Wanda Blackwood posted a note for Adam that says:
Hey Adam, just wanted to say thanks for making this blog. I really enjoy reading others stories about their journeys through all of this. I do have a question for you- have you heard of aberrant right subclavian artery? I was told I have this and that it's not very common. Any information would be appreciated. Thanks
Debra Langford posted a note for Adam that says:
Thank you for this wonderful website! It has been and will be a source of information and comfort. My surgery is Feb 15 so my anxiety is gaining. It helps to read other peoples stories. Also, I purchased your book and it was a great help. Thank you Adam!
Adam Pick Hi Debra, There is no need to thank me. Actually.. It is I who should Thank You for giving me the special opportunity to be of service to you during this very ... Read more
Adam Pick Hi Debra, There is no need to thank me. Actually.. It is I who should Thank You for giving me the special opportunity to be of service to you during this very challenging time in your life. It is privilege no doubt. February 15 will be a great day. My thoughts and prayers are with you and your medical team!!!
On January 9, 2018...
Wendy Evans posted a note for Adam that says:
Adam, Help! Not sure what questions I should be asking of my doctor...
So 4/2016 my TSH was 1.75 for my thyroid, after surgery 10/2017 it is now 12.23!!!
Is this common? Can It be fixed? What might have happened? I have tried to look up info and can't find much. I got the tests and will be seeing my doctor on the 15th of January. What questions should I ask?
Ian Robinson posted a note for Adam that says:
Hi Adam, my husband had an aortic valve and root repair a year ago, he's ticking away nicely but has migraines and double vision episodes quite often, are these linked to the surgery? Thanks T.
I just received a very interesting email from Mandy about heart valve surgery, vertigo, headaches and vision complications after heart surgery. As you can read
Catie B Oh wow, that's a lot of comments on that link. And the statistic someone cited of 9 in 10,000 coming away from OHS with visual issues.
Catie B Oh wow, that's a lot of comments on that link. And the statistic someone cited of 9 in 10,000 coming away from OHS with visual issues.
For what it's worth, I've had renewed migraine symptoms (they left entirely for 7 years) since the surgery. They're more frequent than ever with stronger auras. And there have been new-onset visual episodes where I still suddenly and temporarily lose a chunk of the field of vision in my right eye. I had neurology and ophthalmology workups before leaving Cleveland and I'm about to have a local eye dr. check me again about the eye issues.
Gerald Poulton I guess everyone is different, I seem to notice my eyesight is a bit off, but I have read that is common after OHS. They say not to get an eye test for at least ... Read more
Gerald Poulton I guess everyone is different, I seem to notice my eyesight is a bit off, but I have read that is common after OHS. They say not to get an eye test for at least three months as it usually clears up. As for migranes, before I used to get them all the time and sometimes more then one a day, now they are all but gone 😀
On October 20, 2017...
Maria posted a note for Adam that says:
Thanks, Adam, for completing a video from the conference about the annuloplasty rings! Maria
Civita Fahey posted a note for Adam that says:
Hi Adam.. I've thanked you many times for making up this site and I will thank you again.. it got me through my surgery.. I refer any patient I meet that has valve issues to this site.. I sometimes don't get to check in for a day or two and I like to keep up with all my "friends" and may miss a post. I have a hard time finding members if they haven't posted for a while? Is there a search button I don't know about? thanks for all your work, Civita
Tammy Pilcher posted a note for Adam that says:
Adam, I'm so sorry to hear about the passing of your dad. Your tribute to him in the newsletter is beautiful! Keeping you and your family in my prayers. God bless you!
Adam Pick Hi Cindy, Thanks so much for your kind words. This has been an overwhelmingly difficult time for myself and my family. He will be missed by me, my family, our ... Read more
Adam Pick Hi Cindy, Thanks so much for your kind words. This has been an overwhelmingly difficult time for myself and my family. He will be missed by me, my family, our friends and his patients (he was a doctor for 35 years). Again, thanks for your note Cindy. Much, much, much appreciated.
Civita Fahey My condolences to you and your family Adam.
Roger Bideleux So sorry tohear of your loss Adam. Condolences to you and your family
Marie Myers May he rest in Peace. Your Dad did a wonderful job raising you...That is a wonderful legacy.
Catie B I'm so sorry, Adam. My heart goes out to you and your family.
Craig Wise I'm so sorry for the loss of your father, Adam. I felt devastated when I lost my Father to cancer, quite suddenly in 2007. I offer you my prayers of support ... Read more
Craig Wise I'm so sorry for the loss of your father, Adam. I felt devastated when I lost my Father to cancer, quite suddenly in 2007. I offer you my prayers of support which I hope you feel from our entire community.
My sympathy and thoughts are with you and your entire family Adam. He will be missed but he will be with you in your thoughts and memories as you move forward.
Laura Jacobs That is sad news indeed Adam. My sincere condolences to you and your family.
