Rhodie's Posts

Diagnosis: Aortic Regurgitation, Bicuspid Aortic Valve, Aortic Aneurysm

Member Since: August 11, 2022

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Rhodie Jacobson posted an update
3 years ago (March 17, 2023)
I am asking about symptoms and moderate regurgitation from Bicuspid aortic valve and an aneurysm. I had echocardiograms and an MRI--all measurements indicate moderate regurgitation with from BAV with an aneurysm. I have that shortness of breath--when I look at a flight of stairs, I mutter a little complaint and... Read more.
3 years ago (March 17, 2023)
Hey thanks for sharing. So I guess first I would ask why are you on blood pressure meds currently?
3 years ago (March 17, 2023)
I was at moderate/severeregurg, and 4.8cm aorta dilation. And severe stenosis. And had my Ross procedure and Dacron graft replacement.
3 years ago (March 17, 2023)
Rhodie, I have the same questions and don't know the answers. It is recommended to keep blood pressure in check (below 120) and be active (do yoga or light exercise or breathing exercises but do not exert or weight lift). My understanding is that people with 4.7cm aneurysm do get... Read more.
3 years ago (March 17, 2023)
They can also do a treadmill stress test,which may reveal things.
3 years ago (March 17, 2023)
I'm sorry that you have to go through this. It is standard to do an angiogram before heart surgery to make sure that your arteries are not blocked. So once you have this test, you will be ready to have surgery whenever it might be needed. This is a good... Read more.
3 years ago (March 17, 2023)
Andrew-I just can't get my blood pressure down. average 140s/80s. Best I get is 130s/70s---Does the regurgitation amplify that?
3 years ago (March 17, 2023)
As our dear Rose always says, get a second or third opinion, meet with a surgeon etc. You have symptoms now, it could be the meds or the regurgitation. Find out for sure. Please keep us posted. God bless you in your journey 🙏❤️☘️
3 years ago (March 17, 2023)
I had my bicuspid valve replaced ,my 4.8 cm ascending aneurysm, and aortic root aneurysm replaced at the same time. I did not have severe regurg, but my aneurysm was the driving factor for my surgery. Having the angiogram will give the docs more info about your particular circumstance. When... Read more.
3 years ago (March 17, 2023)
I was diagnosed with moderate aortic stenosis 2 1/2 years ago due to a trileaflet valve that two leafs stayed fused together at birth. Stenosis went to severe 18 months ago w no symptoms. My cardiologist said I could keep waiting and watching or go to get a surgical opinion.... Read more.
3 years ago (March 17, 2023)
❤️ Thank you Ana!❤️
3 years ago (March 18, 2023)
You're welcome Rose, I followed your suggestion and felt better.❤️🙏
3 years ago (March 18, 2023)
Thank you all! I keep getting great info and nuggets here. Thanks and bless you!!

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