Victoria's Posts

Diagnosis: Mitral Regurgitation

Member Since: November 12, 2014

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Victoria Lopez posted an update
11 years ago (November 13, 2014)
My fevers began about 9 weeks ago after exposure to strep. At the same time, I started experiencing shortness of breath with standing, walking, and talking. Echos were done which showed a worsening of my MVP and MR. Lambyl's excrescences were also seen for the first time, too. All throat... Read more.
11 years ago (November 13, 2014)
I don't have any experience with this, but will keep you in my prayers for answers.
11 years ago (November 13, 2014)
could your valve be the cause?
11 years ago (November 13, 2014)
I have no idea, Kathryn. I started having fevers, shortness of breath, and night sweats in September after being exposed to strep. I then had blood cultures, cultures for strep, and other labs. Everything was normal except for a high BNP, but negative for strep. I then had a regular... Read more.
11 years ago (November 14, 2014)
I am 4 months post surgery mitral valve repair. I have had 2 bouts in less then a month with severe flu like sysmtoms. Doctor tested for flu (negative) and did a visual diagnose for strep (also negative.) I've had an ongoing fever, pain in neck muscles, tightness and soreness... Read more.
Victoria Lopez posted an update
11 years ago (November 13, 2014)
I'll be having surgery in 3 weeks. I'm considered "high-risk" due to my mitochondrial disease and also, prior anesthetic complications (i.e., respiratory failure from anesthetics). I also have a suspected bleeding disorder -- HHT or Osler-Weber-Lindau. Does anyone else have a neuromuscular disease which places them at a higher risk... Read more.
11 years ago (November 13, 2014)
I was considered high risk due to my deteriorated condition before surgery and a mass that was in my media stinum that might have caused difficulty getting to the heart. The docs were ready to send me home with hospice to live out my last days.
11 years ago (November 13, 2014)
Thanks for sharing, Gary. Did you have heart surgery? If so, what kind and where?
Victoria Lopez posted a photo
11 years ago (November 13, 2014)
I thought this would be a great picture to share ... especially with this group!
11 years ago (November 13, 2014)
Welcome Victoria! Beautiful Heart Print... it says a lot!
11 years ago (November 13, 2014)
Welcome to our group Victoria! I love the print and thanks for sharing!
11 years ago (November 13, 2014)
Thanks, Carol and Ken! So nice to meet you both!

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