Jennifer McInerney I lost my wonderful Dad in November. I miss him dearly but i have the best memories of him and once the pain lessens that is what remains and brings comfort. ... Read more
Jennifer McInerney I lost my wonderful Dad in November. I miss him dearly but i have the best memories of him and once the pain lessens that is what remains and brings comfort. My sincere condolences to you and your family
Shannon Gray My sincere condolences to you and your family. I'll be keeping you in my thoughts.
MaryAnne Jardis so sorry to hear about your Dad's passing. Your memories are now your treasures. The hardest thing in life is to lose a parent. We all go through it and try to cope the best way we can. God bless.
Lilly Black My deepest sympathies to you and your family, Adam! take care.....
Mary Willett Condolences to you and your family. You paid a great tribute to your father. I enjoyed reading the story of his life. Thank you for sharing.
On June 23, 2017...
Valerie Archual posted a note for Adam that says:
Hey Adam! Just wanted to thank you so much for starting this site!!! It has been awesome to talk with other patients!!! Their knowledge is far more valuable than any literature you can read on the subject!!
So I am having PVCS that started 3 weeks post op of mitral valve and ASD repair- I am 5 weeks out now. My surgery was done at the Cleveland Clinic. My home hospital is recommending upping my metropolol from 12.5 x2 a day to 25x2 a day to control the pvcs. I normally run very low blood pressure. They kept me overnight 1 night in hospital but am being sent home now. My blood pressure did at one point get to 80/40 but they still think I should continue the 25mgx2 because they seem to be stopping the pvcs. Anyone else have issues with pvcs at this stage???
Thanks!
Val
No need to thank me! It is I who should be thanking YOU! It's a gift to have created something that has helped you along your journey.
Regarding you question... Unfortunately, I do not have a specific answer for you as I did not have any personal experience with low blood pressure or metropolol.
I just received several great questions from Vielka about the use of Metoprolol after heart valve surgery. In her email, Vielka was interested to learn "Why pat
Valerie Archual Thank you Adam! Trying to get all this figured out, as I know, you know, what I mean! If anyone has insight on pvcs after surgery that would be helpful too! ... Read more
Valerie Archual Thank you Adam! Trying to get all this figured out, as I know, you know, what I mean! If anyone has insight on pvcs after surgery that would be helpful too! At 5 weeks laying around is getting pretty old lol
I've been in a state of constant dizziness for the last couple of days- is it the medicine or the pvcs? Maybe the migraines? Who knows- taking all one day at a time!!! Thank you again Adam for this site and all you do!!
On April 28, 2017...
Enrique K posted a note for Adam that says:
Hi Adam, I have noticed comments from patients in this forum asking about website privacy. How secure is your website? I don't see any encryption or SSL script on your site. You have personal information from each of us and having the site not secured is of great concern. Please look into this with a close eye and I suggest to make changes and protect your site and your followers.
On December 22, 2016...
Steven A Husted posted a note for Adam that says:
MY DEAR ADAM PICK I CAN NOT THANK YOU ENOUGH FOR YOUR BOOK AND THIS SITE YOU WERE A BLESSING RIGHT WHEN I NEEDED ONE THANK YOU AND MAY YOU AND YOUR FAMILY HAVE A MERRY CHRISTMAS AND A HAPPY NEW YEAR GOD BLESS YOU AND YOUR FAMILY YOUR HEART BROTHER STEVEN A HUSTED (POPEYE)
Sadaf Khan posted a note for Adam that says:
Hello Adam's I just read your story and feeling much better now beuz my 4 years old son is suffering heart voulve disease he is going this 8 of December for ross procedure if u can contact wd me I'll highly appreciate many thanks
Peggy Whitecotton posted a note for Adam that says:
Hi Adam recently my sister had emergency ohs for aortic aneurysm. Another sister had the same surgery several years ago. My sister was told by her surgeon that this is genatic. Have you heard of that before? My sergery was an AVR I did not have an aneurysm.
Joanne Casserly posted a note for Adam that says:
If it were not for this board, I would never have made it. Thank you for all the hard work that you do. I'm completely free, to go live, my life. God Bless Adam, and thank you again.
Adam Pick Whoa Joanne! You just made my day, my week, my month, my year! So kind of you. But, there is no need to thank me Joanne. It is a gift to be of service for this ... Read more
Adam Pick Whoa Joanne! You just made my day, my week, my month, my year! So kind of you. But, there is no need to thank me Joanne. It is a gift to be of service for this community. That said... Thank you for the opportunity to help you and all the wonderful, caring and supportive people in this community!
