It’s been two years today that I had my aortic valve replaced. I’ve been doing great. After a year of going to rehab I started having pain in my hip. ...Read more
It’s been two years today that I had my aortic valve replaced. I’ve been doing great. After a year of going to rehab I started having pain in my hip. It got so bad that I had to quit exercising. After getting x rays I got an injection and had physical therapy. Neither helped so it looks like I’ll be getting a hip replacement June 15. I feel bad that I have not been very active for the last year. I sure hope it’s not affecting my heart’s health. If anyone had any other surgeries after having a valve replaced I’d like to hear how it went.
Also my family doctor wants me to take calcium supplements for my bones. I asked my cardiologist about it and she said she’s not a fan of taking calcium. I don’t want any calcium forming on my valve. Just wondered if anyone is taking calcium or has any thoughts on this subject.
Anyway wishing all those heading into surgery the best of luck!!
I take calcium supplements because I have severe osteoporosis. I take the Metagenics brand CalApatite Bone Builder Forte. I take 1200 mg daily plus 4000 IU vitamin D daily to help my bones. So far by making sure I get enough calcium my bones haven't deteriorated further (fingers crossed). My cardiologists have not expressed concern that I am taking the calcium.
If you don't want to take a supplement, you can certainly get it through calcium-rich foods: milk and milk products are your best source. 8 oz of orange juice with calcium added has 300 mg of calcium. An ounce of cheddar cheese has 205 mg of calcium and 1 C non-fat plain yogurt has 490 mg of calcium. Cereal usually has a good amount of calcium too -- Read the nutrition label.
Vivien Appleby Research - Google or YouTube
Vitamin K 2 - 7
Also concerns about taking calcium supplements on their ... Read more
Vivien Appleby Research - Google or YouTube
Vitamin K 2 - 7
Also concerns about taking calcium supplements on their own and why for heart/vascular reasons.
Have just had 6 week post AVR. Chest X-ray shows sternum completely healed. Have been on K2 - 7 for the past 5 weeks but not during my 5 day stop in hospital.
Marilyn M Hi Anna. I don’t have osteoporosis yet. But I was hoping I could just increase my intake just thro ... Read more
Marilyn M Hi Anna. I don’t have osteoporosis yet. But I was hoping I could just increase my intake just through diet. I just don’t want to take something for one thing and then harm something else. I also am not doing any weight bearing exercise right now because of my hip. Thanks for the info and Good luck to you.
Vivien Appleby Most Western diets tend to be rich in calcium but still there is a problem. Northern Japan eat Natto, ... Read more
Vivien Appleby Most Western diets tend to be rich in calcium but still there is a problem. Northern Japan eat Natto, very rich in Vitamin K 2 - 7 and have very little osteoporosis - calcium is carried by D3 and K2 - 7 from soft tissue(arteries) to the bones and teeth where it belongs. Benefit Heart and Bone health.
Rose Madura I was recently diagnosed with osteopena and family doctor put me on 1200 mg of calcium and 400 iu of ... Read more
Rose Madura I was recently diagnosed with osteopena and family doctor put me on 1200 mg of calcium and 400 iu of vitamin D3. I heard where calcium was not good for heart - that it would cause calcification on valves so I called my cardiologist who suggested I reduce Calcium to 500 mg only.
It was 1 year ago today that I had my aortic valve replaced at Cleveland Clinic. When I think back and remember how bad I felt before my surgery and how great ...Read more
It was 1 year ago today that I had my aortic valve replaced at Cleveland Clinic. When I think back and remember how bad I felt before my surgery and how great I'm feeling now I am truly amazed! Even though there were ups and downs during recovery, it's the end result that really matters. I can do so much more now than I could with my bad valve. It's wonderful to be able to walk and breathe and have energy and feel normal again!
I'm still doing cardiac rehab and enjoying it. I'm so thankful for the doctors and everyone that was there for me on this journey. And I'm grateful for this web site that I got so much information from before my surgery! It helped tremendously!
I wish everyone who is facing surgery and who is in recovery the best of luck! It will take some time but it is so worth it!!
Belinda Marsaw Congratulations! Happy for you and this new life you've been blessed with. Sending all the peace, lov ... Read more
Belinda Marsaw Congratulations! Happy for you and this new life you've been blessed with. Sending all the peace, love and light your way 😘
Bob Fotoples Who was your surgeon? I'm probably going through it in November, or sooner(August now), and I'm gathe ... Read more
Bob Fotoples Who was your surgeon? I'm probably going through it in November, or sooner(August now), and I'm gathering information to make the most informed choice. My twin had his done last December, and he's still experiencing some breathing issues. How was your recovery?
Marilyn M Bob, my surgeon was Doug Johnston. Since I had no blockages he did a mini thoracotomy. I was happy w ... Read more
Marilyn M Bob, my surgeon was Doug Johnston. Since I had no blockages he did a mini thoracotomy. I was happy with him and C. Clinic.
My recovery was slow at first because the first two months I had a pleural effusion on one lung. I really couldn't breathe or do much. Once I had the 3 lbs. of fluid removed I started feeling better. I started rehab then. I'd say it took about 5 months til I felt much better.
Bob Fotoples My twin brother (who has worked out consistently for 3 decades, and weighs 40 lbs less than me) had h ... Read more
Bob Fotoples My twin brother (who has worked out consistently for 3 decades, and weighs 40 lbs less than me) had his Aortic valve replaced last December locally by a highly reputable cardiac surgeon who "was on my insurance list" after experiencing some pain behind his sternum and shortness of breath. My brother is now concerned because the shortness of breath has returned. I'm not to that point yet. I can walk on a treadmill (at a 22 minute mile pace) with no discomfort for a mile, but my cardiologist says I could have the surgery anytime. I'm going for an August date now, after my wife finishes working. I'm looking at Dr. Deeb at University of Michigan Cardiovascular Center in Ann Arbor, MI. (Cleveland Clinic doesn't take my Supplemental insurance carrier)
Just an update on my progress. For the first two months I was suffering with a large pleural effusion. After having it drained and then some medication, it ...Read more
Just an update on my progress. For the first two months I was suffering with a large pleural effusion. After having it drained and then some medication, it was finally gone. I could not believe how much better I felt! I could finally breathe, had energy and no more pain! I started rehab and only have a few more weeks to go. I have been doing a lot of walking and have been trying to increase my stamina because I start back to work tomorrow. Before my surgery I could only walk two houses away from mine and had to stop because my chest was uncomfortable and I couldn't breathe. Now I am so amazed at how good I feel, how far I can walk and how much I can do. I have not felt this good in a long time and I realize now what bad shape I was in before my surgery.
