Alan, Cathleen DeWitt said you might be a good person to ask. I'm Looking for anyone's Post Op experience after having a Mini-Thoracotomy. I'm trying to figure ...Read more
Alan, Cathleen DeWitt said you might be a good person to ask. I'm Looking for anyone's Post Op experience after having a Mini-Thoracotomy. I'm trying to figure out what is best. Mini-Thoracotomy vs. Median sternotomy. Any input would be appreciated. Glad to see you are doing well.
Steve Farthing FYI - Mini-thoracotomy can be done under surgeon's direct vision which requires some rib spreading or ... Read more
Steve Farthing FYI - Mini-thoracotomy can be done under surgeon's direct vision which requires some rib spreading or using videoscopic assistance which can eliminate rib spreading but needs an additional small 5mm incision for the camera. Some docs also place local anesthetic in the incision to reduce pain when you wake up.
HI Alan,
Glad to read that you're doing well! I'm nervous about surgery in the Fall, and I have no symptoms either - which is tough - but your story makes ...Read more
HI Alan,
Glad to read that you're doing well! I'm nervous about surgery in the Fall, and I have no symptoms either - which is tough - but your story makes me feel like it will be better after! I look forward to following your recovery!
Best,
Nancy
Kathleen Mannino Thursday, June 30th. Can't be soon enough. Just having pre op testing exhausted me. Does anyone out t ... Read more
Kathleen Mannino Thursday, June 30th. Can't be soon enough. Just having pre op testing exhausted me. Does anyone out there have a valve from a cow? If so..How's it going?
Ron Broadhead Hi Kathleen - I have a "moo valve". For me its been great. Surgery was 1 1/2 years ago and I am very ... Read more
Ron Broadhead Hi Kathleen - I have a "moo valve". For me its been great. Surgery was 1 1/2 years ago and I am very active every day.
Alan Lonsberry Thanks Nancy, it will be over and done before you know it.
Kathleen Mannino Thanks Ron. I now have my moo valve which is looking right along. Still hear my sternum clicking away ... Read more
Kathleen Mannino Thanks Ron. I now have my moo valve which is looking right along. Still hear my sternum clicking away though and still hurts when I cough and sneeze. Not thrilled with the fatigue though.
Hi Alan
glad to see you are doing so well.. You stated that you went 10 year with severe stenosis and 6 month echoes.. I too have severe stenosis with bicuspid ...Read more
Hi Alan
glad to see you are doing so well.. You stated that you went 10 year with severe stenosis and 6 month echoes.. I too have severe stenosis with bicuspid valve(diagnosed as severe in March after 5 years at moderate) but no symptoms at all.. I am on 3 month echoes.. I do a boxing working out 3-4 days a week and go up and down stairs all day.. I'm wondering what was the "straw" so to say that made surgery the option? I was told that if the stenosis went to critical even without symptoms they would do surgery.. I also am debating mechanical vs tissue.. I am going to be 55 in a couple of weeks.. I don't want another surgery but don't like medications. I see you got a mechanical and are an athlete.. any info is appreciated and continued good recovery and good health. thank you
Alan Lonsberry Hi Civita, I had bicuspid aortic valve regurgitation severe, no stenosis. Yes the doctor told me m ... Read more
Alan Lonsberry Hi Civita, I had bicuspid aortic valve regurgitation severe, no stenosis. Yes the doctor told me my heart was enlarging and that I should not wait any longer even if I didn't have symptoms. He said symptoms could be slight and I mast not even notice them. Well, I am 7 days post op and I feel great, better than in years. As for the meds, no big deal, the inr being higher means you will bleed for a longer period. I can't hear the valve, but my heart beat is smoother, no more skips, or flutters. I don't want another operation, this way there is a better chance of that. I am a nurse, so monitoring my inr will be done by me eventually from home. Feel free to contact me.
Alan Lonsberry Hi Civita, I had bicuspid aortic valve regurgitation severe, no stenosis. Yes the doctor told me m ... Read more
Alan Lonsberry Hi Civita, I had bicuspid aortic valve regurgitation severe, no stenosis. Yes the doctor told me my heart was enlarging and that I should not wait any longer even if I didn't have symptoms. He said symptoms could be slight and I mast not even notice them. Well, I am 7 days post op and I feel great, better than in years. As for the meds, no big deal, the inr being higher means you will bleed for a longer period. I can't hear the valve, but my heart beat is smoother, no more skips, or flutters. I don't want another operation, this way there is a better chance of that. I am a nurse, so monitoring my inr will be done by me eventually from home. Feel free to contact me.
