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Crystal's Posts

Diagnosis: Aortic Stenosis, Bicuspid Aortic Valve

Member Since: May 20, 2017

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Crystal Whaley posted an update

8 years ago (November 10, 2017)

Can I get any recipes for a low vitamin k diet? I see the oils to avoid in EVERYTHING. A normal grocery store trip takes 2 hrs so I can read each and every label for the items to avoid.

Catie B

There is a Coumadin cookbook out on Amazon. They have them new and used. But most Coumadin clinics and doctors anymore will dose the medicine to your diet, making cooking and eating a lot easier. The main thing would be staying consistent with the highest K-content foods like spinach, Romaine... Read more.

Noreen Kitchen

I went and saw a dietitian who specializes in low vitamin k diets and it really helped. Consistency is the key I love salads and still enjoy them quite regularly. I skip the dark green lettuces and have the romaine hearts or ice berg instead. I admit that I miss... Read more.

Rita Savelis

You can stick to your normal diet (most people eat the same things fairly regularly) and then just accomodate an anticoagulant dose to what your body needs and what your regular diet is. I haven't changed anything in my diet in my 2 years on anticoagulants.

Crystal Whaley

Thank you for the advice. One and a half year now, I have figured out what to do and what not to do. Thanks ladies

Crystal Whaley posted an update

8 years ago (November 10, 2017)

Well, I am 8 mos out of bicuspid aortic valve stenosis repair. My St. Judes valve clicks away the time. Sometimes at night I hear it. It might be annoying at times but relieving all the same, without it I would not be here. I had to go to the... Read more.

Gerald Poulton

Hi Ctystal, did your rapid heart rate jusr happen all of a sudden or has it been high since your surgery. I am 13 weeks and my heart rate has been in the mid 70's where before it was mid 50's. I must admit That since going back to work... Read more.

Crystal Whaley

Well, I am now 4 wks post op from getting a pacemaker. Inside of a month, my heart was feeling funny, flip flopping and lulls sometimes. I could not pin point the problem and finally got ok'd for ekg. It showed a 2nd degree heart block. My heart would sometimes... Read more.

Gerald Poulton

I am very sorry to hear that Crystal and I hope things gave improved for you 💐

Crystal Whaley posted an update

9 years ago (June 2, 2017)

I read some of these entries and desperately wish I had found this blog sooner. Before my surgery would have been extremely helpful to me and now I hope to be helpful to others. I found it was much easier to sleep on a wedge. I purchased it at my... Read more.

👍 Barbara Wood reacted to this

Lisa Pelosi

I had the same situation. Iwas told , since childhood about the , " nothing to worry about murmur ". I mention this to anyone who will listen.

Jennifer McInerney

I was told the same. Now im likely om my way to AVR. Total shock that my regular echo showed me at severe stage. Going Tuesday to confirm. God Bless, hope your reovery goes well.

Crystal Whaley

Thank you very much ladies. Good luck yourselves and take care too.

Laura Jacobs

I am another one.. Told I had a murmur about four years ago but not to worry about it. Even last February the same advice. Fast forward to mid-May when I go to a cardiologist for the first time and found out I have severe stenosis of a "highly likely... Read more.

Crystal Whaley

I hope everyone has gotten the help they needed and well on their way to recovery and living life again. HAVE ANY OF YOU BEEN TOLD... YOU HAVE CHANGED????PERSONALITY ????

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