The Dr's here also said I had asthma and put me on inhalers, which did nothing for me but give me thrush. Now I'm thinking my breathing problems were stemming from my .67 valve.
I am so thankful everyday to God, my doctors and the people on this site. Reading here gave me the courage to go through this and to believe that I too, will have a good outcome. I pray each week for everyone that has surgery coming up and for those in recovery. It is wonderful to be on the other side!!
Emily Rowley It is wonderful to hear an update from you. I'm glad you are feeling more well with lots of energy bu ... Read more
Emily Rowley It is wonderful to hear an update from you. I'm glad you are feeling more well with lots of energy but I know it has not been a smooth road all together. How is your Valve and Cardiologist visits go? You mentioned about breathing problems relating to your heart, will they improve on their own? All the best wishes.
Barbara Laurie Marilyn, Awesome ❣ What a wonderful outcome. So happy for you🌻
Kate Watson Great update, glad you are doing so well!
Marilyn M Thank you all!
Emily, my cardiologist just left for another position out of state. I will be meeting ... Read more
Marilyn M Thank you all!
Emily, my cardiologist just left for another position out of state. I will be meeting with a new one in a few weeks. Also will be getting an echo.
I couldn't breathe well for months before my valve was replaced. After surgery, the plural effusion affected me and I even struggled to talk. Once the fluid was gone, my breathing returned to normal. That is why I don't believe I have asthma, but that it was the valve affecting me.
Well I couldn't handle how I was feeling with the fluid around my lung and ended up going into the ER on June 3 and had 1.4 liters (about 3lbs) of fluid drained ...Read more
Well I couldn't handle how I was feeling with the fluid around my lung and ended up going into the ER on June 3 and had 1.4 liters (about 3lbs) of fluid drained from my lung. I could not have waited for a three week appointment. It really hurt to breathe for a few days after so I couldn't even start rehab. Finally the pain subsided some and I walked and did the spirometer and started rehab. Went for another X-ray and they said fluid is coming back. Dr gave me LASIX and a steroid this time. I go back for a recheck next Monday and hopefully it's helping.
Today I went to urgent care because my arm is swollen and painful and red near the elbow. Got a prescription for antibiotics. They think it might be cellulitis. I can't imagine where this is coming from.
And at times I feel that I can feel my heart. Is this normal? Is it because it's healing? I keep wondering if I will ever be the person I was before surgery or is that person gone for good? Maybe I'm expecting too much too soon.
Kate Watson I actually started writing an update and I am feeling similarly, especially about wondering if you'll ... Read more
Kate Watson I actually started writing an update and I am feeling similarly, especially about wondering if you'll be the same person. I have developed a horrible pain in my right sided rib along with some shortness of breath. It hurts incredibly to take a deep breath. I went to urgent care over the weekend and they found a little fluid around my right lung, nothing like yours. But I am feeling rather down about my progress and the pain that I'm still having. I think I'm farther along in my recovery than you, about 11 weeks post op. I can hear and feel my heart but I have mechanical valves so that's to be expected. Have they checked an Ekg to make sure you're not experiencing afib or a fast heart rate? I know that I feel my heart much more so when my HR is high. This sure is a long road. Everyone keeps telling me it will be more like 6 months before feeling a lot better. I wish you much strength and patience in your recovery process and hope you feel much better with that fluid off.
At one month post op, my arm was swollen, painful and tender at the elbow. My primary physician was b ... Read more
At one month post op, my arm was swollen, painful and tender at the elbow. My primary physician was booked so they put me in to see PA. She sent me to get a ultrasound and they found that I had a 12" blood clot in my arm. I ran into her months later and she told me that she didn't really think there was anything wrong but was being cautious given my recent surgery. I had never had one before and didn't really understand what the big deal was about. Blood thinners did take care of it in about 3 months. Good luck, there is light at the end of the bumpy road.
Petey Bello I'm two months post op, I still have problems catching a deep breath sometimes. I did have pleural ef ... Read more
Petey Bello I'm two months post op, I still have problems catching a deep breath sometimes. I did have pleural effusion a few weeks ago, they put me on antibiotics at the time. I can't get another CT scan yet to see if I still have any fluid around my lungs. I still get dizzy at times (at least a few times everyday). When I lay down I can feel my heart with my hand below my ribs. Other then that my heart is very quiet which is the strangest thing to me since I was able to feel & see my heart beat for so long before my surgery. The nurse at Cardiac rehab told me it takes time for our valves & heart to get acclimated to our bodies.
I don't think I am the person I was before surgery...
I definitely feel my heart and am learning to accept that as a new reality and to not let it freak me out.
I had fluid come back 4 times in my lung lining. It certainly made it hard to breathe. I loved having the small 10 minute drainage tubes in my back, though, as I would feel better almost immediately (So much better than slow drainage tubes that are left in).
Now, a year after surgery, I still get tired on stairs.
Slowly but surely you will heal Marilyn.
Frustration can be really high when we think we should be healing faster or returning to some former pre-surgery place.
Elaine Cutri It's still early in your recovery. Be patient, it takes a few months to feel 90% back and most times, ... Read more
Elaine Cutri It's still early in your recovery. Be patient, it takes a few months to feel 90% back and most times, nearly a year to feel 100%. It's hard when you can't see all the healing that's going on in your body, but you'll get there! I'm 13 months post OHS at CC. I'm back full blast most days. I respect and listen to my body if it says "slow down" every now and then. Best wishes for a successful recovery to all!
