Lorilyn, Please stay in touch, as we are 2 of the very few who can understand what we are going through with Tricuspid being our primary problem. I really... Read more
Lorilyn, Please stay in touch, as we are 2 of the very few who can understand what we are going through with Tricuspid being our primary problem. I really need someone to talk to and I am guessing you are also feeling anxious and having some difficulty grasping this whole thing going forward. We need to stay strong and hopeful. I will know on May 27th when I will need surgery, as this cannot stay severe. My interventional cardiologist, Dr Davidson at Northwestern said he wants to see if the diurectic may help my valve leek a little less before going ahead with surgery. Please stay in touch and I am sending big hugs and lots of love
Kimberly Eisenhut I forgot to ask, what procedure are you having done and what did they say is the anatomical problem w ... Read more
Kimberly Eisenhut I forgot to ask, what procedure are you having done and what did they say is the anatomical problem with the valve they see? I am so glad you posted :) I need a friend here to support and who understands our unique situation.
Craig Howland Hey Kimberly… I have a bicuspid valve with Aortic Stenosis and an Ascending Aortic Aneurysm… Surg ... Read more
Craig Howland Hey Kimberly… I have a bicuspid valve with Aortic Stenosis and an Ascending Aortic Aneurysm… Surgery is scheduled for Wednesday
Kimberly Eisenhut Craig, I will be thinking and praying for you. Please keep us posted and stay strong, you've got thi... Read more
Kimberly Eisenhut Craig, I will be thinking and praying for you. Please keep us posted and stay strong, you've got this!
I also have moderate to severe Tricuspid regurgitation. I have my TEE on Thursday this week to see exactly what is going on and schedule apt with... Read more
Hello,
I also have moderate to severe Tricuspid regurgitation. I have my TEE on Thursday this week to see exactly what is going on and schedule apt with valve clinic at Northwestern in Chicago after that. It is very rare to find someone elase with primary Tricuspid. Please keep in touch and lets support each other in this journey. I look forward to getting to know you better and keep us posted going forward. What are your symptoms and what was the deciding factor for your Cardiologist to go ahead with surgery now? I have been in wait and watch mode for almost 8 years and am now getting some symptoms and the fatigue is getting worse. Thank you and wish you all the best going forward.
Lorilyn Bridges Hi, good to hear from you. Have you been in wait mode with mod to severe TR for 8 years??
Kimberly Eisenhut Yes I was, but now after TEE I am told it has been severe since 2023. I was put on diuretic last week ... Read more
Kimberly Eisenhut Yes I was, but now after TEE I am told it has been severe since 2023. I was put on diuretic last week and will have another TTE (echo) at Northwestern and them see the cardiac surgeon, Dr Malaisrie after my test on May 27th. My insurance will not cover trancatheter repair, so most likely will need to be open heart. How about you? How are you and what is happening?