Mauricio's Posts

My time has finally come. It's a really weird feeling because I was diagnosed at birth and always knew this day would come, but thought would be on my 50's or 60's. I'm 39 and was recently told my dilation is enough to go for surgery, probably within the next 6 months if not earlier. I'm quite calm so far despite some initial emotions. I'm having a conversation with my doctor tomorrow and I'm hoping to be eligible to the Ross procedure as I don't want blood thinners. Second option to me is animal tissue + hoping I can just do TAVR after that. I'm still processing it... my life still feel pretty normal and I don't feel any symptoms (or at least none that I know of), and that life is about to change at least for a good bit and with a bit of uncertainty about when it comes back to normal and hoping there are no complications.I wonder if anyone here has done the Ross procedure in Sydney/Australia? The most known doctor (Skillington) from Melbourne have retired. I know a couple do in Sydney but it's not to reassuring that I can't find enough information about them. There's still a good option in Melbourne but that incurs travel. The thing that also plays a role is the fact that I live alone and my family is not in the country. And I don't have the Ross option in my home country. Some of my family will travel to take care of me but not sure how long they should be expected to stay.Anyway just a bit of a brain dump. Thanks for reading