Louise's Guestbook

Diagnosis: Mitral Regurgitation

Member Since: February 15, 2017

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Louise Bevan got a guestbook from Kathy Blank
9 years ago (February 21, 2017)
Louise- hope your appointment went well and that you are getting some clear answers!
Louise Bevan got a guestbook
9 years ago (February 17, 2017)
Hi Louise , My bad valve is the Aortic so I don't know about the Mitral medication/repair/replace options. It strikes me as strange that our symptoms are pretty much exactly the same though. I hope you can get some fast resolution though as I completely understand the level of suffering... Read more.
👍 Louise Bevan reacted to this
9 years ago (February 17, 2017)
Louise, you asked for advice re medication vs operation. For severe mitral regurgitation, medication is not effective as a long-term solution. If the issues you mentioned are caused by mitral regurgitation, then your docs will likely suggest repairing (or sometimes replacing) the mitral valve. Repairing the valve often never needs... Read more.
9 years ago (February 18, 2017)
Thanks Keith, It's really fantastic on here to have people who really understand what you're going through. I plan on being a really demanding patient that they get to the bottom of things tomorrow. They have already diagnosed the problem 5 years ago so given the level of change recently... Read more.
9 years ago (February 18, 2017)
Thanks Steve. I don't know if the approach is any different here but it's useful to hear different peoples experiences and options :)
Louise Bevan got a guestbook from Kim Jones
9 years ago (February 16, 2017)
Hi. I am 40 and just had mitral valve replacement via open heart surgery 2 weeks ago. I feel good, so much better and can't wait to fully heal to really get my life back. My Dr tried to repair the valve but it was not going to last long... Read more.
👍 Louise Bevan reacted to this
9 years ago (February 16, 2017)
Thanks Kim :) it's the unknown that's hardest to cope with. Trying to keep positive and in perspective. Did you notice deterioration in your ability to keep normal and active? That's been the hardest thing for me not being able to exercise as I normally would, and how quickly that's... Read more.
9 years ago (February 16, 2017)
I did have quite a bit of fatigue. I have a gardening business so I tend to be active, plus 8 and 3 year old boys. Fatigue was my biggest complaint.

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