Well I had some fluid in the lining of my lungs after surgery. On Memorial Day I ended up in ER with chills, fever, cough and pain in my back. They chalked ...Read more
Well I had some fluid in the lining of my lungs after surgery. On Memorial Day I ended up in ER with chills, fever, cough and pain in my back. They chalked it up to a virus. The next day I had my first echo after the surgery. It showed my heart was good but the fluid increased in my left lung. My cardiologist said I needed to see a pulmonologist and have it drained. Can anyone tell me what that is like? How painful and is it done quickly? Also, my left side hurts and different places in my back. It's very uncomfortable and I'm out of breath. I should be starting my rehab but it doesn't feel good to walk. My appointment is not for almost three weeks. Trying to get it moved up sooner.
Elaine Cutri Three weeks! I hope you don't have to wait that long.
I had fluid drained twice last summer. The Las ... Read more
Elaine Cutri Three weeks! I hope you don't have to wait that long.
I had fluid drained twice last summer. The Lasik Rx did not help. The first time at 2 weeks post-op the second at 8 weeks post-op. It took 15 min and was just a little uncomfortable. The hardest part was dealing with Coumadin. It took a few days to get the Coumadin out of my system and use heparin during that time and getting back to a therapeutic level after the 15 minute procedure. If you're not on a blood thinner, then it should be quick and straight forward. You will feel so much better after! Breathing, your energy level will go up very quickly. You may still be sore for a few days, but that goes away too. Best wishes.
Petey Bello Marilyn, I had fluid/infection in my lungs (not my lining) I had surgery April 20th also. I couldn't ... Read more
Petey Bello Marilyn, I had fluid/infection in my lungs (not my lining) I had surgery April 20th also. I couldn't breath properly & had a dry cough for a week before they sent me for a CT scan w/contrast. My doctor put me on a strong antibiotic for 14 days. I did not have a fever, but I had pain in my back. (& still do sometimes). My breathing has gotten better but I still have to use my spirometer to catch & take deep breathes sometimes, I still have the dry cough. My dr said they won't be able to do another CT scan for a couple months to make sure all the fluid is completely gone. I did not end up having mine drained.
Had my appointment today with my cardiologist up at Cleveland Clinic. It went ok. I told her I was having a lot of numbness and burning across my whole chest, ...Read more
Had my appointment today with my cardiologist up at Cleveland Clinic. It went ok. I told her I was having a lot of numbness and burning across my whole chest, from my incision on the right side (mini thoracotomy) across the sternum and over to the left. She said it's most likely nerve pain and gave me a prescription for Lidocaine patches.
She said it was good I had Dr. Douglas Johnston as my surgeon because I have a small heart and besides the aortic valve replacement he also did a root enlargement. Also, doing it through a 2-3 inch incision in the ribs is his speciality. Last year when I saw a cardiologist where I live he said I would have to be cut through the sternum 8 inches. He said minimally invasive couldn't be done. So glad I chose Cleveland Clinic! I did run in to Dr. Johnston while I was there and got to thank him and give him a hug!
Going back next week for an echo to check things out. Went into ER two days ago for elavated heart rate,blood pressure and dizziness. Once they gave me fluids my HR started to come down.
I'm thankful I've only had some minor setbacks so far. And I'm so thankful for Dr. Johnston and his knowledge and expertise in giving me a second chance!
Tonia Earley Thanks for the update! Sorry to hear you went to the ER😢...hopefully that won't happen again.
Tonia Earley Thanks for the update! Sorry to hear you went to the ER😢...hopefully that won't happen again.
That happened to me about 2 weeks after surgery, but I knew it was because of my BP which was rising...they basically stripped me of most of my BP medicine. I almost went to the ER but was able to get in touch with a nurse who increased my BP meds and that seemed to help...such a scary feeling!
I hope you continue to improve and the setbacks are few and far between.
I'm experiencing pains in my incision area as well. I don't see my doctor until June 6th...I guess I'll find out then! I hope the lidocaine patches help!!
Marilyn M Tonia, I knew something wasn't right because my blood pressure is usually on the low side. It was sca ... Read more
Marilyn M Tonia, I knew something wasn't right because my blood pressure is usually on the low side. It was scary.
Put the patches on tonight. We'll see how it goes.
Hope everything is going well for you now. Good luck with your appointment on June 6!
Tina Maroon So sorry you had some set backs. Hoping you continue to improve and feel better. I too share the burn ... Read more
Tina Maroon So sorry you had some set backs. Hoping you continue to improve and feel better. I too share the burning and electrical pain across the chest. But mine is mainly on the left side from the middle to underneath the breast.
How soon after surgery was anyone around a lot of people? It's been 3 1/2 weeks since my surgery. I'm concerned because my mom passed away three days ago ...Read more
How soon after surgery was anyone around a lot of people? It's been 3 1/2 weeks since my surgery. I'm concerned because my mom passed away three days ago and I have calling hours and funeral coming up.
I'm trying so hard to stay calm and not get my heart worked up! I am handling all the arrangements and am physically and emotionally exhausted so far. Have been too tired to do my walking. This is really hard. Plus, I just don't want to get sick from anyone.
Hope I can handle these next two days.
Shannon Gray Oh Marilyn, I am so sorry. Many prayers for peace. Thinking of you and your family.
Tonia Earley Marilyn i am so sorry to hear about your mother...you can do this!!
Tonia Earley Marilyn i am so sorry to hear about your mother...you can do this!!
Talk to your doctor about something to help you deal with crowds...I had to take Xanax the first couple of times I was going out. This is completely normal from what I am told...but your situation is much different than just going out of the house for a few hours. I'll be thinking about you and your family during this difficult time.
Rita Savelis So very sorry to hear about your loss. That is too much for you to handle after OHS. Being around so ... Read more
Rita Savelis So very sorry to hear about your loss. That is too much for you to handle after OHS. Being around so many people must be exhausting. I hope they will be understanding about your emotional and physical fatigue. Take care of yourself.
