Happy 4th July to everyone across the big blue Pacific pond :)
Got a call yesterday to say I have to come in today, surgery is for Wed now, I thought it ...Read more
Happy 4th July to everyone across the big blue Pacific pond :)
Got a call yesterday to say I have to come in today, surgery is for Wed now, I thought it was thurs .. have woken up with a little bit of a sore throat, I hope this isn't going to throw a spanner in the works. I guess will will see.
So many heartfelt thanks to everyone on here for their support, kind words and their own shared stories that help us all to get through such a dark time and know we are all not alone. I can do this, as you guys have done before me.
Hopefully I might be able to log in later once am down there and settled in. :)
Bob Fessler Good Luck Steve. As you said, you can do this. We'll see you in recovery.
Have been slack with keeping track in here for a little while, I had some head in sand time, I hope everyone is all good ..
Since meeting my surgeon I have ...Read more
Have been slack with keeping track in here for a little while, I had some head in sand time, I hope everyone is all good ..
Since meeting my surgeon I have been getting ready, but also trying to avoid the issue .. Had a fright at the pre-op clinic last Tues when my surgeons registrar tells me they have me booked for that afternoon! Thankfully they stuffed up a couple of tests and the next person was bumped up - phew!! So at this stage I am booked in for next Wednesday for the op on Thurs, will get a call on Tues as to what time to arrive .. though there is a chance I could get bumped for any emergencies.
I am riddled with a fear I have never known before, which is total foolishness I keep telling myself, am fully aware of the rational science of it all, yet it cannot overrule the irrational fear I feel. Its like a mouse in a science lab trying to solve the impossible puzzle so it can return to the safety of its cage.
So the waiting guillotine has been taken away, I even allowed myself a whole 30 seconds of having a little bone rattling sob after I got the call, which was like a much needed emotional release valve, before sucking it up and putting on my fake brave face.
Just got to prep a few more meals, worry about my fur babies at home alone in the middle of winter while I'm away .. and then show up I guess. Then game on and the battle to recovery with a better quality of life that is the dangling carrot to be achieved.
Sounds so simple in theory. lol
Emily Rowley Wow you are booked in for the 6th of July. How did your Pre-Op testing go? I know it's normal for us ... Read more
Emily Rowley Wow you are booked in for the 6th of July. How did your Pre-Op testing go? I know it's normal for us humans to have fears before hand, just remember you are in the country's best hand-we have excellent experienced Surgeons here in Austtalia. And if you are unsure about anything, you can ask them as many questions as you wish-it's their job to inform you, make you feel comfortable and help prepare you. ☺ Do you have someone to look after your cute and cuddly fur babies while you are away? I am sending my thoughts and prayers to you. Take the time to think of things you look forward to Post-Op (such as having the energy to go kyaking with a completely fixed heart) and find peace within. Take care Steve.
Clare Auten Good luck on your upcoming surgery. While we have little in common since I am a 48 year old wife and ... Read more
Clare Auten Good luck on your upcoming surgery. While we have little in common since I am a 48 year old wife and mother of 3 in the middle of the hot summer in the US, I did make it through the fear and anxiety of open heart surgery. 2 years later I have no restrictions and do everything I need to from mowing the yard, to laundry or changing a flat. I was home alone with the kids by 14 days post op being the independent person I like to be. You can donthis. Take care.
Good luck man.
Stephen Doherty Hey Em, testing was all good, am fit for surgery .. only thing they haven't done is the doppler of my ... Read more
Stephen Doherty Hey Em, testing was all good, am fit for surgery .. only thing they haven't done is the doppler of my coritids, was booked in at PRP to have them done on the 15th July up here on the coast, but guess they have to do it as an urgent when I get down there on Wed now. Pretty much well versed in what is coming, only part I have is to show up .. then get up and do what's gotta be done when it is all over. The surgical team seem to be quite nice and easy to get on with, which is a bonus. The new RNSH is massive, its like walking into a shopping centre downstairs, and the food hall has so much variety, I filled up just trying to figure what to have the other day and just ended up getting a spring roll and ginger beer, bundy of course. ;)
My neighbour is watching the house and feeding my girls, will turn the blanket on in bed for my 16yo at tea time, then duck over before bed to turn it off. Have to devise a little arch for under the blankets so she can crawl under, seeing I wont be there to lift the blankets for her. The things we do! lol
Thanks heaps for your well wishes and prayers, they are very appreciated. :)
Hope all in going great guns in your world.
