To all of those who are going in for surgery in the next little bit go kick some butt and remember its the journey that makes us who we are. I was playing ...Read more
To all of those who are going in for surgery in the next little bit go kick some butt and remember its the journey that makes us who we are. I was playing hockey 6 months after my surgery. Be ready for some excitement, some low days (screw them!!!) lots more high days and keep smiling at the sky. We are all lucky that we found out about our oil changes that we needed. As I always tell my buddies on the baseball field- its not me you have to worry about - I am fixed and watched- I worry about the rest of my clown friends who could be walking time bombs. Go get them hearties and battle on - fight a good battle and enjoy our new found life. Best wishes and take no prisoners...................................... and as Rowdy Roddy Piper once said we are here to kick butt and chew bubble gum and we are all out of bubble gum.......
Enrique K Rob, great attitude and thanks for the inspiration.
One year and a few days update. Keeping on so far so good. I continue along with the good old chest tightness every so often but it feels better when I work ...Read more
One year and a few days update. Keeping on so far so good. I continue along with the good old chest tightness every so often but it feels better when I work out move around etc. In the past year I have played in a hockey tournament, played in my summer baseball league, ran and worked out a thousand times, oh yeah survived many sleepless nights with my new born in march, and am trying to stay away from a doctors office as much as possible and managed to write a book on the process up here in canada
Thanks for the motivation adam. And it feels great. Best wishes to everyone out there kicking some butt with your new found parts. Keep on impressing , enjoy life and drink a guiness.
Mary K Hi Rob, I am enjoying l8fw, feeling better than I have in years. I will drink a Guiness and toast you ... Read more
Mary K Hi Rob, I am enjoying l8fw, feeling better than I have in years. I will drink a Guiness and toast your recovery. Congratulations!
Rob Broley Opening one right mow Mary cheers to many years of living the right way
Hope everyone is keeping well in heart valve land. I continue to get stronger just a little stiffness in the chest, probably from doing too much but what can ...Read more
Hope everyone is keeping well in heart valve land. I continue to get stronger just a little stiffness in the chest, probably from doing too much but what can a guy do to keep from getting bored- gotta stop lifting stuff and doing stupid things. It is amazing how you can feel your energy slowly coming back to you on a daily basis. And screw the down days, they have very little power when you know you will be kicking them where the sun doesn't shine the next day. Oh yeah and aren't naps the greatest thing ever.
Linda Crawford Good to hear from you again. Glad you are continuing to move forward. I am going to tuck your commen ... Read more
Linda Crawford Good to hear from you again. Glad you are continuing to move forward. I am going to tuck your comment about those down days into my "good advice" play book.
Okay so I finally got home on Sunday exacty two weeks after going in for preop. Had quite the interesting post op. Everything went well for a while until Friday ...Read more
Okay so I finally got home on Sunday exacty two weeks after going in for preop. Had quite the interesting post op. Everything went well for a while until Friday and then the afib kicked in and I went for one heck of a ride. My heart got up to 212 beats per minute and the. After the armouring (totally spelt that wrong) my heart stopped for 5 secs. That was another wild ride. Finally after getting me back to sinus I got back at it until having another little fling with the afib on Tuesday for like 12 hrs. Once everything is settled I have been in sinus for almost a week now thank goodness. And I am back home. Met four great guys who also had random ops and many special and awesome nurses that saved my bacon and helped me thru it. Now I'm back home living the surfer lifestyle, no worries just riding the wave. Broley out for now.
Jason Leber Wow Rob, that sounds like quite the adventure! So glad to hear things have settled and you get to do ... Read more
Jason Leber Wow Rob, that sounds like quite the adventure! So glad to hear things have settled and you get to do some well deserved surfing. Did you end up with a repair of the valve or replacement?
~Happy Thanksgiving.
I love your attitude, inspiring, thanks :-) glad you are home!
Adam Pick Back living the surfer life, huh? Next time you paddle out, let me know! I'm a long boarder. You? But ... Read more
Adam Pick Back living the surfer life, huh? Next time you paddle out, let me know! I'm a long boarder. You? But seriously, welcome home. Sounds like a bit of a roller coaster with that AFib. Glad it is under control and now you are home Rob. Keep on tickin! Adam
I know I can't spell but what the heh. Confirmed for Monday morning at 8am. We are going in for a repair of the scary ascending aorta aneurism and a repair ...Read more
I know I can't spell but what the heh. Confirmed for Monday morning at 8am. We are going in for a repair of the scary ascending aorta aneurism and a repair of my leaky valve. I am ready for this part of the oil change. See you all on the flip side of surgery . KOKO keep on keeping on.
