure daily and look for a pattern or changes. I haven’t gotten one yet. More recently, I have noticed a weird feeling when I am stooping or bending to look at something down low and then straighten up. The feeling is like I am starting to have a dizzy spell, but then goes away. These episodes seem to be triggered by a change in position and could have something to do with my blood pressure but I don’t know if they are related to the more intense spells I have periodically.

 


Daina says on February 27th, 2012 at 1:30 pm

I had a mitral valve repair 5 months ago. Since the surgery I have been having dizzy spells, light headed ness, and vision changes. I periodocally have episodes of white spots that will last about 5-10 minutes I am 31 years old and not taking any medications. My blood pressure is normal. The doctor told me it was a side effect of the anesthesia and medication. But, Im not taking any medication. I don’t think the doctors have an answer for these symptoms.

 


madeline dunn says on February 27th, 2012 at 7:16 pm

My husband is 74 years old and had open heart surgery on Dec.15, 2010. He had aortic valve repair and aortic root replacement. He has never been the same. He is dizzy and off balance, and has fallen about five times. We are on a merry go round of doctors but they seem to all want to pass the buck. The real probablem began about two months after the surgery. He has been to primary, neurologist, cardiologist, neruro science center, and many others all with no answers. I get the feeling that he has been written off. Has anyone else had such severe balance/dizzy issues?

 


Malcolm says on February 29th, 2012 at 8:36 pm

Hi Madeline. I have the same issues. I fall to one side often but with being younger I haven’t had a bad fall. I too have seen alot of professionals and they all seem more concerned with the fact that it isn’t related to the surgery . I had my operation at Prince Charles in Brisbane Australia and my surgeon hasn’t had anyone ever have this happen to them. It is very frustrating and at time quiet scary.

 


tom norris says on March 29th, 2012 at 6:01 pm

Wife had mitral valve prolapse repair Feb. 6 years ago . She has dizziness ( like walking on a boat) also high anxiety and it is getting worse…

 


Jackie Tacker says on April 8th, 2012 at 8:41 pm

I had aortic valve replacement 3-2011,I had felt good at first ; but I now have terrible dizzy spells (had several TIA’s) from vegetation breaking off; anyway looking now at a autoimmune problem AIED, and possible Lupus. The dizziness really gets to me at times,,, wondering if this is over or not?
I have had new glasses , stronger ; but to no avail , blood pressure systolic, keeps going up any ideas?

 


Sue Ford says on April 10th, 2012 at 7:30 am

My husband had a triple bypass and valve replacement two years ago in July this year. Since then he gets dizzy spells especially when he gets very warm and is standing some time. Is on Bisoprolol and although only the minimum dose we are sure this is to blame. His blood pressure is on the low side and the drug makes it even lower. We are due to see the Doctor next week with a view to stopping this med as although the spells are not serious, they are causing us both stress! Its nice to know others suffer from the same thing.

 


Diane Andrews says on April 19th, 2012 at 8:30 am

I had mitral valve repair surgery 1/17/12 and still feel tired and have dizzy spells off and on. My cardio Dr. says heart, everything is fine. thyroid is fine and I do not have benign positional vertigo and no one can explain why these contine. I have dizzy spells everyday.

 


dewey waldron says on April 24th, 2012 at 9:16 am

after 3 months, and not all the time, especially at work, l sit an a stool for my computer, not always, but sometimes when l get up not necessary fast, but what l call normal, l feel lightheaded for maybe 30 seconds or a minuter

 


Denise says on May 1st, 2012 at 1:03 pm

I had an aortic arch aneurysm repaired in August 2011 and have had dizzy spells ever since. They are usually not severe – just a vague sense of being off balance. The doctors attribute them to low b.p., although if I take my b.p. during one of the spells, it’s not low. One doc thought that the surgery may have affected my autonomic nervous system causing me to have difficulty regulating my b.p. I had them before I went on Metropolol and since I’ve been taking it. Also, I always have had occular migraines, but have them much more frequently now. They seem to be related to the dizzy spells – when I’m having a lot of dizziness, I’ll have more occular migraines. Both conditions seem to be worse when I overexert myself. Eight months post-op, I am gradually getting less aond less of both, so I’m hoping I will get back to normal as time goes on. Thank you for this website. I’ve worried much less since I’ve seen that so many people are experiencing the same things as me.

 


ednra says on May 5th, 2012 at 11:33 am

Thank you for this blog. The humidity got very high here today and six months post op from an MVP repair, I feel like the world is spinning around me. No one at home understands. I am 56, on no meds at all, but I do get these dizzy spells. I do not like these spells and I pray they will go away. I can’t exercise like this and I know I need to continue my aerobics. This odyssey I have been on just indicates to me how inexact medical science really is. No one can help, maybe just prayer and time. I just hope I don’t get an attack at work, too.

 


Elizabeth G. Morris says on May 25th, 2012 at 10:28 am

I had Valve surgery on December16,2011 , and since that time I have had a problem with excessive sweating….. I also had a lump in the breast and surgery on August 15,2011 ,plus radation….. No chemo……The sweating has become a terrible problem
and I am being treated withEffexon 37.5mg twice a day but they seem to make me sick.
Is there any other thing I could do to treat this problem…?????????

 


Elaine says on June 5th, 2012 at 8:14 pm

My husband had an aortic valve replaced in 12-09, three months later dizziness hit full force. It is not vertigo, but as his heart beats he feels a pressure beat(dizziness) with each beat between his eyes. It is not the meds and no one can tell us what it is caused by though he did stop taking crestor and it was less intense. Have been to many different docs and the mayo clinic in phoenix. At first it appear that that the rising and falling of thebarametric pressure made a difference. Last summer when it remained steady he could as least do a few things, but this summer it just seems to be getting worse.

 


Christine says on June 6th, 2012 at 4:20 am

Like Daina and many readers on this site, me too I am often experiencing dizzy spells and light headedness and had vision changes with sometimes black and white dots on the peripherical vision. I had a mitral valve repair 5 months ago and still take beta blocker, diuretic and anticoagulant and I have low blood pressure.

 


Mac Hayes says on June 29th, 2012 at 4:18 pm

I had aortic valve surgery Jan 19th… I experienced dizziness sometimes severe with near fainting for 2 months after surgery. A pacemaker was put in on March 19th ….I have not had near fainting episodes since but still experienced debilitating dizziness up til now and generally it has affected my quality of life. I am confident after lots of further tests that my heart surgery was successful and myu heart condition is very good now. I have been on Amiodarone for atrial fibrillation episodes (x2) and feel this may be part if not all the problem. I have finally sought help outside my doctors and have found a otoneurologist in San Diego who has discovered a problem in the middle ear and with treatments I have been much better. I is nearly six months since surgery for me. Up until the need for surgery I was in excellent health and never experienced dizziness. Good luck all.

 


Jackie says on July 4th, 2012 at 11:01 pm

Mac Hayes what medication were you prescribed for inner ear, the only thing i am taking for inner ear is lasix,still have dizziness, not as bad ( I could not take plaqunil for Lupus) would like any information.

 


Malcolm says on July 8th, 2012 at 3:25 am

Hi Everyone. I have been seeing a Chiropractor now for a few months. It really helps. She can’t explain why the dizziness happens either. I go every 3 weeks. If i do have a dizzy turn i go earlier and it does fix it. Her thoughts are tho that trigger points in our neck sets it off. It has been 13 months now. I still can’t drive very far as i get the feeling and have to stop. I am really well other wise . See my surgeon again in October and see if this has since happened to any of his other patients.

 


Elizabeth says on July 8th, 2012 at 12:21 pm

I had mitral valve repair surgery 15 months ago and I still have occasional dizzy spells. They are infrequent, so the cause is difficult to impossible to track down. It is also not as severe a problem as some others that have written on this blog, but it is not something I experienced prior to surgery. Malcolm, your experience makes me wonder if my dizziness has something to do with hooking up the heart-lung by-pass equipment to the blood vessel in my neck. Just a thought…

 


Elaine says on July 12th, 2012 at 1:41 pm

Malcolm,

Can you tell my what kind a treatment your Chiropractor does for you as I would like to look into this for my dizzness?

Thanks Elaine for Jess

 


Malcolm says on August 8th, 2012 at 4:44 am

Hi everyone. The Chiropractor works on my neck mainly. There isn’t anything deffinate she does. Was very upsetting to get extremely dizzy today and vommited. Also got very hot and sweaty. Ended up with a migrane. Was hoping the real bad turns were gone. Problem is it scares the hell out of anyone around you.

 


Pat says on August 20th, 2012 at 8:53 pm

After my mitral valve repair, I experienced dizziness when standing from a sitting, bending or squatting position. I didn’t have anything remotely like that prior to the surgery so it was very disturbing. At 41/2 months post surgery it seems to be getting better. I was taking a baby aspirin daily for the first couple of months, but stopped due to the artificial sweetener because I do have a history of lightheadedness when using artificial sweeteners. I am now using a non-chewable baby aspirin…when I remember. I was not prescribed any other meds after the surgery.

 


Pat says on August 21st, 2012 at 7:35 pm

Almost forgot this…hydration is extremely important. I notice if I slack on the fluid intake the dizziness is much worse.

 


Malcolm says on August 22nd, 2012 at 2:13 pm

Anyone on here from Australia? My doctor hasn’t had this ever happen to anyone and i am feeling like noone actually even cares. GP yesterday said ” Well it won’t kill you “.

 


Mae says on August 22nd, 2012 at 7:02 pm

December 2 2011, I had a double valve replacement. I too experienced dizziness after the surgery but I was aware that it was not because of my valve at all but of medication side effects as I was taking on several drugs.

