Peyton Davies - Heart Valve Journal

My Journal

Peyton Daviesposted an update

110 days ago

Rose Madura, Deena Z reacted to this

Hello friends!! I’m about 8.5 months post op and it gets better every day 🖤

Rose Madura Great news! ❤️‍🩹👍

Deena Z Yay!! Good to hear from you.

Melinda Donahue Great news!!!!

Peyton Daviesposted an update

251 days ago

Ben Whitener, Kimberly Eisenhut, Marcus Krauss reacted to this

What’s up my dudes?! Yesterday marked 17 weeks post op. My blood pressure is under control and we are continuing to wean off BP meds. Next week I go to my ...Read more

What’s up my dudes?! Yesterday marked 17 weeks post op. My blood pressure is under control and we are continuing to wean off BP meds. Next week I go to my first post-op check up and echo and I cannot shake the nerves 😂 it’s so funny how this stuff affects you. Now every time I get a messaged in MyChart Im immediately filled with anxiety because of all the messaging on MyChart last year lololol.

Andrew Dial Peyton!!! So glad everything is going good for you :)

J Alexander Lassally Yep - we're very much post traumatic stress patients with all of those negative triggers we endured. ... Read more

J Alexander Lassally Yep - we're very much post traumatic stress patients with all of those negative triggers we endured.

Marie Myers Ever since my surgery (2017), my pressure is high in every doctors office I go to… I usually keep a ... Read more

Marie Myers Ever since my surgery (2017), my pressure is high in every doctors office I go to… I usually keep a 2 week record of my home pressures to show them that I am not truly out of control on my BP.

Richard Munson I would think nurse marie would be calm, cool, and collected in doctors office

Marie Myers Richard, I USED to be calm, cool and collected….

Richard Munson My bp before meeting my cardiologist this week was 124/82. I already read my results from home so i w ... Read more

Richard Munson My bp before meeting my cardiologist this week was 124/82. I already read my results from home so i was pretty certain of his analysis before i saw him in person.

Fidel Martínez Ruiz Same happens with my pressure when go to the doctors office, white coat effect.

Rose Madura Maybe I'm different...I have a mantra of not worrying about something until I have to.

Pamela Gregory Sounds like you are doing really well!!! I definitely had a lot of anxiety getting post surgery tests ... Read more

Pamela Gregory Sounds like you are doing really well!!! I definitely had a lot of anxiety getting post surgery tests done (pre-surgery tests done too). I need to be more like Rose!!!

Peyton Daviesposted an update

282 days ago

Yumiko Ishida, Christopher T, Valerie Allen and 3 others reacted to this

My biggest struggle pre-op was my uncontrolled blood pressure. I’m happy to report 12.5 weeks post op and it’s very controlled. And we’re starting to ...Read more

My biggest struggle pre-op was my uncontrolled blood pressure. I’m happy to report 12.5 weeks post op and it’s very controlled. And we’re starting to ween off meds 🥰

Rose Madura Great to hear!

Dan Fouratt Peyton how did you control your BP? I am struggling a little with that.

Peyton Daviesposted an update

299 days ago

Manuel Fernandez, Kimberly Eisenhut, Yumiko Ishida reacted to this

Wednesday was 10 weeks post op. 😘 Monday I went back to the gym with my husband for the first time since surgery. It feels great to be back 👌

Deena Z Look at you; rocking and rolling, Peyton!! You did heal amazingly fast.

Christopher T Dang that is impressive how quick you bounced back. Best wishes !

susan harris so great to hear!

Grace Mason Looking great Peyton!
Good for you getting back in the gym so soon. Keep on moving forward ❤️� ... Read more

Grace Mason Looking great Peyton!
Good for you getting back in the gym so soon. Keep on moving forward ❤️‍🩹

Peyton Daviesposted an update

333 days ago

Ben Whitener, Kimberly Eisenhut, Yumiko Ishida and 5 others reacted to this

Meet my “you survived heart surgery again” present 😂

Dan Fouratt Cute, enjoy recover with your present

Pamela Gregory Adorable!!!

