’m looking to hear from others who have elected to proceed with valve replacement surgery when asymptomatic, and input they can offer me on getting one’s ...Read more
’m looking to hear from others who have elected to proceed with valve replacement surgery when asymptomatic, and input they can offer me on getting one’s head around the decision to proceed.
I am a 63 year old male born with sub aortic stenosis. I had open heart surgery at age 14 which was successful. I have always diligently consulted with cardiologists regarding the remaining regurgitations and how to best navigate aging with the conditions I have.
My Mayo Clinic (AZ) cardiologist and cardiac surgeon have advised that it’s time to undergo another surgery to address some long-standing issues. Specifically, the plan is undergo surgery in September to repair an aortic aneurysm, replace the Aortic valve and repair (or replace) the mitral valve. The measurements all suggest it is time to go forward, even though I am asymptomatic. The aorta is at 53 mm at the root and ascending aorta, and the aortic and mitral valves are in the moderate to severe range. Ejection Fraction is 52%, Left ventricle is enlarged (60 mm) and left atrium is also enlarged. These have been watched over the past five years and there is a general progression of these symptoms, but not catastrophically so.
The issue is I am asymptomatic. I feel great, in fact. I’m trying to get my head (and heart) around the decision to go forward while still feeling quite well. I can understand that it is better to address these issues while I am healthy, and that these issues will not spontaneously improve. I also am convinced that if I want to ensure a healthy and long life in the future, I should proceed with the surgery.
Yet, the decision to go forward with open heart surgery means a decision to go through a process that has a small but non-negligible amount of risk of death and a larger risk of some non-morbid complication (e.g. pacemaker implantation). A friend has also just recently had emergency open heart surgery to address an infected Aortic valve and he and his family are struggling with some pretty gruesome complications. It is unclear at this point whether he will survive, and if he does it will be in a significantly worse status than he was in before the surgery.
I’m hoping to hear from people with similar issues or who have navigated this process of going forward even when asymptomatic. For those of you who did so, what can you tell me about your experiences? Thanks!
John Cook I’m also asymptomatic with severe aortic regurgitation. If I hadn’t given up on trying to get my blood pressure down on my own almost exactly a year ago, I wouldn’t know I have a problem.
Adam did a Q&A video between patients and surgeons that I found on YouTube. It’s really good to watch. I’ll see if I can re-find it when I have time.
The bottom line is back in the 80s, the protocol was to always used to wait until patients became symptomatic. The survivability statistics were much lower than they are now. ... Read more
John Cook I’m also asymptomatic with severe aortic regurgitation. If I hadn’t given up on trying to get my blood pressure down on my own almost exactly a year ago, I wouldn’t know I have a problem.
Adam did a Q&A video between patients and surgeons that I found on YouTube. It’s really good to watch. I’ll see if I can re-find it when I have time.
The bottom line is back in the 80s, the protocol was to always used to wait until patients became symptomatic. The survivability statistics were much lower than they are now.
Now they recommend when the regurgitation transitions from moderate to severe regardless of if they have no symptoms. Patients are surviving the surgery better and have normal or almost normal longevity statistics.
The risks you accept by waiting is the regurgitation gets worse, your heart gets weaker, the surgery gets riskier, & the recovery takes longer.
Glenn Tremper Thanks for the response, and the perspective . . . I'll be following you on your journey.
Michael Ponzio Hi, I just had my surgery six weeks ago. I had severe aortic stenosis plus an aortic aneurysm 4.8. I ... Read more
Michael Ponzio Hi, I just had my surgery six weeks ago. I had severe aortic stenosis plus an aortic aneurysm 4.8. I was totally asymptomatic. as well. The surgical team felt it was best to do it at this time. Good luck with your decision.
Joyce Shelby Hi Glenn, I wish you the best. I was asymptomatic as well and I would have never known that my regu... Read more
Joyce Shelby Hi Glenn, I wish you the best. I was asymptomatic as well and I would have never known that my regurgitation went from moderate to severe if it were not for the echo and CT scans. I had 2 aneurysms that were stable for a long time and then they decided to grow in size. I was in disbelief when told I had to have surgery, it was devastating.
I completely agree with John because the longer you wait, the more dangerous the situation may become. You certainly don't want to have to face a dissection or your heart becoming weaker from inefficient function; there is no return from that! I felt great on the outside but inside, I was a ticking time bomb and would not have known if it wasn't for my great medical staff!
Every surgical case is different so you really can't compare yourself to others. Everyone's recovery is different, and their medical care is different. I had my first heart surgery in 2016 and I just had my 2nd this past February. Staying positive is everything. I am not saying surgery and recovery is easy but you can get through it! That is evident by all of the wonderful people, including Adam, on this site! All the best in your decision!
Susan Lynn Glenn - It's frightening to have to go through surgery, again. I can't imagine doing it twice! W ... Read more
Susan Lynn Glenn - It's frightening to have to go through surgery, again. I can't imagine doing it twice! We call people like you heart gladiators!! But, while you don't think you have symptoms, you described several medical symptoms that indicate that intervention is needed. Heart surgery is recommended only when the benefits outweigh the risks. So, while you feel good and have the opportunity to have an easier recovery and a greater probabilty of your enlarged ventricle returning to normal size, you may want to think about undergoing surgery sooner rather than later. There's one thing we do know - heart problems don't get better on their own.