 


Anna says on August 25th, 2012 at 9:44 pm

My husband has had AVR and mitral clean-up and 4 bypasses. It is now 3.5 weeks since op. he has been dizzy since coming out of ICU. As a result is very unhappy to walk, and given half a chance would rather sleep all day long. He is on blood thinners, blood pressure tablets, aspirin, anti depressants and flomax. The cardiologist feels he must just get on with it – but the dizziness is driving us all crazy, as we feel quite helpless to sort it out.

 


Malcolm says on September 17th, 2012 at 5:03 am

I have found a medical report from 1980 from The Dept of Neurology. University of Oulu, Finland. Google Brain Damage and neurological outcome after open heart surgery. This condition has been happening for years. Some of us just seem to be the really unlucky, yet very luck, ones. Very interesting reading but quite scary .

 


Michael says on September 29th, 2012 at 8:33 pm

I am 3 weeks post op (bovine prosthetic valve and aneurism repair) and I am experiencing dizziness when standing. I am in no meds other than extra strength tylenol and aspirin.

 


Diane Horsak says on October 16th, 2012 at 1:55 pm

It has been 4yrs this past March and I still have dizzy & Vertigo problems. I just decide I have to live with it. Except for the people that have had the surgery and see we share the prpblems no one really takes us serious. We that have been there and still are can’t all be wrong. Was not like this before the valve surgery. The good thing is at least I am not the only one with problem. Well LOL & keep on ticking. Diane

 


Pat says on October 16th, 2012 at 5:33 pm

A lot has changed with operating room procedure since 1980, and while some neurological incidents likely still occur, I think they have greatly diminished. I also think some can be overcome. My surgery was 6 months ago. The dizzines is gone for the most part due, I believe, to hydration, good nutrition (I won’t even shop in a regular grocery store anymore) and exercise. Even small amounts of exercise, in conjunction with good hydration (that means 8 glasses of water a day) will increase the blood flow throughout your body especially to the brain. Try it! What have you got to lose? You may also want to work with your physician to reduce some of the meds or try different ones. Drug interactions can be very individualized. Just some suggestions. I am not a medical professional, just learned from trial and error.

 


gail says on November 13th, 2012 at 8:44 pm

7 weeks post avr and septal myectomy, my dizziness has gotten worse. Cannot go to cardiac rehab without clearance. Was seen i n ER yesterday because of racing heart beat as well as a few skipped beats and am to get Holter Monitor in a few days. Experienced persistent diarrhea, some constipation, tingling in fingers of left hand. Will see.

 


sandra says on November 25th, 2012 at 11:39 pm

Had arota value replacement 11 weeks ago. Still having pain in upper chest area around the surgical site. When I bend over I find the pain ,in the chest area ,to be quite unbearable.

 


Joyce Baker says on December 20th, 2012 at 9:59 am

I am five weeks out after aortic valve replacement – only taking Coumadin, aspirin = still light headed when I stand or walk = does not occur as frequently when I am sitting.. I also would like to say that I resent the lack of information and education given me prior to surgery = shame, shame on doctors. My family and I have com,e through a confusing hell.

 


gail conner says on December 21st, 2012 at 11:05 am

Had septal myectomy and avr at Mayo in September 2012. Didn’t initially have any unusual problems with dizziness but now am to see balance and dizziness center at Emory after Christmas. I had had 2 epidosdes of BPPV the year prior to surgery, but these cleared up after a short time. Did experience some unsteadiness also prior to surgery and this may be related to the cataract surgery I had done 2 years ago along with the the placement of multi-focal lenses after the surgery. Am enormously interested any light that can be shed on this problem. Thanks

 


Malcolm says on January 6th, 2013 at 2:46 am

We have what are called soft leissons on the brain. Damage caused from being attached to the heart lung machine. These machines saved our lives but for some of us we didn’t get enough oxygen etc. Surgeons won’t admit this and in my case won’t even consider this. My Gp will however tell me that there has been many studdies done to prove this is the case. Problem is it can’t be measured so for most doctors then it isn’t real. If for example you have a bad stroke. Evidence is you could be paralised down one side etc so evidence is measureable . if you have a mild stroke and you are fine but you just have a funny feeling in your arm and it doesn’t quite feel the same. This can’t be measured, but you know it is real. So with us we have these funny feelings or dizziness and our brain has spacial awareness issues. It can’t be measured and they don’t want to know. Surgeon told me my heart was great( and it is) and the dizziness has nil to do with my heart( and it doesn’t) and he would see me in 2 years. So really all we can do is accept that we are alive and were lucky. And the pay off for it is this dizziness. I have been awesome for 4 months but it the last 2 days, here we go again.

 


Robert Figuero says on January 8th, 2013 at 2:57 am

I had aortic valve replacement with a cow valve on Sept. 25, 2011. in the beginning after the operation i felt good and had no after symptoms. Until 5 months later i started experiencing drunken feeling with sometimes spinning of the room. Of course my cardiologist had just prescribed the month before the dizzy and light headiness, a medication called “Bystolic” which increased the amount of time with the symptoms described earlier. I spoke to my cardiologist about it but he had no answers. Now my symptoms of dizziness and light headiness only gets triggered by hard coughing and sneezing, bending over to pick something up, or if I stand to long. My nephrologist explained that the “Bystolic” might be the problem but could not advise me to stop taking that it was up to my cardio. I did have an ENT check for fluid behind my ears. None found. So since it almost cost me my life when I had an accident with the van after having a hacking cough. I stopped on my own the medication ‘systolic”. For the next 2 months I did not have any of the symptoms until this week when the drunken feeling started again. I wonder if it has anything to do with the heart valve surgery because i never experience these feelings before the surgery. The ENT reported no fluids behind ears. Thanks, Robert

 


Elizabeth says on January 8th, 2013 at 11:13 am

Robert, my experience is very similar to yours (see my post 2/6/2012). I experienced dizziness about 3 months following my mitral valve repair. My cardiologist did not have an explanation nor did the surgeon. I still get that drunken dizzy feeling occasionally. I looked into Malcom’s brain lesion idea, and that is the most likely cause I have heard. I found a scientific review article about the subject yesterday. It only confirms that such a lesion could be the cause and, from what I read, the symptoms could be much more severe depending on the part of the brain affected by the lesions. My symptoms are too irregular and looking for brain lesions isn’t going to eliminate them. It is reassuring to know that others are having similar episodes and I am not crazy to think they are related to the surgery!

 


gail says on January 8th, 2013 at 11:59 am

Haven’t been for my work up at the dizziness and balance center. When my dizziness is the worst, I can describe it, like Malcolm as having heavy feet and legs, my left little finger tingles and a short, intense headache appears. Afterwards my head is numb. I feel like it is something like a TIA. However, MRI of brain was negative and carotids were fine. I take 10 mg of Propranolol per day and 325 mg of aspirin. Now 3 months post avr and septal myectomy. Dizziness has made me fearful of exercising but am going to put that on the back burner and do the best I can beginning today. Will drink the water and exercise as much as possible. Like so many others, I went into surgery hoping to feel better. I have my strength back, but I wish someone had told me about the dizziness.

 


Elizabeth says on January 8th, 2013 at 1:22 pm

Robert, my experience is very similar to yours (see my post 2/6/2012). I experienced dizziness about 3 months following my mitral valve repair.

My cardiologist did not have an explanation nor did the surgeon. I still get that drunken dizzy feeling occasionally. I looked into Malcom’s brain lesion idea, and that is the most likely cause I have heard.

I found a scientific review article about the subject yesterday. It only confirms that such a lesion could be the cause and, from what I read, the symptoms could be much more severe depending on the part of the brain affected by the lesions. My symptoms are too irregular and looking for brain lesions isn’t going to eliminate them.

t is reassuring to know that others are having similar episodes and I am not crazy to think they are related to the surgery!

 


Diane says on January 8th, 2013 at 4:32 pm

It’s now getting close to 5-yrs since my valve (also Bovine) was put in . Every now and then I still get dizzy and I never had the problem before the surgery. I still am leary to drive but they at least come further apart now and I just go with it. The reason I get is that a lot of times they blame it on results from being put under. Lots of luck and keep on ticking. God Bless, Diane

 


JillD says on January 9th, 2013 at 7:06 pm

I too had dizziness after AVR surgery on August 13, 2012. I was on metoprolol in the hospital and for a period of time after getting released. I just wasn’t myself on that drug. While in the hospital I felt disconnected, could not read or watch television, had hallucinations, along with dizziness. After getting home I started taking walks but found, after a period of time, I was digressing and tiring more than earlier in my recovery and walking less. I was taken off the drug and got more energy. I am going on my fifth month of recovery. I have vertigo once in a great while. I get lightheaded, have auras and am getting more frequent headaches both on the front of my head and back of my head. This discomfort really gets annoying. I get depressed when the headaches last for a couple days and can’t concentrate. I will talk to my cardiologist this Friday and see how he resoponds. I had an eye check up and my doctor said some of the migraine symptoms come with age, starting at about 50 year old. I didn’t have any of this prior to surgery. Also no dizziness even with the shape my aortic valve was in. That is my story. Any advice is appreciated.

 


JillD says on January 9th, 2013 at 7:30 pm

After reading Elizabeth’s statement I agree with Malcom and Elizabeth. I think for the most part, these symptoms are just a part of deal in having heart sugery. When I speak to my family, one will say oh it is a part of menopause—been there and done that. This started after a major invasion of my body including a heart lung machine, so I am inclined to say this is a part of the surgery no matter what, even if it doesn’t seem to directly connect. Had we known of this side effect, would we have chosen the alternative? I do hope the symptoms will get better with time, but I am not going to constantly compain about it. (I will give myself another three months to complain–even that is too much, but I like to complain.) I am giving myself eight months to completely heal. After that, I guess I will just have to make the decision to live with it and I will start working on that now.