Jason Leber https://www.youtube.com/watch?v=VOvDTCbcHe0
here's the link for you to enjoy! we can all use some mo ... Read more
Jason Leber https://www.youtube.com/watch?v=VOvDTCbcHe0
here's the link for you to enjoy! we can all use some motivational music and no better time than now!
I'm in your corner and cheering loudly!
Adam Pick Rob, You are going to do great!!! Jason, thanks for being the honorary, motivational DJ. That was fun ... Read more
Adam Pick Rob, You are going to do great!!! Jason, thanks for being the honorary, motivational DJ. That was fun.
Daniel Spurgeon Hopefully it reassures you that you're being treated by the doctor who invented the valve-sparing ane ... Read more
Daniel Spurgeon Hopefully it reassures you that you're being treated by the doctor who invented the valve-sparing aneurysm repair technique. Please tell him thanks for inventing the procedure, from a patient who benefitted from it.
Susan Ericsson Praying that everything is going well for you today!
Now date with dr David at toronto general hospital. Let's hope this one doesn't get pushed back. I am running out of things to do! Just kidding that will ...Read more
Now date with dr David at toronto general hospital. Let's hope this one doesn't get pushed back. I am running out of things to do! Just kidding that will never happen
Hi Rob!
Thanks so much for writing to me. There are days when I decide not to be so strong and take ... Read more
Hi Rob!
Thanks so much for writing to me. There are days when I decide not to be so strong and take something to help "relax my brain" - keeps the anxiety away. Other days I am fine and in a good mood without it. I am glad you found the best approach for yourself as well. I was much more at peace when I found Dr. Stewart. I know what you mean about testing your strength and stamina. I had to really fight hard to find my strength for this as I had just left a 13 year marriage (good for me) and even though I wanted it, did not realize what emotions would follow. But, I learned a lot about myself, huge positive, and made sure I would never pick the same man again! So I am doing well, and then wham! I need surgery. I am secretly mad at my cardiologist for not going over different options. He actually told me the more I looked around, the more confused one would get. I hung up the phone and said..no, I believe quite the opposite. The more research, the better. But I know he cares enough about me to have said "go see a surgeon". How big is your aneurysm? This sight has helped me quite a bit in just the few short days I have been on it. I agree with you, laughing is good, and I am taking it very slow as well. I feel like I have a time bomb in me. I stopped going to the gym two months ago, I do not want to feel what I felt again. And not always feeling the best. I can't tell anymore if it's stress or this - probably both. I do not normally feel this way. The surgery can not come soon enough, the waiting is the worse part. When is your second baby due? I know we will both be fine due to the great outcomes..... and I am sure your surgeon has shared the same info. I know that they are not god, and I have a hard time trusting anyone. Wish I was a child, those were the days when I did not worry and trusted. I would love to keep in touch with you, if you don't mind, up until the surgery, and post surgery - would be great to have a "partner" to share with, maybe complain with or laugh with., or say we did great and passed with flying colors! By the way, I never have a good outcome with the dye. After an MRI about 5 years ago, I seriously became fatigued for many months - of course the doctor thought it was all in my head (TN). What does a woman know :). After that, in CT the doctor agreed with me and said stay away from it, you can try a CT scan and see how you do with the dye. That was a year ago, and I made sure I detoxed for a while until I did it and I was fine. However this last one, July 21st - it kicked in again. Inflammation, fatigue. I hate it. It takes months to leave my system. But I know CT scans are great ,clear pictures and I wanted to have them done. Glad I did. But hate that they equal 400 xrays! How are they repairing your valve? And last question, why did they have you drink cranberry juice? Interesting about the cucumbers, as I was eating a ton as I grew them in my garden. Thanks again for reaching out. Have a great day, and adding you and your family to my prayers.
Rob Broley Hey Christine ya no worries keep in touch it will be good to have someone along for the ride. I didn ... Read more
Rob Broley Hey Christine ya no worries keep in touch it will be good to have someone along for the ride. I didn't ask my surgeon about how he just said he could repair. Hindsight tells me that would have been a great question to ask oops, hehe. The cranberry juice was my mother in laws. It helps flush the system. She is a retired nurse who did a lot of years on the heart floor. What luck I tell you. Heh keep the kick a$$ attitude and we will whoop this surgery . Keep in touch and we will walk to you on the flip side. Oh yeah and munchkin number two is coming down the tubes at the beginning of March.
