I've been keeping myself busy as I work up to my surgery date (tomorrow!!) by crocheting this doctor doll for my PCP Dr Kristy Magee. She's the one who heard the murmur that eventually led to my life-saving surgery. I'll give it to her in a few weeks si
Journal posted on February 15, 2017
Cardiac cath tomorrow and then MV repair on Friday the 17th. My mom and sister are coming in to help with the kids (11 and 18). They will stay in a hotel so my husband doesn't have to play host while I am inpatient. Going to spend a lazy day today and go out for a nice family meal tonight.
Tomorrow it all starts.
Everyone calls me Wonder Woman because as a child, my husband said when he grows up he's gonna marry Wonder Woman. So you will see a strong Wonder Woman theme in my heart valve journal. =\W/=
TEE Test Results
Journal posted on February 10, 2017
My TEE Test confirmed a severely damaged mitral valve and surgery is coming in 1-2 weeks. Cardiac cath first, then MV repair the next day. They are 80 % sure they can repair it. If they have to replace, they will use a biologic so I don't have to deal with blood thinners.
On page 77 of The Patient's Guide To Heart Valve Surgery by Adam Pick...
I was told that I had MVP as a teen. I fainted if I stood too long. I had poor endurance. I was the only patient that my doctor told to add salt to my food. I saw the word "marfanoid" on the medical notes. I went through years of prophylactic antibiotics for dental procedures. Until one day, in the late 90's, I was told that I no longer met the criteria for MVP.
I had another child and 3 more surgeries with no mention of the mitral valve at all. None.
Then at age 51, a few months ago, my PCP says "Why do I hear a murmur?".
I waited until the new insurance year so that I could use my HSA card and things have moved so fast. I had EKG, Holter, echo, resting and treadmill nuclear stress tests performed in my physician's office within about 2 weeks. Very busy.
I couldn't finish the treadmill test. I was just too light headed and felt so much pressure in my right upper chest. So they finished the test chemically. Obviously, I "failed" that one.
The technician said that my doctor would call if he wanted to discuss anything between now and my appointment which was one month away. I got a call the next day.
"Blah blah blah mitral valve prolapse, blah, blah, blah, test at the hospital, blah-blah, heart valve repair surgery". *Record scratch*
So now I am scheduled for TEE on Friday 2-10-17 and I am in a fog, or is it a fugue?