Best gift ever

Richard Munson Does it get any cuter

Deena Z Wow, someone else knows how to touch your heart besides your surgeon:)

Marie Myers The epitome of cuteness…

J Alexander Lassally Now that is what I call efficacy !

Christopher T

Rose Madura Very cute

Ana Brusso Super cute Baby, congratulations on your recovery and God bless you 🙏❤️

Peyton Daviesposted an update

346 days ago

Kimberly Eisenhut reacted to this

3.5 weeks post op and I’m having horrible PVC’s 🙃 doctor says it’s normal. ER says it’s normal.

Rose Madura I'm sorry you are having PVCs. I think the first six weeks are kind of wacky and anything goes. Perso ... Read more

Rose Madura I'm sorry you are having PVCs. I think the first six weeks are kind of wacky and anything goes. Personally, I struggled with Afib for about six weeks and had other complications for about 3 months. Try to stay strong and positive. Always check in with the cardiologist if something feels off.

Valerie Allen I’m 7 months out and I have PVCs. They actually didn’t start up for several months. The cardiolog ... Read more

Valerie Allen I’m 7 months out and I have PVCs. They actually didn’t start up for several months. The cardiologist said no issue unless afib or other effects. Cutting back on caffeine helped some.

Rita Savelis Sorry to hear that. It's still so early after your surgery. It's hard, because once home from hospita ... Read more

Rita Savelis Sorry to hear that. It's still so early after your surgery. It's hard, because once home from hospital there is no one to verify that what you are experiencing is normal, even if it is. One is so aware of one's heart for a long time. I get strange beats sometimes and it's been 9 years. They no longer worry me, but at 3 weeks they did. Take care.

Jennifer reynolds I had PVCs for the first 4 months after surgery and all of a sudden they stopped. I think they heart ... Read more

Jennifer reynolds I had PVCs for the first 4 months after surgery and all of a sudden they stopped. I think they heart just needs time to heal.

Peyton Daviesposted an update

350 days ago

Max Jam, Lisa Silverman, Kimberly Eisenhut and 3 others reacted to this

3 weeks post op today and it’s looking awesome 😎

El McRae Wonderful! I’m 18 weeks and almost scared is gone.

Suzette Schear You both look amazing.

Anna Rakowicz You both heal very well. Peyton, can’t even tell you have scar!

Robert Miller @Peyton Davies, did you have open heart surgery? I don't see anything at all. Maybe something small t ... Read more

Robert Miller @Peyton Davies, did you have open heart surgery? I don't see anything at all. Maybe something small to the right of you over that tattoo but that's not where they usually do a full cut.

BRENDA JUNIEL Wow looks great!

Peyton Daviesposted an update

354 days ago

Max Jam, Yumiko Ishida, Rose Madura and 4 others reacted to this

I’ve been home for 2 days 😎 I’m still pretty sore but so greatful to be here.

Rose Madura What a great gift for Thanksgiving. Welcome home and welcome to recovery. 👍

Marcus Krauss So glad to hear you're recovering at home!

Grace Mason Welcome to recovery ❤️‍🩹. It's always nice to begin recovering at home and your own routine. ... Read more

Grace Mason Welcome to recovery ❤️‍🩹. It's always nice to begin recovering at home and your own routine. Well wishes!

Trygve Harris Welcome home! And welcome to recovery!

Peyton Daviesposted an update

364 days ago

Geoff Curtis, Marcus Krauss, Yumiko Ishida and 8 others reacted to this

7 days post op and Im feeling more and more like myself everyday. 😌👌

Marcus Krauss Woohoo!

Rose Madura Great news!

Marie Myers You made it through the rough part! Congratulations!