I like the attitude, Rob and feel the same way. Good times are waiting for us on the other side. Ke ... Read more
I like the attitude, Rob and feel the same way. Good times are waiting for us on the other side. Keep in touch and good luck on the 29th as well. It's going to hurt at first, but I will take recovery over what could have happened had I not known. I think the hardest part could be the waiting! Every time I feel "off" I think, Ok not right now, I only have a few more days left. You will be in great shape by the time baby number 2 comes. That is great.
Rob Broley Nice that waiting feeling is weird huh. Unless we have the worst luck in the Iuniverse I better be a ... Read more
Rob Broley Nice that waiting feeling is weird huh. Unless we have the worst luck in the Iuniverse I better be able to survive 6 more days after what I have been putting my body thru all these years. Keep on keeping on(KOKO). Talk soon and kick some butt on the 29th as well race you outta the icu. Heheh.
I know I'm not the first one this is happened to and I take the frame of mind that I am just getting all the curves and speed bumps on this roller coaster of ...Read more
I know I'm not the first one this is happened to and I take the frame of mind that I am just getting all the curves and speed bumps on this roller coaster of emotions. In other word I am getting my money's worth out of this ride baby. My surgery has been cancelled till sometime in later September by the sounds of it instead of tomorrow My frame of mind is don't do anything stupid that might cause the aneurism to burst. And if you know me that is the trickiest part of this but I'll do it with a smile on my face and no beer in my hand. (Darn it lol). Anyway thanks to all of you that have given me ideas suggestions and best wishes. From what I have found the heart valve community is one heck of a fantastic group and in a weird and wonderful way I am glad to be a part of it.
Michael Poe Yes so none of " Hold my beer...wath this. Lol, Michael
Rob Broley I hear ya michael, but darn is that first cold beer gonna taste splendid
May 18- my cardiologist finds my AAAA has shot up to a gradient over 50 time to bust me open.
June 5- CT scan done bitching migraine after it.
June 24- angiogram ...Read more
May 18- my cardiologist finds my AAAA has shot up to a gradient over 50 time to bust me open.
June 5- CT scan done bitching migraine after it.
June 24- angiogram done . Recommends valve replacement and repair of AAA. Damn seeing stars after wards.
June 26- I find out that my body doesn't really appreciate the dye they put through you. Heart rate all over the place and oxygen levels dipped. Not so fun ride. Admitted to emergency where they hit me with another Ct scan. Who hoo. The next 2 days I drink enough cranberry juice and water with lemon and cucumber to keep the titanic floating. But it does the job.
July 30 meet with great surgeon [#1. He recommends mechanical valve and blood thinners. I ask about Ross procedure. Answer left in the air
The following week I continue to research and read. Thank you Adam for chapter 6 in your book on finding the right surgeon for you. It motivates me to find all options. I email Dr. David at Toronto General Hospital (TGH) a world renowned surgeon who answers my questions the next day.
Aug 6- preoperation at hospital #1 still feeling not quite satisfied with my options despite the great surgeon and hospital I have started at.
later in the day I call Dr Davids office who set me up with an appointment for the following Thursday as long as I can get files down to him. Well this story needs a post on its own so I will do that one later but it's one heck of a lucky ride for me.
August 7 meet with surgeon 1 who refers me to Dr David without batting an eye. Thank you for your generosity Dr1.
August 8 I get all my files and drive them down to TGH. It's a big hospital and I roam around for a bit until a door opens up and there Dr David walking out. I hand all my files right to him. At least I know he has them. Lol.
August 14. Consult with Dr David. He seems like a down to earth doctor and I feel 100% confident with him. He llooks at my files echo tees and says yep I can repair the valve and aneurism. When do you want to do this. I tell him I am in his hands and he goes how about next Friday. He had a cancellation. Yep warp speed it is. So now I am getting on it. Looking forward to seeing my scar after this. Can't wait for my first time I get to say "scar that's not a scar now this is a scar". Anyway thanks again Adam for the book without it I don't think I would have been as informed and I probably wouldn't have pushed for Dr David.
Mechanical vs tissue
I will be the first to admit It is one of the most difficult decisions a person must make. Blood thinners vs another operation. My surgeon ...Read more
Mechanical vs tissue
I will be the first to admit It is one of the most difficult decisions a person must make. Blood thinners vs another operation. My surgeon says that at my age I might get 10years out of a tissue if I am lucky