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Diagnosis: Aortic Stenosis, Bicuspid Aortic Valve

Member Since: April 9, 2016

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Marilyn M posted an update

2 years ago (July 21, 2024)

It's been 8 years since I had my aortic valve replaced with the Trifecta valve. I was shocked to find out it's failing and I have severe stenosis right now. I finished chemo in March and radiation a month ago and this Tuesday I will be getting a TAVR procedure.... Read more.

Rose Madura

2 years ago (July 21, 2024)

Marilyn, I wonder if the failure has to do with the chemo? Anyway, I don't have any information or experience with that valve. I hope you find answers soon.

Barry Kanick

2 years ago (July 22, 2024)

I just celebrated my 8yr Anniversary also with the Edwards Lifesciences Bovine Tissue valve. My Thoracic surgeon agreed with me that they are the Gold standard when it comes to design & a longevity track record of performance. ,,,,,,,,,,just my .02 cents

Marie Myers

2 years ago (July 22, 2024)

Unfortunately, the Trifecta valve ( an equine tissue valve) has a history of early valve failure. I believe it has been removed from the market. I would ask the cardiologist about it.

Marilyn M

2 years ago (July 22, 2024)

Yes, my cardiologist did say they are not using the Trifecta any more. I also think that the chemo may have also made it deteriorate sooner. Really hope to get a good amount of time from this TAVR valve.

Susan Lynn

2 years ago (July 23, 2024)

That's difficult news to receive. Glad TAVR is an option for your replacement. These bio valves are continuously improved; hopefully, the latest models will give you significantly longer use. Please keep us posted. Good luck! ❤️

Marilyn M posted an update

8 years ago (April 20, 2018)

It's been two years today that I had my aortic valve replaced. I've been doing great. After a year of going to rehab I started having pain in my hip. It got so bad that I had to quit exercising. After getting x rays I got an injection and had... Read more.

👍 Kelly Stoll and Nancy Surprenant Takahashi reacted to this

Anna Jones

8 years ago (April 20, 2018)

Hi Marilyn, I take calcium supplements because I have severe osteoporosis. I take the Metagenics brand CalApatite Bone Builder Forte. I take 1200 mg daily plus 4000 IU vitamin D daily to help my bones. So far by making sure I get enough calcium my bones haven't deteriorated further (fingers... Read more.

Vivien Appleby

8 years ago (April 20, 2018)

Research - Google or YouTube Vitamin K 2 - 7 Also concerns about taking calcium supplements on their own and why for heart/vascular reasons. Have just had 6 week post AVR. Chest X-ray shows sternum completely healed. Have been on K2 - 7 for the past 5 weeks but not... Read more.

Marilyn M

8 years ago (April 20, 2018)

Hi Anna. I don't have osteoporosis yet. But I was hoping I could just increase my intake just through diet. I just don't want to take something for one thing and then harm something else. I also am not doing any weight bearing exercise right now because of my hip.... Read more.

Vivien Appleby

8 years ago (April 20, 2018)

Most Western diets tend to be rich in calcium but still there is a problem. Northern Japan eat Natto, very rich in Vitamin K 2 - 7 and have very little osteoporosis - calcium is carried by D3 and K2 - 7 from soft tissue(arteries) to the bones and teeth... Read more.

Rose Madura

8 years ago (April 20, 2018)

I was recently diagnosed with osteopena and family doctor put me on 1200 mg of calcium and 400 iu of vitamin D3. I heard where calcium was not good for heart - that it would cause calcification on valves so I called my cardiologist who suggested I reduce Calcium to... Read more.

Marilyn M posted an update

9 years ago (April 20, 2017)

It was 1 year ago today that I had my aortic valve replaced at Cleveland Clinic. When I think back and remember how bad I felt before my surgery and how great I'm feeling now I am truly amazed! Even though there were ups and downs during recovery, it's the... Read more.

👍 Shannon Gray, Cathleen Weed and reacted to this

Belinda Marsaw

9 years ago (April 20, 2017)

Congratulations! Happy for you and this new life you've been blessed with. Sending all the peace, love and light your way 😘

Bob Fotoples

9 years ago (April 21, 2017)

Who was your surgeon? I'm probably going through it in November, or sooner(August now), and I'm gathering information to make the most informed choice. My twin had his done last December, and he's still experiencing some breathing issues. How was your recovery?

Lilly Black

9 years ago (April 21, 2017)

Congratulations! wonderful news.

Julie A McIntyre

9 years ago (April 21, 2017)

So good to hear your doing so great❤️

Marilyn M

9 years ago (April 21, 2017)

Bob, my surgeon was Doug Johnston. Since I had no blockages he did a mini thoracotomy. I was happy with him and C. Clinic. My recovery was slow at first because the first two months I had a pleural effusion on one lung. I really couldn't breathe or do much.... Read more.

Bob Fotoples

9 years ago (April 23, 2017)

My twin brother (who has worked out consistently for 3 decades, and weighs 40 lbs less than me) had his Aortic valve replaced last December locally by a highly reputable cardiac surgeon who "was on my insurance list" after experiencing some pain behind his sternum and shortness of breath. My... Read more.

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