I am sure research will be done and progress made, but we are all so very lucky to be alive and there are others in much worse shape than we are. Some of those are heart valve surgery recipients.

I learned about my impending surgery in May 2012 and had to wait until August. I had a lot of time to prepare. I chose to do so using what I had learned at pain school. I meditated, practiced mindfulness, calming myself and alleviating whatever stress I could, and kept myself in the best physical and mental shape possible. Working with our minds, we can quiet ourselves alleviating pain, and possibly helping our brains heal the lesions. I have found calming myself really helps. Breath before you think. Assess your stress, and relax. Then do what you need to do.

 


Mac Hayes says on January 10th, 2013 at 3:17 pm

Aortic valve replacement January 2012. Experienced severe dizziness for several months
- debilitating actually. Finally saw a oto-neurogist and had crystals in the inner ear. with Eppey chair treatment I improved exponentially. He explained no one knows exactly
how a person will react to the huge assault to the body w/ open heart surgery. Good Luck all I know how you feel.

 


Jackie says on January 10th, 2013 at 10:21 pm

I like you guys are most lucky to be alive after Aortic replacement 2011 ,and like Malcom, almost but not entirely dizzy free for the last quarter of 2012 . And this week well heck spoke to soon,, have had several motion problems,patterns,zigzags,and blind spots in eyes also diagnosed Lupus so don’t know if that is part of that or just lucky and it’s time to be going through a spell with all the above. I feel so blessed and thankful to our Maker to still be here and pray He continues to let me get through each little divot that comes along and come out of it stronger and live many more years.”Thankful in Texas”

 


Eric Eliassen says on January 16th, 2013 at 12:06 pm

I had a stoke in Sept. 2011 a triple bi-pass in arril 2012 and a valve repair and had a heart attack somewhere in betweeen but did not know it. Nw i get dizzy pain in my chest fllowed by vomiting when walking a short distance. Any suggestions what might be wrong. Eric Eliassen Canada

 


Lucy says on January 16th, 2013 at 4:33 pm

I have had dizziness since my surgery in Nov 11 and the off balance feeling. I had aortic valve replacement on Nov 30, 1911. Although I have not yet had any major complications I have all kinds of side effects.. I also had a huge drop in my eyesight and have bright diamond shapes that circle around in my eyes… some of the side effects are getting farther between now but I still don’t feel completely back to “normal” yet.. I know I’m very lucky to be alive and am very grateful, just wish I’d feel a little more normal…Hopefully it will get better soon, just taking me a little longer than usual…God Bless you all…

 


Renee says on January 17th, 2013 at 5:44 am

!0 September 2012 was my date with destiny after being diagnosed with sever aortic stenosis. I was asked to partake in a study on heart valves. I live in South Africa and had my op at Groote Schuur hospital in Cape Town.
When I was phoned by the research team was amazed at all the questions I was asked about. One was eye problems and yes for the first three months I had problems but my eyes now same as before my op. They also mentioned tingling in hands and head???
Excessive bleeding, breathing problems so many I cannot remember all the questions asked.
The only problem I have is the bottom quarter of my scar hurts when I drive to much or pick up something I should not…even though scar properly healed.
Every day is now a blessing and a miracle as without this op I would not be here!!
God Bless all..

 


Paul says on January 26th, 2013 at 6:20 pm

I had my Mitral valve repaired a little over 6 months ago and still experience dizziness usually triggered by quickly standing up occasionally they are severe enough to have to hold onto something and wait for them to go away. Less frequently my vision is a little blurred and have had three instances of Amaurosis fugax (similar to a shutter being raised across my left eye). This is not exercise induced and I have never experienced it prior to open heart surgery. Post surgery my BP averaged 90/70 while on medication (Bisoprolol (1.25mg), warfrin and Rampril (1.25mg)). After Rampiril was discontinued my BP increased to 97/74 and the dizzy spells improved a little, enough to suggest some correlation. If I stay in Sinus Rythm for another six months (I was in Afib which was successfully electro cardioverted) the plan is to come off the Warfrin and Bisoprolol. Hopefully my BP will increase and the symptoms will further reduce.

The dizziness appears related to the procedure or the medication given the number of patients on this dialogue who raise similar concerns. Surely this must be a prime candidate for a medical study!

 


Renee Brown says on February 3rd, 2013 at 5:59 am

I was asked to participate in the mechanical valve study and has nothing to do with the implementation of same but I will ask next time I am phoned from America. Please note I am based in South Africa. I only remembered what was relevant to my dis ease…

My blood pressure is being kept very low to help my kidneys recover..(I hope) so on very hot days I am a bit dizzy but this is as a result of medication and not the operation. On hot days my blood pressure drops to 95/70 even down to 80/59 which is very low…so no wonder I experience dizzy spells. A small price to pay to be alive!!!

I will give feed back…
God Bless

 


diane says on February 11th, 2013 at 10:07 am

I still h ve not had my meeting with surgeons.
After reading the blog, I MUST SAY I AM NOT ENCOURAGED.
Everyone tells me, oh, u will survive……..yea, sure. But can I handle having the secondary symptoms of the operation for 8 months or more.
eight months of my life feeling dizzy, or drunken feeling, is no piece of cake.
ALSO, reading that one can have double vision, headaches, and leg problems is the reality. I read about strokes too, not why would I WANT to subject myself to this operation. ONLY one reason. FOR MY SON.
I am 60 years old, and not that happy and knowing I HAVE to have this operation to extend my life makes me very depressed. I PERSONALLY, would rather just have nature take its course, but that would devastate my son and my mother with whom I NOW live with because she had congenital heart failure last year. SO NOW, its the blind leading the blind….. TWO heart patients living together. NO FUN.
I will purchase a power lift chair since reading from the bloggers that this will help after surgery. I WOULD like to know; IS THERE A SPECIAL DIET TO FOLLOW AT HOME AFTER SURGERY SO I CAN PREPARE THE FOOD PRIOR TO SURGERY.
THANK GOODNESS FOR THIS BLOG AND THE BOOK.

 


Luis says on February 11th, 2013 at 9:03 pm

Dianne, This blog is not meant to scare or discourage you from surgery but to arm you with knowledge that a lot of patients do not receive from the medical community. You already have one bit of information I wish I had before my surgery – get a power chair to help you in the beginning. My dizziness and my short term memory loss is diminishing and I am three months out from surgery. I do have transient bouts of depression and tearfulness but not nearly as severe as the first months. Remember we are all different and you may not have any problems. I can only advise you to get dressed everyday- talk to people – try to keep those negative thoughts out of your mind. I envy you for the help you will receive from reading – my only advice was do not lift anything heavier than 8 lbs and do not push or pull anything when you get home. You have no idea what a pitiful amount of information that was.
You are going to be so well prepared, you are going to breeze through this thing – I thought I was going beserk beause I had the memory loss and dizziness and depression – if I had known that could happen I would have dealt with it much better. Because you know there is that possibility – you will better be able to handle it and you may not have problems at all.
Good luck and God bless!

 


Bill Clark says on February 12th, 2013 at 10:48 am

Dianne-

I was one of the people experiencing dizziness after a Mitral Valve repair that pretty much matched what everyone else wrote about. You can find an earlier post that I wrote in 2011. My surgery saved my life and the dizziness was a small price to pay. I have no idea of the cause and neither do my doctors.

The dizziness did go away after a couple of months. I also want to say that the worst part was not knowing the cause or when to expect it. Life should be cherished so please do not be afraid. This problem is small potatoes as my mother would say. You will enjoy years of good health after this operation.

Good luck. I will say a payer for you.

Bill

 


Diane says on February 13th, 2013 at 7:52 pm

Dr Mr. CLARK, Thank you for encouraging me …… I have been very depressed lately thinking of all the side symptoms after the surgery. Double vision, dizziness, some have leg problems, some even have had strokes….. BUT That is not everyone……..
I will keep your mother’s saying in mind; the problem IS small pOTATOESp oR like I think Adam Pick said in his book; or some other blogger|| Fake it till you make it.
I will do the best I CAN to be positive, since everyone has been so kind with their encouraging messages on this blog. THANK you for your kind support, from the bottom of my heart.

Diane

 


Renee says on February 14th, 2013 at 8:39 am

Diane
Nobody can tell you what you should or should not do…all we can do is to tell you our side of the story..
I was diagnosed with Severe Aortic Stenosis and left valve failure on 23/7/2012 with less than 6 months to live. Not having medical cover had to go through the state system. My heart was working at only 25%. They were very reluctant to operate. The only thing that saved me was that the angiogram showed my arteries were totally clear. The doctor told me I had a 30% change of dying on the operating table. I had to change that round to a 70% chance of walking out of there. They replaced my aorta valve and left the other valve as I was too weak…..I was in ICU for a week. I had a seizure (never ever had one of those before). I had a drip site infection in my foot and was unable to walk for a whole month after the week in the ICU.
If you could see me now…..it is 5 months since my op and I am on my feet all day. I walk everywhere at my old pace. Live is wonderful and I am grateful to be alive. The small annoying things are just that…small annoying things.

 


Diane says on February 14th, 2013 at 5:31 pm

THANKS SO MUCH FOR YOUR INSIGHT ………. I WILL KEEP YOU IN MIND…..
YOU MADE IT……..DESPITE PROBLEMS THAT YOU HAD……
THE BODY AND MIND ARE A PHENOMENAL THING

THANKS FOR ENCOURAGING ME……. IT IS MUCH APPRECIATED!!!!!