Steven A Husted posted a note for Adam that says:
WOW THOSE VIDEOS ON AORTIC STENOSIS AND THE TAVR ARE OUTSTANDING THEY REALLY GIVE YOU AN UNDERSTANDING OF THE OPERATION THANKS ADAM YOU ARE A GOD SENT TO THE HEART SURGERY COMMUNITY KEEP ON TICKING
Steve Wykstra posted a note for Adam that says:
Hey Adam, can you tell me a bit about the way you set up this wonderful multi-person blog site here. I have a team of semi-retired guys who are working on on a research project, and this structure would be ideal for us. Is it a WordPress thing? Did someone set it up for you or did you do it yourself? I would just love to be able to have the same sort of structure for my team.
If you can give me some hot tips on this, you could email me at steve.wykstra@gmail.com. Thanks. ANd sorry for being a bother. Thanks so much for your work in starting and supporting this webite!
Tina Maroon posted a note for Adam that says:
Hi Adam, I wanted to thank you for having this website to post about Open Heart Surgery and about our experiences. It has really helped me in the last year. I often wondered if you ever speak to the public where we could go to listen to you. I would love to go listen to you speak or to meet you in person. I also wondered what books you have written and where I could find them. Thanks again Tina Maroon
Cheryle Bird posted a note for Adam that says:
Hi Adam, Like so many others on this site I want to say thank you. Thank you for providing this platform for us with heart valve issues & in my case pending surgery. When I first found out I searched the net and was well aware that this kind of research can often bring 'fear and confusion'. I am so thxful for discovering you and heartvalve surgery.com It really doesn't matter that whilst I am here in Australia the posts I am reading are from the US. What matters is connecting, sharing our story, being encouraged and being heard and that gives us all confidence in taking the steps we need to. I'm having tricuspid valve, which my surgeon has said is rare, and rom reading several posts, to date I haven't come across anyone who has entered into OHS for just that - yet!!! Thanks again to you. (And you'll be happy to hear that I have connected with a girl from Sydney, so I feel she is only several hours away). Keep up the good work, Cheryle
Nicola Laker HI. I'm having repair done on my tricuspid valve as I have the tare condition Ebsteins Anomaly. They are also going to do an ablation on the two extra pathways ... Read more
Nicola Laker HI. I'm having repair done on my tricuspid valve as I have the tare condition Ebsteins Anomaly. They are also going to do an ablation on the two extra pathways I have through having Wolfe Parkinson White syndrome. I'm due in next week! X
Emily Rowley Lovely message Cheryle, you have a truly beautiful soul. I too am incredibly grateful I cam across this site to meet (be even greater to meet them in person ... Read more
Emily Rowley Lovely message Cheryle, you have a truly beautiful soul. I too am incredibly grateful I cam across this site to meet (be even greater to meet them in person including you Adam) such a wonderful community I can relate too. I would like to see Journal page to be set up to be able to include multiple surgery dates, Surgeons & their tittle for those of us who have had multiple heart valve surgeries, and be able to add in Hospitals from Australia. Thank you once again 😊 Emily from Australia.
Petey Bello Yes Adam, thank you so much for creating this site & writing your book!! It has been 'Pricless' in dealing with this whole journey!!!
Kate Watson Well said Cheryle! Yes thank you, Adam! I couldn't have made it through this difficult time without all the support I found here. So comforting to know we aren't alone in our difficult journeys.
Adam Pick Cheryl, You just made my day, my week, my month, my year. No need to thank me. It is a gift for me to be of service to you during this challenging time. Also, ... Read more
Adam Pick Cheryl, You just made my day, my week, my month, my year. No need to thank me. It is a gift for me to be of service to you during this challenging time. Also, many, many, many smiles to Emily, Petey and Kate as well.
Lynee Casper I agree, there is no better way to prepare yourself for OHS than to talk and learn from others. You make that happen, in a very professional way, with a vast ... Read more
Lynee Casper I agree, there is no better way to prepare yourself for OHS than to talk and learn from others. You make that happen, in a very professional way, with a vast amount of web resources and this community and your compassionate guidance for all of us. Your book about the experience of OHS certainly helped me prepare and understand. Thank you as well!
Cheryle Bird Hey Everyone, Thanks for replying, I'm only just picking up on posts, but here I am almost 3 weeks post OHS, I'm at home and every day am growing stronger. I'll update my wall shortly.
Adam Pick Hi Amy! Thanks so much for the kind words!!!! It's an honor and privilege to be part of this community!!! If you need anything, please let me know.
Laura Lamminen I agree! Adam, you are great and this site helped me stay sane before, during and after this crazy experience.
On March 24, 2016...
Jan McClain posted a note for Adam that says:
Adam, do you know any heart surgeons at UCSF, or have any other contacts there? If there is anything you can do to help Barbara Laurie now, or advice you could give her, we would all be very grateful. She has been treated abominably by UCSF schedulers, and deserves a personal apology from her surgeon, the cardiac surgery department chairman and the hospital chief of staff. And she should have her surgery without further delay!
