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Diagnosis: Aortic Regurgitation, Aortic Stenosis, Bicuspid Aortic Valve

Member Since: March 25, 2025

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Mona G posted an update

1 year ago (May 9, 2025)

Hi I tried to reach Mount Sinai Hospital multiple times to get second opinion on my bicuspid valve. No one calls back. Do they only accept referrals? I live in North Carolina. Do any of you know if any Doctor in/near NC who's got experience in Ross Procedures?

Jan Persico

1 year ago (May 9, 2025)

Mona. Good morning. I live in NC as well. I travel to the Cleveland Clinic for my cardiac care. Do a physician search with the parameters of Ross procedure. Good luck. Keep us posted.

Valerie Allen

1 year ago (May 9, 2025)

There is a SurgeonFinder on the top right menu. Ross procedure is specialized so you want to choose carefully, as you probably know. There are others on here who have experience at Mt Sinai who can answer on that. Best wishes!

J Alexander Lassally

1 year ago (May 9, 2025)

I've heard from several that Mt Sinai is losing steam now - not calling back.

Adam Pick

1 year ago (May 9, 2025)

Hi Mona, I just reached out to Mount Sinai for you. They suggested you contact Dr. Ismail El-Hamamsy at the phone number of (516) 260-4180. So you know, Dr. El-Hamamsy is their Ross Procedure expert. Hope that helps! 👍

Mona G

1 year ago (May 11, 2025)

Thank you so much Adam! I will give them call tomorrow!!

Robert Miller

1 year ago (May 13, 2025)

My opinion is that if you can't get any info before, forget about getting help/info afterwards. It's possible that it's an issue how they handle inquiries and the doctor is very responsive. But check with users that use the same doctor to find out.

Mona G

1 year ago (May 19, 2025)

Hi Robert that's true no luck so far

Mona G

1 year ago (May 19, 2025)

Hey Adam I tried calling the number you gave me. They said someone will call back but no one did. My cardiologist even placed referral to mount sinai. No one called me so far.

Adam Pick

1 year ago (May 20, 2025)

Hmmm. I would call it again. (516) 260-4180.

Mona G posted an update

1 year ago (March 25, 2025)

Hi All My name is Mona. I'm 32 years old with 9 month old baby. I'm born with bicuspid valve. I never had symptoms but got tired easily. My aortic stenosis got worsened during pregnancy and post pregnancy I had heart failure. I recently got MRI done and doctors suggested... Read more.

🥰 Kimberly Eisenhut reacted to this

Darrell Malone

1 year ago (March 25, 2025)

Hello Mona. Many people on this site have had Ross Procedure including myself. I was hoping for this Procedure so I didn't have to be on blood thinners I am active. Others can chime in with there experiences. For me I am very happy with my decision. I would also... Read more.

Kimberly Eisenhut

1 year ago (March 25, 2025)

Mona, welcome to our community! I hope you find all the support and answers to your questions. I have not had surgery yet, but will have you in my thoughts and prayers. Please keep us posted as you mpve along with your journey and enjoy every moment with your precious... Read more.

Deena Z

1 year ago (March 25, 2025)

Hi Mona, there is a strong fairly tight knit group of young adults, such as yourself, on this website that have had successful ROSS procedures. Knowledge is power! If you go to the search box on the top of the web page and enter "Andrew Dial" you will see he... Read more.

Grace Mason

1 year ago (March 25, 2025)

Hi Mona, I chose a Ross procedure for my surgery in September of 2023. I am happy with my choice. I do not have to take blood thinners or aspirin. I had both stenosis and regurgitation, as well as, a 5 cm aneurysm. Recovery from a Ross is pretty much... Read more.

JOHN DANGELO

1 year ago (March 25, 2025)

Hi Mona, 33M over here in a similar boat. I am planning to do with the Ross Procedure, but it's a highly specialized surgery so I'm flying to Los Angeles (USC Dr. Starnes) for the operation.

Susan Lynn

1 year ago (March 25, 2025)

Mona - It's definitely an individual choice, but at your age - maybe with more children in your future- you'll want to look into the Ross procedure. Good luck with your research and decision.

Mona G

1 year ago (March 25, 2025)

Thank you all for your response. I truly appreciate it!! I want to take that extra 1% risk and go for Ross but all the doctors in India I spoke to and my doctor here in US suggested Mechanical valve as I won't need another surgery later down the road.... Read more.

Valerie Allen

1 year ago (March 26, 2025)

Remember. A specialized center is best for a Ross. They would also be the ones to tell you if you are a candidate. I don't recall Duke being on that list but I could be totally wrong! Dan Fouratt had surgery at Duke I think, but for a different heart... Read more.

Dan Fouratt

1 year ago (March 27, 2025)

I had surgery for valve replacement at Duke with Dr. Gaca. He never mentioned the Ross procedure. For a valve replace he was great. here is a link to their Ross Program: https://physicians.dukehealth.org/articles/ross-procedure-restores-patients-life-expectancy Here is another website for the Ross procedure: https://therossprocedure.org/ross-procedure-surgeons/ Dr. Beckerman is listed in it. As you... Read more.

The Ross Procedure Restores Patients' Life Expectancy

https://physicians.dukehealth.org/articles/ross-procedure-restores-patients-life-expectancy

Pioneered 60 years ago, the Ross procedure, moving the pulmonic valve into the aortic position, is the only aortic valve replacement that restores patients' life expectancy to that of the general population.

Susan Harris

1 year ago (April 3, 2025)

If you want to have more children, Ross or tissue valve are your choices. My understanding is that its not impossible, but very difficult, to have a child w a mechanical valve and blood thinner. Tissue valve will need replacing (another surgery) and in younger patients, they don't last as... Read more.

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