Denise Campbell So sad for your loss. What about using those masks like doctors use. I think you can get them in ... Read more
Denise Campbell So sad for your loss. What about using those masks like doctors use. I think you can get them in drugstores. It might be weird but you need to take care of yourself. Praying for you
Jean Raber Do you have siblings, children, spouse or aunt/uncle you can pass some things off to at the funeral o ... Read more
Jean Raber Do you have siblings, children, spouse or aunt/uncle you can pass some things off to at the funeral or wake? Or ask the funeral home if they can have someone on hand to meet and greet and explain your situation to visitors as they come in. If you have made the arrangements, you may want to say your goodbye in private and skip funeral and wake. Have the presider at the funeral read something you wrote about your mother that also explains your situation. Invite a few close friends to your house after the funeral to condole instead of being around a crowd. I'd say that if you've made the arrangements, you have the best excuse imaginable to limit your participation to what you can handle. Your mother would understand wouldn't she? God bless you.
Petey Bello So sorry for the loss of your mother, Marilyn. I can't imagine going through OHS then dealing with su ... Read more
Petey Bello So sorry for the loss of your mother, Marilyn. I can't imagine going through OHS then dealing with such a great loss. I would be very careful having contact with so many people. Maybe you can hold back from making any physical contact with people as you greet them explaining your concern. Also, carry sanitizer to use throughout to help with germs. Good luck & sorry for your loss. Make sure you get your rest & take care of yourself. You have just been through a major surgery, your body needs the rest. God Bless.
Wanda Mroz Marilyn, I am so sorry for your loss. That's a lot of stuff to be going through in one month. Other ... Read more
Wanda Mroz Marilyn, I am so sorry for your loss. That's a lot of stuff to be going through in one month. Other than doctors follow up I did not really go around crowds. I would check with the Doctor first. I would use a mask as well to protect myself from airborne germs, and I would limit my time at the funeral home. I think people will understand that. Hugs to you. 💞
Marilyn M Thank you all for those great suggestions. I called the funeral home and they are making a sign expla ... Read more
Marilyn M Thank you all for those great suggestions. I called the funeral home and they are making a sign explaining the situation and having hand sanitizer for people to use. I will also have some by me and will not get too close to anyone. I will only do what I can. I'm sure everyone should understand and I'm sure my mom would not want me to get sick.
Marilyn M Tonia, thank you for the encouragement. I know I will have to get through this. I do have Xanax and h ... Read more
Marilyn M Tonia, thank you for the encouragement. I know I will have to get through this. I do have Xanax and have been taking them especially at night to sleep.
How are you doing? I have been thinking about you and hope that your blood pressure issues are resolved and everything is going well.
Take care and get stronger every day!
Hugs 💜
Marilyn
Mary Wagner Marilyn - be sure you don't stand the whole time at the funeral home as that will wear you out. Can ... Read more
Mary Wagner Marilyn - be sure you don't stand the whole time at the funeral home as that will wear you out. Can you sit in the receiving line? People will understand...so sorry. It's hard enough to deal with the surgery much less a funeral.
Jean Raber Am guessing the funeral is today or tomorrow. Am thinking of you, Marilyn. I know this must be very h ... Read more
Jean Raber Am guessing the funeral is today or tomorrow. Am thinking of you, Marilyn. I know this must be very hard time.
amy . I am sorry for your loss. My thoughts and prayers are with you and your family.
Nancy Schnarr So sorry to hear this, I hope the past few days have been okay - tough thing to go through at any tim ... Read more
Nancy Schnarr So sorry to hear this, I hope the past few days have been okay - tough thing to go through at any time, not including right after major surgery! Sending positive thoughts and prayers your way.
Barry Kanick Prayers coming your way Maryln,,,,I've asked our Lord to watch over you!!!
Marilyn M Thank you all so much!! The two days after the funeral I did not feel good. Feet were swollen and it ... Read more
Marilyn M Thank you all so much!! The two days after the funeral I did not feel good. Feet were swollen and it was harder to breathe. Feel like I took a step backwards. I feel somewhat better today. A person from the funeral home stood at the door and gave everyone hand sanitizer. I really appreciated that! Now I have to get back to working on my recovery.
Jean Raber Glad you made it through what must have been an ordeal, Marilyn. Best wishes as you move forward.
Wanda Mroz Get some rest and recoup. I'm sure this was a difficult time for you. Hugs💞
Kate Watson I'm so sorry to hear of your loss. I can't imagine dealing with that on top of recovering. I'm glad y ... Read more
Kate Watson I'm so sorry to hear of your loss. I can't imagine dealing with that on top of recovering. I'm glad you made it through the services ok. I think this recovery process is very up and down and is normal that you'd take some backward steps especially under stress. Hope you start feeling better every day.
Well it's been two weeks yesterday since my surgery. I have to say my first week home was hard. Sleeping was hard, breathing was hard and just feeling so so ...Read more
Well it's been two weeks yesterday since my surgery. I have to say my first week home was hard. Sleeping was hard, breathing was hard and just feeling so so weak. I went back to Cleveland for post op check-up this week and they said it is so normal to feel like this. They also told me that at about 3 months I should be about 50% back to my old self.
My bloodwork and EKG came back fine. I'm glad the transfusion helped. Chest X-Ray showed some fluid in lining of the lungs. They gave me another prescription for that. Maybe that's why I'm having the breathing issue.
Tuesday night I couldn't fall asleep til 5:00am. I felt horrible the whole next day. Last night I slept so well and this morning I feel a definite improvement. Feel like I can even breathe deeper and not so weak. I'm afraid to get my hopes up having this good day. I know there are ups and downs to be expected. For now, I'm enjoying this great day and hope week three brings more of the same. I am thankful that my recovery is quite normal so far.
Hope that everyone else is having a smooth and uneventful recovery and prayers for everyone heading into their surgeries.
Christine Oliva Glad you are recovering well. Try to measure things by weeks verses days and the turn will come slowl ... Read more
Christine Oliva Glad you are recovering well. Try to measure things by weeks verses days and the turn will come slowly but surely. Just remember your recovery time is related to your pre-surgery condition and the invasiveness of the procedure. I hope this gives you hope to know that six months out I am back working full time since Feb and will be starting a new job next week with travel and I'm pretty sure I can do it. I had total aortic value and root replacement. I'm a zipper kid!
