Lori's Posts

Hi Lori, I’m sure that we have had some patients from Bakersfield here. FYI, I’m not that far from you in Los Angeles. Can I help? Also… You just gave me an idea. What if we created a way that patients in our community could search for other patients by location?

I like that also! I have a very hard time finding tricuspid surgeries. Also would like to find people who may have had complications like mine as well. Recurrent pericarditis, taking Rilonacept, Junctional arrythmia, etc. Instead of just posting a note into the "void" asking these questions we can type in what we have and connect with someone with same or similar issues or questions. Thank you so much for helping us Adam! I just spoke to my surgeon, Dr MaLaisrie yesterday from Northwestern Bluhm Cardiovascular Institute and my actual repair is still doing well. It is just all of my complications and ongoing accelerated junctional arrhythmia that have me struggling a lot! Also talked about possibly needing a pacemaker at some point if nothing else works for the arrhythmia. I wonder if you have done a interview about any new ways of placing a pacemaker, as since it is my tricuspid, I would not want to go anywhere near it with a pacemaker or wire for it. I am wondering about advancements in that area.

I think that would be a great idea. I am 67 in pretty good shape and diagnosed with mvp with severe regurgitation that I am meeting with surgeon Dr. Khwaja and I just wanted to find out if anyone has had this surgery with him in bakersfield. he is the director in frenso heart hospital but contracted with Kaiser.