After one year of aortic valve replacement surgery (with tissue valve), I still find my heart rate is at high 80s and low 90s. I am on 10 mg inderal but have ...Read more
After one year of aortic valve replacement surgery (with tissue valve), I still find my heart rate is at high 80s and low 90s. I am on 10 mg inderal but have to take it everyday to keep the heart rate down.
Wondering the reason why and curious if anyone experience the same thing?
Rita Savelis I think that a high heart rate is one of the after-effects of OHS. Betablockers can make the heart be ... Read more
Rita Savelis I think that a high heart rate is one of the after-effects of OHS. Betablockers can make the heart beat more slowly, but for some patients, the heart will always beat faster after OHS. I am trying to get accustomed to my fast beating heart, as my doctor has said it's okay. That's just how it is...alas.
Barbara Laurie Yes, Rita, with a Beta Blocker I take daily my HR is 80-84 at rest. Without the drug it was 118 at re ... Read more
Barbara Laurie Yes, Rita, with a Beta Blocker I take daily my HR is 80-84 at rest. Without the drug it was 118 at rest. Surgeon and Cardiologist both said HR in 80s was okay. Yeah, for them, but I dislike that! Oh well😐
Tafang Kuo I feel relief of knowing the reason and read your response, Rita & Barbara. I also resonate with Barb ... Read more
Tafang Kuo I feel relief of knowing the reason and read your response, Rita & Barbara. I also resonate with Barbara. Really want my HR to go back to the 70s. To feel my heart bumping harder, and also the speed it is bumping, beside physical discomfort, I worry that by time my tissue valve will wearing off sooner than I hope.
Barbara Laurie Tafang, I don't think your valve will wear out sooner, but keep letting your doctor know your discomf ... Read more
Barbara Laurie Tafang, I don't think your valve will wear out sooner, but keep letting your doctor know your discomfort, if it doesn't slow down maybe there's a better drug for you. But yes, you may be on a daily pill for all time, but its better than a fast heart rate!😄❤
Tafang Kuo Thank you, Barbara. Will check with my Dr. to see what option I have !❤
Feb 26th 2017 is one year anniversary of my aortic valve replacement surgery.
To go with tissue valve was my choice.
At the age of 34, I was moving from ...Read more
Feb 26th 2017 is one year anniversary of my aortic valve replacement surgery.
To go with tissue valve was my choice.
At the age of 34, I was moving from one country to another.
Before settling down, it feels like I turn a corner and find myself falling into a rabbit hole.
The landscape of my wonderland, the journey of having a heart valve replacement surgery, has been a year fill with memories of shocking, melting down, unknowns, terrified, tears, risk, trust, nervousness, insecurity, vulnerability, gratefulness, warmth, tenderness, playfulness, adaptation , refreshingness, conflict, anger, challenges, loneliness, sadness, irritation, confusion, lost, tiredness, frustration, depression, struggle, worries, dragging, giving up, new discovery, independence, cheerful and exploration.
The open heart surgery opens up both new life quality and new future concerns for me.
It opens up layers of deep tender emotions that I never experience before.
It also opens up new relations with people I never thought of having the possibility to be in contact in life.
Still feel unreal that it has been a year. Never spend this much time to be there for my body. Was so used to the idea that the body should be there for me.
Physically it feels like it has recovered 80%.
A year ago, an imagination of being a super woman after 3 month of surgery was the expectation.
Looking back, there is a sense of bowing down to this one year process of recovery.
And secretly feel impatience and exciting of wanting to hurry and catch up with life before the next corner comes up.
A deep appreciation for this community.
Even though being on the other side of the world, reading life stories of people who are in the similar situation have held me, encouraged me and inspired me.
Marie Myers Great post! I especially liked the part about spending time to be there for your body. I too, sure go ... Read more
Marie Myers Great post! I especially liked the part about spending time to be there for your body. I too, sure got used to my body being there for me. Even though I knew about my bicuspid AV for decades, it never affected by life or activities. Until it created an aneurysm, that is...This has all given me new appreciation for my body. We should be thankful every day for what we have been given. Life is truly a miracle.
Rita Savelis Rabbit hole is the perfect description, Tafang, as are all your other words.
Your blog is filled with ... Read more
Rita Savelis Rabbit hole is the perfect description, Tafang, as are all your other words.
Your blog is filled with soulfulness and poetry, that touched me deeply.
Thank you.
Daniel Kung It's great to see another heart friend in this community from Taiwan. I grew up in Taiwan and lived ... Read more
Daniel Kung It's great to see another heart friend in this community from Taiwan. I grew up in Taiwan and lived in Taipei for about 10 years. Even though I am only 3 months post op but, I do share a lot of the feelings you expressed in your post. I wish you will get to 100% complete recovery physically and mentally very soon!
Tafang Kuo Hi Marie, and yes, it is so new to experience that my body won't be my support till the time I nurtur ... Read more
Tafang Kuo Hi Marie, and yes, it is so new to experience that my body won't be my support till the time I nurturing it back to shape. I hope you will find the solution for your repairment, Marie :)
Tafang Kuo Rita, thank you for your words. I feel grateful reading your respond.