Stephen Doherty Hi Clare, thats great you are doing so well, thanks for the words of encouragement, I can do this for ... Read more
Stephen Doherty Hi Clare, thats great you are doing so well, thanks for the words of encouragement, I can do this for sure! I too am fiercely independent and my main aim is to be so again as soon as is possible. :)
ConNie Romo I can totally relate to what you're going thru. I'm in the same emotional state now. I have pre-op c ... Read more
ConNie Romo I can totally relate to what you're going thru. I'm in the same emotional state now. I have pre-op coming up on the 6th and then surgery on the 12th of July. I've been trying to drown my thoughts and emotions with getting busy with whatever work I can do around the house so I don't get into a crying mode. I got my garden ready so I have something to look forward to do when I come home. I find peace whenever i'm out there with my plants. This is harder than I thought. It's crippling to think of the what ifs so I avoid doing it instead I encourage myself on all the things I can enjoy with my family once I'm all fixed up. Focusing on the positive really does help. I know I'm not alone on this journey, there were others before me who I can get inspiration and encouragement from. Most especially God is with me all the way in this "valley of the shadow of death" so there's nothing to fear🙏🏼
Barbara Laurie Stephen, A good bone rattling cry is a wonderful thing. Praying right now all goes well. I've never ... Read more
Barbara Laurie Stephen, A good bone rattling cry is a wonderful thing. Praying right now all goes well. I've never had to do anything so hard, but they got this surgery you're doing down friend, Looking forward to hearing from you when your on the other side❤️💕❤️
Rita Savelis Fear isn't foolish, it's what our bodies/minds do. Crying is necessary. I'm sorry that you have to go ... Read more
Rita Savelis Fear isn't foolish, it's what our bodies/minds do. Crying is necessary. I'm sorry that you have to go through with this - it's hard, it's intense... Acknowledging all that can help you move forward. Breathe. Take care.
Steven A Husted fear is alright we all have it one time or other i know i was afraid of ohs when the doctor told me i ... Read more
Steven A Husted fear is alright we all have it one time or other i know i was afraid of ohs when the doctor told me i had to have it done i wanted to put it off as long as possible but he said i needed it asap so i turned to my source and prayed lord i am in your hands take care of me and he did he will do the same for you best wishes and prayers be with you from your heart brother
Petey Bello Good luck to you Stephen! I will keep you in my prayers that all goes well with surgery & you have a ... Read more
Petey Bello Good luck to you Stephen! I will keep you in my prayers that all goes well with surgery & you have a speedy recovery! God Bless
Darlene Smith Your description of fear, foolishness and rational science is all I've been thinking about for the la ... Read more
Darlene Smith Your description of fear, foolishness and rational science is all I've been thinking about for the last few weeks as my surgery looms. I'm working very hard on acceptance so that by the time I walk into the hospital on July 19, I will be fine. Thank you for sharing your struggles, and I wish you the very best.
Wanda Mroz Good luck... Prayers for a successful surgery and smooth recovery. Fear is normal... And having a go ... Read more
Wanda Mroz Good luck... Prayers for a successful surgery and smooth recovery. Fear is normal... And having a good cry is a release for sure. You will be fine. Believe that.💞
Kevin Shackelford Fear is normal. This is a big deal. You will be amazed how quickly you will be on the other side of ... Read more
Kevin Shackelford Fear is normal. This is a big deal. You will be amazed how quickly you will be on the other side of this and healing! Good luck.
Stephen Doherty Hey everyone, thank you so much for all the words of support, it means a lot. Best wishes to everyone ... Read more
Stephen Doherty Hey everyone, thank you so much for all the words of support, it means a lot. Best wishes to everyone too, see you on the other side. :)
Emily Rowley That's great news you are fit for surgery ☺ Soon you will be on your road to recovery. Ah we have P ... Read more
Emily Rowley That's great news you are fit for surgery ☺ Soon you will be on your road to recovery. Ah we have PRP Diagnositic Centre here too, is yours at Gosford? Surely they could of done that Scan before. That's good the Staff are lovely. Has the Royal North Shore Hospital been renovated or rebuilt else where? Construction is still going on with St Vincent's Private, my Surgeon now has her own brand new room in the Private Hospital-but charges alot is the downfall... Haha I thought you would of went for a chickpea salad with cold pressed fruit n veg juice? 😛 That's a nice neighbour. Wait are you going back and forth to turn the electruc blanket on? I would be concerned about over heating/catching fire... 🚒 Pets are wonderful companions to have, they will be their for you when you arrive home. I think we feed our pets sooo much. 😺 You might have wifi in Hospital (doesn't work well) like I did. I am going well thanks. I will keep you in my thoughts and prayers as you go through this difficult time. Thank you for your lovely compliment on my photo.