Kimberly Eisenhut Wow Peyton, you are moving forward quickly! It is wonderful to see how great you are doing! Continu... Read more

Kimberly Eisenhut Wow Peyton, you are moving forward quickly! It is wonderful to see how great you are doing! Continued quick healing going forward

Peyton Daviesposted an update

367 days ago

Lisa Silverman, Yumiko Ishida, Geoff Curtis and 2 others reacted to this

Day 4 and I got to shower! Tubes and wire removed yesterday but geeze that causes a spike in my pain/blood pressure. Today’s much much better!! Hopefully ...Read more

Day 4 and I got to shower! Tubes and wire removed yesterday but geeze that causes a spike in my pain/blood pressure. Today’s much much better!! Hopefully we can get my blood pressure under control and I can to home tomorrow 🤞

Margaret Fielden Hope all settles and you make it home tomorrow

Lisa Silverman Grateful for the updates Peyton! Day 4 here too

Rose Madura Nothing like getting those tubes out. Glad you are progressing well.

Marcus Krauss Feels good finally getting all those tubes and lines pulled out! Blood pressure was the one thing tha ... Read more

Marcus Krauss Feels good finally getting all those tubes and lines pulled out! Blood pressure was the one thing that kept me in the hospital a little longer as well, but I wound up getting it under control and was discharged on day 5. Glad everything is progressing well for you!

susan harris keep the updates coming if you can! great to learn from you!

John Crawley The day they finally pulled the tube from my left side was the best day

....the pain from that drain ... Read more

John Crawley The day they finally pulled the tube from my left side was the best day

....the pain from that drain was the worst part of my surgery by far

Peyton Daviesposted an update

369 days ago

Geoff Curtis, Max Jam, Marcus Krauss and 4 others reacted to this

I made it! Day 1 was the worst. Day 2 has been significantly better

Geoff Curtis Yay! & Every day will be better! Congratulations & welcome to recovery!

Mark Denault

Marcus Krauss Woohoo! Great to hear! Welcome to the other side. I think you'll be surprised at how much better you... Read more

Marcus Krauss Woohoo! Great to hear! Welcome to the other side. I think you'll be surprised at how much better you feel every day for the first few weeks!

Kimberly Eisenhut Wonderful news Peyton!! Way to go girl! Day 3 will be even better

Deena Z Yep, thanks for your honesty. Day one after OHS via sternum is tough. And each day thereafter gets m ... Read more

Deena Z Yep, thanks for your honesty. Day one after OHS via sternum is tough. And each day thereafter gets mega better than the prior.

Susan Lynn Yay! Take it one day at a time. Every week you'll see improvement.

Rose Madura Wonderful to hear! Welcome to recovery. ❤️‍🩹

Anna Rakowicz

Peyton Daviesposted an update

387 days ago

Valerie Allen, Kimberly Eisenhut, Rose Madura reacted to this

16 days to go! I’m so stoked. 😎

Rose Madura Peyton, you will be in good hands. Godspeed.

Peyton Daviesposted an update

397 days ago

Grace Mason reacted to this

After a little bit of a battle with insurance and a denial letter lol. My husband was on the phone for 6 hours with insurance on Wednesday. Yesterday we got ...Read more

After a little bit of a battle with insurance and a denial letter lol. My husband was on the phone for 6 hours with insurance on Wednesday. Yesterday we got the approval!! 25 days to go.

J Alexander Lassally Congrats. Worth the battle!

Kimberly Eisenhut Peyton, I am so happy to see your husband was vigilant and did not give up on getting your insurance... Read more

Kimberly Eisenhut Peyton, I am so happy to see your husband was vigilant and did not give up on getting your insurance to do what they are there to do! I know every step seems to be a battle, but you are now on your way to getting your life back and I wish you all the best going forward. Insurance sure needs to be one of the top priorities in this country, as it has become a serious problem for those needing treatments. It should not add to our stress with health issues we have, but be there when we need it and support us, not create even more anxiety and stess. Glad you have an advocate like your husband

Valerie Allen Kudos to your husband for being so persistent!

