Luke's Journal

Richard Munson  Can it be done robotically vs. the minimally invasive i had. Plus there is a clot forming appendage that often gets snipped during maze procedure. They did not snip it. Not complaining you understand. I found adam after my surgery. You are on site prior to. 

Timothy Andre  Stay positive Luke, I don’t have any knowledge of carotid disease but will pray for you. Try to trust the process and take any news as it comes with a good attitude. Your strong and will get through all of this with flying colors 🙏🏽

Rose Madura  They checked mine prior to surgery and it was ok.  I did not know that 20% of people with valve issues have that problem as well.  Thank the Lord I was ok.  Please keep us posted.  Good luck with your appointment  this week!

Alexander Casler  The only thing I'm aware of are the valves being produced by Foldax.  They are being marketed as having the durability of a mechanical valve but without the need for anticoagulation.

Last I checked the aortic valves are in the clinical trial phase, and the TAVR version will be being tested soon as well.

https://foldax.com/

Marie Myers  I would ask your doc what he/she thinks about it, and take it from there. I think most docs would not want to mix post op narcotics and THC. Post op pain was not a huge problem for me, but sleep was a problem. I might have asked about THC for a sleep aide. I left the hospital with a script for 10 Percocet, but only used about 3 of them. Tylenol was enough for most pain, and if I did take 1/2 of a Percocet, it was at night to help with sleep. Interesting topic!

Luke Rodriguez  LOL funny Richard. I have central sleep apnea and I sleep with a BIPAP machine....basically my brain doesn't tell my body to breath on a regular basis but you just wake up and breathe and go back to sleep, I am totally unaware of it. I say this because alcohol at night has a negative impact on the apnea where the THC does not. Plus my liver thanks me. I didn't plan on mixing narcotics with THC, I guess this is post narcotics.

Also....does everyone sleep on their back until healed? Seems like sleeping on your side would hurt.

Richard Munson  I got so used to it, i still sleep on my back. Snoring is a by product. It drove my wife to another room of course. 

Rose Madura  I slept on my back during recovery.  I'd sleep about 4 hours, wake up and go downstairs to the recliner with my travel pillow.  I'm a side sleeper but now I find I still sleep on my back from time to time.  We just adjust to our circumstances.  Your questions are great!  Keep asking.

Rose Madura  Personally, I wouldn't take THC in any form, nor do I drink alcohol. Personal choice. As Marie suggested, have a candid talk with your doctors.

Patsy Stewart  Luke, this might sound a tad bit crazy, but I didn’t have that much pain in the chest area. I did struggle a bit with back pain. I was told that this was where they held/pried😳 your chest open during surgery. I was like Marie. I ask for Tylenol instead of the hard stuff while I was in the hospital. It made me loopy and everything on the wall was moving.😵‍💫They sent me home with a prescription, but I didn’t use any of it. The doctor suggested taking the Tylenol right before I went to bed, and that it would help as a sleep aide. I would usually sleep a couple of hours and then have the wide~awakes and lay there for several hours until I could drift back off to sleep. I use a C-PAP and I notice that when I’m not fighting that mask, I can sleep better using it. I remember struggling with weakness more than I did with anything. I honestly felt like a rag doll with only stuffing. I could have used a few prop sticks. 🥳 In my opinion, OHS is nothing compared to the pain associated with kidney stones….or shingles. (Yay for you surviving the kidney stones!!) Double OUCH!! That’s the two worse painful things that I’ve ever struggled with in my entire life! I think you’ll be ok using Tylenol and not have to have THC. I’m sure there are lots of different view points. When I was in the hospital in January, the doctor gave me a prescription of Marinol. I’m very low weight and have been told for several years that I HAVE to gain. I just simply can’t seem to gain anything. They explained to me that the Marinol would give me an appetite and that I could experience the munchies and get kind of high. I’ve never taken the first pill because I was afraid of it. I imagined myself like a squirrel with its cheeks stuffed full and bouncing from one branch to the other….and possibly breaking the branches from all the weight I was going to gain. 😂 No thank you! Ha!!! As for sleeping on your back, start practicing now and get used to it before hand. I’m a side sleeper. You can kind of prop yourself up using pillows if your body insists on rolling to your side. I find myself sleeping on my back anymore. It’s crazy how your body adapts! Talk to your doctor, and I wish you the very best of luck! 

Jose Villarreal  Hi Luke read through your story. I wish  you the best of luck with  everything.  I am a Pain Specialist and this question on THC is unsettled science, However I will say that THC has no known mechanism to provide true "analgesia" which is essentially blocking pain signals. The process by which people feel comfort is likely dissociative, which means in takes your thoughts away from your brain. For that to be comforting you essentially have to be intoxicated. That is probably not recommended in the acute postoperative setting.  Hope that helps. 