Just a heads up to any Aussie people on here who have a surgery coming up, don't forget about the election. Polls open on the 16th for early voting up till ...Read more
Just a heads up to any Aussie people on here who have a surgery coming up, don't forget about the election. Polls open on the 16th for early voting up till election day on the 2nd July .. Those of us due for surgery can visit an AEC office and enroll for the postal vote roll and they send your ballot to you by post. My op time-frame is from the 13th June till the 4th July, basically the same time-frame for the election, so who knows what day just yet I'll actually go in .. This is much easier, less hassle and no chance of getting fined for not voting. :)
Emily Rowley Oh yes Election... I hear about the large amount who don't vote or vote incorrectly just to get their ... Read more
Emily Rowley Oh yes Election... I hear about the large amount who don't vote or vote incorrectly just to get their name marked off... This ones a Federal Election right?
Stephen Doherty Yep .. So many people don't know how to vote proper in a Westminster system, we vote for our local fe ... Read more
Stephen Doherty Yep .. So many people don't know how to vote proper in a Westminster system, we vote for our local federal candidate of our local area, who we see as the most fit to govern our local constituencies. Though a lot of people treat it as a presidential system and vote for the party who has the leader they like, thus we get a 2PP system, even though the leader of the party is at the behest of the sitting members of each party, and can be removed at anytime as we have seen with the Rudd-Gillard-Rudd and the Abbott-Turnbull fiascos, without consultation of the actual constituents they represent.
Its not actually about Shorten and Turnbull, they are just public speaking puppets for their respective parties and a face for the public, they too must answer to their cabinet members .. its all about your local member and what they can best achieve for your local area and the nation really. Part of that is understanding preference flows to the 2 major parties and if you vote for a member other than the 2PP where your vote will actually end up .. even that bit does my head in, Emily. lol
Running out the door to my CT now, have to go to a different one as the CT at Gosford private just broke down .. lucky there are 3 in Gosford. ;)
Emily Rowley True, you have explained it well. Do people hand out a million flyers on voting parties when you go t ... Read more
Emily Rowley True, you have explained it well. Do people hand out a million flyers on voting parties when you go to your local school to vote? It's important to know what party those local candidates are in, some candidates change into the major parties like labour and liberal because they know they have majority seats in Parliament and always "have a job" to speak. Yeah I was thinking about all those other parties, such as "The Christian Party, The Party against Animal Cruelty, The Sex Party, The Fishing Party" just to name a few! Have you seen the show "Mad As Hell" it's a comedy that rips off the Political System/Politicians". Most Politicians at a high scale enjoy the unlimited cash flow....which frustrates me lol.
Broken whoa, they are expensive those machines and still just as noisy. I thought you had a CT Scan already or maybe I'm just reading an older post... I remember you telling me of your struggle to walk down the road home from it. Have the results came back? Lucky I mentioned to my Surgeon about my Kidney failure/Operation before I had my Scan done, that's why I ask you as the CT can interfer (the contrast dye mostly).
Feeling a little like a caged animal today, so many head miles I just had to stop and quiet my mind by writing a little poem .. Am no literary master by any ...Read more
Feeling a little like a caged animal today, so many head miles I just had to stop and quiet my mind by writing a little poem .. Am no literary master by any means, but thought some may get it so I am sharing with everyone, hope it is not too dark for anyone. :)
I wanna run, I wanna hide,
leave it all in the dust, behind my stride ..
Get outta here, away from fear,
for certainty is suddenly not so clear.
Brave face we show, to those we know,
Or the fear we know, we would surely bestow.
Good cheer we share, to ease their air,
for those we love, for those we care.
So we go for the ride taken in another’s stride,
to get it done, we must not hide,
Its up to us alone, to fight the fear,
Leave a dark time behind, and back to our lives so dear.
So I mustn't run, I mustn't hide,
I must face up to what's inside.
Been here before, I know the score,
Just remember a positive mind, is not such a big chore.
Well I met my surgeon today, I liked him immediately, very easy to talk to and quite cheeky, I like cheeky, I'm cheeky .. we will get on well. Phew, thats a ...Read more
Well I met my surgeon today, I liked him immediately, very easy to talk to and quite cheeky, I like cheeky, I'm cheeky .. we will get on well. Phew, thats a bonus. So am on the waiting list, it is usually 3-6 weeks he tells me, the admissions dept of the hospital will let me know when they have a date, just have to have a CT done locally and the pre admissions clinic for the surgical assessment prior to the actual admission date.