Suzette Schear So glad you got the approval. It’s crazy what the insurance companies put a person through at time ... Read more

Suzette Schear So glad you got the approval. It’s crazy what the insurance companies put a person through at times. Can I borrow your husband next time I need insurance help. I’m only kidding but seriously I have been on the phone constantly getting my approvals. I’m glad this worry if off your plate.

Peyton Daviesposted an update

413 days ago

Rose Madura, Valerie Allen, Lynne Anderson reacted to this

I’m a month and a half out. Surgery is scheduled 11/13. There are so many emotions that come with it. Todays excitement. 😌

John Russo I’m on that rollercoaster with you!!

Robert Miller I probably sound like a broken record but surgery is easy. You just "sleep". And the thing is, you ar ... Read more

Robert Miller I probably sound like a broken record but surgery is easy. You just "sleep". And the thing is, you are surrounded by doctors and nurses before, during and after surgery. And you will come out with your heart being in a better state than before. Going into surgery was a relieve for me. The biggest issue is how well you prepared for recovery. That's a pain in the rear. But with proper preparation and hopefully some support, you will handle it just fine and be in a much better place afterwards.

John Russo Robert - I Agree 100%!! Great advice 👍

Klara Čičić Robert gave great advice. Most people here say that the waiting part was the hardest. Surgery is the ... Read more

Klara Čičić Robert gave great advice. Most people here say that the waiting part was the hardest. Surgery is the easiest cause you sleep, as Robert said. And recovery...well, it is a long road, full of ups and downs, but it will ultimately make your mind and your heart stronger! You can do this!!!!!

Pamela Gregory Klara and Robert said it beautifully

Peyton Daviesposted an update

432 days ago

BRENDA JUNIEL reacted to this

I wanted to share some news with you guys. Today is Friday the 13th. And I’ve been very sad because I cannot get tattooed today due to a stent procedure I’m ...Read more

I wanted to share some news with you guys. Today is Friday the 13th. And I’ve been very sad because I cannot get tattooed today due to a stent procedure I’m having done on the 20th and then the Ross procedure in November. My tattoo artist is doing a flash sale today and donating all the proceeds to me for my medical costs/travel expenses in November 😭😭😭 I’ve never felt more loved in my entire life.

Richard Munson The good news is that you aren’t doing the surgery on friday the 13th. You may end up on blood thin ... Read more

Richard Munson The good news is that you aren’t doing the surgery on friday the 13th. You may end up on blood thinners which tattooers frown on. I had to stop the aspirin for 2 weeks prior to getting my oldsmobile tattoo but it came out pretty good. Of course i was 78 at the time.

Deena Z That is incredibly generous, kind, loving and altruistic of your
tattoo artist. Would be a great ... Read more

Deena Z That is incredibly generous, kind, loving and altruistic of your
tattoo artist. Would be a great good news, morning TV segment!!

Valerie Allen That is super!

Rose Madura Very good of the tattoo artist. There are lots of good people in the world! 👍

Robert Miller I suspect your tattoo artist will have many more flash sales. So instead of being sad that you couldn ... Read more

Robert Miller I suspect your tattoo artist will have many more flash sales. So instead of being sad that you couldn't take advantage of this sale, I would concentrate on the preparation and especially recovery of this procedure.

Peyton Daviesposted an update

450 days ago

Grace Mason reacted to this

Booked flights and lodging in NYC for November! It’s getting really real. 😌🫶

Deena Z One step at a time. Getting there. There are many success stories on HVS for your surgery and with yo ... Read more

Deena Z One step at a time. Getting there. There are many success stories on HVS for your surgery and with your doc! (Also- went to Sinai for MV.). We are here with you. ❤️😎

Shaun Morris Hey Peyton, I am officially a week out from surgery with Dr. El-Hamamsy and home and feeling strong. ... Read more

Shaun Morris Hey Peyton, I am officially a week out from surgery with Dr. El-Hamamsy and home and feeling strong. He ended up being able to repair the valve and did not need to do the Ross Procedure. He and his team have been so great throughout the process. I am confident you will have a great experience as I did and am here to help in any way I can.

