Paul's Guestbook

Diagnosis: Aortic Regurgitation, Bicuspid Aortic Valve, Pulmonary Regurgitation, Pulmonary Stenosis

Member Since: February 17, 2016

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Paul Wells got a guestbook from KEVIN RYAN
9 years ago (January 9, 2017)
Paul: I am 59 with bicuspid aortic valve and subsequent stenosis. I am considering a Ross with Dr. Paul Stelzer at Mount Sinai in New York. Prior to this consideration-redirect; I was scheduled to have a standard mechanical or tissue valve installed at Cleveland Clinic. Question(s): where did you have... Read more.
Tough decision. I was 45 at the time. I was sold on the Ross because I was told it would be the only surgery and no blood thinners. The tissue valve implanted in the pulmonic position stenosed noticeable in just a few years. Newer valve types make claims to last... Read more.
Thanks, Paul, for your excellent feedback! This is the issue with the real world....wait long enough and the experts/technology will improve everything. Our issues today will someday be a non-issue. Dr. Stelzer has done over 640 Ross procedures...but admits that the learning curve was steep in the beginning and many... Read more.
Thank you two for your very honest informative posts. It is so hard to know whether one would do it differently as we can never know what the other alternative outcome might have been. But that question/feeling is always there. There are many ways to proceed. Is there any "right"... Read more.
Paul Wells got a guestbook from Judy Spinney
9 years ago (August 14, 2016)
August 14, 2016 Hello, Paul . . . . It looks like biking gets you around the corners. Our son just completed the Leadville 100 (Leadville, Colorado. It is a 100 mile mountain bike ride, starting in Leadville (10,150 feet elevation ) . The event ends in Leadville, too. During... Read more.
Judy ,thanks for your note. I did not have the information I would have like to had before my first surgery ,and not much time. I know more now but what's done can't be changed, and such I have Rollercoaster health and more valve replacements.
Paul: I am about your age and facing aortic valve replacement due to a bicuspid aortic valve and subsequent aortic stenosis. Until your story, I was considering the Ross. I have read that the Ross has been refined a little to include supporting the aorta with dacron; but your experience... Read more.

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