Phyllis Petersen  Interestingly, I brought this up to my doctor for other pain, especially at night. He said no smoking, but he didn't have a problem with edibles. I'm in Tucson, so have the option. 

Ana Brusso  Welcome Luke, we are here to support you, help you sort things out if we can, give you information if we have and just plain help in whatever we can. If you have questions ask away. Keep on writ ing

Katherine Berry  Welcome, Luke. This is supportive knowledgeable community during a complex time of life and beyond. Wishing you well. 

Luke Rodriguez  Thanks for the support.  What I know so far is I have a bicuspid aortic valve and it has crud on it.  Have seen two cardiologists who both agree, seeing a third who is a surgeon who will do the surgery.  Has to be open heart.  I read Adam's book, extremely helpful.  My biggest questions that cannot yet be answered is how long will it take to get back to work, and, how difficult my recovery will be.  
Having said that....am in pretty good shape for a 57 yr old. I have had a history of kidney stones and I have passed dozens of stones including a 6 mm stone.  Wondering if anyone can compare kidney stone pain to what awaits me.  
The more information I get, the more at peace I feel...with the exception of watching a youtube video of the procedure and it was worse than SAW or any horror movie Ive seen. LOL  While I am not symptomatic, I want to get this over and done and move on.  I have two friends who have had open heart surgery and both said the respiratory therapy was key to getting back on your feet.  

Feel free to give me helpful tips. 

Ginny Turner  Luke, everyone's experience is different, but my recovery from open-heart surgery with full sternotomy was not bad at all, and I'm 16 years older than you. I had very little sternum pain. Only took OTC Tylenol for pain by the 2nd day after surgery. Mostly just a little sore and slow; coughing didn't even hurt. I did tire very easily in those first weeks and had trouble sleeping. I didn't watch any videos prior to surgery - too much information for me! I read what I needed to know and left the rest up to the experts. I'm at 9 weeks now and feeling great. You'll do just fine.

Karen Marvenko  Hi Luke, same age and your situation sounds very similar to mine, bicuspid valve requiring replacement and also had as aortic  root replacement to fix an aneurysm . I was not symptomatic but wanted to get it taken care of so I could move forward. So full sternotomy, and had set backs with fluid in the lungs (sometimes can happen when you’re a younger patient), something I wasn’t aware of prior. I’m 8 weeks post surgery and finally on the recovery path. Still on advil/Tylenol alternating as needed for pain of the pericardial effusion I had. But I’m starting to walk and slowly getting back to normal. All of our stories are different but I will say this has been a constant source of information and strength when you need it.

Rose Madura  I've never had kidney stones but I'd imagine that is more painful than  OHS. I had very little pain. You stay ahead of it with pain meds and switch to Tylenol as soon as you are able to.  The worse pain for me was shoulder pain.  I was 59 when I had surgery.  While I did have complications,  the doctors knew what to do and I'm fine now. It was well worth it.  Godspeed!

Civita Fahey  same as Rose with me, I was 55. My 5 year anniversary is on the 24th of this month! I had no sternum pain at all, but felt like I had chopped a forest down for the first week or so. My shoulders and back were killing me.  It did eventually get better. the only thing I think I had to get used is the exhaustion. I was so tired for the first two weeks, I could hardly talk ( and I can talk through anything lol).  but after the 2 weeks things got better. You will know what your limits are pretty quick. Some days you have so much energy and the next, you can hardly get out of the chair.  I did go back to work to a desk job at 10 weeks. I was pretty tired the first week or two but again, slowly it gets better.  I havent had kidney stones either but work in the medical field, so, yeah, you've got this.!

Luke Rodriguez  Thanks for that comment Richard.  For my kidney stones I ended up getting lithotripsy on both sides in Dec 2021 and Jan 2022...had an 8 mm stone on one side and 6 mm on the other with a sprinkling of smaller ones on both sides.  Iv'e passed a 6 mm stone and once I gave birth to it I felt like I needed to name it and register it with a birth certificate. LOL  I can tell you as far as pain meds go, Urologists and ERs are very, very stingy with pain meds (normally I would get 8 to 12 pills with no refill) and the handful of times I have been in the ER with stones they don't keep you until the stone passes and you end up right where you were in the first place except with a big hospital bill, so I learned to deal with the pain, self medicate with beer and THC drops and gut it out.  I have worked (I work from home as an IT Project Manager) while passing stones and it's a matter of mentally battling back the pain and refocusing one something else while little elves take knives and constantly stab you.....all that said, sounds like I'll be OK as far as pain, seems like they are generous with pain meds. 

Richard Munson  Luke, i had mine a couple of years ago. And it got stuck in between my kidney and bladder requiring surgery. I was rolling on the floor with pain. I think i told my wife to shoot me. After surgery, he showed me the stone. Almost needed a microscope to see it. I may have said “ are you blanking me? All that pain from that grain of salt”.  Hopefully no more in my lifetime.