Peyton Daviesposted an update

468 days ago

Adam Pick, Grace Mason reacted to this

I’m 3 months out from getting my Ross procedure and man. I wish it was closer 😂

Adam Pick Hey Peyton, As many folks in our community will tell you, waiting for your procedure can be filled w... Read more

Adam Pick Hey Peyton, As many folks in our community will tell you, waiting for your procedure can be filled with a lot of anxiety. I remember that as well. The really great news is that you are in GREAT hands with Dr. Ismail El-Hamamsy, who is a leading Ross Procedure surgeon. Great job finding him considering you are from Kansas!

Dan Fouratt Adam is right, I only waited two months but during that time I tried to get ready. My dietitian told ... Read more

Dan Fouratt Adam is right, I only waited two months but during that time I tried to get ready. My dietitian told me to get up to 1.4 grams of protein per kilo of weight before the surgery to help recovery. She told me to stop drinking. Both of which I did. I also spent time getting in better shape but chasing three kids around probably does that for you. I spent no time worry about the process cause that did not help anything and I could not control it. Much easier said then done. Good luck an your journey.

Rose Madura Hi Peyton. The three months will go by quickly. This gives you time to prepare your home for your r ... Read more

Rose Madura Hi Peyton. The three months will go by quickly. This gives you time to prepare your home for your return, think of what you need to take when you go to the hospital etc. The waiting is terrible. Be thankful that you aren't in an emergency situation with no time to prepare. God bless you on your journey.

Peyton Daviesposted an update

525 days ago

Darrell Malone, Daneen Douglas, Samidh Singh and 2 others reacted to this

Scheduled for surgery November 13th. I’m very nervous but also excited. There’s a light at the end of the tunnel. 🥰

Valerie Allen The wait is hard, at least many people say that. Keep in touch here as you’ll learn all types of ti ... Read more

Valerie Allen The wait is hard, at least many people say that. Keep in touch here as you’ll learn all types of tips and get support.

Rose Madura Peyton you have the right attitude. The time will go quickly.

Peyton Daviesposted a journal

545 days ago

Samidh Singh, Sue Maize, Grace Mason and 1 other reacted to this

The video consultation went very well! Il-Hamamasy was very informative and kind. He said with my age and anatomy he is confident in the Ross procedure for ...Read more

The video consultation went very well! Il-Hamamasy was very informative and kind. He said with my age and anatomy he is confident in the Ross procedure for me and that it will give me much better quality of life. We are looking at scheduling the surgery sometime in November 😁

Alex Mohr I am scheduled for next week. I like him too. Have you heard anything about him from others here? The ... Read more

Alex Mohr I am scheduled for next week. I like him too. Have you heard anything about him from others here? The list of Dr.s was pretty short to start with. I've done a lot of research on the Ross at this point. Congrats on being a good candidate!

Rose Madura That's good to hear. You have to be comfortable with your surgeon.👍

Grace Mason I will say one thing regarding staying in NY. I stayed in September when hotel prices were pretty dec ... Read more

Grace Mason I will say one thing regarding staying in NY. I stayed in September when hotel prices were pretty decent for NYC ($385-425/night) In November, other patients on this site going to Mt Sinai mentioned the cost of the rooms were double what they were in September. Just something to consider when planning.

Christine Maiorano Great news! Happy you’re comfortable with your Dr!😊

Alex Mohr Mt Sinia program gives suggestions for rooms close to the hospital that don't have lots of stairs. I' ... Read more

Alex Mohr Mt Sinia program gives suggestions for rooms close to the hospital that don't have lots of stairs. I'm paying around $3500 for 2 beds for 12 days. If they had openings, would have been the same for 14. My stay starts Monday. Leemor will give you the suggested locations. One place shows their mt sinia pricing and dates for the pricing. The place I like is called bubba and bean.