Adam Pick Hi Jan, Thanks for writing me about Barbara. Unfortunately, I am not familiar with any of the surgeons at UCSF. The surgeons I know in the SF area are Drs. ... Read more
Adam Pick Hi Jan, Thanks for writing me about Barbara. Unfortunately, I am not familiar with any of the surgeons at UCSF. The surgeons I know in the SF area are Drs. Castro, Gaudiani and Khan. What happened to Barbara? Actually, don't answer that. I'll go check her journal. Sorry, I can't be of more help. Adam
Nicola Laker Sorry but this site doesn't always let me post on people's journals so I have to hijack other people's posts. 😣 This is what I wanted to post. ☺
Nicola Laker Sorry but this site doesn't always let me post on people's journals so I have to hijack other people's posts. 😣 This is what I wanted to post. ☺
Hi Adam. I'm trying to find where I can order a heart pillow. I'm in the UK and all the ones I have found on the Internet do not ship to the UK.
We only get a rolled up hospital towel and I would love one of these pillows for when I have my surgery at the end of April and for my surgeon to sign. Can you help me? X Also I have bought your book and its great. Thank you! 😆
On March 19, 2016...
Michele McMinn posted a note for Adam that says:
Hi Adam. A few weeks back your news letter had an update about the FDA approval of the Perceval valve. I would like to know if it is possible to get one if you have an aorta aneurysm ?
Michele
Your video of Dr. Lewis was one of the main reasons I got interested in Dr. Lewis and Princeton Baptist. It is a great video.
After being there, I can say that they have a wonderful program at every point. Since they have high volume of surgeries their skills are excellent. Because it is a relatively small hospital the doctors, nurses, and staff all have great relationships that allow them to provide the best patient care.
Thank you also for all of the love and care that you express for all of the people in this community. It meant a lot to me.
Adam Pick Thanks so much Robert! You just made my day. I'm so glad to hear that the video Dr. Lewis was instrumental in helping you along this journey. Keep on tickin!!! Adam
Robert Frederick Adam: I also noticed that you added Princeton Baptist on your hospital list in December.
I was trying to get it cited on the "my valve story page." It ... Read more
Robert Frederick Adam: I also noticed that you added Princeton Baptist on your hospital list in December.
I was trying to get it cited on the "my valve story page." It isn't on the pull down menu yet, so I tried to add it by hand and could not get it to work.
I am so proud of all of them, I wanted to be able to include it. Perhaps there is an update on your end that could be worked out in the future.
On January 20, 2016...
pino correale posted a note for Adam that says:
Hi Adam, i would like to thank you for the brilliant idea in building this important blog. I have gotten a lot back since i have joined. Great human beings at ""heart"". Now i have noticed that whenever i tune in your blog, the page comes out differently than before. Before i was able to add a comment right away, in the last few days i see a new format, where you have to comment directly at that person. Did you just change the format or am not in tune with everything. Thanks for taking my question and continued success.
Steven A Husted posted a note for Adam that says:
what a heart brother you are i can not thank you enough for your book and this web site what a blessing you are to the heart valve surgery community we all love and pray for you to keep up the very good work you are doing yea yea heart brother and keep on ticking
Jeanette Davidson posted a note for Adam that says:
Wow!, Adam that's really exciting! I feel so honored that you want to share my story! Thank you for your support during this journey ! ❤️ I believe I've done so well because I received such support from the site thanks to you .
Adam Pick Hey Jeanette, Yay! So glad that your journey has been enhanced by this project!!! ❤️❤️❤️ Fyi, I'm sorry for the delay in getting back to you. It's ... Read more
Adam Pick Hey Jeanette, Yay! So glad that your journey has been enhanced by this project!!! ❤️❤️❤️ Fyi, I'm sorry for the delay in getting back to you. It's been a long day. Your Facebook post is going up tomorrow. Again, sorry for the delay! Stay tuned!
On July 17, 2015...
Jeanette Davidson posted a note for Adam that says:
Thank you Adam for helping , guiding and creating such meaningful resources for all of us! I will be forever grateful!❤️
Tammy Pilcher posted a note for Adam that says:
Adam, thank you so much for including me in your "Patient Success Stories"! I really appreciate all of your kind words! You are the "Original Rockstar" for writing your amazing book and starting this amazing website! I'm just trying to give back a little of the support and encouragement that was so generously given to me by you and the other wonderful people in this super community! Thank you with all of my grateful heart! God bless you!
Adam Pick Thanks sooooooooo much Tammy!!!! ❤️❤️❤️❤️❤️❤️❤️
On June 17, 2015...
Jackie posted a note for Adam that says:
Hi Adam,
Please review the latest guestpost for Dan D, written by Fadir? I think it should be removed if possible. Thank You🌸
Adam Pick Hi Jackie. All taken care of. Thanks! Adam
On May 14, 2015...
Summer Lane posted a note for Adam that says:
Adam, I've seen Ross procedure on here a few times but I have NO idea what it is. Can you explain it to me.
