Today is Rare Disease Awareness Day. Mine is Homozygous FH. I am in awe of all of you who battle one of these rare conditions with a smile! Much health to all!
Feb. 6 - I was blessed to have dinner with Barbara Laurie last night! It was amazing to meet her. Barb and I met on this site and I encourage everyone: if you can form a bond with anyone here, it'll be a powerful tool in your journey.
February 1, 2019 - This is all the red I could find: Happy National Wear Red Day to all! This is a day for heart health awareness for women in particular, but awareness is always good for all! Happy Heart Month to all, too!
September 2018 - a great day for a Heart Walk. For all of you who cross the finish line of surviving every day: much health and much stength!
July 2018 - Strolling in Athens, OH and this sign looked relatable. Two movies that read well together.
March 31, 2018: this was SUCH a treat - meeting Shannon in person. Shannon and I met on this site which is, as you all know, an amazing support system. Thank you, Shannon for meeting me half way and sharing your stories and life with me! Much health!
From our hearts to yours: Happy Holidays to all and a great, healthy and happy, New Year!
We are at Tour of Utah in Salt Lake City today, partnering with the BMC Cycling Team to raise awareness for FH. Healthy hearts, all!
July 2017 - 17 mos postop. Altitude has bothered me a lot since my surgery, but I made this today, in a chair lift. Short of breath but survived it! Keep pushing through, everyone!
June - educating the staff of our elected officials on Capitol Hill about Familial Hypercholesterolemia and its impact on the heart. #KnowFH
I get to drive by this billboard every day. It's right off my exit. That's my surgeon. Just a sweet, daily reminder of how grateful I am to him.
A year and 2 weeks post-OHS I took my first flight with the new heart to go on a cruise. Here, I am somewhere on the Caribbean Sea. It was great and my heart did even better because it was not at 4000+ft of altitude. Happy and healthy journeys, all!
February 14, 2017 - a year ago today I was being moved from ICU to a regular room after my OHS. Today, I got this heart from my hubby, to celebrate. I am very moved. Happy Valentine's Day, everyone!
My scar at 8 days - 2 months - 4 months - 1 year. I never used anything to treat it.
Jan. 1, 2017 - it is a glorious day, here, in The Rockies , on The First of the year. I wish everyone a healthy, hopeful, strong and happy New Year!
My 'bionic' heart: you can see the sternum wires, as well as the valve and the ends of the ascending aorta graft. (hashtag)ILivedToTellTheTale
Sept. 2016 - conquering Canyonlands National Park this weekend. This land is really THAT vast! So blessed to have had a good weekend to see it all. Thinking of everyone.
August 21, 2016 - 6 months and 10 days since surgery. Second attempt at camping this past weekend, and unlike the first time, it felt great (so far) to be out there. And yes, the leaves are already changing.
August 11, 2016 - Six month annivesary - Ready for work: six months ago today, I was only hoping that I'd live to see this day. And it's here. Much hope and strength to everyone on this journey!
Five months after OHS, my first ever ER visit this weekend - extreme dizziness, chest pains, low blood pressure (103/41), high QTc (499). I am not sure why I am smiling, because I was pretty scared.
One hot and one cold! - the INR is out of range again (too high), but at least my machine and the clinic's match! Some relief, but still in the roller coaster.
Despite my surgeon's advice, I did get my own CoaguChek kit. It has good reviews for accuracy, and I hope it'll calm me down in between those checks at the clinic. And I am in range! YES!
With an amazing surgeon and an even more amazing human being: my surgeon, Dr. John Mitchell. Forever grateful for this man!!
This weekend I have learned that chipping off a piece of your finger while chopping veggies when your INR is 2.4 will land you in Urgent Care. Be careful out there!!
May 2016 - I hope everyone had a safe and healthy Memorial Day.
15 weeks post-op. In the beginning of this year, I thought for sure I will not plant my garden this year. But today, I planted my tomatoes, some herbs, onions and peppers. Life is truly blessed!
First day at work - my dolly (front and back view) with my daily 'load'. Worked beautifully today.
May 2016 - The first time ever that I climbed the hilly Main Street in Park City, UT all the way to the top, without losing my breath. So grateful!
May, 2016 - I did not think I'd be strong enough to plant anything this year, but I did a couple of pots and boxes this weekend. Challenging, but I made it!
Almost 12 weeks since surgery, and last day in cardiac rehab today. I literally feel like I finished climbing The Everest. So grateful I made it this far!! God is truly good and merciful, you all!
May 1, 2016 (11 weeks+) - Out for a walk today. We live in such beautiful country (UT) and I am so grateful I get extra days to enjoy it!
2 months: showing off my new cowboy boots, in the park, pruning my grapes and my scar. Life is good! So blessed!
Cat and scar: one month and 5 days.
A month and a day - first walk in the park, on a windy, chilly day. Felt AMAZING. (Bridal Veil Falls, UT)
At cardiac rehab: a little happier today, since we only did cardio - my favorite! One day shy of one month.
1st try on strength training today: 1. she is adjusting my band; 2. reaching out above my head on the right was no problem; on the left side, though, I thought my chest would split open. She said I was not ready yet.
My sweet Gypsy watches me like a hawk when I nap. He loves his momma so.
Came in the mail today - on the reverse, it has my name, the type of valve and the serial number of the valve.
Some folks wanted to see the tube, so here it is - it is attached to a small "ball", I think they call it, and it can fill up to 100 ml. You empty the ball periodically during the day. The tube end goes directly into my rib, where the white dressing is.
Feb. 22 - 11 days after OHS during my first post-op appointment.
Day 6 since surgery - with my mom who flew from Romania to be with me. Excuse the messy hair and no makeup. :)
First selfie. Day 3.
I tell you, THIS made my heart skip a few beats this evening. *deep breath*
Pics from today's cath experience: recovering after the procedure, my dreaded IV and my blood pressure cuff: apparently they thought I was a #11 but it was way too big for me.