Scars fade. Time passed. Indeed, heart valve disease and the fight for my life is a part of who I am. I'm encouraged by everyone's stories here. We fear ...Read more
Scars fade. Time passed. Indeed, heart valve disease and the fight for my life is a part of who I am. I'm encouraged by everyone's stories here. We fear what's involved with surgery. We support one another. as we research options. And then we celebrate our recoveries. Here's to celebrating each other - and celebrating our restorative health.
Susan Lynn Happy Second Anniversary, Joshua! Wishing you many, many decades of future celebrations!
Deena Z So nicely said, Joshua. We are bonded by the common experience that we all journey successfully thro ... Read more
Deena Z So nicely said, Joshua. We are bonded by the common experience that we all journey successfully through. The human touch made all the difference in the world. You made my morning. :)
Congratulations Joshua. Well said. Continued good health and God bless you
Joshua Nowack Thank you everyone for your kind words. Gd bless and continued health to you all.
Well, today is 90 days. While I'm still a little sore, yesterday I ran my first running race in quite some time. My time was not my personal best but I far ...Read more
Well, today is 90 days. While I'm still a little sore, yesterday I ran my first running race in quite some time. My time was not my personal best but I far exceeded my expectations. I've heard of the couch to 5k apps and they usually work in a 3 month period. Well, I went from open heart (min invasive/Da Vinci) mitral repair to 5k in 89 days. I'm looking forward to running a half marathon by year's end. Feeling great.
Tom McDonald Joshua,
Awesome progress, continued success in your recovery.
So I’m five weeks post mitral repair. I’ve had three weeks of cardiac rehab and it’s amazing how quickly I’m recovering. Took a slow jog tonight. My ...Read more
So I’m five weeks post mitral repair. I’ve had three weeks of cardiac rehab and it’s amazing how quickly I’m recovering. Took a slow jog tonight. My first since diagnosis in February. It felt so great to break into a stride. Jogged two miles - slow pace - after all it’s a little warm even after dusk. Anyway - still have my eyes on 13.1 mid October. Keep heartstrong all.
Marie Myers Great to hear! It is amazing how our bodies heal...
Joshua Nowack Thanks, Marie. Yes..our bodies are downright amazing.
Tracy Fallu Ahhhh, the joy jogging brings, I remember that moment.
My discharge instructions included "walk as much as you can tolerate." Now, prior to diagnosis, I was running 25 mi per week, but that was in February. Anyway, ...Read more
My discharge instructions included "walk as much as you can tolerate." Now, prior to diagnosis, I was running 25 mi per week, but that was in February. Anyway, 7 days post-op. I set out to go for a walk. My goal for the day was five total miles, adding one more mile from the day before. I walked to CVS. Seemingly, I can't get back on a normal sleep cycle I am not comfortable sleeping on my side yet. So a little bit of AmBien might do the trick. I then proceeded to walk for about the next two hours, blowing past the five mile goal straight to six miles. Never once did I wind. I have this recovery playlist which brought forth the desire to sing on the streets in my loudest, raspiest voice. I'm still raspy from the tubes. And who needs the incentive three balls thing when you can sing to pump out the lungs. Anyway, by the time I was done, I had walked, sang, danced and acknowledged God above for what seems to be a graceful recovery. Sure, there's more to do. A bit of incisional soreness and fatigue, but I'm doing really well. Love to you all on your journeys.
Carlos Banuelos That’s great! Really glad you’re doing well. About to go for a long walk myself right now. I ... Read more
Carlos Banuelos That’s great! Really glad you’re doing well. About to go for a long walk myself right now. I’m 15 days out and not winded at all when I walk or do stairs. My sleep is off as well. It’s hard to sleep soundly when idle (other than walking) during the day. My body is used to more. How’s your resting heart rate post vs pre surgery? I’ve noticed mine is now in 70s/80s whereas pre surgery it was always in 60s. Hoping this will eventually get back to normal. I’m guessing body is still processing a lot.
Joshua Nowack My rhr was 58. I’m now at 62. But admittedly I didn’t wait at all to start walking. Have you star ... Read more
Joshua Nowack My rhr was 58. I’m now at 62. But admittedly I didn’t wait at all to start walking. Have you started or looked into cardiac rehab, Carlos?
Thomas Brusstar My resting heart rate seems permanently higher by 10, like from high 50s to low 60s, up to high 60s o ... Read more
Thomas Brusstar My resting heart rate seems permanently higher by 10, like from high 50s to low 60s, up to high 60s or low 70s. One of my older brothers had a mitral repair like 6 years ago, and he says his heart remains faster, from like 50 to 70. It isn't a problem.
Carlos Banuelos I meet with my cardiologist on Tuesday and will definitely ask about the heart rate, cardiac rehab an ... Read more
Carlos Banuelos I meet with my cardiologist on Tuesday and will definitely ask about the heart rate, cardiac rehab and getting off beta blockers. I’m 15 days post surgery and I think someone told me cardiac rehab wouldn’t start until 5-6 weeks post surgery. I walked about 11,000 steps today and tonight my rate was in the 90’s then finally slowed in bed to low 80s/high 70s. It’s just much faster than what I’m used to, plus I can hear a prominent beat with the on-x valve. I’m sure I’ll know more next week. Until then, every day is a little better so no complaints.