Denise Campbell Yes weeks instead of days. I'm at 7 weeks. And it gets better week by week. I'm feeling real g ... Read more
Denise Campbell Yes weeks instead of days. I'm at 7 weeks. And it gets better week by week. I'm feeling real good. Still though. Stamina needs work. I still get tired after a few hours of busy. I'm hoping rehab helps. You and I and all of us will make it
Duane Beeman I could not sleep for more than two hours at a time after I came home, Finally the doctor gave me so ... Read more
Duane Beeman I could not sleep for more than two hours at a time after I came home, Finally the doctor gave me some pills and I was able to get my internal clock working again. it takes time...
Linda Yaff Glad to hear you are doing well. Take one day at a time and good luck!
Rita Savelis Having fluid in your lung lining can definitely make you tired. It takes away lung capacity. The flui ... Read more
Rita Savelis Having fluid in your lung lining can definitely make you tired. It takes away lung capacity. The fluid does eventually reabsorb, or is drained out, or meds are given. I had my lung lining drained 4 times. Each time I felt energy immediately afterwards as my lungs went back to full capacity.... and then it faded as they filled up again.
As far as the tiredness goes, it's up and down. Be easy on yourself and know that it can take months to feel normal again. And even then, it's a new normal. Everyone has their own pace, their own body, their own timeframe.
Take care.
It feels so good to have this surgery behind me. I'm so relieved just to not have that anxiety hanging over me every minute of every day. I do think the waiting ...Read more
It feels so good to have this surgery behind me. I'm so relieved just to not have that anxiety hanging over me every minute of every day. I do think the waiting is the worst part. I feel like I've already come a long way just being home only two full days. Most of the time I feel pretty good but I notice even if I talk too much it wears me out. I don't really want visitors yet.
I was feeling so weak, tired and out of breath before this. It was well worth going through the surgery to get my life back!
I am just so grateful to the surgeon and doctors at the Cleveland Clinic. I couldn't have chosen a better place to be!
And also for my daughter who stayed with me 24/7 in my room taking care of me!
I'm so glad Adam Pick decided to create this site to give people the opportunity to communicate with and encourage each other. I have found so much valuable information here.
Thinking every day about all those still facing surgery and everyone going through their recovery. 💜
Tonia Earley Beautifully written Marilyn! So glad you are feeling better now that you are at home!
Tonia Earley Beautifully written Marilyn! So glad you are feeling better now that you are at home!
Thanks for sharing your story with all of us. I wish we could have met and walked in the halls as well, but you needed rest and that's what was important at the time since you weren't feeling well. I was in J5-23.
I agree with you we definitely picked the best place to be!
I have your email and I hope we can start in touch!
Love,
Tonia
Ruth Valenzuela My daughter stayed in my room caring for me also. It really helps and we are so blessed to have such ... Read more
Ruth Valenzuela My daughter stayed in my room caring for me also. It really helps and we are so blessed to have such loving and caring daughters. Take good care of yourself and don't overdo things. It's a process and it takes patience on our parts to get through.
It's been one week since my surgery. I haven't posted in a few days. I just couldn't because of feeling bad. Transfusion night took so much out of me. They ...Read more
It's been one week since my surgery. I haven't posted in a few days. I just couldn't because of feeling bad. Transfusion night took so much out of me. They struggled to find a vein they could use. Called in several people it just wouldn't go in. Finally all done at 4:00 am. I basically slept the whole next day.
The next day they were waiting for my labs to level out, because my platelets were down to 34,000. Red blood cells went up so that was good. I could NOT STAND the smells in the room. The bp cuff, equipment, clothing, even what they washed me with! The smells were making me sick! Anyone else feel like this?
Day after that though the nausea seemed to diminish. I started to eat some. Once the labs looked better Dr. said I could go home or stay another day. I said I wanna go!!
Didn't get home till 8:30pm last nite. The hour or so drive wore me out, but feels wonderful to be back where I belong!!
So glad this is behind me now!!!
Best wishes to my heart family 💜
Shannon Gray Absolutely! The smells and nausea was horrible! I could smell the detergent my husband used for his l ... Read more
Shannon Gray Absolutely! The smells and nausea was horrible! I could smell the detergent my husband used for his laundry and I'd have to ask him to stand away from me... My moms perfume... When they brought my food tray near me... All of it was too powerful! It finally subsided, but my sense of smell is still sensitive after 9 weeks.
So glad you are home safe and sound! Rest and recover!
Tonia Earley Marilyn I so glad to hear that you are finally home! I've been thinking about you so much and I am so ... Read more
Tonia Earley Marilyn I so glad to hear that you are finally home! I've been thinking about you so much and I am so sorry that the recovery portion was tough. And your right, it's hard to understand when you haven't experienced it. Hopefully those times are in the past and now that your home things will get better.
I was a little like you too, I think for me I was just tired of being there so the smells were getting to me as well. I had an appetite and things sounded good but when they came I could hardly eat because of the smells.
Best wishes to you and I pray that your recovery is better at home. Keep your chin up girl!
Keep me posted on your progress if you feel up to it.
Not having a good day today. Still nauseated so can't eat hardly at all now. hemoglobin is low so they are setting up a transfusion. Had no energy and only ...Read more
Not having a good day today. Still nauseated so can't eat hardly at all now. hemoglobin is low so they are setting up a transfusion. Had no energy and only took two walks this morning. Feel like I took a step backwards. Did anyone have one and it really helped? I need to feel positive!
Tonia Earley Hi Marilyn... Sending you positive vibes my friend!!! Sorry you had a rough day. You got more walks i ... Read more
Tonia Earley Hi Marilyn... Sending you positive vibes my friend!!! Sorry you had a rough day. You got more walks in than I did....I only got 1 walk in the hall done and that was all I could do. I still feel a bit dizzy when getting up....today I over did it and passed out😱.... The maintenance guy had to come in and help the nurse and my dad get me into bed. My blood sugar levels are up and down....one time I need to drink orange juice and then at night it spikes up and have to have insulin.
Try to stay positive and I'm sure this is all normal stuff that happens. You are in. Great place and I am hoping you are getting the best care. I sure am!