DIANE

 


JillD says on February 14th, 2013 at 9:30 pm

I celebrated six months February 13, since my AVR surgery. I had a bleeder from the pacer wire which pierced my heart. So today, February 14, is my six month anniversary of my second heart surgery. There was no reason why that bleeder happened and the surgeon is still scratching his head. A fluke, of course, would have to happen to me. I admire my surgeon and would not hesitate to have him do a third surgery on me. Weird things do happen.
Yes, I have been dizzy since surgery, in the hospital and after returning home. I was quite dizzy after getting home. The dizziness lessened with time, but I also had rare bouts of vertigo. Maybe three times. Today, I have been-light headed all day which is odd. I am still recovering and feel my body is still adjusting from the surgery. I know this too shall pass. Such is life.

 


Jim Marcum says on February 15th, 2013 at 10:14 am

I had my Mitral valve replaced Jan 15, 2013. The surgery was done Minimal Invasive with Robotic assistance. I had my Aorta valve replaced on April 13 2005. That surgery was done chest open or threw the sternum. The two surgeries are very different with very different feelings and small aches and pains. I have had some dizziness after this most recent surgery. I get light headed sometimes while just setting. I came out of the second surgery with a low blood pressure bottom number and have been taking blood pressure medicine for this. I don’t know why but intend to find out next week when or if I am going to be able to stop taking this medicine I had always had good blood pressure up until after the surgery. What I have been doing is avoiding bending over. I also try and not cross my legs. I like most people have always liked to cross my legs when I set but I’m trying to remember not to do that do to causing clots. I take Warfarin due to having the two Mechanical Heart Valves now. I also, as someone else stated here, try to rise slowly and give myself time to adjust. Its been a month since my second surgery and next week I see the surgeon. I hope I will be able to return to work by the end of this month or within the next two weeks, we will pray and see. I continue to have some pain around the rib incision and the holes. It feels like mostly nerve endings tingle and pinch and it occurs mostly when I find myself sleeping on my right side on the incision. But I am healing up O.K. it seems. I do have some small rash at the incision sight probably from latex during the surgery which I am allergic to. You have to keep a positive attitude and know you are getting better everyday. Keep using your breathing lung volume exerciser until you get over 3000 MLs easily. Good luck all any questions concerning the surgeries you may contact me at jim.marcum70@hotmail.com God bless you all I pray for your speedy recovery.

 


katm says on February 18th, 2013 at 1:35 pm

Ditto on being grateful for finding this site. I am 6 wks post op for AVR. I too am experiencing dizzieness and some double vision. The double vision is getting better, not as frequent but the dizzieness is still a probem. Hoping like everyone that this will eventually go away . Many talk about lesions on the brain due to lack of oxygen during surgery. If that is the case, do these lesions heal? Thanks for any input.

 


Jim Marcum says on February 18th, 2013 at 1:50 pm

I have had dizziness with my heart valve surgeries. I had my Aorta Valve replaced in 2005 the traditional way and I had some dizziness. The Cardiologist I had at that time had a bunch of tests ran on me. Tests on my digestive tract and MRI’s everywhere and drinking dye and you name it they ran it and found nothing wrong. He then said he thought it was post operative trauma. The dizziness eventually went away until my Mitral Valve started acting up. I had it replaced this year via minimal invasive robotic asst. surgery. I have had dizzy spells again. They last for 5 to 10 seconds. I usually just reach out and touch something to help assure my footing. I have not walked as much after this surgery because of the weather and I think the setting and lounging around to much has not helped me. I go back to the Dr. this week and after I talk with him I will report back here what he thinks about this dizziness. The only other problems I’ve had is the surgery incision area has remained to be sore and I’ve developed a small rash there my PCP gave me some cortisone crème to apply there and I read in your list of symptoms rash was also included and also digestive tract and I’ve had some of both.

 


Michael says on February 26th, 2013 at 9:56 am

I had a replacement aortic mechanical valve just over 2 months ago. I don’t know whether this is connected or not, but I have recently had to be careful going to a sitting up position in bed as severe giddiness can result if I do it too quickly. I have not noticed any problems during the day.

 


Jennie says on February 28th, 2013 at 6:22 pm

My 81 year old father had a valve replacement and bypass about 8 months ago (the surgery took 8-1/2 hours due to bleeding) . Everything seemed fine after he recouped from the surgery, he was walking, working in the yard etc. He has always been an active person. Then, all of a sudden, for about the last 2 months he has been experiencing dizziness so severe that he can barely walk. He fell while walking to the bathroom the other day. I am very concerned and don’t know what to do to make it better for him. I think he did too much activity too soon after the surgery…don’t know if that has anything to do with the dizziness or not. Vertigo medication has not helped. He has a doctors appt. coming up and I am going to make sure they check his inner ear and do a full neurological evaluation. I will post if they find out the cause.

 


Jim Marcum says on March 5th, 2013 at 4:29 pm

Jennie
Your fathers dizziness most assuredly needs to be checked with his surgeon and cardiologist. I spoke of dizziness in my blogs but not to the point of falling down and he is working too soon after the surgery especially an 8 and 1/2 hour surgery. Please slow him down. Take him walking and let him use an oxygen tank dolly to roll along to help steady him while he walks. I turned 61 a few days before my surgery on Feb. 15, 2013 I can’t imagine the difference if you would add 20 more years. Just speaking from experience I am not a Dr. I think he is trying to do too much. Also something I think I mentioned here, I have had two (2) heart surgeries. The first surgery I was 53 had Aorta replaced with mechanical the second surgery I was 61 had mitral replaced with mechanical I wanted the mitral valve repaired but the doctors all thought replace was better but I have read many reports from top clinics that the patient does much better with Aorta Valve replacement and Mitral Valve repair. But, again I went with my doctors on this you feel like you have to. I said a lot, I’m sorry, to say this. Both of my surgeries the doctors and hospitals (which were different) denied knowing any thing about dizziness. If you just scroll up these blogs you can plainly see that the problem exists and they would almost certainly have to know that it does. I have both times gotten better with just some time and healing. They may have seen this so often that they deny the problem hoping that it goes away like it normally does. I’m sorry for being long winded. Hope and pray your father gets better. Must be a very strong man with the peace of the Lord in his heart to go through all that and be out working in his yard so soon. God bless him and his family.

 


Mark H says on March 24th, 2013 at 4:17 pm

I had mitral replacement surgery on 3/5/13 and now at home I have had a few instances of dizziness which can be quite scary. While I have this from time to time, I have found that I can also get on our eliptical for 15 to 20 minutes periodically at a low level, or walk and not have a dizziness issue necessarily. I am taking 25mg of metoprolol, but prior to surgery I was taking 100mg primarily for heart rate, not blood pressure. I am also taking coumadin now and trying to get the INR between 2.5 and 3.5, however my cardiologist and I have been struggling to get it there from the current value of 1.6 (i.e., we have increased it to 15mg to see if we can get it there). Based on the comments from others, it seems that these drugs could be contributing to the issue. Any other comments on this?

 


Jim Marcum says on March 25th, 2013 at 11:12 am

15 MG sounds like a lot. I take 25 MG total per week for the same INR 2.5 to 3.5
I do know that it varies a lot from person to person. Diet and other medications may affect the INR. Are they giving you the stomach shots to protect you from clot, they should be. Good Luck.

 


Bryan Bertsch says on April 1st, 2013 at 9:27 am

I am now 9 months out of mitral valve surgery and I do experience random bouts of dizziness. It is very odd and very random. Never happened before surgery so I do think it has something to do with the procedure. I have not been on any meds for 7 months so it is not from that. It can happen while sitting or standing and sometimes it is quite powerful (as in, almost lose my balance) but it only lasts for a few seconds, 10 seconds tops, at a time.

 


Elizabeth Gustavson says on April 1st, 2013 at 12:01 pm

Your dizzy spells sound much like mine. I had mitral valve repair surgery almost two years ago and I had another dizzy spell last week–a rather intense one. My primary care physician, cardiologist and surgeon have been unable to give me a satisfactory explanation. From reading this blog, I have concluded that the dizziness is probably a side effect of being on the heart-lung bypass equipment and/or the anesthesia during surgery, possibly caused by brain lesions that result from the procedure in some patients. I don’t think there is anything that can be done about the dizzy spells and I am thankful that I don’t have any more severe deficits. I also find it comforting or reassuring to read that others have similar symptoms, validating my view that they are probably related to the surgery rather than some independent issue.

 


Jim Marcum says on April 1st, 2013 at 3:30 pm

Mark H. I also take Metoprolol they started me on a small dosage after the surgery. It seems that my heart skips a beat after a Maze procedure they did during the Mitral Valve replacement. I was taking Multaq and hoping to get off that medicine for good now after the surgery I was having some AFibb and hoped that that was partly due to the mitral valve stenosis. My heart as far as rhythm seems O.K. have a small amount of palapatations but a lot less frequent then I was having before surgery. Dizziness seems to subside with time however I did have a spell just yesterday while working and being a little hot. I was dumping some bags of fertilizer into a tank and it was a little warm out, I was perspiring lightly. I dumped about ten or fifteen of these fifty pound bags and I got somewhat dizzie headed. I didn’t fall but it was enough to make
me concerned of possible clot at the time it occurred I shook it off and set for a while. We with mended hearts must be careful. God bless and pray for each and everyone.

 


carol says on April 30th, 2013 at 6:28 am

My husband had aortic valve replacement and double bypass 2 weeks ago. He hasn’t been able to go walking like the surgeon suggested due to weakness, chills, sweats and dizziness. He also has a dry cough which the surgeon gave him RX to help. He has an appointment with the surgeon tomorrow but I will have to request a wheelchair to get him from the car to the doctor’s office. WHY?

