Hi Anna, well done with all your procedures. I had visual disturbances after surgery. Like a migraine aura almost daily and sometimes with dizziness, vomiting, ...Read more
Hi Anna, well done with all your procedures. I had visual disturbances after surgery. Like a migraine aura almost daily and sometimes with dizziness, vomiting, sweating etc. It has gradually tapered off and I just sometimes get a visual 'grid' in my vision. So better times for you ahead. I am 14 month post op.
Anna Thomasq Thanks Gabi! I'm glad to hear that you are doing better. I had another one yesterday but just sat d ... Read more
Anna Thomasq Thanks Gabi! I'm glad to hear that you are doing better. I had another one yesterday but just sat down and waited it out. It sure beats choking!!! Hugs!
Dear Anna
I had some vision abnormalities, don't know what to call them, moving silver or gray little things circulating around my head following surgery, ...Read more
Dear Anna
I had some vision abnormalities, don't know what to call them, moving silver or gray little things circulating around my head following surgery, I am now 8 weeks post op and see a minute amount of these swirly things , I will see ophthalmologist tomorrow and ask him. It probably was due to anesthetics
You are a courageous young Mother to undergo such a complex surgery, God Bless you and your gorgeous child, best wishes
Geri
Eleanor R Hi, Geri and Anna. I had the same vision things, but for me it was before surgery (and afterwards). ... Read more
Eleanor R Hi, Geri and Anna. I had the same vision things, but for me it was before surgery (and afterwards). I had it checked out before surgery, to make sure it was not related. In my case, it was colorful lights, they call it "flashing lights" and in my case again, it was kind of a normal aging retina thing (I'm 68). Apparently the liquid we have behind our eyes serves a useful purpose when we are being created, but not so useful after birth. This liquid or gel sometimes pulls away from the back of the retina wall, much like wallpaper pulling off (according to the retina specialist I was sent to). Once it is off, one may have "floaters" which is part of the liquid gel which floats around into our line of vision. In my case it was nothing to do with surgery, as it was there before, and afterwards. Nothing much to do, just to call the specialist if it gets worse or bothers me. It comes and goes, and has fortunately gone for now, for a while at least. Hope you all figure out what's causing yours, and that it is nothing serious. Best wishes, Eleanor
Anna Thomasq Thank you Geri and Eleanor. Eleanor, that is my granddaughter :) My step-daugher's baby. My son is ... Read more
Anna Thomasq Thank you Geri and Eleanor. Eleanor, that is my granddaughter :) My step-daugher's baby. My son is in college at the University of MIssouri but I definitely appreciate the compliment. Closing in on 48 pretty fast! (and grateful!!!!!!)
Anna -
Welcome to the recovery group.
I had a bout or two of kaleidoscope vision about 2 weeks after surgery. Watching TV and each eye started sending different ...Read more
Anna -
Welcome to the recovery group.
I had a bout or two of kaleidoscope vision about 2 weeks after surgery. Watching TV and each eye started sending different signals. My cardiologist said it's result of anesthesia -- right and left sides of the brain become uncoordinated and have to re-synch.
Congrats on your recovery this far.
Anna Thomasq Mike, Thanks so much for your comment! I just saw it and that's so good to know. I was under for q ... Read more
Anna Thomasq Mike, Thanks so much for your comment! I just saw it and that's so good to know. I was under for quite awhile and have had anesthesia almost every year for about five now, at least, so that makes sense.
I hope that this finds you doing well and I really appreciate you taking the time to comment!
Linda H and Elsie posted a note for Anna that says:
Hi Anna When you are looking for a hotel near the hospital, call and ask if they have any rates for the hospital. Some hotels just might have a special rate ...Read more
Hi Anna When you are looking for a hotel near the hospital, call and ask if they have any rates for the hospital. Some hotels just might have a special rate for just that. Worth a shot. Good luck to you. I will be keeping you in my prayers. God is so good to us, keep us all posted.
Anna Thomasq Thanks! I've tried. Mt. Sinai does have several good rates, but I think we're going to have to get ... Read more
Anna Thomasq Thanks! I've tried. Mt. Sinai does have several good rates, but I think we're going to have to get a room in mid-town. My mom is insisting (and I'm grateful) that she comes too and it's been hard finding something other than one king bed. My son is good with a sleeping bag or bed.
God IS so good and I'm thankful and blessed! Thank you Linda and Elsie. Blessings!
Hi Anna, I have no idea on your diagnosis so cant offer any info. I love your profile pics you are beautiful and your man is a handsome hunk! Sending good ...Read more
Hi Anna, I have no idea on your diagnosis so cant offer any info. I love your profile pics you are beautiful and your man is a handsome hunk! Sending good vibes and support from Thirroul, Australia.
Anna Thomasq Lol! Thank you Gabi. That's really kind. I agree on the handsome hunk part ;) He's supportive and ... Read more
Anna Thomasq Lol! Thank you Gabi. That's really kind. I agree on the handsome hunk part ;) He's supportive and loving too so I'm a lucky gal. Sending good vibes back from Monett, Missouri!
Sorry to hear you are having so many problems right now. Saying a prayer for your whole family, including your mom and dad.
Barnes has a great reputation here ...Read more
Sorry to hear you are having so many problems right now. Saying a prayer for your whole family, including your mom and dad.
Barnes has a great reputation here in St. Loius. I hope the consult goes well for you.