Alex Mohr OMG! What an amazing experience. I am blown away at how easy everything has been. I was never in much ... Read more

Alex Mohr OMG! What an amazing experience. I am blown away at how easy everything has been. I was never in much pain. Lungs felt a little like a bad cold without the itch that makes me cough. Walking on my own next day. I have walked every day since. I'm up to 3 miles a day and not flat ground. Take your time and stay positive. I'm sure you will be pleasantly surprised at how well it goes. I am still tired and I sleep and nap a lot more than ever except maybe teenage years lol. Bubba and bean is awesome. 100% recommended. One of the owners had ohs so they are very accommodating.

There's great food on the block and a little park another patient maintains. French spot and Italian. Naughty crab not so much.
Feel free to ask anything. You totally got this!

Peyton Daviesposted an update

546 days ago

Susan Lynn, Samidh Singh, Grace Mason reacted to this

I have my first video visit with Doctor El-Hamamsy tomorrow! I’m very excited. Ive worked really diligently since April 17th to get all my test results/pictures ...Read more

I have my first video visit with Doctor El-Hamamsy tomorrow! I’m very excited. Ive worked really diligently since April 17th to get all my test results/pictures sent over. I had to share the news with someone because my friends don’t really understand 😁

Kevin McCarthy Welcome Peyton! I hope he has good things to say

J Alexander Lassally Appreciate your comments - and yes, many younger peers are pretty clueless what this journey looks li ... Read more

J Alexander Lassally Appreciate your comments - and yes, many younger peers are pretty clueless what this journey looks like. Progress....

Darrell Malone Thanks for sharing and all the best with your video visit. Folks here are in your corner

Rose Madura Peyton, young or old, friends don't seem to get it. But we all here, no matter what age, do get it. ... Read more

Rose Madura Peyton, young or old, friends don't seem to get it. But we all here, no matter what age, do get it. Congratulations on this success! Your diligence will do well for you. Godspeed.

Susan Lynn Keep us posted! Good luck!

Grace Mason Very good news. Hope your video visit goes great.

Sue Maize Peyton, I know exactly what you mean—there is such a special feeling when you finally meet with you ... Read more

Sue Maize Peyton, I know exactly what you mean—there is such a special feeling when you finally meet with your surgeon! You’ve probably heard a lot or read a lot already about them; plus, I couldn’t help thinking that this is the first being, besides God who will have ever actually seen my heart in the flesh. When my surgeon asked me if there was anything else I needed answered for my peace of mind, I told her no, but can I tell you something? She said yes….I then told her that I had wrestled over having this surgery and who should be my surgeon, and prayed about it a lot. I felt the Lord conveyed to me that he always knew I would need this surgery, but that 10 years after I was born, another girl would be born who would one day become a doctor and that our paths would cross. I wasn’t sure how she’d take this kind of thing, and I was looking anywhere but her face when I said it, but when I looked up she had tears in her eyes. I think many of our doctors understand how profound this is for us. 🥰

Rose Madura Sue, that's beautiful!

Robert Miller Reading your story, I assume this is your consultation before surgery and not an after-surgery remote ... Read more

Robert Miller Reading your story, I assume this is your consultation before surgery and not an after-surgery remote visit. It might be too late but write down all your questions and at the end of the conversation make sure all questions have been addressed. Takes notes as you discuss your questions and if you have a partner, make sure your partner also listens in and even asks questions. I know it's a bit a stressful situation having to make quick decisions. Good luck.