What floor are you on. Try to eat...this will help with energy....and sleep if you can. This helps the body heal as well. You can email me directly at tjack91179@yahoo.com if you need anything or have any questions.
Take care my heart sister!
Denise Campbell Hi girls. I'm at 5 1/2 weeks and on still exhausted. I only have some energy in the morn. Thi ... Read more
Denise Campbell Hi girls. I'm at 5 1/2 weeks and on still exhausted. I only have some energy in the morn. This is the hardest thing ever. Each week gets better though and I'm hoping cardiac rehab. Helps too. Keep the faith. God bless
Kenny Knox Marilyn - I didn't take any walks until my 4th day so you're doing great! Keep your head up and push ... Read more
Kenny Knox Marilyn - I didn't take any walks until my 4th day so you're doing great! Keep your head up and push forward - it'll be 6 months post op before you realize it! Congrats and doing so well.
Wanda Mroz Girls... Everything you mention is normal... One day you can feel good and the next not so much.... M ... Read more
Wanda Mroz Girls... Everything you mention is normal... One day you can feel good and the next not so much.... My surgeon said measure by weeks not days because you will have ups and downs. The insulin spikes are normal also and should
level off. I wasn't nauseated but could not eat for a few days usually forcing food. I did not have a transfusion but my blood was low as well. I took iron pills, and I was low in potassium.... The potassium IV burned pretty bad so they gave me pills and the dreaded drinks which were so yucky! I also had magnesium IV. Give yourselves time... Your bodies have been through a lot and need time to rebound. Hugs to all and hoping you all heal well... 💞
Kate Watson I had a pretty rough time too and required multiple transfusions and struggled hugely with nausea. I ... Read more
Kate Watson I had a pretty rough time too and required multiple transfusions and struggled hugely with nausea. I felt like an anorexic at some point because food was just so repulsive and I had to force myself to eat just dry cereals etc. If you aren't on them now, I would highly recommend scheduled doses of IV zofran plus a scopolamine patch that goes behind the ear. If you are constipated, make sure they give you something for that because it can definitely contribute to nausea. I think the transfusion will really help you. Try to stay hydrated at least, maybe some nice hot tea.
Rita Savelis You're not going backwards. You're just experiencing the week after surgery. Very hard. One can't com ... Read more
Rita Savelis You're not going backwards. You're just experiencing the week after surgery. Very hard. One can't compare days, but weeks or months. Positive will come. Your body has been through trauma and it's exhausting.
Tonia Earley Thanks everyone for the encouragement!!
Sophia Ridley Day 3-4 is known to be a down day. I felt like I wanted to cry and couldn't, I did the next day and f ... Read more
Sophia Ridley Day 3-4 is known to be a down day. I felt like I wanted to cry and couldn't, I did the next day and felt like I had released a lot of tension. Do your best to walk, but don't beat yourself up if you can't do more. I struggled with low BP and AFib, and was being too hard on myself as felt I should do more. It will come, there will be up/down but it does get better. Keep fluids up and eat as much as you can. I couldn't stomach dinner so they would cook me something plain or sandwiches. And hot chocolate works wonders :) You'll be home soon and there's nothing like home cooking to help you get your strength back.
Wanda Mroz I also had severe diarrhea from the stool softeners. It was so bad they thought I had c diff. I did ... Read more
Wanda Mroz I also had severe diarrhea from the stool softeners. It was so bad they thought I had c diff. I didn't have any infection... Just reaction to Senokot. I think 18 bowel movements in 24 hrs is serious. Most people have the opposite issues! But I survived. It gets better... It really does! 💞
Steven A Husted yes it does get better i could not eat right away either but i do remember that ice chips really tast ... Read more
Steven A Husted yes it does get better i could not eat right away either but i do remember that ice chips really tasted good and i could not get enough of them
Marilyn M Thank you all for the encouragement. Even though everyone's story is a little different , this is som ... Read more
Marilyn M Thank you all for the encouragement. Even though everyone's story is a little different , this is something no one would understand unless they have gone through it. 💜
Surgery went well. The night in Icu was rough. Had a lot of back pain even tho the incision is on the side. Ended up with cow valve. Was so glad the breathing ...Read more
Surgery went well. The night in Icu was rough. Had a lot of back pain even tho the incision is on the side. Ended up with cow valve. Was so glad the breathing tube was out before I woke up!! Have been very nauseated. Felt so good to sleep yesterday.
Tracy Simmons Hi Marilyn. I was nauseated as well after surgery when I was in ICU, but thankfully once it passed i ... Read more
Tracy Simmons Hi Marilyn. I was nauseated as well after surgery when I was in ICU, but thankfully once it passed it didn't return. So glad to hear that the breathing tube was able to be removed before you woke up. Best of luck and sending prayers.
Emily Rowley The anesthetic drugs will have their effect. ICU is never easily sadly, but it's usually the hardest ... Read more
Emily Rowley The anesthetic drugs will have their effect. ICU is never easily sadly, but it's usually the hardest part so hopefully easier times to come soon, hang in their hun and know we are thinking of you :) That is good they took your breathing tube out before you woke up-good sign too.
Kate Watson I had a very hard time with nausea after my recent surgery, despite many anti nausea meds. I got a pa ... Read more
Kate Watson I had a very hard time with nausea after my recent surgery, despite many anti nausea meds. I got a patch behind my ear and scheduled IV zofran every 3 hours or so which seemed to be the most effective. I hope you feel better soon, I know that nausea is a horrible feeling!
Tammy Pilcher Great to hear you're on this side of surgery, Marilyn! God bless!
Kelly Weisgarber Glad to hear from you! Hope you feel better every day. I was so nauseous for the first few days, too ... Read more
Kelly Weisgarber Glad to hear from you! Hope you feel better every day. I was so nauseous for the first few days, took a few tries to find the right mix of pain meds and anti-nausea meds. Hope tomorrow is a good day.
