Lacresia's Posts

Diagnosis: Aortic Stenosis, Bicuspid Aortic Valve

Member Since: April 28, 2024

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Lacresia Falls posted an update
2 years ago (May 2, 2024)
What does (or did) your hospital packing list look like? I will be flying from Arkansas to NYC for surgery. We will have about a 2 week stay in the city before we fly back home. I have never flown, but what should I put on my list to pack?... Read more.
2 years ago (May 2, 2024)
A long phone cord, 10 feet worked well for me. Slippers to walk in. I think most of the ladies preferred pj bottoms. I was fine with just the gown until it was time to go home. Bring some clothing that is larger than usual and comfortable. I couldn't fit... Read more.
2 years ago (May 2, 2024)
Also cough drops, gum. Toothbrush.
2 years ago (May 2, 2024)
It was recommended to me to bring salt free saltines, possibly a close in the front bra, unless they provide, earplugs or better yet noise cancelling earbuds. Chapstick. Oversized clothes that close in the front.
2 years ago (May 2, 2024)
Ear plugs for the first few days in the ICU helped me. ICU's are loud in general.
2 years ago (May 2, 2024)
Several things I had in my bag for the hospital: Computer, phone and chargers I brought pair of back up glasses small bottle of mouth wash in addition to the toothbrush Entertainment, ear pods for music, magazines, book (I could not focus enough to read a book), had an audio... Read more.
2 years ago (May 3, 2024)
Good to know
2 years ago (May 9, 2024)
Thank you all!!!! I'm ready to get this over with and have it behind me!
Lacresia Falls posted an update
2 years ago (May 1, 2024)
I think I know the answer to this… but my surgery is June 20th for Aortic Stenosis due to BAV. I am sooo tired. I can sit down and literally fall asleep. As long as I am up moving I do ok, but I am really struggling with motivation to... Read more.
2 years ago (May 1, 2024)
I cannot provide advice for fatigue. I did find the lead up to surgery more difficult then post surgery. In anther string you talked about high protein diet. Not sure if it will help now but I did go one one before surgery and never experienced fatigue. For guidelines my... Read more.
2 years ago (May 1, 2024)
I'm sorry I don't have advice for avoiding the fatigue, but if you are able I would just listen to your body and go ahead and take the nap it wants. I recently had surgery at Mt Sinai and believe you are going to one of the best.
2 years ago (May 1, 2024)
These are some low impact things that helped me: deep breathing, wiggle toes and fingers, stretch your limbs if you can, and hydrate (without caffein or sugar). I think the key is to improve your circulation and make sure your brain is getting enough oxygen. Sometimes you do need to... Read more.
2 years ago (May 2, 2024)
There is fatigue before surgery and fatigue after surgery and maybe your body needs the rest and you need to sink into it. I hear you. It's hard. Especially if you were very active before. I never stopped drinking coffee and was never told to. Perhaps you can still allow... Read more.
2 years ago (May 2, 2024)
I'm there too Lacresia, and I'm really just resting when I feel I need to, not stressing about it. Some days I have more energy than others. I've discovered that on days that are busy (like Mondays when I take my brother to a day program), that I won't expect... Read more.
Lacresia Falls posted an update
2 years ago (April 29, 2024)
I am 50 days out from surgery. And so far my nerves aren't too bad. I am anxious to get it over with and be on the road to recovery! I have 4 children and live on a farm, so I am busy planing everything for them while I am... Read more.

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