Jose's Photos

my phone number is 346-332-6581 if any one wants to reach out to me while I’m in the hospital my surgery isn’t until Thursday here’s a picture of me in my hospital bed I’m just relaxing trying to get some rest and ease the pain from the central line I’ve lost weight from 275 to 245 30 pounds in 3 months my goal is 180 I get my tpvr   Transcatheter pulmonary valve replacement on Thursday February 27th

I’m being admitted to the hospital today a week early for optimization for my kidneys I know I haven’t posted in a while I’ve been dealing with heart failure I hope everyone has been doing well they had a conference about my case and decided to replace my valve through my thigh I’m stressed and nervous about this as there going to be putting a central line in and those hurt when they put them in but wish me luck it just sucks that my pulmonary valve failed 3 years after my Ross surgery but thank god my pulmonary autograft is doing amazing and fine that is such a blessing! I’m going to advocate for myself and make sure they enroll me in cardiac rehab my tip to any of yall always advocate for yourself you know your body the best and if you get any cardiac procedures make sure they enroll yall in a cardiac rehab 
they had to stop the surgery the first time in January they said my heart couldn’t handle the stress of the surgery hopefully this time everything goes well and they don’t have to stop the surgery there doing it the same way 

So it’s been a while since I’ve been on this page but I wanted to give yall an update I’m cardiac procedure done at Texas children’s on January 22nd being admitted the 20th . I’m not going to lie there’s been a lot of crying ever since they diagnosed me with heart failure my lvef is 40% main reason for the tears is the regret that I don’t want to go through the cath and be told I need to replace my pulmonary autograftWhich is my native valve and I don’t want to lose my native valve but like my sister said don’t cry over what we can’t control I’m also having a stent put in the pulmonary homograft since I have severe pulmonary stenosis I will say one thing to y’all don’t take life for granted life is beautiful and I’m so grateful for everything They won’t know if I need open heart surgery until after I get my cath procedure done wish me luck everyone! I’m posting a picture of everything they’ll be doing I just sometimes get overwhelmed had I chosen a regular avr over a Ross I wouldn’t be in the predicament of possibly losing my native valve but I will never regret my Ross procedure 

Hi it's JJ haven't been on the site in a while I've been busy with my health , just arrived in Rochester MN for the mayo clinic for my kidneys, how has everyone been ?
I'll be honest this year has been hard for me with everything going on I'm approaching one year post ross procedure July 5 will mark one year , and I have to say I appreciate all the support I've received on this site and from the heart community getting a Ross procedure and finding the right surgeon wasn't easy but I fought for myself advocated to get the surgery and with the help of this site and Adam I was able to obtain my surgery my autonomy I'm forever grateful for this place this community I've grown as a person and my surgery has transformed my life because at the end of the day it's more than a surgery it's a life your fixing a life your giving stability a sense of normality to long story short this year has been transformative and amazing
I'll never be able to completely thank my surgeon my team for giving me my life back
I'll show my gratitude by living my best life and keep progressive towards a better tomorrow and health ❤️

Had my first drink as a 21 year old lol I'm finally legal turned 21 2 months ago 9/12 I liked the strawberry seltzer the best but not too bad for a first drink made me burp 😄🤠 great way to calm down after a stressful day of travel!

Flying back home finally .

Spend a couple of weeks up in Minnesota for my appointments in mayo clinic !
Feels great to finally be able to go home !
Look a little rough for shape 🤠😄 need to shave 🪒

It's been a eventful couple of months to say the least but I wouldn't change anything I'm glad I put myself first!

Glad to say everything went well with my colorectal surgery yesterday everything has been on the up and up since my Ross procedure my health has improved tremendously I've lost weight and my kidney disease has improved tremendously I guess we can attribute that to increased blood flow to the kidneys given that I have a 30mm pulmonary conduit 😉 and my own pulmonary valve working on the left side .
I just wanna say thank you to everyone on this site that's been supportive in every step of my recovery and just overall a welcoming community where we can share our common goals and struggles!
Thankful for the site Adam has created and cultivating a flourishing community of heart warriors ! 🤠

Hi my name is JJ I had my Ross procedure in mount Sinai about a month ago by Dr Ismail El -hamamsy I've been recovering pretty well im starting cardiac rehab next week any tips on a smooth recovery!