I am sending prayers out for everyone on the waiting list today. I'd also like to say what others on this site told me prior to my surgery, hang in there and you will get to the 'other side' of this too!!
This is now 7 weeks since my double valve repair surgery.
Journal posted on June 4, 2018
I am now starting to feel stronger. Even though I haven't started cardio rehab yet, (my cardiologist has me on a monitor path for another week), I am walking more and more each day.
I am so very happy to be feeling healthy again! I'm beginning to see just how unhealthy I was -- when I compare how I feel now to how I felt the last few years on a daily basis. I have so much more energy, and hope for accomplishing things I have not been able to do for a long time (like updating my garden, home decor, and much more).
Feeling grateful (still) and now quite excited about life!
As I have been feeling better and better each day, I have clearly gone overboard a few times with trying to do too much too soon I guess because there have been a couple of times where after a long day of laundry, and stuff -- I've woke up the next day with a great deal of pain.!! I must not do this anymore!
I want to be patient with myself and my healing, and I am trying to balance things carefully. However, I am so looking forward to getting back to my "normal" activity levels. My new cardiologist won't refer me to begin rehab until after she does a stress test and another test concerning the A FIB I had in the hospital.
I'm also still on warfarin but most of the other meds are tapering off now (starting week 5 post op this week).
Balance is a key issue for me because I will also be easing back to work this week, but I've not been good at taking it easy so this is my new challenge. I am determined to allow myself proper healing and take really good care of myself;-)
I am 2 weeks post-op and it is unbelievable how much better I feel. Anticipating the surgery was the worst part of it all. But I am feeling stronger with each passing day. I also feel so blessed to have had two valves repaired, and I now have a chance to feel healthier and stronger. Thank you to all of you for seeing me through this tough journey! I know I have a long road ahead but i am forever grateful to this site and community for seeing me through this or deal.
I'm counting my blessings today - day 2 after post-op. i ended up needing two valves repaired, and my doctors asked me for my "plan B" choice if he found he couldnt repair the Mitral valve once he was in there. Only because I had studied this site, did I have a well-informed answer!
Cvita, The Brigham is everything you said it would be.
my surgery took 5 hours to repair my Mitral and Aortic valves.
i got all my tubes out today! and the only issue ive had is with my breathing, but it seems to be settling down.
the first night after surgery I was in pretty severe pain because I have a chronic neck condition and the central line was really bothering it. As soon as they removed them this morning, the pain subsided.
I am feeling so much better!! I am in good hands here.....will post more later.
My surgery is fast approaching! All I've been thinking about today was taxes. What was I thinking scheduling this on tax day! But I will be finished tonight and then have one day to pack.
Thanks to everyone who contributed ideas about what to bring to the hospital. I have a comprehensive list ready that I've been working on over the last few weeks - reading everyone's posts who have been there.
BTW my pre-op was uneventful last week - had the heart cath as well and all arteries look good, thankfully!
Trying really hard to stay calm and focused on positive self care. I'm doing ok because I'm really busy at work and that helps. ive started a clean heating regimen - eliminating my three facvorites things from my diet: sugar, flour, and coffee. I never ever would have imagined anything would motivate me to give up coffee and baked goods, but I also never expected heart disease;-)
I figure it can't hurt to lose weight before surgury! So, I have lost 10 pounds already. Again, it's something positive I can control so it's keeping me focused.
Now it seems more real. After getting 2nd opinions and visiting two heart centers, I must now begin planning for surgery.
I have selected Dr. Aranki at BWH and my surgery is set for April 17th. I am working through so many thoughts and feelings. I guess I'm still trying to absorb it all. I am happy to have 7 weeks to prepare for it mentally and physically.
I was just diagnosed with mitral valve regurgitation on January 5th. I am so grateful to have found this site because I am truly out of my element here. I guess I'm like many, I never expected heart disease. Didn't see it coming at all! I have spent the last few weeks trying to get set up for a second opinion in Boston. I live north of the city and it was a random chance that my orthopedic surgeon picked up on a murmur and sent me to a cardiologist -- to sign off on whether or not I could have my knee surgery. Well, I guess the heart trumps a knee! I am now trying to understand the procedure, my options, and researching doctors between Brigham & Women's and Mass General Hospital. There are so many!! And I feel it is all so random. I am scheduled for a consult with Dr. Aranki at BWH on March 8th as it stands today. I can't seem to find much information about him. Not sure he's the best one for MVR....but I do understand the whole cardiac team there is good. I wonder if anyone in the community has had any experience with Dr. Sary Aranki?