Glad I'm home to take part in this.. Merry Christmas everyone!! 🎅
Update posted on...
December 8, 2018
Follow up appt with surgeon yesterday and he said the ticker ( literally with this mechanical valve) sounds perfect! Going home FINALLY Tuesday after almost 2 months of hospital time. Dr. Said yesterday to his secretary " That girl was as sick as they come" ... Thankful for great medical staff and higher powers everyday! Still a work in progress for sure but going farther everyday. Is it Tuesday yet?!?!😀 Thanks to all of you with your concerns and prayers. No doubt they worked on this kid!
2nd day after being moved to rehab hospital walked 22 feet with a walker! Dialysis still and weeks to go before home but fighting like the champion I apparently am...not bad considering 2 weeks ago I was on a ventilator and echmo🤗
Sorry guys I decided to have complications. The day after my valve replacement I went into cardiac arrest and they had to do CPR 4 12 minutes and I was on ECMO 3 weeks. Got a pacemaker 2 days ago also I was a handful to say the least but today moved out of ICU
Oh today you got here so fast! Me and this spirometer have been making out all night practicing for tommorow... I'm fine I'm just so not looking forward to the pain but whateves as my 10 year old would say ....
I cannot sleep or hardly have a thought that doesn't end in hyperventilating..two days .. tonight was my last night at work and tomorrow all of my customers are throwing me a good vibes party which equals me crying all day because people are nice and I'm a sap. My insurance kicked in starting back Oct 1st today which is right in the nick of time but also covers none of the big stuff up to where we r now. Oh well...theres another day to worry about that
Monday pre surgery hospital visit and Tues am... check in to the warrior school. How in the world do our already weak hearts not just stop even thinking about this. I'm just wishing for stillness and there's none in sight trying to find quiet in a hurricane before the tickings of my valve are in my ears forever. This is not cool guys.. we are so bad ass (sorry but we are) it's ridiculous.
Jennifer will u still put the wine under your bed for me now or will u push me and say Valerie get your butt in there lol
I had to mess my eight year old walking in the parade of flowers at our Riley Days festival here because there was no way I could walk to go watch him... I'm not scared for my surgery I'm just scared about recovery I guess but today was a point for me to realize that I'm getting sicker and this needs fixed
Surgery scheduled... Oct 16th. Both kids elementary schools will be on fall break that week so that may or may not make it easy for whoever has them... I however have some decisions to make and would like some input I am only 45 and Doc is giving me a choice between mechanical or tissue valve I will be having a mini sternotomy aortic valve replacement surgery at the Indiana Heart Institute at st. Vincent's Hospital. I felt really comfortable with my surgeon and honestly feel more relaxed about the surgery at least since meeting with him. Now the decision.... mechanical or tissue is the issue...I'm not excited about blood thinners but I'm looking at valve longevity here....any input guys??
I have friends asking what are good dinner ideas that I can have after surgery they're planning on making a bunch of dinners and bringing them to the house for us!! I'm having aortic valve replacement... Any input is great thank you
Had a little meltdown last night realizing the appointment date with my surgeon is closer... After 3 months of sort of relaxing I think it kind of puts you in denial that anything is wrong because you feel "okay". Thinking about what I have a head is horrifying but I guess that's natural...ugh why must we have broken hearts??!?!
Feeling terrific lately....my mind is trying to trick me into thinking I'm fine. Meet with the surgeon on Sept 28,I feel like it's going to all crash on me again when I do since I've been feeling so good. What a weird thing
Coming to the reality that surgery is unavoidable and trying to push terrifying thoughts to the back of my mind and find a strategy for somehow staying calm through this for my children who are 8 and 10 years old and have no idea the seriousness of the situation, just that I have to have surgery... Should hear today about mri scheduling to determine how fast this train is moving. All I know is the train feels off the tracks! Terrified and also calmed by others stories at the same time