 


S says on May 1st, 2013 at 7:54 pm

No heart valve surgery…..BUT……I am under 40 years old and had open-heart surgery 3 years ago. Never knew I was born with PAPVR…..I have been athletic all my life and still enjoy sports. I have suffered from dizziness ever since the surgery and no not take any meds. My doctor has said that the dizziness will remain for my life. I feel it about 3 times a day, lasts for a strong 3 seconds and can happen if I’m sitting then stand, or just standing still. I hate it, but it’s my new normal as they say. Beats the alternative, which I would have died from this condition if it would have continued to have gone undetected.

 


Jim Marcum says on May 1st, 2013 at 11:07 pm

There are a lot of dizzy spells going on here. We know by the shear number that the problem exists. Lets try to write down the exact times, length of dizzy spell and what physical activity we were doing at the time of the on set. Get as much information as we can regarding these episodes. We need to list medications being taken at the time of the spell, what heart procedure we had done, method of surgery performed and time out of surgery. I think if we could get some real good logs of these events we could see how long it is before they taper off, as they seem to do. What do you think.

 


Jim Marcum says on May 1st, 2013 at 11:22 pm

Carroll I need to answer you. I am not a doctor I am only a person that has had a couple of heart surgery’s. I have read a lot and I have had friends that have had endocarditis. It is bacteria infection in the heart. It has flu like symptoms. Aches, weakness, fever, vomiting and cough. Your husband has all these symptoms. The Doctor needs to do a (TEE) trans esophogul echo cardiogram. By doing this test they can see if any bacteria (vegetation they call it) is in the heart valves. This bacteria lodges in the heart and continues to poison the system with bacteria and they can’t find the source. Please talk to his cardiologist about this ASAP. I have had friends that have had this and it is very serious and takes months in the hospital often on antibiotics to cure. Often times heart surgery must be performed again to remove the bacteria filled valve. Good Luck and prayers are with you and your husband.

 


Jim Marcum says on May 3rd, 2013 at 9:34 am

Robotically assisted Mitral Valve minimally invasive surgery. I had this surgery and I would like to compare notes with other/s who has had it also. I’m three and one half months out of surgery and the incision site is still very tender. I have also had surgery via opening the sternum over 8 years ago. In comparing these surgery’s the most recent minimally invasive surgery seems to be more painful in the long run. The tissue is extremely tender at my right breast and under my right arm. The tissue under my arm often seems puffy and swollen. The surgeon and his assts. have told me it could be scar tissue from the surgery. It actually feels like fluid sometimes. I guess I will get better with time but I am interested in others experiences with this type surgery. We need to be able to provide good information to those people who are facing surgery and ask us for our help and advice. Thank you and pray for one another. jim.marcum70@hotmail.com

 


Shari says on May 7th, 2013 at 12:01 pm

My husband had open heart surgery and valve repair on Jan 8 2013, It is now May 7, 2013. He has been off all heart medications for 30 days. 3 days ago he started having vertigo, room spinning, feeling like he was being tipped over in bed. Seen Dr. yesterday and all his vital signs were normal. BP 134/85, P 84, Dr did series of test for stroke sx, and they were negative.

 


Jean says on June 4th, 2013 at 2:01 pm

I had OHS in October 2012 to replace/repair valves damaged by endocarditis at 54 years old. My aortic valve was replaced (porcine) and mitral was repaired. I had some dizziness in the first weeks after surgery, along with visual disturbances (sparkly C-shape). I hoped these would completely disappear when I was able to get off all meds at the 3-month mark, but not so. I continue to have visual disturbances 3-4 times a week and occasional double vision. I also occasionally have a sensation like the world is tilting, and just had another dizzy spell after months without. I commute to work by bicyle (14 km/day), swim twice a week, and otherwise feel totally recovered from the illness/surgery. Thank you for this forum so I know I’m not alone in experiencing these lingering issues.

 


Jim Brunner says on June 10th, 2013 at 11:08 pm

I had non-invasive mitral valve repair almost a year ago. 3 times during the following months I have experienced a loss of equilibrium, to the extent that I thought I would lose my balance all together. It lasted less than a couple minutes, and then went away as though nothing happened. I usually walk anywhere between 2 and 8 miles per week. I am 74 and my BP today was 118/78, which I love, but it has been elevated to 130/90 several times. Do I have anything to worry about? I get seen by my primary physician at the VA twice a year, at which time I have a full blood panel and urinalysis. He has said that my recovery from surgery is “remarkable.”

 


Colin Willison says on June 19th, 2013 at 4:42 am

I had aortic valve replacement surgery one week ago and have been suffering bouts of dizziness. It’s not just when I stand up but any time. I begin by feeling a little light headed, then my eyes seem to take on a mind of their own and drift around in the sockets causing my dizziness. It only lasts for a few minutes but is disturbing.

 


harvey fraelick says on June 25th, 2013 at 7:57 am

i had abalance problem before the heart surgery the valve being replaced. ive playued golf befoe the surgery and never lost my balance while swinging aclub even a driver sine the surgery i fallen my butt have a bad time into trap i didnot have this prior to surgery what could possibly be the problem has any one else encountered this i could use some advice

 


August says on June 28th, 2013 at 4:04 pm

I am two months post-op of a heart value replacement and an aortic aneurysm that measured 8.6 cm at the time of my surgery. I have mentioned to every doctor I have seen since the surgery about the dizziness and not one of the sees it as an issue. My wife and boys (ages 7 & 9) on the other hand do see this a a huge problem. I have fallen back into the chair or couch I was just sitting on most of the time. However there have been times my wife has caught me or I have fell to the floor. I am worried that no doctor is taking me serious that this is a problem.

 


VANDERSCHUIT says on July 10th, 2013 at 1:40 pm

I had triple bypass 2 years ago. since then i’m constantly on the edge of dizziness. just putting on a t-shirt I need to brace myself on a wall or some stable place. my eardrums feel plugged all the time. if I shake my head hard I have a few seconds without dizziness and my head feels all mushy. my vision changes from blurry to clear when watching TV. I’ve had several near falling down episodes. seems like my estation tubes aren’t working? HELP!

 


Marianne Bells says on July 21st, 2013 at 7:56 pm

My opinion is that the physicians are not fixing the main problem. The reason the valve was acting up in the first place. Infection (inflammation), in the New England Journal of Medicine many many years ago. This is why they medicate people for teeth. Antibiotics are being hidden under a rug and too many people are being denied the very medicine that could potentially prevent long term chronic illness from not having the inflammation dealt with prior to surgery or extreme valve replacement. Look at the tape \”Under Our Skin\”. This is nothing new and the doctors are ignoring a very serious illness and all of us are suffering necessarily.

 


Paul Rose says on July 22nd, 2013 at 6:32 am

I had my Mitral valve repaired a little over 12 months ago and since stopping all meds 5 months ago (with the exception of mini aspirin) my dizziness spells have almost completely abated and the occasional instances of Amaurosis fugax (similar to a shutter being raised across my left eye) have also stopped.

Since stopping the Bisoprolol (1.25mg), warfrin and Rampril (1.25mg). My resting BP now averages 106/74 and 65 BPM heart rate and I can comfortably handle hard gyn work out’s 3-4 times per week of an hour each all without dizziness.

As I said in an earlier post on this, I remain convinced that the dizziness appears related to the procedure or the medication given the number of patients on this dialogue who raise similar concerns. Surely this must be a prime candidate for a medical study!

 


kayla chancey says on July 31st, 2013 at 4:28 pm

My dad just had open heart surgery to replace his A valve and is experiencing a lot of dizziness.

 


Pat says on August 4th, 2013 at 8:51 am

Hydration (think water, not coffe, tea or soda, and especially no alcohol), proper nutrition (no artificial anything and/or see a nutritionist), and exercise (start slow and increase gradually). If I slack on any of these the dizziness returns. (See original post Aug, 2012.) I gave up the pain meds before I left the hospital (took extra strength Tylenol) and only take 81mg of regular (not baby) aspirin daily. Don’t let anybody tell you they haven’t heard of this. Just look at the posts for evidence. If you have concomitant ailments, check the side effects of all meds as well as the interactive effects.

 


Shari says on September 8th, 2013 at 5:15 am

I had open heart triple bypass surgery 5 weeks ago. Everything was going really well, until 4 days ago when I started to experience a little vertigo. Not sure if this is rela
ted to the surgery, because I am not on medication. I am holistic and do things naturally, so I KNOW its not medication related. It is a little unsettling.
Had a cardiologist checkup a couple of days ago and of coarse I did not have this at that time. I also walk outside around the neighborhood. Just wish I could pinpoint the cause and make it go away. Very annoying. I get it even when bending over or at the beginning of lying down.

 


Kenneth Davies says on October 12th, 2013 at 7:52 am

Still getting odd dizzy bouts(they last about 3 minutes),it is roughly 5-8 per year.
Operation 1 Sept 2008….Remove 5cm aneurysm from ascending aorta..replace faulty aortic valve in ascending aorta with st jude’s valve and maze procedure for atrial fibrillation.Whilst still at the Hospital I was for a second time given open heart surgery for a Cardiac Tamponade
My medication is Nebivolol/Anlodypine(istin)/Warfarin(coumadin) and statin tablet also I take Digoxin,other than these episodes I feel ok.

 


Jim Marcum says on October 14th, 2013 at 5:52 am

I have not commented or written in a while so I thought I should. The dizziness occurs I believe more than we believe. I have had two heart surgeries and it occurred with both surgeries. My blood pressure is good. I take warfarin to control my blood for two mechanical heart valves, Aorta by St. Jude and a Mitral from On X. Why two different valves I don’t know doctors preference I guess. The thing I wanted to mention is you say dizzy spells for a few (minutes) that is concerning. Mine and most I have ever read about last for a few (seconds). Is it minutes? If so I would have doctors running some tests. Good luck to all and prayers with you.