None of us want to go down this road, but there's only one direction - forward. Trying to hold your condition constant is unlikely. Good luck with your decision.
Marie Myers I was asymptomatic with aortic regurgitation but I developed a 4.8 ascending aortic aneurysm and bonu ... Read more
Marie Myers I was asymptomatic with aortic regurgitation but I developed a 4.8 ascending aortic aneurysm and bonus root aneurysm. My aneurysms drove my surgery, and I did have my bicuspid valve replaced at the same time. I believe it is older thinking to wait for symptoms to appear.
Valerie Allen Be sure that the surgeon you choose is a surgeon who is known for doing repeat cardiac surgeries. My ... Read more
Valerie Allen Be sure that the surgeon you choose is a surgeon who is known for doing repeat cardiac surgeries. My only symptom was slight but growing fatigue. You will be in better shape to recover if done when you are well.
John Cook This is the video I mentioned: 6 Expert Tips For Heart Valve Patients.
https://www.Heart-Valve-Surgery.com - During this special webinar celebrating National Heart Valve Disease Awareness Day, you will learn "6 Expert Tips" for ...
Dr. Gerdisch is a world-renowned heart valve surgeon that has performed over 4,000 heart valve repair and replacement operations that include minimally-invasive techniques.
I am a 63 year old male born with sub aortic stenosis. I had open heart surgery at age 14 which was successful. I have always diligently consulted with cardiologists regarding the remaining regurgitations and how to best navigate aging with the conditions I have.
My Mayo Clinic (AZ) cardiologist and cardiac surgeon have advised that it’s time to undergo another surgery to address some long-standing issues. Specifically, the plan is undergo surgery in September to repair an aortic aneurysm, replace the Aortic valve and repair (or replace) the mitral valve. The measurements all suggest it is time to go forward, even though I am asymptomatic. The aorta is at 53 mm at the root and ascending aorta, and the aortic and mitral valves are in the moderate to severe range. Ejection Fraction is 52%, Left ventricle is enlarged (60 mm) and left atrium is also enlarged. These have been watched over the past five years and there is a general progression of these symptoms, but not catastrophically so.
The issue is I am asymptomatic. I feel great, in fact. I’m trying to get my head (and heart) around the decision to go forward while still feeling quite well. I can understand that it is better to address these issues while I am healthy, and that these issues will not spontaneously improve. I also am convinced that if I want to ensure a healthy and long life in the future, I should proceed with the surgery.
Yet, the decision to go forward with open heart surgery means a decision to go through a process that has a small but non-negligible amount of risk of death and a larger risk of some non-morbid complication (e.g. pacemaker implantation). A friend has also just recently had emergency open heart surgery to address an infected Aortic valve and he and his family are struggling with some pretty gruesome complications. It is unclear at this point whether he will survive, and if he does it will be in a significantly worse status than he was in before the surgery.
I’m hoping to hear from people with similar issues or who have navigated this process of going forward even when asymptomatic. For those of you who did so, what can you tell me about your experiences? Thanks!
Adam did a Q&A video between patients and surgeons that I found on YouTube. It’s really good to watch. I’ll see if I can re-find it when I have time.
The bottom line is back in the 80s, the protocol was to always used to wait until patients became symptomatic. The survivability statistics were much lower than they are now.
... Read more
Adam did a Q&A video between patients and surgeons that I found on YouTube. It’s really good to watch. I’ll see if I can re-find it when I have time.
The bottom line is back in the 80s, the protocol was to always used to wait until patients became symptomatic. The survivability statistics were much lower than they are now.
Now they recommend when the regurgitation transitions from moderate to severe regardless of if they have no symptoms. Patients are surviving the surgery better and have normal or almost normal longevity statistics.
The risks you accept by waiting is the regurgitation gets worse, your heart gets weaker, the surgery gets riskier, & the recovery takes longer.
I completely agree with John because the longer you wait, the more dangerous the situation may become. You certainly don't want to have to face a dissection or your heart becoming weaker from inefficient function; there is no return from that! I felt great on the outside but inside, I was a ticking time bomb and would not have known if it wasn't for my great medical staff!
Every surgical case is different so you really can't compare yourself to others. Everyone's recovery is different, and their medical care is different. I had my first heart surgery in 2016 and I just had my 2nd this past February. Staying positive is everything. I am not saying surgery and recovery is easy but you can get through it! That is evident by all of the wonderful people, including Adam, on this site! All the best in your decision!
But, while you don't think you have symptoms, you described several medical symptoms that indicate that intervention is needed. Heart surgery is recommended only when the benefits outweigh the risks. So, while you feel good and have the opportunity to have an easier recovery and a greater probabilty of your enlarged ventricle returning to normal size, you may want to think about undergoing surgery sooner rather than later. There's one thing we do know - heart problems don't get better on their own.
None of us want to go down this road, but there's only one direction - forward. Trying to hold your condition constant is unlikely. Good luck with your decision.
Read more
https://youtu.be/3aryTW5PkJY?si=l408T-TU9tLS6CFs">https://youtu.be/3aryTW5PkJY?si=l408T-TU9tLS6CFs