I found out thru stress echo that the myocardial bridge un-roofing repair in 2/13 either did not hold up, or has developed scar tissue. Im not exactly sure? This was one of the many issues that I had repaired over two years ago. My doctor has put me on a beta blocker to see if that helps the pain I endure during stress and exercise. So far, I still feel the pain. Next step will be Cath and then possibly surgery. Wondering if anyone has experience with Myocardial Bridge Repair? Fortunately, Im at Stanford and they have a great research program with MB. I hope everyone is having a great weekend!
Hmmm… almost 7 months post op now. It feels like yesterday. I came out of the gates strong mentally and physically but seem to have taken a few steps backward due to pericarditis and life stresses. I think over the last few weeks I finally actually realized what I went through. I watched a few episodes of the TV show NY Med and they showed very similar surgeries to mine and it made me quite emotional. Up until then I almost tricked my mind into believing that the surgeries were as complex as the knee surgeries I have had….coping mechanism? Maybe. Anyhow, hoping that my continual activity and riding my bike will help get my head back into the game of life! I thought that maybe writing my thoughts in this journal would further help my recovery too.
Hi heart friends!
I am now 5 months post op and was diagnosed with pericarditis a few weeks ago. I have been taking ibuprofen and Colchisine but my symptoms re-appeared this weekend. I'm uncomfortable and it's not easy to breathe deeply. I will be in touch with my doctors tomorrow morning but wondering if anyone has has experience with this or had to have a pericardiocentesis to remove the fluid build up around the heart?
I have been super active and riding my bike a lot. I hope this was not aggravated by my own doing.
Thanks for any advice!
This is the start of my journal. I guess I thought I would breeze through this surgery and get back going at life with vengeance! I am hoping I get to that point soon.
I underwent my first surgery on February 4th for valve sparing aortic aneurysm repair and also a myocardial bridge unroofing. I had a stroke within 12 hours of being released from ICU and it was discovered that I had a PFO opening which allowed the clot to pass. My surgeon at Stanford went head to head with the Neurology team because he wanted to re-operate and fix the PFO. Neurology said it was treatable with a blood thinner for the rest of my life. Given that I am only 38, athletic and still wanting to have a family we decided to go back in for another surgery and fix the PFO. All of the surgeries were successful. I thank god every day for my docs at Stanford ; Dr. Scott Mitchell, Dr. David Liang and for my anesthesiologist Dr. Charles Hill.
I unfortunately spent too much time in the ICU ( 8 days) and given my curios nature and discomfort I did not sleep much, if at all. This caused ICU psychosis and I literally went crazy with hallucinations. I was very happy to finally get to the step down unit from the ICU where I was able to finally sleep. My husband stayed with me until 3 in the morning to make sure I was sleeping. He has been my hero thru this entire ordeal.
I have been home and slowly getting back to work and also exercising. I have been hiking and going on long walks every day. I am very happy with the physical recovery. My incision is healed beautifully and I only get slight discomfort when I'm sitting in a hunched position. I believe I am feeling the sternal wires.
The big obstacle has been my own head. I think I was expecting to come out of this with more energy and a renewed energy for my life and career. I have been struggling to get back into a routine. I am self employed sales rep and while my company has been amazingly supportive it's been hard to get back into things. I keep telling myself it has only been 8 weeks since surgeries and that I need to give myself a break….Maybe I need to take it a little slower and just do a few hours a day. I think it is hard in general recovering from OHS and knowing when it's time to be running on all cylinders. Everything seems to be a bit overwhelming, but I hope that gets easier??