Also, has anyone here had any issues with their glue not falling off and having to have it removed?
http://www.Heart-Valve-Surgery.com - Learn the advantages of the Ross Procedure surgery for patients with aortic valve disease in this special video with Dr....
On May 14, 2015...
Kristy f posted a note for Adam that says:
Adam, my husband was originally diagnosed and being treated for cardiomyopathy. I got him a second opinion for this and discovered problems with the valve besides the thickened muscle. He will having surgery Tuesday at the intermountain heart institute in Murray. .. I hear they are very successful and his surgeon stephen clayson is great. .my husband is now at the point where its hard to catch his breath and he says he he's a lot of pressure on them this week.
Kristy f posted a note for Adam that says:
Adam, my husband is going in next week to try and repair his mitral valve, which the Dr says is not a typical case. He also will be having some thickened muscle cut out that is causing some obstruction. .. I guess I'm just grasping for any hope and advice you can give me. .. I'm scared to death for him. . We have little boys as well. My husband is our while life. He's 36 and works hard on the family orchard, but he has declined fast the last few months. Kristy. Pickleskk@msn.com
Adam Pick Hi Kristy, Thanks for posting to my Guestbook. Did you get a second opinion from a surgeon at a mitral valve repair reference center? Adam
On May 8, 2015...
Dave Van Buren (DVB) posted a note for Adam that says:
Hi Adam! Been a while. Just at 4 years post OHS/MV repair and finished my annual walkabout in celebration. A technical question regarding the journals: it used to be possible to embed html and I made use of that in my journal for links, photos, graphics, and so on. The new formatter just presents verbatim the html instead of, well, formatting it. So it doesn't display nicely. Rather ugly actually. Got any ideas for how I can edit my old journal entries to format properly? Thanks -- DVB
Adam Pick Hi DVB, Congrats on the 4-year mark and the walkabout! Awesome. Regarding your technical question, we added an auto link recognition feature to help our community ... Read more
Adam Pick Hi DVB, Congrats on the 4-year mark and the walkabout! Awesome. Regarding your technical question, we added an auto link recognition feature to help our community members easily share information. For example, here's a link to your journal. I hope that helps! Sorry, it will not convert convert your prior HTML code. We don't have the resources to create the code to go backwards. Hope that helps!! Adam https://www.heart-valve-surgery.com/journals/user/davevanburendvb
Meet other patients with heart valve disease who are preparing for or recovering from surgery.
On May 5, 2015...
Ben Schraegle posted a note for Adam that says:
Hello Adam! Ben Schraegle here; it has been 4.5 months (Dec 17,2014) since my heart valve surgery; had my mitral valve and aortic valve surgically repaired by Dr. William Brinkman here in Plano, Texas at The Baylor Heart Hospital. I have been doing great; even ran a 5K two weeks ago! Well, I went in for a cold last week and my GP took my vitals (he was the one who discovered my heart murmur) and my heart rate was 150. They took me over to the Baylor Heart Hospital ER and it was discovered that I have Atrial Flutter. Last Thursday I had a TEE and then my heart was shocked to get my pulse back to the normal zone (60-90). I am now on Xralto (za-rall-to) and will be until I go in for an "ablation." My cardiologist, Dr. Charles Levin here in Dallas told me that this is just a "bump-in-the-road." You know, I thought I was done with this "stuff" and now this; your comments and feedback please Adam, I appreciateit and what you do for all of us! Regards, Ben Schraegle
Kimberly Biddick Ben, were you able to feel your heart racing that fast? My prayers for you that this will be resolved quickly and easily. So sorry for this setback!
Ben Schraegle Thanks Kimberly, appreciate your comments. Going to see my cardiologist tomorrow for a check up and i think all is going to be well; let you know. God Bless. Ben
Cheryl Batzing Ben, hey again! I was having surgery about the same time as you at Baylor Heart Plano! So sorry to hear about your Atrial flutter. I had that plus afib while ... Read more
Cheryl Batzing Ben, hey again! I was having surgery about the same time as you at Baylor Heart Plano! So sorry to hear about your Atrial flutter. I had that plus afib while I was in the hospital, and they cardio converted me before I came home. I have gone back into it a few times...and gone to see my cardiologist. I'm on amarodione (spelling?) to keep my heart in sinus rhythm. They wanted to get me off that a month or so ago, but said it wouldn't hurt me to stay on. I had 2-3 week of episodes about a month ago, then stopped. Then had one episode last week for about an hour, then it stopped. Bumps in the road seem to be common for all of us...just different. My cardiologist said once my heart goes into the atrial flutter/afib, it "remembers" that rhythm and tries to go back that way, unless helped with drugs, etc. He said the further we get away from surgery date without issues, the more likely to not have them. I also had an ablation for tachycardia 7 years before my OHS and it was a piece of cake. I'll keep you in my prayers for your upcoming ablation.
On April 20, 2015...
Joaquim Cimoes posted a note for Adam that says:
Adam,
Thank you for your attention, this site was very important for me.