thanks so much.. I feel the same way.. I am leaning towards the mechanical when the time comes. I hav ... Read more
thanks so much.. I feel the same way.. I am leaning towards the mechanical when the time comes. I have an echo in July and we will see what that says. I still feel fine, though I do have the skips every so often.. no SOB, or dizziness etc. As people have said on this site we probably are more compromised than we think but this is our norm and we don't know what we don't know.. I have always "pooped" out faster than most in boxing class ( though not as fast as some that are healthy lol) and have attributed it to not being in the best of shape, but now I know why.. I had no idea I had this until 5 years ago.. thanks again for your help. this has been a priceless group to me.. Its so comforting to be able to talk to people who are in the same boat .. have the same fears and questions.. its so encouraging that all do great.. again speedy recovery and I await your posts of your going back to your running.. Civita
Hey Alan, every time you post a comment I can see it two times/duplicated. Just letting you know. You might want to check with Adam delete/create a new account. ...Read more
Hey Alan, every time you post a comment I can see it two times/duplicated. Just letting you know. You might want to check with Adam delete/create a new account.
Hello Alan, Thanks for the note! I'm 41 will turn 42 in July 18. Age, was not a factor in choosing my tissue valve, it was the limitations that you have with ...Read more
Hello Alan, Thanks for the note! I'm 41 will turn 42 in July 18. Age, was not a factor in choosing my tissue valve, it was the limitations that you have with a mechanical valve. I only take 81 MG aspirin daily and keep a well balanced diet low sodium and lots of vegetables and greens. I discussed this with my cardiologist and surgeon the pros of having the tissue valve vs mechanical and they agreed with me 100%. I'm very active, love skiing, walking all contact sports, love to drink socially with my friend on the weekend and sometimes with my wife at home. My lifestyle is critical to me I asked my surgeon If I'm on a mechanical valve what are my odds of being able to do all that? He told me you would not be able to Ski, do any contact sports or drink any alcohol and would have to limit your Vitamin K intake, Coumadin, check your INR all your life. This was a very simple decision for me on getting a tissue valve vs the mechanical. Since I was very fit at the time of surgery my recovery was very fast. If I would have to do surgery again, I would still get a tissue valve (Freestyle Medtronic Pig Valve). I was also very luck to have minimal invasive aortic valve surgery through the right side of my chest and aorta replacement with a graft so they didn't open my sternum. I wish you the best of luck in your decision. If you need any more input I will be glad to assist.
Alan Lonsberry Thank you Enrique, I appreciate the input.
Alan Lonsberry Thank you Enrique, I appreciate the input.
Alan Lonsberry Thank you Enrique, I appreciate the input.
Hi Alan
I struggled with which valve to get, bovine or mechanical. My surgery is in the middle of May? In the end, I didn't have much of a choice since ...Read more
Hi Alan
I struggled with which valve to get, bovine or mechanical. My surgery is in the middle of May? In the end, I didn't have much of a choice since I have a very small aortic valve and I was advised that bovine is actually too large to insert unless a more invasive, and involved surgical procedure occurs. And, it will need to be replaced in about ten years. I, like you, struggle with the fact that I will have to take blood thinners the rest of my life. I'm an active middle-aged tomboy and can see myself getting cuts and scraps monthly. But, in the end, I don't want a second surgery, so I've opted for the ON-X valve that requires 1/2 the dosage of blood thinners compared to the other mechanical valves. And, I'm scared "you know what" ! But, my surgeon is completely at ease and confident. I cannot tell you which valve to choose. But, it is good that your are researching all the options. I will be thinking of you.
PS: If so many of us fear the Coumadin, we should come together as a group and let ourselves be heard. We should be a voice insisting on further pharmaceutical research be done since there are so Coumadin users. We want a newer blood thinner, made specifically for valve replacement, that does not have the "bleeding" issues that are connected with Coumadin/Warfarin. The squeaky wheel always get oiled first...
Rita Savelis I was scared of taking coumadin as well (after triple valve surgery, 2 mechanical valves, one repair) ... Read more
Rita Savelis I was scared of taking coumadin as well (after triple valve surgery, 2 mechanical valves, one repair), but despite the horror stories out there, life with anticoagulants is not that big a deal, really, if you are a rational patient. Mutiple surgeries are no fun either. Whatever decision you make, or gets made for you because you don't have choices, you learn to live with it. It's just scary because one hears the bad stories....Pre-op anxiety, post-op anxiety. There is a lot to be scared of. I'm sorry you have to go through this intense experience. Be easy on yourself. Take care.
Alan Lonsberry Thank you Virg and Rita, it means a lot to me, I appreciate it.