 


Ken says on October 16th, 2013 at 1:16 pm

I had a valve replacement surger on July 16. Today is Oct 16 and I just experienced a second session of something I can only describe as dizziness since the surgery. Though I have felt dizziness from standing up after the surger that other people posting have described, these feel different than those. With standing up quickly (which has pretty much abated) I would get slight vertigo, swimming vision. With these – both of which have happened by sitting. I could feel my conciousness slipping and the only abnormal sensations I could feel were a feeling of pressure, like at the bottom of a rollercoaster hill and the world seems to bend a little visually. Not the usual vertigo and spinning head.

 


Jim Marcum says on October 16th, 2013 at 10:57 pm

Ken,
Which valve, what type of surgery, minimally invasive or the old fashioned through the sternum. What type of valve bovine or mechanical? What medications are you on if mechanical then warfarin. If your doctors think your o.k. then you probably are. You go through a lot of different feelings and your mind is very conscious of those feelings and your healing process. there is something called traumatic experience. when you go through near death experiences you become a little frail and fragile. you start to dwell a little too much on just how fragile life is. I had a touch of this my first surgery. I was having heavy leg feelings. numbness. dizziness. they put a monitor on me, you might have your doctor do the same. the monitor runs constant ekg on your heart. I made notes when I was having these weird feelings I called them. the doctor showed me at those times my heart was working absolutely normal. I was scared I guess. have confidence in your healing and your doctor. I pray everything works out and give us that other info if you have time it helps when we know what each other has been through.

 


Joe DuPay says on November 2nd, 2013 at 8:51 pm

Just past 11 months surgery for AVR with On-X valve.
Fast recovery and doing well except occasional dizzy spells. More like lightheaded for just a few seconds. I sort of pause and it is gone. I am beta blocker and Norvasc plus of course Coumadin. Maybe it’s the meds I don’t know. I do feel a little better that others experience this also. I see my doc in January and will ask but this website helped me relax a bit about it.

 


Jack says on November 23rd, 2013 at 4:42 pm

I had mitral valve repair surgery approx 8 months . In the last few months my dizzy spells seem to have been getting worse when i stand from a sitting or laying position, to the point where i would have to hold on to something or even sit , or go down on one knee to prevent from fainting. After researching several reasons, I found it was my Metoprolol )blood pressure med) being too high a dose and my blood pressure was dropping too much when I stood quickly. Since this happened, My dosaqge of metoprolol is now wayyyyy lower (25mg) and i VERY RARELY experience those dizzy episodes anymore. I am not suggesting you cut your meds like I did, although it may be something to speak with your doctor about..Any other questions regarding my experience, feel free to email me at Jackerz1981@gmail.com.. Hope you feel better, and drink lots of fluids, it makes a difference !

JB

 


Renee Brown says on November 25th, 2013 at 1:44 am

I am 14 months post op with a mechanical valve. I am part of a study on mechanical valves. I am contacted regularly and I was asked this question at the last review….”Are you having dizzy spells as a result of your medication?”

Yes I was having dizzy spells and I asked the Dr to change my medication which he did..and I must confess I do have the odd dizzy spell like today it is very hot here…
So I agree with the comments above drink lots of water and speak to your Dr.
God bless

 


Joseph Kusiak says on December 6th, 2013 at 8:00 am

Hi Adam,

I am 17 weeks out and after leaving the hospital and being home where I was much more active, have had an occasional spell of dizziness. It usually happens when getting up after sitting for a while. It only lasts a few seconds and is not severe.

My cardiologist said it was normal but I think it is a little more frequent now after surgery. I am not on any medication so that can not be the cause for me.

I am however experiencing skin irritation around the incision. The skin in this area is very blotchy.

 


Patricia says on December 8th, 2013 at 11:09 pm

I had Mitral Valve replacement also a pacemaker. In the hospital I was some what dizzy but since I’ve been home about 15 days I am very dizzy.. Not just when I stand or walk but even if I am sitting and put my head back. I was wondering if it could be from the pace maker. My heart rate day to day is getting higher. It went from 83 to 110. I am vert concerned called the 24 hr. nurses care she told me to call the dr. But it is Sunday and the answering system tells you to call 911. I don’t want to do that. I do have a Dr’s visit Tuesday, hoping he could answer my questions.

 


Jack says on December 10th, 2013 at 1:49 pm

I was mitral valve repair and I went through the same thing with the dizzy spells and blood pressure. Make sure you speak to your doc about both, and there is ‘absolutely’ nothing wrong with going to er for anything you feel may be wrong after heart surgery. Also , talk to yor doc about the metoprolol strength, mine ended being too high, and I too got dizzy all the time when standing. Once I lowered it, it still happened, but very intermittently, nowhere near prior. It was happening every time I got up to the point I would have to drop to one knee to stop a possible fall or from passing out possibly. Also talk to your doctor about possible vitamin deficiency in your blood. Apparently your body absorbs/burns vitamins a lot quicker when your recovering and for be it was potassium mainly and I was told that it was making my dizzy spells worse. When I maintained by eating different foods to supply all vitamins(especially potassium) it def helped the spells. Please wb with any other questions I may be able to help with, god knows I used this site a lot also. I am now about 9 months post op, feel sooo much better, dizzy spells are basically gone and only med is metoprolol 50mg, which I now break in half to take once a day. IT WILL GET BETTER ! Don’t be afraid to go to doctor or ER, believe me, they understand, ITS YOUR HEART ! , not a cold !!!!!!!

 


Jim Marcum says on December 11th, 2013 at 12:07 pm

use the ER. If you can’t get in to see your doctor especially with something as potentially dangerous as heart rates speeding up. I had a maze procedure performed on my heart for AFib where my heart beat was fast. Did you have AFib? Visit a hospital when this happens they can give you meds to help slow the rate down.

 


Patti says on January 6th, 2014 at 2:06 pm

Am experiencing dizzy spells when I first stand up. I came here to see if other valve replacement patients had experienced same.

 


Joseph Kusiak says on January 6th, 2014 at 3:56 pm

I had OHS on 8/2. I completed my cardiac rehab late November early December. A few weeks later after returning from my 4x a week 3 mile run / walk I completely forgot I had run. It was about 30 minutes after I got home and I questioned my wife why my running pants and sweatshirt were out. She thought I was kidding but I was completely confused and it took 10 or 20 minutes to recall the run. That happened about 3 weeks ago and I have upped my running to 2 or 3 miles of straight jogging at 10.5 minute miles with no recurrence of that incident.

 


Jack says on January 6th, 2014 at 11:56 pm

Patti,
( just copied what I wrote earlier to a similar question, if you have any other ques., feel free to ask on here or email me,(jackerz1981@gmail.com) . . I don’t have all answers , but can definitely share any similar experiences I had, and if that helps, I’m glad to be of assistance… FEEL BETTER !

Let me know if this helps at all !

I was mitral valve repair and I went through the same thing with the dizzy spells and blood pressure. Make sure you speak to your doc about both, and there is ‘absolutely’ nothing wrong with going to er for anything you feel may be wrong after heart surgery. Also , talk to yor doc about the metoprolol strength, mine ended being too high, and I too got dizzy all the time when standing. Once I lowered it, it still happened, but very intermittently, nowhere near prior. It was happening every time I got up to the point I would have to drop to one knee to stop a possible fall or from passing out possibly. Also talk to your doctor about possible vitamin deficiency in your blood. Apparently your body absorbs/burns vitamins a lot quicker when your recovering and for be it was potassium mainly and I was told that it was making my dizzy spells worse. When I maintained by eating different foods to supply all vitamins(especially potassium) it def helped the spells. Please wb with any other questions I may be able to help with, god knows I used this site a lot also. I am now about 9 months post op, feel sooo much better, dizzy spells are basically gone and only med is metoprolol 50mg, which I now break in half to take once a day. IT WILL GET BETTER ! Don’t be afraid to go to doctor or ER, believe me, they understand, ITS YOUR HEART ! , not a cold !!!!!!!

 


Jim Marcum says on January 7th, 2014 at 5:35 pm

Patti as you can see several of us have experienced these spells. Be sure to tell your cardiologist he may adjust your medicine. Are you taking any blood pressure pills? If so they can be adjusted. Try standing slower to give your blood pressure chance to catch up and be sure to tell your doctor. Good Luck. What valve did you have replaced with what type replacement and any other info like the type of surgery is helpful to get good matched info here. Again, good luck.

 


Kenneth Pratt says on January 14th, 2014 at 12:28 am

OHS on October 28 2013 to repair mitral valve and single bypass – medication 2 x 50mg Atenolol daily also Rosuvastatin 5mg , Rivaoxaban 15mg and Aspirin. Dizzy almost each time I stand up and if I walk or climb too fast – seems worse that three weeks ago.
Also fairly painful in chest area. Had two sessions to remove fluid around the lungs – total of nearly 5 litres removed. Apart from that my 73 year old body feels OK. BP around 115/68 and pulse 67.

 


Alfredo Hicks says on February 1st, 2014 at 7:22 pm

I had surgery to repair an anomalous left coronary artery 1 1/2 years ago. I was always active running approximately 12-15 miles per week and strength training. I have been doing the same since recovering from my surgery. To this day, I still have problems with dizziness on a daily basis just as described when standing for a few seconds then it goes away. Very annoying.