Hugs from Brazil.
Is there a way to un-follow a member of the community. I keep getting emails that a member has updated his journal and there has not been an update. And it's not just one email at a time, they come sometimes in 10 or more at one time. I assume there is another glitch in the system and I tried to stop receiving these emails but the link within the email that would allow me to stop receiving updates for that individual doesn't work either. That link takes me to a surgeon spotlight page. Is there no option to un-follow someone? At this point, the only way I can stop the repetitive emails from coming in and taking over my inbox is to block all email communications from the site by sending them to my Email Spam Folder so that's what I did. I emailed you with regard to this problem but have not heard back so I assume you are busy and will check into when you have a moment. Until then, my Spam folder will get a good workout. :) Karen
muhammad basharat sir send me i am patent of biscupid aortic valve plz advise medicine i am very painfull 03036214708
On April 10, 2015...
Joaquim Cimoes posted a note for Adam that says:
Dear Adam,
In the USA do you need to wait for a valve to Ross procedure or you have a bank of valves? We waited for 7 months for a donor to replace the valve of Joaquim. How to function the valve bank?
Hi Adam....I just wanted to say I read your book in two days...and it is very informative and helpful. Thank you! I think it is so awesome that you created this website and wrote your book to help others with upcoming valve surgeries. I have a sister in WA, who will be needing her mitral valve repaired. She was wondering if your book is also available on CD.
My surgery is one month from tomorrow. I can't wait to be on the recovery side!
God Bless You...and Happy Easter to you and your family.
Pamla Moeller
Adam Pick Thanks so much Pamela. You just made my day. Unfortunately, the book is not available on CD. If you or your sister need anything else, please let me know.
Thank you!
On March 17, 2015...
Virginia (Ginger) French posted a note for Adam that says:
Blessings from one of the Family!
Adam, I have been doing a bit of reunion by visiting the journals of some of the people I was closest to during the Pre- and Post-Op periods of my HVR. I have made some friends who feel truly like family, whom I would trust to make decisions for me, should it come to that.
This site, Community, Family, is so much more than I could ever have imagined, and it (or more accurately the people who participate, as well as all of the educational materials) really have been a tremendous blessing to me.
I wish you all good things, and that you and your family live in health and joy.
This is one of those times when saying "thank you" doesn't even touch it. May God continue to bless you in all you do, Ginger
J Blair posted a note for Adam that says:
Hi Adam I an new to this site and just learning how to navigate through it and also learn of other's heart stories. I am desperately trying to find someone that has had their aortic and mitral valve repaired with both mechanical valves. Alternatively anyone who had the same valves replacedceith tissue. I have yet to read your entire story but were your to valves replaced with mechanical ? Hope to hear from you. Thanks for cresting this site I am from Canada and trying to make connections. You have crested a wondeful vehicle to learn and share with others experiencing heart valve issues
Edith Dim posted a note for Adam that says:
Adam, I made a comment beneath Stella's TAVR success story. When you have time, I would Appreciate if you would read it. I realize now that I should have typed it here.
Thank you. Edie
Tammy posted a note for Adam that says:
Hi Adam,
I had a bicuspid valve replaced about eight months ago. It was my 50th Birthday present. The surgeon looked at me like he had seen a ghost when he came to my room to visit. He said he had no idea how I was actually breathing. I thought I was getting better, and things have gotten worse in the last month. Have you heard of anyone having breathing issues eight months after surgery? I also have terrible fatigue. They think it might be something with my lungs.
Peter Duplin posted a note for Adam that says:
Adam it is my friend Sandra Trotta on the 23rd at Morton Plant Hospital in clearwater Fl. They have it listed as Peter Duplin Adam I would really like to get Sandra name on the list but because I have been keeping and helping her with the journal they used my name.Adam could you please help me with this as it is so important thankyou PeterDuplin.
Peter Duplin posted a note for Adam that says:
Adam I want to personally thank you for creating this incredible site.As a friend of someone who is having OHS for the second time I found this incredible site where I can be accepted and vent my feeling my downfalls and my frustrations, and also have this incredible wealth of information at my finger tips thank you Adam. You have truly put your heart and sole in to creating this priceless website. Warm regards Sandra and Peter
Adam Pick Hey Peter, Wow. Thanks. You just made my day, my month, my year! It is so nice to wake up to a message like this.
That said, there really is no need to thank ... Read more
Adam Pick Hey Peter, Wow. Thanks. You just made my day, my month, my year! It is so nice to wake up to a message like this.
That said, there really is no need to thank me. In fact, it is I who should be thanking you and the other wonderful members of this community.
It is a complete honor and privilege for me to be of service to this special community. I can't begin to express the joy this project has brought into my life. So... Thank you!!!!!!
Now, let's focus on getting Sandra ready for a successful surgery and recovery! If you or Sandra need anything, please let me know.
Keep on tickin!