The big big bonus is I'm having a porcine valve, yay - insert happy dance .. John even said something about it being a larger one that can if need be replaced, can be done so by TAVR and not through the chest .. more happy dancing!
All in all I came away feeling pretty good about the fella who is going to put his hands inside my chest and hold my heart in them, then work and weave his magic to do what he does so well.
Am also quite a little terrified of what is to come, what can I do .. C'est la vie!
Emily Rowley That's great he is approachable and you feel comfortable with your Surgeon. Mine too has a great sens ... Read more
Emily Rowley That's great he is approachable and you feel comfortable with your Surgeon. Mine too has a great sense of humour ☺ Do you have a date set and might it get postponed? With the CT, if you have any Kidney problem let your Surgeon know before hand. At first I was going to have a pig's valve oink oink 🐖 Sydney Surgeons must love porcine valves or just be able to get supply. Is there a chance he could repair your valve? So minimal invasive cut? That's great 😁 I'm glad to hear it all went well for you.
Steven A Husted HEY GREAT NEWS HOPEFULLY YOU WILL GET A DATE SOON THE OHS WAS NOT AS BAD AS I THOUGHT IT WAS GOING TO ... Read more
Steven A Husted HEY GREAT NEWS HOPEFULLY YOU WILL GET A DATE SOON THE OHS WAS NOT AS BAD AS I THOUGHT IT WAS GOING TO BE I WILL BE PRAYING FOR YOU HEART BROTHER
Stephen Doherty Hey Emily, I'm a cat 1 on the NSW wait list (within 30 days + 15 for waitlist overflow) So generally ... Read more
Stephen Doherty Hey Emily, I'm a cat 1 on the NSW wait list (within 30 days + 15 for waitlist overflow) So generally 3-6 weeks, Get all I need to get done in 3 weeks, then I can kick back for a bit.
Thats great you have an awesome relationship with your Dr, I still need to look her up out of curiosity just haven't yet as was focused on getting to know mine first and I didn't want any crossed wires on the info.
My kidneys are in great condition, uec's were normal a fortnight ago. The CT is to get a good look at the aorta as it was missed in the angi due to having the arterial spasm that halted the procedure before it was fully performed.
As to the pigs valve, he had a much greater reason for wanting one than I had even thought about, he is more concerned about the weakened skin in the area I had radiation for my SCC in '07, if any minor tears or fissures happen then it will be exacerbated by the warfarin. I have had 2 fissures surgically removed since having cancer anyway, so I totally get where he is coming from. So I have been worried for weeks about nothing .. bugger it!! lol
Valvular repair is not even on the table, due to the bicuspid nature, the severe regurgitation and being heavily calcified, its gotta go .. though am grateful he has the foresight to implant a larger one for a future TAVR via the femoral artery.
Thanks heaps for your thoughts Emily, lots of great info on this site but always good to get a perspective closer to home. :)
Stephen Doherty Hi there Steven, thanks buddy for your prayers and kind thoughts too!
Petey Bello Good luck to you Stephen. Glad you found a surgeon you are comfortable with. I found that was one of ... Read more
Petey Bello Good luck to you Stephen. Glad you found a surgeon you are comfortable with. I found that was one of my biggest decisions! The time will go by very fast. I had a CT angiogram (instead of the cath angiogram). One less thing to worry about! The CT was a breeze!
Hang in there & know that you will get through this! The support on this site is priceless! Will keep you in my prayers!
Stephen Doherty Hey there Petey, cheers for the info .. Have the CT booked for tomorrow morning, at least that will b ... Read more
Stephen Doherty Hey there Petey, cheers for the info .. Have the CT booked for tomorrow morning, at least that will be done and dusted. Am freaking out a little today, probably walked about 5 miles but my head has done 500! lol
But am hangin in there tho! ;)
Emily Rowley Do you have much you wish to get done in these 3 weeks? Wow that's great not only about your Kidneys ... Read more
Emily Rowley Do you have much you wish to get done in these 3 weeks? Wow that's great not only about your Kidneys but how your Surgeon thought about your individual case with so much attention! ☺ Good luck with the CT Scan. Look forward to hearing how it all goes for you.
Stephen Doherty Everything, but really not a real lot .. looked at the ceiling in the lounge-room yesterday and notic ... Read more
Stephen Doherty Everything, but really not a real lot .. looked at the ceiling in the lounge-room yesterday and noticed a few bits of mold in one corner, that was it, I was straight onto to the bunnings website checking out ceiling paint .. till I figured it was easier to just walk into the kitchen and the grab the exit mold from under the sink! lol
Living alone I just want everything set for when I come home to make life easy and not have to ask for too much help is all.
