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Alina's Photos

Diagnosis: Aortic Regurgitation, Aortic Stenosis, Bicuspid Aortic Valve, Coronary Artery Disease

Member Since: January 19, 2016

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My Photos

Alina FH uploaded a photo
6 years ago (February 29, 2020)
Today is Rare Disease Awareness Day. Mine is Homozygous FH. I am in awe of all of you who battle one of these rare conditions with a smile! Much health to all!
👍 Adam Pick, Robert Osmachenko and reacted to this
Susan Lynn
Alina - I'm thinking about getting tested. My parents and siblings all had high cholesterol despite eating a healthy diet. My LDL was 212 at last check. Luckily, I didn't have any heart blockages during my catheterization nor did any of my family ever have issues with their arteries. .... Read more.
Alina FH
Susan, it is always a good thing to be tested if you have had family proof of high cholesterol when the lifestyle was good, in my opinion. Genetic testing is more available now than ever before. I take 80mg of Lipitor, 10 mg of Zetia daily and 150mg injectable Praluent... Read more.
Alina FH
I should also add that my cholesterol is around 600 with no meds and at 224 at the last check, so still not normal. The LDL is 180. Not optimal but the best we can do with the meds I tolerate.
Susan Lynn
Thanks, Alina! I'll check out these resources. ❤
Alina FH uploaded a photo
6 years ago (February 7, 2020)
Feb. 6 - I was blessed to have dinner with Barbara Laurie last night! It was amazing to meet her. Barb and I met on this site and I encourage everyone: if you can form a bond with anyone here, it'll be a powerful tool in your journey.
👍 Adam Pick, Wanda Mroz and reacted to this
Barbara Wood
Great pic! Wonderful to see you both looking so great!
Susan Lynn
Fantastic!!! You both look beautiful. Glad you made a connection and a friend! ❤
Catie B
Beautiful ladies! It's so awesome you met and spent time together! Delighted to read your post and see this lovely photo.
Adam Pick
This warms my heart. Thank you Alina and Barb. You have made my day, my month, my year with this picture. Thank you. Thank you. Thank you.
Barbara Laurie
Hi Alina! We had the best time with you and your hubby, you welcomed us with open arms and it was great to finish all our "heart story" updates! You're in our prayers❣️ Happy 4th anniversary☀️💕💕💕💕
Alina FH
Barb, DITTO!!! Love you! 💕💜💕💜💕💜😘😘
Alina FH
Adam, thank you for a wonderful initiative building this site & community. The lessons I have learned here, the community you created are priceless assets that have made me stronger in my journey with heart disease. Thank you.
Kate Watson
What?! That's so cool!! You both look amazing. I hope to meet you both in person someday!!
Wanda Mroz
You guys look wonderful! I wish I could have been there! Someday I hope to meet you both... hugs💞💞
Alina FH uploaded a photo
7 years ago (February 1, 2019)
February 1, 2019 - This is all the red I could find: Happy National Wear Red Day to all! This is a day for heart health awareness for women in particular, but awareness is always good for all! Happy Heart Month to all, too!
👍 Rita Savelis, Kate Watson and reacted to this

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