Eileen Banchoff posted a note for Maureen that says:
Maureen, congratulations on your anniversary! Hope you're doing well.
Question: my husband has a bicuspid valve that needs to be replaced. What did they ...Read more
Maureen, congratulations on your anniversary! Hope you're doing well.
Question: my husband has a bicuspid valve that needs to be replaced. What did they replace yours with? Was the procedure open heart? Transcatether? Robotic? Where I can I learn more about bicuspid valve repjacendnt?
Joanna Prisiajniouk posted a note for Maureen that says:
Hi Maureen! So glad to hear life has rebounded for you! I am almost 6 weeks post op and also going fine but have occasional atrial fibrillation that I'm told ...Read more
Hi Maureen! So glad to hear life has rebounded for you! I am almost 6 weeks post op and also going fine but have occasional atrial fibrillation that I'm told 85% have as a side effect after open heart surgery. Did you have any bouts of atrial fibrillation? Please let me know. This part worries me though doctors say it usually disappears 6-8 weeks sometimes more. Thanks much, Joanna
Maureen Breault I haven't had anything like that. Not even sure what that would feel like. I do hear my valve pumping ... Read more
Maureen Breault I haven't had anything like that. Not even sure what that would feel like. I do hear my valve pumping at night if I lay on my side or in a quiet moment. I'm back to teaching fitness and was able to do some hiking in VA. The sustained climbs were hard in the heat there and I had to stop several times to rest. Sorry I took so long to respond, I haven't been checking the blog as often!
Thanks Maureen for your reply! I know that valve choice is very personal. I've read many articles about it and the 2 surgeons I spoke with lean towards tissue ...Read more
Thanks Maureen for your reply! I know that valve choice is very personal. I've read many articles about it and the 2 surgeons I spoke with lean towards tissue focusing on TAVR later. I will be speaking to three more on this topic. Is this a health decision or a business decision? I am perplexed on this question plus the fact that I read that tissue valves are understated. I'm going to post that article in my journal. Also, other reports state tissue longevity of up to 20 years or more. Shaking my head...I met a senior couple older than us (I'll be 56 next month), where his tissue valve lasted 12 years. I could have sworn he should have at least gotten more miles out of it being he is much older than us hearing how they can last to at least 29 years now...so totally confusing these reports! Being that the tissue valve itself has dead tissue cells, how does our daily nutrition affect it? I did not get Adam's book yet but dues anyone know anything about that to prolong your tissue valve? I'm sure smoking diesn't help overall but what about vitamins and minerals on a dead cell tissue valve? How can it respond to infection as we need antibiotics for both tissue and mechanical valves we are told before dental work. Questions, questions...
Joanna Prisiajniouk Sorry my typo...tissue valve lasting to up to 20 years...some have reported more though....
Linda Lloyd I have a bovine tissue valve from my AVR 13 years ago when it was damaged from ablation surgery (so a ... Read more
Linda Lloyd I have a bovine tissue valve from my AVR 13 years ago when it was damaged from ablation surgery (so aortic valve was fine to begin with). At the time I was told that it’s shelf-life was an average of 10 years, and it would need to be replaced (whereas a mechanical valve likely wouldn’t). I chose the tissue valve due to the QOL issues that (interestingly) the article mentioned (first time I've seen that in print--Thank you for posting !). Most cardiologists at the time would have recommended a mechanical valve though (due to my age--55).
It’s still functioning (I’m now 68)—albeit moderately calcified, but no activity restrictions so far (I have an unrelated tricuspid valve problem which will prompt OHS surgery sooner than the AVR will wear out, at which point they will replace both, so as to not require a third OHS). They also suggest that the reason that my bovine valve is still doing as well as it is, is related to a number of factors: low blood pressure (reduced stress on the tissue valve); pristine blood work (plaque and associated “crud” did not collect on the valve as quickly, although it is beginning to be calcified; that’s the nutrition connection); no infection from dental work, due to antibiotic use (septicemia is deadly for a valves, because as porous tissue they act as a “sponge” for bacteria running through your blood stream, which results in infection--i.e. endocarditis with a high mortality rate). Hoping this helps clarify a bit? For sure, it's a difficult decision (and for me it was made in an emergency situation, so I couldn't weigh alternatives at the time; I can't say that I would have chosen differently however). I'm so pleased that folks can now weigh in on issues to consider in forums like this, and also have access to a literature base, to help make an informed decision...
Hi Maureen! So happy to have found your update and hearing all is well! I have been thinking of you since your surgery date updates. It must feel great to have ...Read more
Hi Maureen! So happy to have found your update and hearing all is well! I have been thinking of you since your surgery date updates. It must feel great to have this behind you. Congrats and may God be with you and all here who are all in the same boat. I say a prayer for all on this site going through all the phases of OHS as I prepare to decide on a surgeon and hear when my date is coming up. I still flip flop with the valve decision and just understood you decided on a mechanical valve. Please tell us how it sounds and how you are adjusting to it and all that you think would interest us regarding being on meds. Thanks for being so strong and supportive! Many blessings to you and a smooth recovery!!
