Kristen's Posts

Diagnosis: Mitral Regurgitation

Member Since: June 20, 2015

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Kristen Musgrove posted an update
10 years ago (February 8, 2016)
Hi, I had my open heart mitral valve repair on August 19th, 2015 and it went well for the most part. They had to repair both my anterior and posterior leaflets and the connecting cords as well since they were all stretched out. They had trouble getting the right side... Read more.
Hi Kristen, I have had a mitral value repair and goretex cords inserted. I have a genetic connective tissue disorder called Ehlers Danlos Hypermobility Syndrome (which is associated with MVP - I mention more on other journals). I am concerned that EDS will impact my recovery from the operation as... Read more.
Kristen Musgrove posted an update
10 years ago (July 16, 2015)
I was in the E.R. on Sunday (overnight in observation) was having bad palpitations, weakness, and shortness of breath...more so than usual. Everything ended up being fine other than what we already know which is that I have bi-leaflet mitral valve prolapse with severe regurgitation; so both leaflets have to... Read more.
Prayers and best wishes, Kristen, for your consultation Monday. I pray you'll feel the peace I felt after I met my surgeon and had a date set. God bless you!
Kristen Musgrove posted an update
10 years ago (July 6, 2015)
I just had my TEE and Angiogram done on July 2, 2015...I definitely have to have Mitral Valve repair of both the anterior and posterior leaflets, and it will be done by open heart surgery. I'm trying to find out more about my surgeon, Dr. Daniel Ciaburri in Peoria, IL,... Read more.
Kristen, Have you checked out healthgrades.com to see how your hospital and surgeon is rated for valve surgery? When I was first recommended for surgery, my cardio highly recommended a surgeon who, it turned out was one of his partners. I talked with him but quickly broadened my search for... Read more.
Kristen, please consider Chicagoland heart hospitals such as Northwestern Medicine. My aortic valve replacement was last December 10. My surgery was textbook and my recovery was uneventful. Central DuPage Hospital was like a resort. When I retire, I will volunteer at the Cardiac wing. God bless with your decision.
Thank you for the information. I will do some research and check with my insurance company as well.

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