I really like my surgeon and the fact he thought outside the box regarding the valve options just gave me more confidence in him. Am home from the CT, gave the girls a laugh at my manly heroics when it comes to needles, then upchucked after the contrast dye ... I did the walk of shame all the way home! >.<
Emily Rowley Might be an underlying problem, we had the same thing when the heavy floods came-which we get alot of ... Read more
Emily Rowley Might be an underlying problem, we had the same thing when the heavy floods came-which we get alot of! Smart thinking ahead, will someone stay with you? That is great giving personalised care. Oh no did you walk home? That contrast dye is terrible+sedations you get....you've updated your profile pic ☺
Bloods all done last week, had a TOE done this morning, angi next Wed and the surgeon the following Monday to be put on the surgical wait list .. Time is flying ...Read more
Bloods all done last week, had a TOE done this morning, angi next Wed and the surgeon the following Monday to be put on the surgical wait list .. Time is flying so fast but feels like its at a snails pace too.
TOE wasn't too bad, worst part was the cannula going in, after that I remember very little, other than being told at some point I have a low tolerance to drugs and some strange nonsensical txts on my mobile I made back on the ward .. Note to self, leave mobile phone with a trusted person for sedative procedures in future. Passed the sip test, had a nice cold meat salad and an OJ, plus the coffee I was dying for all morning.
Now the ball has started to roll the knot of anticipation has loosened some and am a little more relaxed and resigned for what is ahead, have done all the research I can and am pretty much prepared to just roll with it all now and just go with the flow.
Emily Rowley That's great it's all progressing. Ouch I know your pain, do you have thick skin and hard to find vei ... Read more
Emily Rowley That's great it's all progressing. Ouch I know your pain, do you have thick skin and hard to find veins like me? So true, for my Open-Heart Surgery I locked mine up in my suitcase which was locked in the Cardiac Ward's Safe facility! Haha coffee of course what else can't we Aussies live without :P It will be a strange feeling like it's all going quickly by yet time is slow in the moment...Thanks for your flu drink tips-I ended up having the flu shot but got really bad reaction afterwards of vomiting sick and pain in my arm...perhaps it was wrong timing after Gastro Bug the week before; but heart patients get it free. Take Care and keep you in our thoughts. :)
Stephen Doherty I don't know if my skin is thick, but I sure am a wuss when it comes to needles, lol. My Dr offered m ... Read more
Stephen Doherty I don't know if my skin is thick, but I sure am a wuss when it comes to needles, lol. My Dr offered me the flu shot when I had my bloods done, I knocked it back as I always get crook after too, has been years since I had one, but am thinking maybe its a good idea if I'm going to spend a week or so in hospital during the winter period?
Only a week till the surgeon now, glad I have a late afternoon appointment, means we can leave the coast round 11 and head into Chatswood for some yum cha first. :)
Glad you liked the flu drink recipe, I drink it by the bucket load when cold or fluy.
Emily Rowley My Sister is a pathologist sticking needles into patients then drawing blood from them.... I'm not ge ... Read more
Emily Rowley My Sister is a pathologist sticking needles into patients then drawing blood from them.... I'm not getting it done either, there is the Ammonia Vaccine which is free to heart patient, it lasts 5 years and a live vaccine-some people do have a reaction so talk to your Doctor first. Wow, have you had your surgery or going in soon? I know this is a late reply sorry. I hope you are feeling well. Ah I had to go stay there nights before. Omg Bubble Tea? I love Gong Cha-I had visitors sneak it in to me hehe. Thanks for that, I have been cooking my own hearty Winter Vegetable soup and drinking loads of green tea since off Warfarin. Do you drink green tea? It is also great for your immune system. I'm sure you could sneak your drink in a bucket ;P
I send my prayers to you and look forward to hearing an update when you come out. Take Care, Em.
Almost 2 weeks till I see the surgeon, the wait is a pain in the bum its like living under a guillotine .. but alas life must continue, so in an attempt to ...Read more
Almost 2 weeks till I see the surgeon, the wait is a pain in the bum its like living under a guillotine .. but alas life must continue, so in an attempt to do just that I took my sister on a Living Heritage Tour of the tank stream for her birthday, entry is by ballot only and funnily enough the day the cardiologist said "its time", I also got an email saying I had won the chance to purchase 2 tickets to see the tank stream 5-6000 entries this ballot and only a couple of hundred places, so woohoo! :)
I finally got to stand on the same sandstone creek bed that watered the fledgling colonial town of Sydney .. Though today you have to go 3 meters below the city to see it, in a humble sandstone covered storm water drain that belies the historical value and importance to the city above.
