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Diagnosis: Aortic Regurgitation, Bicuspid Aortic Valve

Member Since: October 31, 2015

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Adrianne Colatosti posted an update
10 years ago (December 16, 2015)
Today is Wednesday December 16th. I had my full Aortic Valve replacement 9 days ago.... I go to the Cardiologist today to have my blood thinner levels checked. They were too low the last time I was there, so they upped my dose AND put me on shots that my... Read more.
Sophia Ridley
10 years ago (December 16, 2015)
I had Lovenox injections to do each evening. I'm a complete wimp when it comes to that so took 40 mins and a bucket of tears so I really feel for you. Can they put you onto tablets shortly? I'm on Rivaroxaban now. I get a little dizzy from the... Read more.
Christine Pittelli
10 years ago (December 16, 2015)
Hang in there. I had surgery a little over a year ago - I had no tolerance for anything accept my two beautiful girls...I just wanted peace and quiet. I actually found myself googling comedians on my phone and laughing (though it really hurt - but a good hurt) was... Read more.
Sophia Ridley
10 years ago (December 16, 2015)
Christine - that's a fabulous idea !
Anonymous, heart valve patient
Anonymous
10 years ago (December 16, 2015)
Great idea about the comedians! I also found that making myself get up and walk in my driveway (and usually in the sun) was helpful and made me feel better. Best wishes to you. I hope you are able to move forward and feel less frustrated soon.
Steven A Husted
10 years ago (December 17, 2015)
yes time will tell you are getting better time is a healer i know i tried to rush it but that did not work best wishes and prayers to you
Mary K
10 years ago (December 17, 2015)
Christine is right, patience will acquire a whole new meaning. Please stay in touch with your doctors about both your weight loss and the pain meds. They may be able to help you with both. Are you walking? It will help immensely. Four to six times a day, building up... Read more.
Emily Rowley
10 years ago (December 18, 2015)
Do you feel irritable and that it is hard to concentrate?
Adrianne Colatosti posted an update
10 years ago (December 12, 2015)
Did your tastes change? I am exactly 5 days post op today....and ever since surgery I have had this funky taste in my mouth.... no matter what I eat... or drink or brush my teeth.... it wont go away... I only notice it when I try to eat.... Did anyone... Read more.
👍 Pamela Hill reacted to this
Sophia Ridley
10 years ago (December 12, 2015)
Yes, it's hard to describe. Also I lost a couple of kilos which seem to have crept back on! I was eating quite normally in hospital, then I went off everything and all I wanted was home comfort cooking. My taste buds recovered a few days later. Do mention to... Read more.
Emily Rowley
10 years ago (December 12, 2015)
Yes, my taste buds eventually returned. I lost weight I never knew I had (cause I'm already near underweight), mostly fluids+I couldn't seem to keep any of my food down.
Enrique K
10 years ago (December 12, 2015)
Hello Adrianne, usually you loose 20-25 pounds after surgery. I didn't experience those symptoms but I do have some sensitivity in my two bottom teeths only when I drink cold liquids. I guess this was because of all the hours with the tube in my mouth. Did anyone experience this... Read more.
Gregg Nissly
10 years ago (December 12, 2015)
Hi Adrianne, I'm 8 days post op and I still don't have much of an appetite, though it's gotten much better since I got away from all the unpleasant smells of the Hospital. And I've lost a lot of weight. I was 147.4 which I haven't seen since college in... Read more.
Adrianne Colatosti
10 years ago (December 12, 2015)
Thank you all. I will be sure to follow up on all my questions and concerns when I go to the doctor Monday morning.... I am glad to hear that these are not rare oddities though...
Michael Meyer
10 years ago (December 12, 2015)
Adrianne: Narcotics also gave me a loss for appetite. I gained most water weight in the hospital. They discontinued the diuretic before I left the hospital and the water diuresed.
Eddie Patton
10 years ago (December 12, 2015)
Yea, that's normal. Took about 5 weeks to get everything close to normal
Anonymous, heart valve patient
Anonymous
10 years ago (December 13, 2015)
I am almost two weeks out and food is tasting better now, but my appetite is still not what it used to be (although this is a good thing because I like food)! :)
Gregg Nissly
10 years ago (December 13, 2015)
One other thing I forgot is that someone told us to buy Lemonheads and suck on one before each meal. I haven't tried it though.
Pamela Hill
10 years ago (December 16, 2015)
Hey Adrianne, I too had my surgery the same day as you. My taste and smell has not been the same since. Anything irritates me!
Adrianne Colatosti posted an update
10 years ago (December 10, 2015)
Surgery was successful. They were not able to keep it minimally invasive. Unfortunately they had to open me up all the way. I have a large brand new mechanical aortic valve and I am so ready to be home!! Thank you all for your love and support!
👍 Eddie Patton reacted to this
Gregg Nissly
10 years ago (December 10, 2015)
Wow! That was fat - only three days. Congratulations. I'll keep you in my prayers.
Enrique K
10 years ago (December 11, 2015)
Hi Adrianne, congratulations on your discharge. Keep on recovering smoothly!
Kelly Weisgarber
10 years ago (December 11, 2015)
Congrats! Hoe you feel stronger every day!
Sophia Ridley
10 years ago (December 11, 2015)
Congrats! Here's to a smooth recovery!

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