Adam
Peter Duplin Adam thank you for your kind words and "Lets go getting attitude "Sandra and I will definitely let you know if Sandra and I need any assistance in the days ... Read more
Peter Duplin Adam thank you for your kind words and "Lets go getting attitude "Sandra and I will definitely let you know if Sandra and I need any assistance in the days upcoming before her surgery.God Bless Sandra anPeter
On February 6, 2015...
Hi Adam,
I hope all is well with you and your family.
I have two questions.
First, I would love to have the link to the commercial when you are ready to share. I would like to share it with my family for sure.
Second, do you have any posts from people who have suffered from pericarditis? At 5 months, go figure, I feel great, no fatigue, no pain, no swelling, but I still feel my heart sticking to my breast bone at every single breath. I had a CT scan done recently and Dr. Stewart looked at it, and my cardiologist is going to see it next week along with a chest x-ray, and an echo was done. Nothing is concerning anyone at this point, except me, although my cardiologist has not seen the images. Prior to this he reviewed the echo and I had to push for some help or a solution. Everything I read says it goes away after 3 months, (cleveland clinic included) but I am worrying about why the inflammation is still there, what can it cause, if anything long term, and why am I feeling the same exact way, at 5 months. I feel like no one has this, but me, which probably is not true. My cardiologist wants to give me a lot of ibuprofin, which I am not taking, and I found something else that is an entirely different approach (holistic - and backed up by a lot of research) to combat inflammation in general, and is used in place of ibuprofin, without any of those nasty side effects. It is being shipped and I will have it next week to take. I noticed you listed posts on lack of sleep and was wondering if you have any for what I am feeling. Thank you. (can you tell I am at the end of my rope with this)?
Adam Pick Hi Christine, Great to hear from you. I hope and your daughters are enjoying your new home. Regarding the video, it is in final review. I'll get you a link ... Read more
Adam Pick Hi Christine, Great to hear from you. I hope and your daughters are enjoying your new home. Regarding the video, it is in final review. I'll get you a link as soon as it is available. Sorry for the delay.
I just received a very interesting question from Bernie about the pericardium and heart valve surgery. Bernie writes, "Hi Adam - At 51 years old, I need to r
Thanks, Adam. Chases comment is probably who I identify with the most.... I see ibuprofen knocked it right out, which it is suppose to.
Please no apologies ... Read more
Thanks, Adam. Chases comment is probably who I identify with the most.... I see ibuprofen knocked it right out, which it is suppose to.
Please no apologies needed for the time of the release for the commercial. ( I would secretly love to bring it my cardiologist who never shared the repair option with me). Famous last words.... Christine, you will just have to live with a mechanical valve and take cumiden and adjust to your new life. Really? I don't think so. 😊
On February 4, 2015...
Curtis Jones posted a note for Adam that says:
Thanks for the warm welcome Adam, yes I guess we are neighbors . Glad I found your site, what a wonderful support system. I may take you up on answering some questions should they arise. I was to see the surgeon yesterday for q&a and scheduling but he had emergency surgery, so I guess it'll wait a week.
Patricia Garcia posted a note for Adam that says:
Hi Adam...I see a few great hospital's and doctors mentioned on here. I just wanted to say that my surgeon Dr. Michael Acker from HUP in Philadelphia is amazing. He saved my life. My mitral valve was open only the size of a pinhead and I had a mural like clot on my left atrium. My 2nd surgery was at Cleveland Clinic and they were great too. They did not take my insurance this time around. I was on borrrowed time and went with HUP after going in the ER on 12/18/14. I am happy I did and just want others to know that there are great hospitals that are local. Some may be to ill to travel, no money or insurance issues to go to the best. HUP is #7 in the US for the heart. The nursing care at HUP is the best I have ever seen. I don't know if you know of Dr. Michael Acker, but I wanted to share that with you in case someone can't travel out of PA or the local area surrounding it.
Tammi Gunwall I'd like to add Dr Robert Saeid Farivar in MN as well. He did a fabulous job with my BAV replacement and has an amazing and extensive background. He was/is ... Read more
Tammi Gunwall I'd like to add Dr Robert Saeid Farivar in MN as well. He did a fabulous job with my BAV replacement and has an amazing and extensive background. He was/is very attentive and follows his patients closely after surgery. He took the time to really listen to my questions & concerns and made me feel very confident in my choices. My incision scar could not look more amazing either...literally flawless. Being a woman, I am pleased to say that it is barely even visible (even at just 4 wks post op). I'm sure you have a criteria for your list of recommended surgeons Adam, but I had to at least give props to Dr Farivar and his tremendous work. :)
Add your heart surgeon to the Heart Valve Surgeon Finder for patients.
Patricia Garcia Thanks Adam I will add Dr. Michael Acker to the list.
On January 31, 2015...