susan harris My son is 26 now and his friends definitely don’t get it. Never had. Kids in grade school even went ... Read more

susan harris My son is 26 now and his friends definitely don’t get it. Never had. Kids in grade school even went so far as to say they didn’t believe he had OHS when they were looking straight at his chest. Just know that you are not alone. This community is behind you 100%

Peyton Daviesposted an update

581 days ago

Valerie Allen reacted to this

Had a tele-health appointment with the surgeon my Adult congenital heart disease doctor recommended. And it was a little discouraging. The positive side of ...Read more

Had a tele-health appointment with the surgeon my Adult congenital heart disease doctor recommended. And it was a little discouraging. The positive side of things is he says he also thinks im a good candidate for the Ross procedure. The downside is he is not a specialist. From what he said he hasn’t done that many at all. As soon as we got off the phone I started calling other surgeons. If anyone has any Ross procedure specialists the recommend I’d appreciate it. I’m located in Kansas but we’re very open to travel ❤️

Sue Maize Hi Peyton, I’m glad you had the Ross suggested to you and that this surgeon was honest about the fa ... Read more

Sue Maize Hi Peyton, I’m glad you had the Ross suggested to you and that this surgeon was honest about the fact that he hadn’t done many—it’s a very important criteria in the decision. The suggestion is about 100, but being in the US, and willing to travel, you have LOTS of options. You could go to Mount Sinai in NYC where Dr. El-Hamamsy and Dr. Paul Stelzer are renowned for having done the most (700 and 800+ respectively), but there are so many others too across the country. Check the directory on Rossprocedure.org—it lists many but not all of those in North America and also has their contact info. I’m sure others will weigh in here on their experiences too. You’ve got lots of choice. Best of luck!

Peyton Davies I talked to Dr. El-Hamamsy’s assistant today! I’m working on emailing him all my tests from the l ... Read more

Peyton Davies I talked to Dr. El-Hamamsy’s assistant today! I’m working on emailing him all my tests from the last month!!

J Alexander Lassally Hey Peyton - I traveled 2000 miles for mine - It is totally worth it - and plus, it is an adventure o ... Read more

J Alexander Lassally Hey Peyton - I traveled 2000 miles for mine - It is totally worth it - and plus, it is an adventure of sorts. You'll always remember it.

Rose Madura You are getting good advice here and I'm so glad you are getting other opinions. It's important. Sou ... Read more

Rose Madura You are getting good advice here and I'm so glad you are getting other opinions. It's important. Sounds like you are in top of things.

Peyton Daviesposted an update

588 days ago

Tim Roxbury reacted to this

What up my dudes? I’m new here lol. I have a coarctation of my aorta and a bicuspid aortic valve. I’m getting a stent placed in my aorta after summer then ...Read more

What up my dudes? I’m new here lol. I have a coarctation of my aorta and a bicuspid aortic valve. I’m getting a stent placed in my aorta after summer then my valve replacement after that. Really hopefully I’ll end up with a Ross procedure so I can still get tattoos 😂😂 priorities huh??

Valerie Allen Hi welcome! No idea about tattoos, but there are only a handful of Ross procedure specialists in the ... Read more

Valerie Allen Hi welcome! No idea about tattoos, but there are only a handful of Ross procedure specialists in the country. The people here with more knowledge can clue you in as to who and where they are.

Peyton Davies I think I’m going to have mine done by Todd Crawford. But we’ll know more after they all meet on ... Read more

Peyton Davies I think I’m going to have mine done by Todd Crawford. But we’ll know more after they all meet on the 22nd and discuss my case

Allen Carkner Hello Peyton, good luck with your procedures. I had a Ross procedure March 2023. Tattoo in December 2 ... Read more

Allen Carkner Hello Peyton, good luck with your procedures. I had a Ross procedure March 2023. Tattoo in December 2023. I asked my cardiologist and they weren’t worried about it. They said to skip my 81mg aspirin for the day but that was about it. However, with mechanical valve warfarin therapy, I’ve heard it’s not recommended due to bleeding risk.