Now 15 weeks post surgery and recovery starting to fall into place, with confidence growing. Managed to run a sub 30 minute 5k this weekend - a month earlier ...Read more
Now 15 weeks post surgery and recovery starting to fall into place, with confidence growing. Managed to run a sub 30 minute 5k this weekend - a month earlier than targeted. A long way to go but feels great to be making progress!
Wow Charlie, already running……….great news. Continued good health and recovery.
Rose Madura Charlie, that's quite an accomplishment! Congratulations!
Susan Lynn That's amazing! Great achievement, Charlie!
I am 12 weeks post initial surgery - aortic valve/root/ascending aorta replacement. I had a bad run of luck and was readmitted to hospital about 10 days post surgery for an additional two weeks due to both pericardial and plueural effusion, which involved additional surgery. Rehab and exercise is now progressing well - 6 times a week and I have moved on from walking to light jogging, up to about 4.5 miles (very slow compared to pre-surgery, but definite progress). I am also doing three strength and conditioning sessions a week (very light weights) so feeling like recovery is really now on track after the initial early setbacks.
The surgical team have removed any maximum heart rate restrictions and in a session I have had with a cardiac rehab team, they encouraged me to get on with life, run to feel for the next month (40-60 minutes) and not to stress around the level the HR gets to. I am finding that last bit easier said than done. My resting HR was around +30 bpm higher post surgery. That is carrying through to exercise - with the gap between pre-surgery and post surgery HR getting higher as my HR goes up (so during a run today it was around +50 bpm higher at the top end of the range than would have been the case pre-surgery). I am sure that the higher heart rate is in part due to the surgery and healing process, part down to me being less fit and part down to my anxiety when exercising. Any thoughts and experiences of higher HR post surgery would be really appreciated.
Heather Kelly I also have had higher heart rates post surgery. I had Aortic Valve replacement on 2/4/22. I started ... Read more
Heather Kelly I also have had higher heart rates post surgery. I had Aortic Valve replacement on 2/4/22. I started slowly as well but it sounds like you are doing amazing on your physical agility. I am a walker and decided to only monitor my heart rates before and after cool downs. It has been going well and the surgeons told me it could take up to 6 months for my regulation to find its median. I am sure you focus on breathing so remember healing is absolutely a process and it takes time. Keep moving and find a way to trust your body. It will tell you if it is getting too far out of range. God Bless you in your recovery.
Steve Neal Hi, kind of the same as me - I’m 6 weeks out after mechanical valve and ascending aorta graft. Was ... Read more
Steve Neal Hi, kind of the same as me - I’m 6 weeks out after mechanical valve and ascending aorta graft. Was in hospital for 3 weeks as had complete heart block so pacemaker and then pericardial effusion that needed draining.I’m about to start my rehab in the gym this thursday as that’s the day I’ve been cleared to drive. Since my op my resting heart rate has been 100-110 bpm. I’ve been on Bisoprolol for the last week after seeing my cardio and that has now dropped to 65-75. Feel so much better with the lower hr
Charlie Fry Thank you both and Steve - I am sorry to hear that you have had these challenges along the way also. ... Read more
Charlie Fry Thank you both and Steve - I am sorry to hear that you have had these challenges along the way also.
I have asked the surgeon and the cardiac rehab (seeing the cardiologist next week). They have said things will settle down over time but other than that it is all very dependent on the individual (age, level of fitness before etc.). They were also reassuring about the level and intensity of exercise.
I suppose one of the things I have found difficult post operation is that there is far less information to guide you though it. Pre-op, you can research the type of operation, the type of valve and bore yourself rigid with statistics (if you choose to - and I did!!). Post op, I am finding the lack of solid data points tough - probably exacerbated due to some of the complications I subsequently have had.
Steve Neal Yes I think the same. Do feel a little undervalued as a congenital heart patient compared to heart a ... Read more
Steve Neal Yes I think the same. Do feel a little undervalued as a congenital heart patient compared to heart attack and acquired heart disease patients in the form of post op care. Most likely due to the fact there are likely to be less additional diseases and essentially it’s mechanical problems. I essentially have been discharged with only a review 6 weeks post op because of the fluid build up, otherwise my first review would be 3 months. Only discharge advice was no lifting and no baths and to take daily walks. here in Bristol UK congenital patients have no funding for rehab etc.
Charlie Fry I am in London (where cardiologist is, although I had my surgery in Cambridge). I had NHS cardiac rehab - one session over the phone. Very nice people, but it didn’t give me any confidence. I separately found someone offering the service privately, which has been more helpful. I think you’re absolutely right - once they are happy that the “plumbing” has worked, the advice is not much more than around protecting the sternum and take your time building up to longer walks.
It is the emotional support that I would appreciate more - to give the confidence that what you are doing is sensible and not going to kill you and also to talk through what has been a pretty harrowing experience.
For what it is worth, now just over 12 weeks out from the main operation (being initially in hospital for a week, then back in for two weeks 10 days later due to the complications, back in a third time for two days as a precautionary measure, plus more recently having found a blood clot “stuck to the wall” of my right atrium) and I am feeling way way better than even just two weeks ago. No world records being set, but I have progressed from walking to light jogging and the light jogging speed and distance is going up, I have managed an hour on the exercise bike and the strength work is progressing really well all things considered. ... Read more
Charlie Fry I am in London (where cardiologist is, although I had my surgery in Cambridge). I had NHS cardiac rehab - one session over the phone. Very nice people, but it didn’t give me any confidence. I separately found someone offering the service privately, which has been more helpful. I think you’re absolutely right - once they are happy that the “plumbing” has worked, the advice is not much more than around protecting the sternum and take your time building up to longer walks.
It is the emotional support that I would appreciate more - to give the confidence that what you are doing is sensible and not going to kill you and also to talk through what has been a pretty harrowing experience.
For what it is worth, now just over 12 weeks out from the main operation (being initially in hospital for a week, then back in for two weeks 10 days later due to the complications, back in a third time for two days as a precautionary measure, plus more recently having found a blood clot “stuck to the wall” of my right atrium) and I am feeling way way better than even just two weeks ago. No world records being set, but I have progressed from walking to light jogging and the light jogging speed and distance is going up, I have managed an hour on the exercise bike and the strength work is progressing really well all things considered.
Good luck with the rehab your end as you start this week.