Jan's Journal

Carmen P  Pain pills work wonders for travel.  Traveled home after surgery by car in 2016 and by plane last August.  Orlando to Destin by automobile and Cleveland to Destin, with a change in Atlanta in August.  
I noticed that your valve was first replaced 8 years ago.  Ditto.
The second time around was harder than the first, but you will get through it.  Good luck and definitely go to Cardiac Rehab.

Ana Brusso  Congratulations Jan, you look amazing. Safe travels home and continued good health. God bless you 🙏❤️

Sue Maize  Wow, you look incredible Jan! Way to fight like a girl! 😁🩷
prayers for continued smooth recovery and a comfortable trip home! 🙏🏻

Sue Maize  Wow, you look incredible Jan! Way to fight like a girl! 😁🩷
prayers for continued smooth recovery and a comfortable trip home! 🙏🏻

Fidel Martínez Ruiz  Hey Jan, I´ve read in medical papers a premature structural failure in one bioprosthetic valves brand. I see in the guidelines report of the American College of Cardiology(ACC/AHA) that ViV TAVR is considered a
reasonable  treatment for bioprosthetic valve failure in patients
with high surgical risk. If you don´t present that risk, open surgery is suitable. Anyway  the two options are open. Best regards.

Jan Persico  Thank you Fidel. Having a TAVR CT Scan next week to determine if I am a candidate for the VIV TAVR. Fingers crossed. 

Jan Persico  Fidel, unfortunately I am not a candidate for the ViV TAVR. Back to Cleveland for a sternotomy on June 20. Defective valve taken out and replaced. Not looking forward to it, but know I will feel better. 

Grace Mason   I saw someone previously starting a conversation about this. I'm sorry I cannot remember which member, but maybe they will see your post. Or repost again and maybe someone with some information will respond.

Kathy Blank  Great news Jan! I started my rehab on exact same day. Reassuring to have heart vitals monitored during the session!

Tracy Simmons  Great progress. When I went through cardio rehab I felt the very same way - a great, safe place to start exercising again with your vitals being monitored.

Rita Savelis  Hello Jan. You describe it the way I felt it. A month seems like a long time and yet it's a short time too.
I was exhausted for many months.
Your body is still slowly recovering.... and increasing beta blockers can add to tiredness.
Go easy on yourself. Recovery isn't a race.
Take care.

Jan Persico  Thanks Rita. I do know it's a marathon and not a sprint! But I feel a bit impatient with the whole healing process. Since I had a mini thoracotomy, I thought I would be further along. A rib did have to be broken and that is still a bit ouchie ( it was screwed back in with a metal plate). I really appreciate the support and the reminders! ❤️

Rita Savelis  Those "mini" procedures can be tough. A broken rib is more painful than a cut sternum. No question. And screwed back in with a metal plate? Ouch...
I hear your impatience. When can we feel "normal" again?!?
So now I wish you a speedy recovery!

Cathleen Weed  Hi Jan ❤️
My hospital checklist as a patient: eye mask and earplugs (if you want to sleep at all lol), travel pillow (like you use on an airplane---works better than the hospital pillows when you're propped up --- make sure it has a clean cover on it), pajamas for when you are moved to your own room (needs to unbutton in front and with short sleeves so they can access all your lines), Icy Hot for sore muscles (will keep your neck and back from tightening up), Listerine (because anesthesia and all the meds leave a metallic taste and hospital mouthwash is useless), and antibacterial hand wipes (for face and arms etc -- makes you feel so much cleaner), a smile, and a sense of humor (very important) 💛, and your stamina because you'll need to get up and walk, walk, walk as soon as possible -- walk A LOT in the hospital, it will spare you from many heart related complications that are caused by being immobile ❤️. Everything else they provide is fine and you'll be too tired to care 😊
Best wishes!
xo Cathleen

Kathy Blank  Jan- stay positive and focus on the fact that you have done everything g in your power to be prepared for successful surgery! I just had my robotic mitral valve repair yesterday and was so happy to have my eye mask! Keep us posted!

Catie B  I adored the Cleveland Clinic nurses in the ICU. Can't have your phone in there, but once you step down, you'll want your phone charger. :) Asking for anti-nausea meds helped me much. The food will be heart-diet, a little bleak. I had to ask for a heart pillow--it will help when you need to cough or sneeze. I told myself many times, "This is not their first rodeo" and they indeed seemed to be prepared for all contingencies. Best to you!

Phyllis Petersen  Yes, ask for anything you need. They really were great at CC. I had to ask for my heart pillow too (ask housekeeping; they know where they are), but Catie is absolutely right: it really helps when you cough. I also needed a surgical bra and heat for my achy back, plus pudding in the middle of the night to take oral pain meds, all of which they were happy to give me. They really do try to make you as comfortable as possible. They even "brushed" my teeth in ICU with this rough sponge thing and paste that could be swallowed. Don't tell anyone, but I had my sister smuggle in some salt from the cafeteria, which made the food much more palatable, just don't overdo it. You need to get rid of the excess water from surgery. Tell your family that the omelet station in the caf is awesome and reasonably priced. Also, there is coffee and tea in a small kitchen on the stepdown unit. Plus a refrigerator for patient/guest use (you need to put patient name and date on items or they will get thrown out). The hospital has body wipes for cleaning until you can use the shower.