 


Jim Brunner says on February 17th, 2014 at 11:54 am

It’s been about two years after my mitral valve repair……..how great life is!!!!! Allowing for the weather extremes, I usually walk briskly anywhere from 8-10 miles per week. I take my three dogs out for their potty walks and briefly run with them. I had experienced SOME dizzyness in the first year when doing a patrol for our Sherrif’s Dept or when marching in a parade, but that hardly ever happens anymore. I take a daily vitamin, 500 mg of “C”, 1200 mg fish oil, 500g L-Lysine, which keeps me from getting cold sores out in the sun, 12.5 mg of a water pill, hydrochlorothiazide, and that’s it. My BP is always normal or a little below. Today it was 98/67, within normal limits. I watch to make sure it does not get too low, less than 90/60! There is nothing I want to do that I can’t do, except maybe run faster, as I did before hitting 75 years old, and my three dogs are helping me with that one. LOL. If you are considering heart surgery…….worry not! The procedures, and recovery times are changing while you think about it……getting better all the time. Please feel free to contact me, (and I know I shouldn’t do this) at 424-789-3312.

 


Larry Bridges says on March 12th, 2014 at 3:16 pm

I had Aortic Heart Valve replaced in Feb. 2008 … I have had problems with balance and dizziness, in the last six months it has gotten worse, I can’t even ride in a car without getting sick …

 


greg whitner says on March 12th, 2014 at 7:36 pm

I had AVR three years ago this March 2, and ever since then I have been plagued by severe dizziness, and tinnitus that is, at times, un-godly. The dizziness can come and go irregardless of my activities. I also have b/p issues in that whenever I exert myself, my b/p falls through the floor; cause as yet unknown, but at least I’m still kicking and thank the Lord each and every day for the simple blessing of another day of life!

I’ve been told by neurologist that I probably am suffering from “pump-head”, a condition caused by microscopic debris in the by-pass machine that becomes lodged in fine capillaries in the brain.
He also told me that the subjective tinnitus I have was most likely a result of high doses of antibiotics, namely the “mycin” genre of drugs that is very damaging to the inner ear.

 


Lucy says on March 13th, 2014 at 3:59 am

Adam, I didn’t find your articles until after my aortic valve replacement so I missed out on a lot of valuable information that would have me greatly.. I had my aortic valve replaced with a porcine valve in Nov, 2011. I had dizzy spells right after the surgery and still do but not as often.. I went to PT for it and did some exercises which helped some but it’s never gone away completely.. Except for the tiredness I feel OK otherwise now, just can’t figure out what’s causing the dizziness. It’s good to know I’m not the only one having this problem but would like to know what it’s coming from..

Thanks for all the great information you provide for heart patients.

Lucy

 


ron bailey says on March 17th, 2014 at 8:20 pm

i had open heart surgery 3 months ago, for replacement of my valve . I am now have bad dizzy spells , my legs hurt also. I was sitting , eating the other day and it felt like I was spinning and couldnt stop! other times when i get up, I am dizzy . Not a good feeling , lil worried after such a surgery ! Thanks

 


Carol egginton says on March 21st, 2014 at 8:43 am

I had aortic valve surgery at Castle Hill Hospital,Hull .last September.Everything seemed to have gone well and I was out in 5 days.When I came home I started to have Hallucinations and dizzy spells.First my Dr said it was my painkillers and then when I came off them it was thought it was the beta blockers that was causing them.The bad hallucinations have now gone but I still get dizzy spells and shadows on right side when in car.Also my field vision has been affected.2 weeks ago my Dr sent me for a MRI scan and it has been discovered I had a stroke sometime during op.I have been told things will get better in time but probably may have more problems.At least I now know what caused all my problems and I am surprised they didn’t pick up on it earlier,Especially when I told them I could only see half the page when I was reading.

 


Jim Marcum says on March 23rd, 2014 at 9:27 am

Carol read Greg Whitner’s comment a few comments prior to yours about ‘pump head’. This is apparently some thoughts his cardiologist gave him concerning his dizzy spells. Well I hope you get some peace in the fact that there is and was a lot of us who had dizzy spells and vision floaters and tunnel vision after heart surgeries. Heart Surgery is major and traumatic. To place your body and organs on a blood pump for hours is traumatic to your body and organs. That is why the more surgeries you have to endure the survival rate goes down. I had two heart surgeries and pray to God I never have to have another but when you are faced with sure death than the surgery is at least a option. You have discussed these issues with your doctor and he has done the appropriate tests to discover the possible stroke. You were very lucky to have survived the surgery along with a stroke I’m sure they told you that. Since your heart was not beating and you were on a machine is why they probably never detected the stroke during surgery. Good luck to you. Read these blogs and you can see what many people have tried and how they cope with this real problem. I still get ‘swimmy’ headed at times even when I’m setting it can occur. I still work and that has concerned me about climbing and being in a bad situation and one of these spells strike a little harder. My prayers and I’m sure many others here are with you. You have done the hard part and it’s over. Now enjoy every minute of life.

 


Gail says on March 23rd, 2014 at 1:41 pm

It’s been a year and a half since aortic valve replacement and septal myectomy. My condition has worsened. Continue to have head numbness and seemingly constant dizziness but am still able to walk without aids. I am going to pursue the idea of acupuncture and see where that takes me. If anyone has any information about this, I would appreciate a response. This numbness and dizziness seems to “prevent me from enjoying any minute of my life.” I spend absolutely too much time on the sofa (relieves dizziness of course and head numbness seems to reduce). Can’t meet new people because I know that I am never at my best. Tried antidepressants but they seemed to make dizziness worse. Advice welcomed!

 


Frank says on March 24th, 2014 at 3:20 pm

For another data point:

I just had a mitral valve repair – re-repair after the first one, 2 1/2 years ago, failed. Left with moderate regurgitation and afib.

2014 surgery was March 10. Successfully repaired valve and home in 4 days. No afib. I have been moderately active since with no incidents. March 20, 10 days after surgery, I had a dizzy spell while shopping. I was looking up at the top shelf at the time and thought that might have something to do with it. I thought I might have to sit down before I fell down. Pulse rate and strength were normal. I recovered after about 5 minutes.

It recurred today, March 24, and was more severe. I had been grocery shopping (again) and was taking the groceries out of the cart, not looking up. I literally fell over into the candy rack in the checkout aisle. It kept me from going all the way down. And then I couldn’t stand up without holding on to something. After it didn’t go away in a few minutes I sat down. I recovered in about 10 minutes.

In both cases “recovery” includes a few hours of feeling “a bit woozy”, but no noticeable loss of balance.

Neither occurrence was related to any change in physical exertion (such as “standing up” from a chair or bed). In both instances, my heart rate was steady and normal, but I didn’t have the opportunity to take my blood pressure at the time(s).

Now, an hour or so later, my blood pressure and heart rate are normal. I’ve called my surgeon’s office but haven’t heard back yet.

I’ll follow-up when I have more.

 


Carol egginton says on March 25th, 2014 at 3:45 am

Gail,Have you had a MRI scan,I
After suffering dizzy spells for 6 months and dizziness,also tingling in hands and feet I was sent for a scan.It was found I had a small stroke sometime during or right after surgery.Unortunately Dr doesn’t know if it was a clot or a bleed so I can’t take asprin.Also my field vision has been disturbed and I have shadows on right side of vision and also suffered from hallucinations.The dizziness is getting better and also hallucinations..Like a lot on here I am frightened to go out on own and it has stopped me going out for my walks.I need exercise but a little frightened as I get dizzy and fall.Hope a lot on here will ask for a MRI scan like I did.At least it has answered the question I kept on asking Am I going mad.Carol

 


Patricia Williamson says on March 25th, 2014 at 3:05 pm

After eights months from having aorta valve replacement. I feel great, but I still have some dizziness. I just had my head swim one round and it was gone. What is my problem.

 


JD says on April 5th, 2014 at 9:32 pm

Yes. Had AVR and 1 CABG – have had BP to drop and HR to increase

 


Jim Marcum says on April 10th, 2014 at 2:44 pm

gail I agree with getting the scan. in general on here we are talking about brief light headedness. if you went down and it is lasting form 5 to 10 minutes sounds like something else is going on. maybe blood pressure not catching up fast enough when you looked up or could be med’s. I would doubt that your heart would be too much involved since you recover completely in several minutes. MAKE your doctor run some tests involving your circulation and blood pressure. scan for strokes. Our prayers are with you.

 


Kenneth says on April 10th, 2014 at 5:52 pm

Same operation and same dizzy feelings. I thought it might be the Beta Blocker medication but through trial and error I have pretty well discounted this. My thoughts are that the system that controls blood flow/pressure to the various parts of your body is in some way damaged during the operation, and so when you stand up from sitting down there is a lag before the required blood pressure in the brain is restored. I feel sure the doctors have a more elegant description. A few moments after I stand up the dizziness disappears and even fairly strenuous activity does not make it return. Perhaps if I had a spare brain in a foot the situation would be resolved!

 


David Stumpf says on April 23rd, 2014 at 2:42 pm

I’m 52, had aortic valve replacement December 5th, 2013. I sit and stand up quickly I get dizzy and my heart rate elevates. it only lasts 4-8 seconds.
I also notice if I exert myself like walking up stairs I get the same feeling and also have muscle fatigue in my legs.
I am trying to get back into playing basketball and jogging. Not going well. I exert myself and i get dizzy, heart rate elevates and I’m quickly winded to the point where i have to walk.
I can ride a stationary bike for 40 minutes at a certain pace. as soon as I increase the work load (tension), I get dizzy and winded.
I am on Metoprolol and Coumadin. Doctor said the symptoms are from the Meds.
Anybody else have these symptoms and does it get better???
Thanks,David

 


JOHN says on April 25th, 2014 at 9:37 am

I had aortic valve replacement in August 2013 & recovered very quickly with no meds after the first 2 weeks. Low dose statin to reduce possibility of cholesterol. No heart attacks or dizziness prior to surgery. Valve replacement was required due to birth defect & only after 74 years. My dizziness can occur at almost any time sitting, standing or walking. Have not yet discussed with family Doctor but wondered how normal this might be after surgery. The dizziness is not overly frequent but is unpredictable & quite annoying & can last from a few seconds to a minute or so.