Mike Roskowinski Nice job Joshua. Before surgery my resting heart rate was in the 50's mostly and sometimes in the 60 ... Read more
Mike Roskowinski Nice job Joshua. Before surgery my resting heart rate was in the 50's mostly and sometimes in the 60's. Now since surgery I am in the 60's mostly and lower 70's. Problem is that I also have a pacemaker that does not allow me to go lower than 60 but I need that adjusted. I was told that your heart rate would get back down but it is going to take some time to happen. Since your heart went through lots of trauma and also getting used to the new valve. Just like anything with this surgery it is just going to take some time to get back to normal! Keep on walking and you will get there soon.
Richard Buckley My RHR is 5-10 beats higher than pre-surgery too. It has come back toward the before levels but not a ... Read more
Richard Buckley My RHR is 5-10 beats higher than pre-surgery too. It has come back toward the before levels but not all the way. I'm 11 months post mitral repair.
rich monoson Joshua, just read your update. How was your experience at Cedars? I had a great one there. Sounds lik ... Read more
rich monoson Joshua, just read your update. How was your experience at Cedars? I had a great one there. Sounds like we both tore up that 6th floor. Great nurses and assistants. A great crew up there.
Susan Lynn Incredible progress, Joshua! I found a good playlist to be key, too! Yes - walking and singing defi ... Read more
Susan Lynn Incredible progress, Joshua! I found a good playlist to be key, too! Yes - walking and singing definitely beat that spirometer! I highly recommend cardiac rehab if you have the opportunity to attend. All the best! ❤
Rob Sparling So cool! Congrats! Keep pushing. I did not ever imagine walking as much as I did as quickly as I di ... Read more
Rob Sparling So cool! Congrats! Keep pushing. I did not ever imagine walking as much as I did as quickly as I did and you (and many others!) are blowing those milestones out of the water! Way to go!
How fascinating that I’m walking. Little pain. If any. Just tired. They’ve pulled most of the lines out by now and are talking discharge for the weekend. ...Read more
How fascinating that I’m walking. Little pain. If any. Just tired. They’ve pulled most of the lines out by now and are talking discharge for the weekend. The care here is just downright unbelievable.
Joshua Nowack Thanks Kathy. I’m humbled by the support of this team and beyond touched by the CS team.
Susan Lynn Joshua - Glad you're up and around. I'll be anxious to hear about your robotic procedure when you'r ... Read more
Susan Lynn Joshua - Glad you're up and around. I'll be anxious to hear about your robotic procedure when you're feeling up to it. Hope you're back home this weekend. ❤
Jeff Baker Nice to hear you are doing well Joshua. I'm hoping for a successful Mitral Valve Repair myself.
Jeff W Congratulations! I got on today specifically to check on your progress. Glad to hear you’re doing ... Read more
Jeff W Congratulations! I got on today specifically to check on your progress. Glad to hear you’re doing well! One day at a time 😊
So one day post op. Went for a little walk. Yeah this morning was a pinch uncomfortable. But closing out the day, I'm in really good shape. One step at a time ...Read more
So one day post op. Went for a little walk. Yeah this morning was a pinch uncomfortable. But closing out the day, I'm in really good shape. One step at a time folks. Feeling good team. Thanks for your continued support.
Susan Lynn Excellent news, Joshua! Wishing you continued success! ❤
So I’ve checked into cedars. I’m in the waiting area not even back on the floor yet. Definitely some nerves here. As much as I know that all will go smoothly ...Read more
So I’ve checked into cedars. I’m in the waiting area not even back on the floor yet. Definitely some nerves here. As much as I know that all will go smoothly and with grace - fear is present for me. But as I’ve shared with so many - when today is done - I’ll be on recovery’s path. There is no chemo. There’s no remission. Today’s story will be a happy one. Thank you all for your continued support.
Erik Jensen Amen Joshua. Today will be a good day. You've got us all here cheering you on!
Joshua Nowack Thanks all. I’m prepped and ready. I’ve got this.
Nicole DuPont You’re in great hands and there’s nothing to worry about. Many thoughts for smooth sailing are w ... Read more
Nicole DuPont You’re in great hands and there’s nothing to worry about. Many thoughts for smooth sailing are with you.
Mike Roskowinski Thoughts and prayers are with you Joshua. The waiting is over and now it is time to move to the reco ... Read more
Mike Roskowinski Thoughts and prayers are with you Joshua. The waiting is over and now it is time to move to the recovery side. Hope to hear from you soon!
