To all of those who are going in for surgery in the next little bit go kick some butt and remember its the journey that makes us who we are. I was playing hockey 6 months after my surgery. Be ready for some excitement, some low days (screw them!!!) lots more high days and keep smiling at the sky. We are all lucky that we found out about our oil changes that we needed. As I always tell my buddies on the baseball field- its not me you have to worry about - I am fixed and watched- I worry about the rest of my clown friends who could be walking time bombs. Go get them hearties and battle on - fight a good battle and enjoy our new found life. Best wishes and take no prisoners...................................... and as Rowdy Roddy Piper once said we are here to kick butt and chew bubble gum and we are all out of bubble gum.......
One year and a few days update. Keeping on so far so good. I continue along with the good old chest tightness every so often but it feels better when I work out move around etc. In the past year I have played in a hockey tournament, played in my summer baseball league, ran and worked out a thousand times, oh yeah survived many sleepless nights with my new born in march, and am trying to stay away from a doctors office as much as possible and managed to write a book on the process up here in canada
Thanks for the motivation adam. And it feels great. Best wishes to everyone out there kicking some butt with your new found parts. Keep on impressing , enjoy life and drink a guiness.
Hope everyone is keeping well in heart valve land. I continue to get stronger just a little stiffness in the chest, probably from doing too much but what can a guy do to keep from getting bored- gotta stop lifting stuff and doing stupid things. It is amazing how you can feel your energy slowly coming back to you on a daily basis. And screw the down days, they have very little power when you know you will be kicking them where the sun doesn't shine the next day. Oh yeah and aren't naps the greatest thing ever.
Okay so I finally got home on Sunday exacty two weeks after going in for preop. Had quite the interesting post op. Everything went well for a while until Friday and then the afib kicked in and I went for one heck of a ride. My heart got up to 212 beats per minute and the. After the armouring (totally spelt that wrong) my heart stopped for 5 secs. That was another wild ride. Finally after getting me back to sinus I got back at it until having another little fling with the afib on Tuesday for like 12 hrs. Once everything is settled I have been in sinus for almost a week now thank goodness. And I am back home. Met four great guys who also had random ops and many special and awesome nurses that saved my bacon and helped me thru it. Now I'm back home living the surfer lifestyle, no worries just riding the wave. Broley out for now.
I know I can't spell but what the heh. Confirmed for Monday morning at 8am. We are going in for a repair of the scary ascending aorta aneurism and a repair of my leaky valve. I am ready for this part of the oil change. See you all on the flip side of surgery . KOKO keep on keeping on.
I know I'm not the first one this is happened to and I take the frame of mind that I am just getting all the curves and speed bumps on this roller coaster of emotions. In other word I am getting my money's worth out of this ride baby. My surgery has been cancelled till sometime in later September by the sounds of it instead of tomorrow My frame of mind is don't do anything stupid that might cause the aneurism to burst. And if you know me that is the trickiest part of this but I'll do it with a smile on my face and no beer in my hand. (Darn it lol). Anyway thanks to all of you that have given me ideas suggestions and best wishes. From what I have found the heart valve community is one heck of a fantastic group and in a weird and wonderful way I am glad to be a part of it.
May 18- my cardiologist finds my AAAA has shot up to a gradient over 50 time to bust me open.
June 5- CT scan done bitching migraine after it.
June 24- angiogram done . Recommends valve replacement and repair of AAA. Damn seeing stars after wards.
June 26- I find out that my body doesn't really appreciate the dye they put through you. Heart rate all over the place and oxygen levels dipped. Not so fun ride. Admitted to emergency where they hit me with another Ct scan. Who hoo. The next 2 days I drink enough cranberry juice and water with lemon and cucumber to keep the titanic floating. But it does the job.
July 30 meet with great surgeon [#1. He recommends mechanical valve and blood thinners. I ask about Ross procedure. Answer left in the air
The following week I continue to research and read. Thank you Adam for chapter 6 in your book on finding the right surgeon for you. It motivates me to find all options. I email Dr. David at Toronto General Hospital (TGH) a world renowned surgeon who answers my questions the next day.
Aug 6- preoperation at hospital #1 still feeling not quite satisfied with my options despite the great surgeon and hospital I have started at.
later in the day I call Dr Davids office who set me up with an appointment for the following Thursday as long as I can get files down to him. Well this story needs a post on its own so I will do that one later but it's one heck of a lucky ride for me.
August 7 meet with surgeon 1 who refers me to Dr David without batting an eye. Thank you for your generosity Dr1.
August 8 I get all my files and drive them down to TGH. It's a big hospital and I roam around for a bit until a door opens up and there Dr David walking out. I hand all my files right to him. At least I know he has them. Lol.
August 14. Consult with Dr David. He seems like a down to earth doctor and I feel 100% confident with him. He llooks at my files echo tees and says yep I can repair the valve and aneurism. When do you want to do this. I tell him I am in his hands and he goes how about next Friday. He had a cancellation. Yep warp speed it is. So now I am getting on it. Looking forward to seeing my scar after this. Can't wait for my first time I get to say "scar that's not a scar now this is a scar". Anyway thanks again Adam for the book without it I don't think I would have been as informed and I probably wouldn't have pushed for Dr David.
I will be the first to admit It is one of the most difficult decisions a person must make. Blood thinners vs another operation. My surgeon says that at my age I might get 10years out of a tissue if I am lucky