Tafang Kuo Hi Daniel, I am surprised and also happy to meet friend in this community that from Taiwan. I just mo ... Read more
Tafang Kuo Hi Daniel, I am surprised and also happy to meet friend in this community that from Taiwan. I just moved from Houston back to Taiwan last year. Thank you for the wish. I remember I feel unreal that I made it when I was 3 months post op. This process really takes time. I hope your recovery is smooth and leading its way to 100% recovery soon, too!
Daniel Kung Is there any web site, similar to heart-valve-surgery.com, in Taiwan or China that you aware of? Sit ... Read more
Daniel Kung Is there any web site, similar to heart-valve-surgery.com, in Taiwan or China that you aware of? Sites like this can be very helpful to heart patients. Last year, I missed my chance to go back to Taiwan for vacation due to my OHS. Hopefully, I will be healthy enough to go this year.
Julie Guillaumin Thanks for your beautiful post, Tafang. And thanks to Rita for referring to it. I am at the beginnin ... Read more
Julie Guillaumin Thanks for your beautiful post, Tafang. And thanks to Rita for referring to it. I am at the beginning of this journey (16 days post op) and am trying to learn how to begin to navigate. So many things are difficult. But reading stories here helps that process. All the best to you!
Tafang Kuo Daniel, for what I am aware of, there aren't resources quite like heart-valve-surgery.com in Taiwan. ... Read more
Tafang Kuo Daniel, for what I am aware of, there aren't resources quite like heart-valve-surgery.com in Taiwan. I feel the same way as you do; it really lift some weight for heart patient who are trying to navigate through this journey. Right now Taipei is raining and with the temperature dropping for the past few days, it finally feels like winter :). Hope you will recover soon and come back to visit!
Tafang Kuo Hi Julie, thank you for your warm response, and feel really flatter of Rita's reference. I remember f ... Read more
Tafang Kuo Hi Julie, thank you for your warm response, and feel really flatter of Rita's reference. I remember for my first month, I was quite surprised to experience more difficulty when trying to navigate after going home. Without the dr. or nurses around, and to add regular daily routine back to my plate, I feel lost and more anxious for a while. Reading the journey you post bring me back to that tender place again. I wish you all the best!
Daniel Kung Thanks for the weather report. You are making me home sick now. :-)
After a week of removing life support, just heard that your heart stop beating at 4:00 am this morning. It has been an unimaginable mental and physical journey ...Read more
After a week of removing life support, just heard that your heart stop beating at 4:00 am this morning. It has been an unimaginable mental and physical journey for your and yet your passion for life still out shine when we meet. We are at the same age, and your encouragement and understanding gave me strength to go through surgery. Your authenticity for life is also inspiring. A deeply aching and lose that no words can be applied.
Denise Campbell So sorry for your loss. Praying that God will give you peace
Steven A Husted PRAYERS ARE WITH YOU MAY THE GOOD LORD ABOVE GIVE YOU PEACE
Petey Bello So sorry for your loss, prayers are with you. God Bless
The is my first time to join a support group and really glade to find this community.
ConNie Romo Hi Tafang, welcome to the group.😀Where did you have your surgery? I'm surprised your surgeon sugge ... Read more
ConNie Romo Hi Tafang, welcome to the group.😀Where did you have your surgery? I'm surprised your surgeon suggested a tissue valve for you.
Alan Lonsberry Hi Tamang, welcome. I also have a bicuspid aortic valve, my surgery is June 13
Tafang Kuo ConNie Romo Hi ConNie, thank you for the warm greeting :). I used to live in Houston, TX. This time w ... Read more
Tafang Kuo ConNie Romo Hi ConNie, thank you for the warm greeting :). I used to live in Houston, TX. This time when I visit home, Taiwan, I went to the visit Dr. Xiao-Huang Zhang at Taipei Veterans General Hospital. His perspective is because tissue valve allow future possibility for different type of valve replacement. I am also not ready to take meds everyday for the rest of my life. He is more prefer young patient to enjoy a more freeing lifestyle fist. He also mention that mechanical vale is not a promise for lasting longer than tissue valve. It's all boil down to the health condition of each individual patient. I think the most important thing is to make the decision base on what you feel most comfortable with, but not being pressured into it.
Tafang Kuo Alan Lonsberry hi Alan. I had my replacement on Feb 26. The surgery is coming soon for you. Wondering ... Read more
Tafang Kuo Alan Lonsberry hi Alan. I had my replacement on Feb 26. The surgery is coming soon for you. Wondering which type of valve do you choose to go with?
Alan Lonsberry Tafang , I am going to get the on x mechanical valve. The inr can be much lower with this valve, so ... Read more
Alan Lonsberry Tafang , I am going to get the on x mechanical valve. The inr can be much lower with this valve, so I am hopeful this is the best choice for me.
Alan Lonsberry Tafang , I am going to get the on x mechanical valve. The inr can be much lower with this valve, so ... Read more
Alan Lonsberry Tafang , I am going to get the on x mechanical valve. The inr can be much lower with this valve, so I am hopeful this is the best choice for me.
Anne Walpole I am going to get a tissue valve. I don't want to be on blood thinners and I feel that, with all the ... Read more
Anne Walpole I am going to get a tissue valve. I don't want to be on blood thinners and I feel that, with all the advances in surgery, whenever I'll need a second valve I will probably be able to get it through a blood vessel in my leg rather than having open heart surgery. It's just a personal decision. Each of us decides what's best for our individual situation.