Today is Wednesday December 16th. I had my full Aortic Valve replacement 9 days ago.... I go to the Cardiologist today to have my blood thinner levels checked. They were too low the last time I was there, so they upped my dose AND put me on shots that my wife has to give me in my stomach twice a day. Let me tell you what, I was NOT thrilled about that. In great hopes today that I can discontinue the shots after my results today.
I stopped the pain medication on my own. The side effects were not worth the sleep it allowed me to get.
I have lost almost 20 pounds in the 9 days that have passed. I am not pleased with it, as I feel I look very sickly now. I am sure that will even itself out though and I will feel better once I feel more independent.
My biggest problem being.... I am bored. I have NO desire to watch tv or movies, we are moving so most of the house is packed. I don't want to read books, I cant find any games on my phone or Facebook that keep me entertained more than a few minutes. I am Antsy and grumpy. I am sure this too shall pass.... just venting.
This is going to be a long road......
Did your tastes change? I am exactly 5 days post op today....and ever since surgery I have had this funky taste in my mouth.... no matter what I eat... or drink or brush my teeth.... it wont go away... I only notice it when I try to eat....
Did anyone lose alot of weight right after surgery???
I have a follow up with my cardiologist Monday of course and will address all these issues then also... just curious of I am an oddity or if all of this is normal part of the process
Surgery was successful. They were not able to keep it minimally invasive. Unfortunately they had to open me up all the way. I have a large brand new mechanical aortic valve and I am so ready to be home!! Thank you all for your love and support!
Good Morning everyone! I am up and off to the hospital. My surgery is first thing this morning. I truly hope this worry and fear is normal... I wont lie, I am terrified. TERRIFIED.... BUT I am at the same time, positive and anxious to be on the healing end of things! Part of my worry is the not knowing.... I wont truly know what they are going to do until I wake up and its already done. Either way though I am prepared with what ever they have to do for me to be okay. Thank you all for your well wishes, and prayers today. I put my faith and my trust in my doctors and the powers that be.... I will be strong, and I will be OKAY! Much love to my Heart Valve family here and much love to everyone that has just gone through this, and that are going through this with me today and this week!! <3 WE WILL BE OKAY!
By this time next week I will be in the Open Heart ICU at Buffalo Mercy Hospital recovering from surgery. Today I had pre op... blood draws, ekg, chest xray, and a physical at my surgeon's office.
It feels like just yesterday I found out I even had an issue..... well.... because it pretty much was. Two months is such a short period of time to absorb and process all of this.
I guess it is a good thing, get it done and move forward with healing and getting better.
I will have a minimally invasive "mini aortic replacement" surgery. If they are unable to repair the valve they will replace it with a mechanical valve.
Not only will I be out of work 8 to 12 weeks depending on the surgery they end up completing.... I went to work to find out that I will NOT be getting paid for being out of work.... they changed their "short term" disability to being "optional". I do not carry health insurance through my employer so I was not aware of the change in policies. This stress on top of it all is making this very difficult.
I am positive that I will make it through....I am positive that I will be home before I know it.... recovering and on my way to being 100%.... its just this in between that is hard for me.
My surgery will be Monday December 7th, 7:30am.... first one of the day... please keep me in your thoughts.... 37 years young.... I would have never guessed that I would be writing this chapter in my book...
Here I am, strong, scared, and as ready as I think anyone can be emotionally.... So ready to put this all behind me.
What a whirl wind this process has been. I read through the stories on here and for the most part, it seems, many new of their issue for awhile before symptoms became severe enough to warrant surgery. I had no idea that I had any health issues, let alone ones this serious just 6 weeks ago. In almost a month and a half I have gone from happy go lucky, every thing is honky dory. Now... I am scheduled for open heart surgery December 7th. The road from point "A" and point "B" has been so short. Everything moving so fast. In these quiet moments at night when I am left to my own thoughts it is the hardest. I am doing my absolute best to stay positive. Some moments are harder than others. The ups and downs are INSANE. I am so glad to have this site to be surrounded by such amazing strong people. Thank you all for being here <3 - wishing you all an amazing weekend!
Today I had my follow up appointment with my Cardiac Surgeon. He went over my Angiogram and decided that waiting is not an option. My leak is severe, and my heart is enlarged. I am scheduled for Aortic Heart Valve replacement December 7, 2015..... 5 weeks away. I broke into tears when I left his office. I knew this is what I was looking at... even had a feeling that it would be before the end of the year. A mix of emotions, and being terrified.... may I find strength in those around me.... I am focused on getting past this and into the healing stages... still scared, and sad, and angry, but I am strong.
Today, Saturday October 31st, 2015 I am home resting. Yesterday was my 1st of what I believe may be many medical tests/procedures I will need.
This Angiogram was not what I was expecting. Although I really didn't know what to expect. It was painful, scary, unpleasant, and emotional.
This whole process has been emotional for me. I am scared, and saddened.
Even with all the emotion and uncertainty I am eager to be on the healing end of all this.
My follow up with my Cardiac Surgeon Dr. John Bell-Thompson Monday November 2, 2015 to know what the next steps are.