Maureen Breault I decided on a mechanical due to my age, 56, I don't want to obviously go through OHS again. Pig and ... Read more
Maureen Breault I decided on a mechanical due to my age, 56, I don't want to obviously go through OHS again. Pig and bovine valves supposedly only last 12-15 years. I'm working on getting my INR levels where they need to be, testing every week and adjusting medication. Actually during surgery the doc discovered my bicuspid valve was healthy, my enlarged ascending aorta was the main problem, which was replaced along with the valve. I hear it working sometimes but it's kind of reassuring! I think you have to take into account your age with the choice of valve. The newer mechanicals require less meds so that was a factor for me. You have to do what's right for you!
Maureen, I don't get on this site regularly anymore, but occasionally. Jumped on tonight and saw you were having Dr. Ryan do your surgery at Heart Hospital ...Read more
Maureen, I don't get on this site regularly anymore, but occasionally. Jumped on tonight and saw you were having Dr. Ryan do your surgery at Heart Hospital Plano Tuesday morning. Dr. Ryan did my MVR December 2014. He's a great surgeon, and the hospital is the best! I'll keep you in my prayers for successful surgery and recovery. I live nearby and if you or your family need anything, would love to help visit, stop by, etc. Blessings heart sister!
I think this will be a great resource for you - and your many friends - during your recovery! Try to enjoy this weekend and be sure to get out for a great ...Read more
I think this will be a great resource for you - and your many friends - during your recovery! Try to enjoy this weekend and be sure to get out for a great bike ride ;-) Will be sending good vibes and prayers on Tuesday. xoxoxo
Hi Maureen- it looks like we are scheduled for surgery on the same day! Wishing you all the best on your surgery. I would love to keep in touch as we are ...Read more
Hi Maureen- it looks like we are scheduled for surgery on the same day! Wishing you all the best on your surgery. I would love to keep in touch as we are recovering together!
Heidi
Maureen Breault Just saw this; also sending you positive thoughts for the day; would love to be in touch to take the ... Read more
Maureen Breault Just saw this; also sending you positive thoughts for the day; would love to be in touch to take the journey together. Thank you for reaching out,
Maureen
Heidi Tragesser Thanks- i am getting really nervous but I am trying to stay as positive as possible. I am having th ... Read more
Heidi Tragesser Thanks- i am getting really nervous but I am trying to stay as positive as possible. I am having the surgery 2 hours away from my home. The surgeon wants me to stay in the area for a week after the surgery so I will be staying at a hotel close by the hospital. Luckily, it is in La Jolla Ca , which is a beautiful place but ....I joke to my husband that I had to go through open heart surgery to get a vacation in La Jolla! Do you live close to your hospital?
Maureen Breault Me too, anxious, but trying to stay busy and calm. My hospital is 2 miles from my house, I'm checking ... Read more
Maureen Breault Me too, anxious, but trying to stay busy and calm. My hospital is 2 miles from my house, I'm checking in for an angiogram Monday early afternoon and having all the pre op done then, staying the night. I like that plan; less chance of not showing up the next AM and my husband and I can get acclimated. Hard for you not to go home right away but there are worse places!
Hi Maureen,
Your story sounds broadly similar to my own. I had my surgery in November and I'm delighted to say that all went well. I feel like a new woman. ...Read more
Hi Maureen,
Your story sounds broadly similar to my own. I had my surgery in November and I'm delighted to say that all went well. I feel like a new woman. Recovery took longer than I expected and it was difficult to do the simplest things for the first while. Don't be afraid to ask for help.
(As you have some time between now and your op., I would suggest getting slip on shoes, a gadget for picking up items from the floor, some bra extenders which clip onto fasteners at the back and some soft baby bath sponges to fit between the bra and the wound. I found the picker upper brilliant for helping me to put on and pull up my underwear and pants.)
Lots of luck,
Brenda
Joanne Casserly I have a question, I don't wear a bra, really never have, do I need to? Forgive me if this sounds st ... Read more
Joanne Casserly I have a question, I don't wear a bra, really never have, do I need to? Forgive me if this sounds stupid
Denise Campbell I don't think you need to ohs reasons. The bra is annoying to your incision. I'm at 9 weeks po ... Read more
Denise Campbell I don't think you need to ohs reasons. The bra is annoying to your incision. I'm at 9 weeks post op and it still annoys me. Are they repairing or replacing your mitral valve. ?
Denise Campbell I meant to say. No bra is needed as far as ohs goes. Sorry. I left out words.