Mark Alafita posted a note for Adam that says:
Dear Adam,
I just wanted to send a quick note of thanks for both your book and this site. As I approach my surgery in two days, it is frightening to think of how lost I would feel without the information you have provided, and the support that this community freely gives. Don't get me wrong...I'm still nervous, but it would be foolish not to be. But at least I'm walking into this experience with realistic expectations instead of unrealistic fears. For that, I thank you deeply.
PS: When I met my surgeon at U of M for the first time and asked what I could do to get prepared for surgery, the first thing he mentioned was to read your book (which I had already done!). Now that's a ringing endorsement.
Edith Dim You will be in my thoughts and prayers for a successful surgery on Monday, Mark.
Adam Pick Mark, You just made my day, my month, my year! So you know, it is an honor and privilege to support you during this time in your life. Really. Thank you. ... Read more
Adam Pick Mark, You just made my day, my month, my year! So you know, it is an honor and privilege to support you during this time in your life. Really. Thank you.
As for being nervous, I don't know many people who are not nervous before any surgery -- let alone heart surgery. The good news is that you are ready. You know what to expect and... we're here to help you and your family. :)
Tour the Heart Valve Center at Frankel Cardiovascular Center at the University of Michigan, Ann Arbor.
On January 29, 2015...
Ole Bore posted a note for Adam that says:
Hey Adam. Have another bug for you for this site: Appears anytime someone comments on a story (i.e. profile update), it shows it in everyone's notifications... (Sorry can't help but to point it out, work in the Software/Cloud industry - and really want this site to be as good as possible).
Adam Pick Hi Ole, Thanks for the heads up. I'm not sure I understand though. The way the system works is that when a patient joins a thread (e.g. a journal, a guestbook, ... Read more
Adam Pick Hi Ole, Thanks for the heads up. I'm not sure I understand though. The way the system works is that when a patient joins a thread (e.g. a journal, a guestbook, a photo, etc.), they are notified when an additional patient provides a comment to that thread.
That way, each patient can stay connected to the conversation as it evolves. Often times, we're seeing patients go back-and-forth with each other on a thread.
The notification system was designed to facilitate that communication. Is this what you are talking about?
In advance, thanks for helping me better understand the situation. Adam
Jennifer Anderson Love this site! However, I did notice that I get notifications saying "Jane Doe commented on your profile update"... and when you click on it, it's actually ... Read more
Jennifer Anderson Love this site! However, I did notice that I get notifications saying "Jane Doe commented on your profile update"... and when you click on it, it's actually someone else's profile update. No complaints at all, just trying to give an example of what I think Ole was trying to say.
Adam Pick Hi Jennifer, Thanks. Is that error happening just for the profile updates notifications?
Ole Bore It appears so. And only if someone comments on the profile update. It will say "Adam commented on your profile update"
Sorry I would have posted a screenshot had I been on a computer.
Terrie Syvertsen posted a note for Adam that says:
Hello Adam,
Received a note from Robin Szymanski who Is celebrating her 2nd.yr. Anniversary of
her surgery today back in the Hospital and thought I would mention it to you as I already noted it in the updates in my journal today as She sent the message out that prayers would be appreciated by her! Thought I would mention it to you as I have the rest of the community as I am sure a word from you would go along way while they are checking her out and running their tests. Thank you for your time. Terrie
Adam Pick Thanks Terrie. I just left Robin a note in her guest book. My thoughts are with her during this very challenging time.
On January 24, 2015...
Amy DiGiovanni Noack posted a note for Adam that says:
Hi Adam, I just read your response to Damian and I'm wondering how both your pulmonary and replacement valve are doing 9 yrs later? Is your pulmonary functioning at normal capacity in the aortic position? Do you ever feel and side effects? Thanks for any insight:)
Adam Pick Hi Amy, Great questions. After my Ross Procedure, both valves -- the replacement aortic and pulmonary -- are functioning incredibly well. I feel no side effects. ... Read more
Adam Pick Hi Amy, Great questions. After my Ross Procedure, both valves -- the replacement aortic and pulmonary -- are functioning incredibly well. I feel no side effects.
The key with the Ross Procedure is to find a very, very, very experienced surgeon to perform the operation -- as it is very complex.
Interestingly, I think I may be in the best shape of my life, having just completed a fun health challenge with my neighbors.
Last night, I drove up to my house after a very, very, very lonnnnnng day of work. The past twelve hours were filled with hundreds of emails, several conference
Amy DiGiovanni Noack Thanks Adam! That's so reassuring to hear. I'm hoping I have the same outcome and longevity with my new quilted heart!...I picture a bunch of patch work when ... Read more
Amy DiGiovanni Noack Thanks Adam! That's so reassuring to hear. I'm hoping I have the same outcome and longevity with my new quilted heart!...I picture a bunch of patch work when I see the diagrams and it makes me think of a quilted blanket!!
My best to you!
Adam Pick Great. By the way... Excellent job finding Dr. David. He is a valve guru! :)
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