Tafang's Posts

Diagnosis: Bicuspid Aortic Valve

Member Since: May 3, 2016

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Tafang Kuo posted an update
9 years ago (March 4, 2017)
After one year of aortic valve replacement surgery (with tissue valve), I still find my heart rate is at high 80s and low 90s. I am on 10 mg inderal but have to take it everyday to keep the heart rate down. Wondering the reason why and curious if anyone... Read more.
I think that a high heart rate is one of the after-effects of OHS. Betablockers can make the heart beat more slowly, but for some patients, the heart will always beat faster after OHS. I am trying to get accustomed to my fast beating heart, as my doctor has said... Read more.
Yes, Rita, with a Beta Blocker I take daily my HR is 80-84 at rest. Without the drug it was 118 at rest. Surgeon and Cardiologist both said HR in 80s was okay. Yeah, for them, but I dislike that! Oh well😐
I feel relief of knowing the reason and read your response, Rita & Barbara. I also resonate with Barbara. Really want my HR to go back to the 70s. To feel my heart bumping harder, and also the speed it is bumping, beside physical discomfort, I worry that by time... Read more.
Tafang, I don't think your valve will wear out sooner, but keep letting your doctor know your discomfort, if it doesn't slow down maybe there's a better drug for you. But yes, you may be on a daily pill for all time, but its better than a fast heart rate!😄❤
Thank you, Barbara. Will check with my Dr. to see what option I have !❤
Tafang Kuo posted an update
9 years ago (March 3, 2017)
Feb 26th 2017 is one year anniversary of my aortic valve replacement surgery. To go with tissue valve was my choice. At the age of 34, I was moving from one country to another. Before settling down, it feels like I turn a corner and find myself falling into a... Read more.
Great post! I especially liked the part about spending time to be there for your body. I too, sure got used to my body being there for me. Even though I knew about my bicuspid AV for decades, it never affected by life or activities. Until it created an aneurysm,... Read more.
Rabbit hole is the perfect description, Tafang, as are all your other words. Your blog is filled with soulfulness and poetry, that touched me deeply. Thank you.
It's great to see another heart friend in this community from Taiwan. I grew up in Taiwan and lived in Taipei for about 10 years. Even though I am only 3 months post op but, I do share a lot of the feelings you expressed in your post. I wish... Read more.
Hi Marie, and yes, it is so new to experience that my body won't be my support till the time I nurturing it back to shape. I hope you will find the solution for your repairment, Marie :)
Rita, thank you for your words. I feel grateful reading your respond.
Hi Daniel, I am surprised and also happy to meet friend in this community that from Taiwan. I just moved from Houston back to Taiwan last year. Thank you for the wish. I remember I feel unreal that I made it when I was 3 months post op. This process... Read more.
Is there any web site, similar to heart-valve-surgery.com, in Taiwan or China that you aware of? Sites like this can be very helpful to heart patients. Last year, I missed my chance to go back to Taiwan for vacation due to my OHS. Hopefully, I will be healthy enough to... Read more.
Thanks for your beautiful post, Tafang. And thanks to Rita for referring to it. I am at the beginning of this journey (16 days post op) and am trying to learn how to begin to navigate. So many things are difficult. But reading stories here helps that process. All the... Read more.
Daniel, for what I am aware of, there aren't resources quite like heart-valve-surgery.com in Taiwan. I feel the same way as you do; it really lift some weight for heart patient who are trying to navigate through this journey. Right now Taipei is raining and with the temperature dropping for... Read more.
Hi Julie, thank you for your warm response, and feel really flatter of Rita's reference. I remember for my first month, I was quite surprised to experience more difficulty when trying to navigate after going home. Without the dr. or nurses around, and to add regular daily routine back to... Read more.
Thanks for the weather report. You are making me home sick now. :-)
Tafang Kuo posted a photo
9 years ago (June 26, 2016)
A picture from April 10th. It was one and a half months post op. I am 4 months post op now. A reminder to myself that it has been a long way and feel grateful with my recovery :)
You look well, congratulations on your continued recovery❤️💕❤️
Thank you, Barbara. I wish you the same ☀❤☀❤☀
What a beautiful picture. You look great! Congratulations on your continued recovery!
Thank you, Petey! Having been feeling anxious of the recovery. Realized it really takes time!

Surgeon Spotlight

Dr. Christopher Heid is a leading cardiac surgeon at UT Southwestern in Dallas, Texas who specializes in heart valve repair and replacement operations.