 


Bill Clark says on April 28th, 2014 at 5:55 pm

David-

My profile matches you almost perfectly. I am a 52 year old male who had Mitral valve repair surgery in 2011. Your experiences could be my experiences. I used to love to do floor hockey and run. After surgery, I really expected to be able to return to these activities but I was wrong. I get winded very easily even though my weight is close to ideal and I exercise in a boot camp class often. I find that if I can keep my heart rate/workload below max, I can go on with the best of them.

I did experience dizziness when standing up for the first year after surgery but I no longer do. I am not sure if these problems are related. I think that the powerful anesthetics used during surgery were the cause of this dizziness. I think that the inability to exercise is due to the inability of the heart to contract like it used to.

My doctors never really gave me a straight answer about my inability to exercise. I think that my heart just does not work as well as it should. If you have any insights, please share them with me. At this point, I think that further improvement is unlikely but would love to learn otherwise.

Bill

 


Jim Marcum says on April 29th, 2014 at 7:31 am

Metoprolol and Caumadian could cause this I’ve been told but the benefits out weigh the slight dizzy spells. my legs also feel weak at times. I can even be setting and they can start to feel weak and have a slight ache. I just had check up’s. I go to two different Cardiologists, one in Huntington, W.Va. and the other in Lexington, Ky. They both gave me the thumbs up for another year. My heart has been through two surgeries. 2005 AVR and 2013 MVR with Maze procedure for AFIB. I asked the surgeon after the surgery if I was good to go now and he just shook his head no he never gave me any explanation as far as my complications so I just guess it is from all the heart work and two surgeries I have had. Good news I read that with the 3D printer heart valves have been reproduced from the patience own cells and work is being done to create a whole heart with the 3D Printer unfortunately for many of us this will be 10 years or more down the road. take care of your hearts and watch your dizzy spells. I am thinking about retiring soon at 62 I also think I’ve been through enough for one person.

 


Carol egginton says on April 29th, 2014 at 1:27 pm

I had aortic valve surgery Sept 2013 and recovered very quickly.I was home 5 days after my op.On my 40mile journey home I noticed I was hallucinating and after a few days I found I was having trouble focusing while reading.I was getting shadows to my right side,trouble when reading with double vision and also hallucinating badly.I was also having dizzy turns and leg weakness.After 5 months of being told it was tablets etc my GP suggested I had a MR scan.It was then found I had a slight stroke probably during surgery..The hallucinations have gone but I do get shadows to my right when travelling.It is a good thing I don’t drive as I have had eye tests etc and have been told I can’t drive. I have been put on more and more tablets as my blood pressure has been very high and also diabetes worse..I suggest anyone with dizziness should ask for a MR scan..At least I now know what is causing my problems.

 


Ron says on May 9th, 2014 at 11:19 am

I just had aorta valve replacement surgery (using tissue valve) just three weeks ago, and experience these exact same dizzy spells, always after lying prone then standing up, or bending over quickly. They pass within 5-10 seconds, but have been happening several times per day.

Ron

 


charlene says on May 13th, 2014 at 11:28 pm

I had mortal valve replaced 12/2006.’Since my surgery I seem to have a lower immune system. I get cold and flu frequently. Also I have blurred vision. I can be sitting standing laying down it does matter, i get blurred vision that lasts for up to 15 minutes at times. Sometimes it just last a minute or two. Its wired because I have had it since my surgery 8 years ago and unsure what causes it. I check my blood pressure when it happens but no change and i check my heartbeat and it remains the same.doesnt happen daily and have discovered any pattern or trigger.

 


Adrian says on May 16th, 2014 at 2:46 am

I had mitral valve repair 5 weeks ago. 2 weeks after surgery I blacked out and had to be rushed back to hospital. They found I had a (excuse the spelling) pericardial infusion, but claimed it was not effecting my heart function and would not be the cause, I had ct’s of my brain and chest, ECG and monitoring for 3 days. I then came home and have had constant dizziness since. I have not blacked out again but have come close many times. It’s not getting any better. I’m taking pradaxa. If things don’t improve I think I’ll be getting an MRI in search of a small blood clot.

 


David Stumpf says on May 16th, 2014 at 11:12 am

I’m still getting winded, dizzy spells, and muscle fatigue(burning sensation in my legs) when climbing stairs. Actually the symptoms occur any time I put a work load on my body. Such as jogging, playing basketball, cutting fire wood and hauling brush and it’s not getting better.
Last two days I had a heart monitor put on for 48 hours and I am anxious to find out what my heart is doing and if the heart is the cause.
I feel great doing every day normal activities but put any work load on my body and I get winded and dizzy quickly.

 


Jim Marcum says on May 16th, 2014 at 2:36 pm

David the Heart Monitor should give the Cardiologist all the info he needs to determine your problem. Have they performed another echo on your heart and looked at the valves? I just wonder, you doctor knows what you need. As moral support I say just keep plugging along and don’t try to do too much. Walk is good that is basically what I do. I have a small farm but I really just take care of the mowing now I don’t do chain saw work or even weed eating because mainly of my back problems. My legs also hurt. I get like an ache in them and I can be setting with them propped up and they still ache. I have worried about deep vein thrombosis but I take blood thinners and have my blood checked it does vary though and not easy to maintain a certain INR number. My dizzy spells seem to get a little worse with fatigue and stress. At work if I add worry and stress to my work I get a lot weaker, faster and dizzy spells. the dizzy spells can come when you bend over or get up quickly. I was told that was from sudden change in blood pressure and your body’s blood pressure doesn’t stay up with the change to supply enough blood to the brain, that made sense to me a doctor told me that, I now watch how fast I rise but stooping I get dizzy or bending down so I just try to avoid those movements. we all lived on a machine for several hours of our lives and a mechanical pump supplied blood to our brains and organs. for me a total of 10 hours the two surgeries. we were all also given bunches of strong antibiotics and other meds. So to say our bodies have been through a lot would be a understatement. God don’t make no junk though and we all have survived and we will for as long as it is his will. God Bless all keep up your walking, very important, don’t worry about anything you can’t do anything about. Enjoy everyday it is a gift to us.

 


David Stumpf says on May 22nd, 2014 at 1:28 pm

The heart monitor indicated my heart is beating properly. I’m going to be given another echo to put everyone at ease. The Doctor also took me off the Metoprolol. Hopefully being off the medication will allow me to be active without getting winded and dizzy so quickly.
Day to day operations I feel great and hopefully I will be able to start running again.

 


Jim Marcum says on May 22nd, 2014 at 2:57 pm

that’s great news. I hope to get the Metroprolol reduced. I take two 50′s a day and I wasn’t placed on them for blood pressure I was put on the medicine before I left the hospital. they told me my heart had developed an abnormal beat or was skipping after the surgery. my blood pressure has been historically low. the dosage was increased due to palpations but they said my heart rhythm was ok after I wore a monitor for 3 days. oh well, sorry I got of on me but that’s seems to be a good way to learn on here talk about your problems and what you know the doctors think and that helps others to understand better what they are going through or might expect. good luck to you David and all the rest of my heart brothers and sisters. We got heart.

 


David Stumpf says on June 6th, 2014 at 11:55 am

Jim,
I was placed on a monitor for a couple days and then given an ultrasound to put me at ease. Heart works the way it should.
The Dr took me off the Metoprolol last week and I feel a little improvement. I don’t get muscle fatigue in my legs, dizzy, and shortness of breath when climbing stairs.
However, I started to jog this week and i get fatigued easy and shortness of breath after jogging 45-60 paces. So I am walking more then jogging at this point.Jog then walk,walk and walk.Jog some paces then walk again.
I hope to see some improvement in the next few weeks or I will lose my motivation.

 


Gary A Anderson says on June 9th, 2014 at 9:20 pm

I had the dizziness for some time but attributed it to a hearing loss that involves one of my inner ears.this was something that I had at first diagnosis of hearing loss.Now with my mytral valve repairedI am thinking it can be metrpolol that I have been taking pre surgery and post. (6 days).

 


Bonnie says on June 13th, 2014 at 1:58 pm

Yes, I had some strange experiences. the third day post-op I had a panic attack. I knew I had surgery but I didn’t remember why or how I got to the hospital. My husband helped me remember but the memory loss scared me The following week while at home I had short TIA.s. All started with my right hand getting tingly then whole arm went numb. The next day it was my arm and leg. I ended up back in hospital for observation but had no more episodes.
I am now eight weeks post op and I still experience dizzy, lightheadedness when I stand. I do have racing heart on occasions – PACs and PVCs but not all the time. I am on Plavix and have lots of bruises. Other than that I feel great just not sure if I should go back to work just yet.

 

Leave a Reply

(required)
To prove you're a person (not a spam script), type the answer to the math equation shown in the picture. Click on the picture to hear an audio file of the equation.
Click to hear an audio file of the anti-spam equation

Welcome to Adam Pick's
Heart Valve Surgery Blog

Adam Pick
Patient, Author & Website Founder
Watch Adam's story

Get Adam's Free Email Updates
Sent To Your Inbox First

Over 35,000 Patients
And Caregivers Have
Read This Book

Patient Recommended
Heart Valve Clinics

(Click a logo)

Alta Bates
Northwestern Memorial
Cleveland Clinic
Florida Hospital
Mount Sinai
University of Michigan