These past few months have been quite the journey. Perhaps, I took my health for granted? Heck, I guess although journey started three years ago, realizing ...Read more
These past few months have been quite the journey. Perhaps, I took my health for granted? Heck, I guess although journey started three years ago, realizing that I needed to drop some weight. My dad had his first heart issues when he was 48. So I resolved to losing weight and took up running on my 40th birthday. Ran my first 5k. 5Ks became too quick and I started kicking up to10Ks. And then a 10K I wanted to run was sold out and committed to the half marathon. I dropped 50 pounds and have kept them off for he most part. I've put a few pounds since my diagnosis in February but am confident that with recommitting to diet and exercise the weight will fall off again.
Anyway, I have a burst of confidence. My angiogram was last Monday. I really wasn't looking forward to it. But, it was a whole lot of worry for no good reason-as if there's ever a good reason to worry? Anyway, I was really happy with how Cedars worked with me on the angiogram. And sure, mitral repair is a different ballgame than an angiogram, it was enough from calm my nerves for Tuesday.
Yes, I have my concerns. But Dr Trento was supremely reassuring. I guess myreisiduals are getting some sedatives before the party starts, which I know they'll do. The other thing is being weirded out when I wake up with tubes hanging out of me. I figure I'll be too happy be alive and medicated to care. So I not focusing on it. I caught myself watching a lot of the videos regarding the procedure. Finally I cut myself off and said enough. All is fine and perfect. Tuesday will be seem less, peaceful and the best possible experience. I look forward to waking up and being able to really resume embracing life. I've had many setbacks over the past 18 months that are not medically related. So I'm just eager to finally be able to really rebuild and move forth. So with that, I'll close this journal out realizing that it's just two days out. Between now and then, I get the amazing opportunity to celebrate my son's 14th birthday.
So blessed.
Susan Lynn Joshua - You're going to be just fine. Dr. Trento is one of the most experienced valve surgeons in ... Read more
Susan Lynn Joshua - You're going to be just fine. Dr. Trento is one of the most experienced valve surgeons in the world. My surgeon did a minimally invasive mini- thoracitomy for my mitral valve repair and it was painless! When I was asked about my pain level throughout my hospital stay, my answer was repeatedly zero. Believe me - you can do this. Wishing you all the best! ❤
Marie Myers You sound perfectly ready for your journey. Wishing you a smooth trip through surgery and recovery!
Thomas Brusstar Eh, waking up won't be bad. Assuming you wake up while the breathing tube is still down your throat, ... Read more
Thomas Brusstar Eh, waking up won't be bad. Assuming you wake up while the breathing tube is still down your throat, it's OK. It's weird not being able to talk (hand signals and spelling letters in the air worked for me), but there was no particular pain. I just had to tell them to suction out around the tube, since you cannot swallow, and to put lip balm on. It's nice once the tube is gone, that's for sure. Every tube and wire they remove is a nice sign of progress. Your arms will be tied down when you wake up, because some people unconsciously try to yank at tubes or wires while still groggy -- don't be freaked out at the "soft restraints," they will un-do those as soon as you're conscious and ready. Past that, it's just trying to manage the pain in the first 48 hours, after which mine was fine just on Tylenol. (I think most of my pain was localized to where the chest drainage tubes were exiting under my rib cage, so when those got yanked a day later, everything started feeling better fast.)
Standing and walking a bit are surprisingly difficult those first few days, then it will get super easy. Remember, you'll be kind of anemic post-surgery: they don't like to transfuse unless they have to, so you will be short some red blood cells for a few weeks until you re-build, so easily winded. Not a problem, just good to remember that there's a simple reason why minor exertion is tough that first week. Don't worry, you're at one of the world's great cardiac centers. I'm a year after my mitral repair, and it's all great.
Thomas Brusstar BTW, my son just turned 14 in May. My wife and I agreed he didn't need to see me in the ICU still in ... Read more
Thomas Brusstar BTW, my son just turned 14 in May. My wife and I agreed he didn't need to see me in the ICU still intubated etc., but he came to visit me in the stepdown room the next day when I could sit in a chair and let him share my dessert with him. He knew it was a serious surgery, but I didn't want him to have the slightly terrifying image of his dad lying comatose and stuffed full of tubes (I had that when I was 30, and still remember it). You can do as you want, but by the time he saw me 30 hours post-surgery, I was pretty chipper.
Joy Vera Best wishes, Joshua. You do sound prepared.
Joshua Nowack Thanks, all. As my surgery is a bit of a haul from home - my boys (14 and 10) won’t see me until Fr ... Read more
Joshua Nowack Thanks, all. As my surgery is a bit of a haul from home - my boys (14 and 10) won’t see me until Friday. And yes we agreed it would be terrible to see me within the first day or two until I regain some strength. I look forward to posting my progress.
Joshua Nowack Susan. I really look forward to that. I’ve had the pretty consistent chest pressure for about two m ... Read more
Joshua Nowack Susan. I really look forward to that. I’ve had the pretty consistent chest pressure for about two months now. I can’t for that to be gone.
Jeff Baker Joshua, your going to do great! I have had shortness of breath symptoms for the better part of a yea ... Read more
Jeff Baker Joshua, your going to do great! I have had shortness of breath symptoms for the better part of a year and am looking forward to breathing normal again.