I love history, I love life and I love my sister .. all 3 on 1 day was a pretty damn good awesome day out .. here is a couple of pics of the day.
If only my surgery was a few more years away .. Our local district hospital is getting a massive nearly 400 million dollar upgrade. Who know's, they may even ...Read more
If only my surgery was a few more years away .. Our local district hospital is getting a massive nearly 400 million dollar upgrade. Who know's, they may even do OHS surgeries locally one day too. Quite fond of our local hospital, had all but 2 of my surgeries there, lost my tonsils as a child, my appendix as a teenager, both my nieces were born there and all my great nephews, mum had most of her treatment there and they saved my life when I had cancer. Have been seeing my immunologist there for 25yrs too. We also have family that have worked there for years,
Just thought I would share a couple of vids of the upgrade, it is pretty impressive .. https://www.youtube.com/watch?v=gpBEBtgWEAI ... https://www.youtube.com/watch?v=UgUyxtMykqw&feature=youtu.be
NSW Health has released a computer generated virtual tour of the planned redevelopment of Gosford Hospital.
Emily Rowley Oh my gosh I know where Gosford is!! I have been there but not to their Hospital... Do they perform O ... Read more
Emily Rowley Oh my gosh I know where Gosford is!! I have been there but not to their Hospital... Do they perform Open-Heart Surgeries there?
Stephen Doherty Not at the moment, but with this huge revamp it might be a future possibility .. I know they do OHS a ... Read more
Stephen Doherty Not at the moment, but with this huge revamp it might be a future possibility .. I know they do OHS at Brisbane water private at Woy Woy, My surgeon from RNS is a VMO there, so would be great if Gosford had a cardio-thoracic surgical team one day. My cardiologist is a treating Dr at Gosford too.
From where I live on the other side of Gosford I can watch the progress of the build though from my sunroom.
Emily Rowley It will be great! When I read Brisbane I automatically thought QLD lol. 😄 Sorry what does VMO stan ... Read more
Emily Rowley It will be great! When I read Brisbane I automatically thought QLD lol. 😄 Sorry what does VMO stand for? It would be a bonus for many people, you could one of the Surgeons there? 😊 That's good your Cardiologist is close. Awesome, that's the same with St Vincent's Private is in the midst of construction 👷 to further improve/expand-I have some pics if you would like to see. Sunrooms are great, does their building block your view? I guessing you live near Gosford Train Station? 🚄
Stephen Doherty Brisbane waters throws a lot of people, lol .. A vmo is a visiting medical officer, usually a special ... Read more
Stephen Doherty Brisbane waters throws a lot of people, lol .. A vmo is a visiting medical officer, usually a specialist/consultant that has medical rights at the hospital but is based elsewhere. I kinda live North east of the hospital, Gosford is like a bowl, the hospital is on one hill I'm across the bowl on the other hill with the train line running through the middle, so no blocked views I can watch it go up really well. Some pics would be great :)
Emily Rowley Ah for instance Dr Surgeon is based at Sacred Heart Hospital where their office is, however this Surg ... Read more
Emily Rowley Ah for instance Dr Surgeon is based at Sacred Heart Hospital where their office is, however this Surgeon also operates at other Hospitals. I'm going on a train next week so I might see it. Will it block your view? Do you have pics of it or is it in the planning phase? I'm wondering how to get the pics of development to you, I will be visiting there shortly and see more progress. My Surgeon was worried about noise level of development might affect me and my stay, this was pre-op. She was considered and thought of me/her patients which is nice.
Well its been a while since I posted, thought I better update my journal. 11mnths ago after I saw my cardiologist and discussing options for AVR sometime as ...Read more
Well its been a while since I posted, thought I better update my journal. 11mnths ago after I saw my cardiologist and discussing options for AVR sometime as close to 50 as possible. Turns out that 42 is as close as possible. I love my cardiologist, straight to the point as always, after sending me my echo results to read over beforehand, he say's "so I guess, you have read between the lines?" .. I was thinking a year or two .. "It's time" he says. That was 4 days ago.
We had both agreed last year that a porcine valve was the way to go, as the mechanical had too many downsides re medication and lifestyle. Turns out that the surgeon may now actually want to do a mechanical one though being much younger than the 50 year mark we were aiming for due to future replacement issues. It was difficult to focus mentally, an instant subdued panic, cold sweat in an air conditioned office and a feeling like I had just walked away from a rather nasty motor vehicle accident, I was in shock basically the whole day. So many questions now that only a surgeon can answer. Guess that will have to wit till next month when I see him.