Anna Thomasq Thank you Clare! I hope it does, too :)
Steve & Ellen Mc Gurk posted a note for Anna that says:
Hi Anna,
Thank You for the updates on what you are going through. Keep in your mind wonderful thoughts ,and it works to combat and ease your troubled mind ,and ...Read more
Hi Anna,
Thank You for the updates on what you are going through. Keep in your mind wonderful thoughts ,and it works to combat and ease your troubled mind ,and it should make you more in tune, and will fill your heart and mind on your objectives ahead. We are thinking of you and Tod and know you will get over this, and come out top shelf,health wise! Ellen and I are fine and thinking of you guys! Hugs Steve & Ellen
Anna Thomasq Thank you! We miss you guys and sure hope that we'll be able to be meeting up with you next year. I ... Read more
Anna Thomasq Thank you! We miss you guys and sure hope that we'll be able to be meeting up with you next year. I'm glad you're doing fine, I've been wondering about your health Steve. Send an email with some of those awesome Mexico pictures I'm sure you have. Take care! Love and hugs from both Tod and I!!!
Hello Anna, I had my aortic valve replaced twice in 3 1/2 years something that's not to normal. Went from tissue valve to mechanical valve. Doing good thank ...Read more
Hello Anna, I had my aortic valve replaced twice in 3 1/2 years something that's not to normal. Went from tissue valve to mechanical valve. Doing good thank god. I would had been out of my mind if I didn't go to the # 1 Heart hospital in the world the Cleveland Clinic. Its only 7 hours from my home. You will have one shot at this why not go to the best. I wish you all the best.
Anna Thomasq I'm so glad that everything has gone so well for you and appreciate the post. The Cleveland Clinic w ... Read more
Anna Thomasq I'm so glad that everything has gone so well for you and appreciate the post. The Cleveland Clinic would be quite far for us and right now, we're consulting with some wonderful doctors in Plano, Texas and St. Louis, MO. Relatively equal distance for us and this is still going to be problematic. One we'll deal with, but I'm quite confident in both facilities. Thank you again for you post!
Hi Tod & Anna.
We are thinking of you up in Canada and trust that you will be a 100% shortly so Tod and yourself can come visit. Your strong Anna and don't ...Read more
Hi Tod & Anna.
We are thinking of you up in Canada and trust that you will be a 100% shortly so Tod and yourself can come visit. Your strong Anna and don't forget you have people that care and love you ! God Speed !
Steve & Ellen Mc Gurk
Oakville,Ontario Canada
Hello our dear friends! We were so blessed to meet and get a chance to know such kindred spirits on our vacation to Jamaica. We will get to Canada and we will be visiting you! I don't know if that's a promise or threat, but we'll do it! LOL
Linda H AVR 9/19/12 posted a note for Anna that says:
Hi Anna, I have never heard of what you have also. I really feel for you. Have you tried Cleveland Clinic. That is number one heart hospital in the world. ...Read more
Hi Anna, I have never heard of what you have also. I really feel for you. Have you tried Cleveland Clinic. That is number one heart hospital in the world. It is a little far to go but they also have a place to stay right on the campus. Good luck, Hope all goes good for you and I will keep you in my prayers.
Anna Thomasq Thanks Linda and no, I haven't tried Cleveland Clinic yet, but I have about four more copies of my sc ... Read more
Anna Thomasq Thanks Linda and no, I haven't tried Cleveland Clinic yet, but I have about four more copies of my scans and reports, so I think I will try to contact someone from there and see if I get a response. I appreciate your advice. Thank you for the prayers!
I read your last post and strongly recommend you search for a major cardiac center near you. It is so important especially in your case you speak with a very ...Read more
I read your last post and strongly recommend you search for a major cardiac center near you. It is so important especially in your case you speak with a very experienced surgeon. Use the links in this website to guide you to one that sees so many patients that odds are they have successfully treated many people with your condition. In your case you probably have to travel a few hours to find a highly experienced cardiac center. I don't know how far you are from Chicago but northwestern hospital is one of the best. Many people on this website with simple valve surguries often travel quite a distance for treatment. You probably should too.
Anna Thomasq Thank you for that Heidi. I think we pretty much realize that we're going to have to go with that op ... Read more
Anna Thomasq Thank you for that Heidi. I think we pretty much realize that we're going to have to go with that option. I talked to a nurse at Northwestern today and they and a doctor at Mt. Sanai will be looking at my scans. I have to hope that someone is interested in this case. It's a little scary not to find anyone else with this condition. Thank you so much for your response!
Sorry for all you are going through. Hope this surgeon will be able to give you some answers. It must be hard having to travel so far just to see someone...I ...Read more
Sorry for all you are going through. Hope this surgeon will be able to give you some answers. It must be hard having to travel so far just to see someone...I am lucky that I have a lot of options here in St. Louis.
By the way, my maiden name is Thomas. :)
Anna Thomasq I have been talking to some wonderful surgeons in St. Louis. Dr. Luis Sanchez has offered to do the ... Read more
Anna Thomasq I have been talking to some wonderful surgeons in St. Louis. Dr. Luis Sanchez has offered to do the first procedure and Dr. Marc Moon the second procedure. Did you have the thoracotomy or a different procedure. My husband has family in Kansas City, but none in St. Louis, that I know of. I hope you are well!
Welcome to the site. Sorry but I know nothing about your condition. I had my aortic valve replaced and an aortic aneurysm repaired just 7weeks ago. I am in ...Read more
Welcome to the site. Sorry but I know nothing about your condition. I had my aortic valve replaced and an aortic aneurysm repaired just 7weeks ago. I am in St. Louis County. I will have to look up your city. ;)
I know there are other Missorians on here as well. Good luck with finding the right doctor for you. I will say a prayer for you. Keep us posted. Stay warm.
Anna Thomasq Thank you for responding Clare! I live in southwestern Missouri. Between Joplin and Springfield.