Barry Kanick Lucky you being from Youngstown,Ohio Marilyn & going to the Cleveland Clinic. I'm actually considerin ... Read more
Barry Kanick Lucky you being from Youngstown,Ohio Marilyn & going to the Cleveland Clinic. I'm actually considering Dr Gillinov from the Cleveland Clinic this very weekend myself for aortic valve replacement. ,,,,,,,Barry
Christine Oliva Yep nausea and persistent strong back pain is part of the recovery. Just know it will get better in t ... Read more
Christine Oliva Yep nausea and persistent strong back pain is part of the recovery. Just know it will get better in the next few days and especially once you are home. Walk and keep on blowing on your spirometer as soon as you can. I think most people will agree walking will help ease up your back muscles, help you sleep as well as keep yourself hydrated. God bless and keep on being strong it will get better.
Marilyn M Thank you all. Still battling the nausea. How long before it's usually gone? Am I just being too anx ... Read more
Marilyn M Thank you all. Still battling the nausea. How long before it's usually gone? Am I just being too anxious? I feel like I comes on more when I'm standing.
Christine Oliva I was told the nausea is often a side effect of the anesthesia necessary for this type of surgery whi ... Read more
Christine Oliva I was told the nausea is often a side effect of the anesthesia necessary for this type of surgery which is why hydrating yourself and moving around will help get it out of your system. I know you maybe feeling very weak or even dizzy but you should try to get up. Also, at the hospital they made me eat because they told me not eating was making it worse. Believe me I understand I dry heaved the first day or two. It does get better in a few days. It really does.
Had a good day today meeting with the doctors. I'm either getting a bovine valve or a Trifecta valve, which is a combination pig and cow valve. He will decide ...Read more
Had a good day today meeting with the doctors. I'm either getting a bovine valve or a Trifecta valve, which is a combination pig and cow valve. He will decide when he gets in. And because there were no blockages and only has to replace the aortic valve he will be doing a mini procedure between the ribs!
I'm feeling very positive today especially after talking to everyone there. I'm actually surprised I'm not that nervous like I was. I'm just excited now to be on the other side. I know I won't get much sleep tonite. Have to be in Cleveland at 6am.
Best of luck and praying for everyone having surgery this week. 💜
amy . Good luck tomorrow. My thoughts and prayers are with you.
Emily Rowley Wow minimal invasive that's good. I never knew they made combination pig 🐷 & cow 🐮 valve, I won ... Read more
Emily Rowley Wow minimal invasive that's good. I never knew they made combination pig 🐷 & cow 🐮 valve, I wonder how they make them. That is great, stay positive-you can get through and we are all praying for you 😊
Lynee Casper Best to you! Your positive thoughts are power to help you through surgery and onto recovery. Thinking ... Read more
Lynee Casper Best to you! Your positive thoughts are power to help you through surgery and onto recovery. Thinking of you!
Tammy Pilcher Praying for you, Marilyn! Isaiah 41:13. God Bless!
Marilyn M Emily, from what I read the Trifecta's leaflets are made from cow and the stent is covered with pig t ... Read more
Marilyn M Emily, from what I read the Trifecta's leaflets are made from cow and the stent is covered with pig tissue. It's supposed to reduce wear and deterioration over time.
Just got home from a long day having my heart cath at Cleveland Clinic. I was a little disappointed because I was hoping to have it through the wrist, but ...Read more
Just got home from a long day having my heart cath at Cleveland Clinic. I was a little disappointed because I was hoping to have it through the wrist, but since I have Reynauds Syndrome they had to go through the groin. Had to lay flat 6 hours. But the good news: No Blockages!!!
Then back up tomorrow to meet the doctors. I can't believe this is all happening in one more day. My poor daughter didn't feel well yesterday and now is coughing. I sure hope I don't get what she has. She'll be the one taking care of me.
Good luck to all having surgery this week. I'm praying for all good outcomes. It will feel so good to finally say "It's over!! We did it!!"
Tonia Earley I was there today too to meet everyone!
Good luck to you and praying for a fast recovery.
Marilyn M How long did it take and did they give you your surgery time? I'm so tired I feel like I could fall ... Read more
Marilyn M How long did it take and did they give you your surgery time? I'm so tired I feel like I could fall over! Just wondering how long of a day tomorrow will be.
Best of luck to you too and will be thinking and praying for you!
Linda Yaff Good luck to you Marilyn. I have the same condition. Are you going with mechanical or biological? My ... Read more
Linda Yaff Good luck to you Marilyn. I have the same condition. Are you going with mechanical or biological? My date is June 27. Prayers are with you !
Tonia Earley Marilyn- thinking about you and praying surgery goes well tomorrow!!! Hopefully I'll see ya walking t ... Read more
Tonia Earley Marilyn- thinking about you and praying surgery goes well tomorrow!!! Hopefully I'll see ya walking the halls...lol
Well I have one more week until my surgery. Spent the day today at Cleveland Clinic for pre ops and I'm exhausted! Then back to Cleveland on Monday for a ...Read more
Well I have one more week until my surgery. Spent the day today at Cleveland Clinic for pre ops and I'm exhausted! Then back to Cleveland on Monday for a heart cath. Hoping there are no blockages! Back on Tuesday to meet the doctor and surgery on Wednesday!
Wondering if anyone with a previous stroke had any problems with this surgery. I have no residual effects from it. I know I'm in a great place and am trying to think positive but am still nervous.
I can't wait for this to be over and to feel better, have some energy and not be out of breath.
Reading all your stories gives me so much hope and courage for which I am grateful. Thinking and praying for everyone with upcoming surgeries and for all those recovering. 💜
Tonia Earley Hi Marilyn! I was there too all day and am exhausted. Luckily I didn't have to have a heart cath, bu ... Read more
Tonia Earley Hi Marilyn! I was there too all day and am exhausted. Luckily I didn't have to have a heart cath, but I know you will do great!
I understand being nervous and ready to get it over with and to feel better.
It's almost time and you have a great support system here and just know you will have a fellow heart sister going through the it all with you on the same day!
And all of this is normal feelings at least that is what I am learning.
Denise Campbell Hi. It I'd nerve racking. I'm at four weeks post op. This is z great place to vent and talk. ... Read more
Denise Campbell Hi. It I'd nerve racking. I'm at four weeks post op. This is z great place to vent and talk. You'll do well. Take it slow and let your Care giver care for you.