Now am booked for a TOE and an angi to take along to the surgeon at RNS in Sydney, feeling pretty confident in my cardiologists choice of surgeon for me, Dr John Brereton head of cardiology at RNS, started general surgery in 1983 and moved to cardio-thoracic's in the 90's where he has specialised ever since, particularly with aortic valves. That's plenty of experience for me.
Now the wait begins, with all the anticipation of a school child awaiting the holidays, but with all the dread of an adult awaiting a tax bill. I think I'll run with my inner child for a while, plenty of time to be an adult when I have to be and it all gets serious. So for the next month am not going to worry, finally won a place in the Tank Stream ballot (The tank stream for my international friends, is Old Sydney Town's first water supply with cisterns carved into sandstone during our colonial days, now buried deep under the city streets) which I have entered year after year as they only have tour twice yearly on a ballot system. I will take my sister for her birthday with me.
With so many inspirational stories on this site it truly gives me the encouragement and the strength to face what is coming, I may not comment very much but I do pop in from time to time to have a read of other peoples journey’s and experiences. Many blessings to you all.
Janette Rehua Hey another Aussie here ! Well a Mozzie or a pozzie or whatever an English /NZ citizen living 20 year ... Read more
Janette Rehua Hey another Aussie here ! Well a Mozzie or a pozzie or whatever an English /NZ citizen living 20 years in Oz is now labelled!! Seems the aortic dramas are more popular than my humble pulmonary dramas! Just wanted to reassure you I had a T.O.E few weeks back nothing to it you don't know a thing awoke and said ' wen are you starting' reply 'um we are all done! " Fabulous" my kind of procedure! Hope you keep us posted more than once a year !
Thanks for the info on the TOE, that is all booked for the 6th May and the angi for the 11th, then the surgeon on the 16th .. its all happening here! I feel like a chook running around with my head cut off right now .. My GP informs me the surgeon will prob put me straight on the wait list, in NSW a valve replacement is a cat1 30 day wait, but my GP said if I'm not ready I can just ask to be put on another 30day wait list, which is good to know.
I'll admit the TOE looks pretty gentle, been through a few 'procedures' since I went thru my cancer trip at 34, I've been fryed with radiation, nuked with poison, even had an orchidectomy, one of the eight surgeries I've had in that time .. but open heart is terrifying me really.
Feel confidant in my surgeon though, he started general surgery in '83, moved to cardio-thoracic's in the early '90s where he has specialised since, he is current head of cardiology at RNS where my op will be done.
Its a pity there are not more Aussies to discuss it all with, although the same procedure, our health systems are vastly different here to the States.
I know I don't post much, I dropped out of FB a couple of years back too, it was wasting so much time, and although I love my cats, far too many meaningless internet kittens. These days I'm more likely to be discussing politics and social issues over at the Guardian.
How is WA, starting to get a little cold now?
Same boat brother grab a paddle.
Janette Rehua Stephen shall be following your story with interest you will be FINE ! We are all in great hands I re ... Read more
Janette Rehua Stephen shall be following your story with interest you will be FINE ! We are all in great hands I reckon its not every cheeseball can be a cardio Doc so have faith my friend! All the best for the 6th and 11th I find out on the 27th of this month what the brains trust has decided on :)
Stephen Doherty Thanks Janette, I will be keeping an eye on your story too .. hope the brain trust comes up with some ... Read more
Stephen Doherty Thanks Janette, I will be keeping an eye on your story too .. hope the brain trust comes up with something perfect on the 27th for you though. :)
Emily Rowley Hello Stephen,
I was reading your early reply post. I discovered an interesting fact, 30 day wait lis ... Read more
Emily Rowley Hello Stephen,
I was reading your early reply post. I discovered an interesting fact, 30 day wait list for heart surgery. Thankyou for sharing that, is Category 1 the worse? Does your Surgeon perform emergency heart surgery such as Transplants?
I know how you feel, I've been feeling like that lately too. I have chickens in my backyard...but with heads on...
I'm interested to hear how it all goes for you. I can explain all about TOE procedures, if you would like to know anything about it.
True, you're right about although same procedure, different places carry out tasks differently.
I too dropped out of FB years ago and glad I have found this wonderful community. Aww you have kittens, love to see photos of them. How many do you have? Pets are therapeutic during recovery, I'm sure your cats will provide you with lots of cuddles Post-Op too.
Hi everyone .. just like to say hello and I am glad I found this site .. have just found out I have congenital heart disease, bicuspid aortic valve, aortic ...Read more
Hi everyone .. just like to say hello and I am glad I found this site .. have just found out I have congenital heart disease, bicuspid aortic valve, aortic stenosis and regurgitation .. Its a bit of a bombshell at first, was a stunned mullet for the first day.
Have researched all I could into the pathophysiology of BAV and think I have my head wrapped around the issue. Having gone though a battle with cancer in '07 have been down this kind of road before so I'm no newby to surprises of this type. Just got to go with the flow and not fight it is all.
Another 4 weeks till my first appointment with a cardiologist and can get a clearer picture of where it all stands .. have been told the stenosis is moderate and the regurgitation is moderate to severe.
Anybody with a stenoic, regurgitative BAV that may have some advice to share at all, would be appreciated.
Thanks Guys. :)
Meredith Bray I was 32 when diagnosed with BAV & stenosis, 42 when I got my new valve. You're not alone! My advic ... Read more
Meredith Bray I was 32 when diagnosed with BAV & stenosis, 42 when I got my new valve. You're not alone! My advice for a newly diagnosed person: DON NOT READ WebMD! Get your information from trusted sources like Cleveland Clinic and Mayo Clinic. This is a great place for support and recovery stories. We're with you!
Suzanne Hunter Welcome Stephen. I live across the ditch in NZ but hope that you won't hold that against any advice!! ... Read more
Suzanne Hunter Welcome Stephen. I live across the ditch in NZ but hope that you won't hold that against any advice!!! My mum was Australian from Melbourne. I was 58 and diagnosed with severe to critical aortic stenosis and had a valve replaced July 2014. It too came as a shock as had no idea of a congenital bicuspid valve. I had no knowledge of what that actually meant apart from what cardiologist told me. I didn't find this site until after op and my doc advised me very strongly not to surf the net for answers but to ask her or the experts at the clinic. Boy I was tempted as I am a bit of an internet geek. This site has great first hand info for these types of surgeries from 'experts' who have been through the ops. However do ask your med team lots of questions so that you do get the correct info and not unnecessary scary stuff. I am fighting fit and back to work so you are a younger fit person you will be just fine. Take Care.
Stephen Doherty Thanks for the advice and support Meredith and Suzanne, am looking into peer reviewed journal article ... Read more
Stephen Doherty Thanks for the advice and support Meredith and Suzanne, am looking into peer reviewed journal articles and the like. Found this really good article that is easy to understand that covers it fairly well .. "Bicuspid Aortic Valve Disease: A Comprehensive Review"
http://www.hindawi.com/journals/crp/2012/196037/
Am kind of looking at it as a tutorial lesson at uni, do the prep work, research, notes, summery .. then rock up to the lecture (cardiologist) with a basic understanding and questions. I'd hate to waste the first appointment on him explaining it all. But get straight into the guts of it, so to speak.
But this is a great place to read peoples journeys first hand. Am so grateful to everyone who has shared their stories that I'm reading, it does kind of relieve the apprehension somewhat.
And nothing wrong with NZ, apparently more Aussies are moving your way than Kiwi's heading ours these days. lol
Cardiology Research and PracticeVolume 2012 (2012), Article ID 196037, 7 pageshttp://dx.doi.org/10.1155/2012/196037Review ArticleBicuspid Aortic Valve Disease: A Comprehensive ReviewIfy Mordi and Nikolaos TzemosInstitute for Cardiovascular Research, British Heart Foundation Glasgow Cardiovascular Research Centre, University of Glasgow, Glasgow G12 8TA, UK
Kimberly Biddick I, too, have BAV and was diagnosed in December. My only advice would be to make sure that you have a ... Read more
Kimberly Biddick I, too, have BAV and was diagnosed in December. My only advice would be to make sure that you have a CT or MRI to check for an aortic aneurysm. That is very, very common for those with BAVD and often doesn't show up on an echo. Good luck and please keep us posted with your progress! Best wishes to you!!
Stephen Doherty Thanks for that Kimberly. I will make certain to get one.
Steven A Husted hi stephen i would highly reccomend adam picks book the patients guide to heart valve surgery and you ... Read more
Steven A Husted hi stephen i would highly reccomend adam picks book the patients guide to heart valve surgery and you will do fine it is not as bad as i thought it was going to be i am 9 months out and doing fine steve (popeye)
Terrie Syvertsen Hello Popeye. Terrie here in California getting ready for my morning walk with the neighbors. Glad to ... Read more
Terrie Syvertsen Hello Popeye. Terrie here in California getting ready for my morning walk with the neighbors. Glad to see that you are busy helping others with information and telling your story! It is nice being this far along in recovery time, isn't it! Take care and eat your spinach.(I know you hate spinach!) Your heart sister(who named you!) Terrie, Hunter and Kat.