Marilyn M Hi Tonia. Yes it's getting close. Once Monday is here things will be moving really fast. I'm anxious ... Read more
Marilyn M Hi Tonia. Yes it's getting close. Once Monday is here things will be moving really fast. I'm anxious to hear what the surgeon says and recommends. Do you know which valve you're getting?
I will be thinking of you and praying for a great outcome. I do feel like we are going through this together!
Keep in touch and let me know how things are going for you until the big day!
Marilyn M Thank you Wanda! Denise, my daughter is taking 3 or 4 weeks off work to be with me. Then she's off a ... Read more
Marilyn M Thank you Wanda! Denise, my daughter is taking 3 or 4 weeks off work to be with me. Then she's off all summer. She will take great care of me!
Wanda Mroz Good girl Denise! You will do great Marilyn... It will soon be behind you. Hoping for everything to ... Read more
Wanda Mroz Good girl Denise! You will do great Marilyn... It will soon be behind you. Hoping for everything to go smoothly. Hugs!💞🙏🏻
Marilyn M Wanda Thanks! I originally wanted my date to be the end of May. So glad I moved it up!
Has anyone had or known someone that had plates to close the sternum instead of wires? This is a fairly newer procedure I think and was wondering if it was ...Read more
Has anyone had or known someone that had plates to close the sternum instead of wires? This is a fairly newer procedure I think and was wondering if it was a better way. I've read where some people were bothered by the wires and wanted them removed years later.
Ashley Molyneaux I've heard it helps with healing! I've seen a couple folks on here that have had it done!
Marilyn M Going on April 19 to talk to my surgeon. He does use these. Hope he says I can have them. Anything to ... Read more
Marilyn M Going on April 19 to talk to my surgeon. He does use these. Hope he says I can have them. Anything to make healing easier!
Tonia Earley Hi Marilyn, I too am having surgery on the 20th at the Cleveland Clinic. Best of luck to you. I talk ... Read more
Tonia Earley Hi Marilyn, I too am having surgery on the 20th at the Cleveland Clinic. Best of luck to you. I talk to my surgeon on the 18th and I'm curious as well.
Marilyn M Hi Tonia. Have you had your heart cath yet? Mine is on the 18th and this Wednesday pre op tests. It' ... Read more
Marilyn M Hi Tonia. Have you had your heart cath yet? Mine is on the 18th and this Wednesday pre op tests. It's starting to hit me that this is for REAL. I hope you do well and we both will be quickly walking (and maybe passing each other) in the halls!!
Tonia Earley Hi Marilyn, I do not have to have a heart cath done which I am grateful for! I have pre-op tests thi ... Read more
Tonia Earley Hi Marilyn, I do not have to have a heart cath done which I am grateful for! I have pre-op tests this Wednesday as well!
You will do great! I love the Cleveland Clinic and every surgeon there is "top notch" from what I hear. We are very fortunate to have such a great place so close to us.
Things are starting to hit me as well this week and anxiety and emotions are at an all time high right now, but I am managing.
It is all quite normal from what I am learning just by this community. I am staying busy and trying to learn as much as I can. I always fear the "unknown" and all of this is new to me, the procedure, condition, process, etc. I have never been in the hospital for any type of surgery, so the whole thing is scary to me!
I know I am in good hands and I am sooooo ready to start to feel better!
Keep in touch if you can and hopefully we can walk the halls together soon!!
Marilyn M Tonia, I agree we are in the best place that we can be to have this done. Last year when I had a smal ... Read more
Marilyn M Tonia, I agree we are in the best place that we can be to have this done. Last year when I had a small stroke I went to cc for tests and dr. appointments and they were amazing! So thorough.
I too am feeling very emotional this week. I'm trying so hard to think positive but I am a worrier. I've had surgery before but nothing like this.
Then I see the pictures people post afterwards and it gives me hope and I think I Can Do This! So glad to talk to people here who understand!
Yes, well keep in touch also and hope to see you soon!!
Deborah Nelson I want to tell you both that I'm thinking of you and hope you see each other for support! It's so w ... Read more
Deborah Nelson I want to tell you both that I'm thinking of you and hope you see each other for support! It's so wonderful that you connected on this valuable site.
My surgery is scheduled on May 6, and I'll be traveling from AZ to NY, Mt. Sinai Hospital for my surgery. I had my Cardiac catheter done this past Wednesday. All went well except for a migraine afterwards. I have faith you both will do well and my prayers are with you. Hugs, Deborah
Marilyn M Deborah , thank you for your kind wishes. I feel very fortunate to be an hour away from a great hospi ... Read more
Marilyn M Deborah , thank you for your kind wishes. I feel very fortunate to be an hour away from a great hospital. I do feel like Tonia and I are on this journey together. Hope I get to say hi to her in person. You are going to a wonderful hospital too and am sure you will do great! Will be praying for you on the 6th!
Marilyn
I take calcium supplements because I have severe osteoporosis. I take the Metagenics br ... Read more
I take calcium supplements because I have severe osteoporosis. I take the Metagenics brand CalApatite Bone Builder Forte. I take 1200 mg daily plus 4000 IU vitamin D daily to help my bones. So far by making sure I get enough calcium my bones haven't deteriorated further (fingers crossed). My cardiologists have not expressed concern that I am taking the calcium.
If you don't want to take a supplement, you can certainly get it through calcium-rich foods: milk and milk products are your best source. 8 oz of orange juice with calcium added has 300 mg of calcium. An ounce of cheddar cheese has 205 mg of calcium and 1 C non-fat plain yogurt has 490 mg of calcium. Cereal usually has a good amount of calcium too -- Read the nutrition label.
Vitamin K 2 - 7
Also concerns about taking calcium supplements on their ... Read more
Vitamin K 2 - 7
Also concerns about taking calcium supplements on their own and why for heart/vascular reasons.
Have just had 6 week post AVR. Chest X-ray shows sternum completely healed. Have been on K2 - 7 for the past 5 weeks but not during my 5 day stop in hospital.