After i being waiting for 5 years, finally i did it . I replaced my Bicuspid Aortic Valve with On-X valve on 22-10-2023 . The surgery was minimally-invassive process. i left the hospital yesterday.
but i have some questions in mind:
when i waked and found i am in the ICU, i feelt with pain in back and shoulder i could not sleep 3 nights as a result of that. I was fighting to take a deep breathing but i could not. The breathing was very little and i felt out of breathing.
i daily feeling with some fever in the body. Hard to take a breathing normally, its look like a heavy thing on my chest.
the doctor told me this is normal and you should walk . But, when i am walking 5 minutes i am feeling very tired with less breathing with very high sweeting . Before the surgery and while the ARV was severe,i was not feeling with any difficulties in breathing.
my big problem now with sleeping, when i am trying to sleep on my back, i could not breathing normally, so i am trying to sleep on chair
please anybody here explain his experience with heart valve replacement and side effects ?
Leti Tenner Hi Mohammed, congratulations and welcome home!
I was in a great deal of pain, especially back and sho... Read more
Leti Tenner Hi Mohammed, congratulations and welcome home!
I was in a great deal of pain, especially back and shoulder pain, which I wasn't expecting. I learned the back pain resulted from being on my back during surgery on a metal table with my arms extended outward (like a "T") for several hours. The pain was so intense I couldn't sleep in the hospital bed, but instead slept in the recliner chair each night. The hospital provided me with muscle relaxant to help with the back pain. I'm 4 weeks post-op and I'm still sleeping upright in a recliner due to back discomfort.
Regarding breathing, a nurse in the ICU would tell me every hour or so, to make sure I'm breathing. She said I need to re-train my body to take deep breaths. I was so tense I found myself holding my breath or breathing rapidly. In any case, I found it difficult to breathe (deep breaths) post-op and I had to concentrate and make breathing intentional.
You're only a few days post-op and doing well. Walk for as long as your body permits -- even if it's only 5 minutes. Hopefully, you'll notice small improvements each day.
Rose Madura Mohammed, I think this all sounds normal. Your body had been through a great trauma. Be patient and t ... Read more
Rose Madura Mohammed, I think this all sounds normal. Your body had been through a great trauma. Be patient and take one day at a time. Do the breathing exercises that they give you. Hoping you will feel better soon.
Grace Mason Welcome to recovery Mohammed ❤️🩹. You are early days so don't be discouraged. Your discomfo ... Read more
Grace Mason Welcome to recovery Mohammed ❤️🩹. You are early days so don't be discouraged. Your discomfort will improve day by day. Sleeping in a propped up position on your back is commonly the most comfortable post OHS. Wishing you well❤️
Rich Butela Take heart Mohammed, It will get better quickly. in a week you'll be amazed at the difference.
Hi all Anybody here had replaced the aortic valve with On-X valve?. Does this valve producing noticeable ticking
Danielle Elizabeth The advice I was given is to trust your surgeon for deciding the best mechanical valve option. Your s ... Read more
Danielle Elizabeth The advice I was given is to trust your surgeon for deciding the best mechanical valve option. Your surgeon is going to know from your TEE, TTE, MRI, CT, etc which valve size and design will best fit your heart depending if there is stenosis, regurgitation, etc.
Ed Eller I got an On-X valve 4 weeks ago and have no noticeable ticking.
Mohammed Abdulrahman Hi Ed I sent you different messages but without response . Please do you have contact e-mail or w ... Read more
Mohammed Abdulrahman Hi Ed I sent you different messages but without response . Please do you have contact e-mail or whatsup to chat with you? . I am on the way to repair or replace my aortic bicuspid valve (severe regurgitation).
Hi all Please, I need an e-mail address of Dr Hiroo Takayama urgently I am living in Iraq and i am in the stage of making surgery decision . I am looking for professional surgeon for bicuspid aortic valve repair
Deena Elani Hi Mohammed, there is no direct email listed for Dr Takayama. If you prefer not to call given how ... Read more
Deena Elani Hi Mohammed, there is no direct email listed for Dr Takayama. If you prefer not to call given how far away you are living in Iraq, then go to the NY Presbyterian website and ask for a "second opinion" and they can contact you this way. You will need to send them your ECHO (ultrasound report) and maybe some other medical reports, before a virtual visit. I hope you find this helpful.
Hi All As i have to go through the aortic valve leaky treatment , i am still searching the best procedure for aortic valve permeant treatment. Therefore, i found the patient’s review in Dr Hiroo Takayama profile regarding the permanent aortic valve repairing. The reviewer has mentioned that the Dr Hiroo performed permanent procedure for repairing his valve, as highlighted in the attached file. Please, anybody here to confirm this ? Anybody have had repairing procedure with successful outcomes?
Adam Baumgartner I had my aortic valve repaired in February. So far so good.
Mohammed Abdulrahman Hi Adam Baumgartner Could you please explain your case story? what the symptomatic you were suffer ... Read more
Mohammed Abdulrahman Hi Adam Baumgartner Could you please explain your case story? what the symptomatic you were suffered from? How is your health status post surgery? Where and who was made the surgery?
Adam Baumgartner I had severe regurgitation and ascending aortic aneurysm. I had extreme fatigue and no exercise toler ... Read more
Adam Baumgartner I had severe regurgitation and ascending aortic aneurysm. I had extreme fatigue and no exercise tolerance. Had surgery at University of Washington with Dr Christopher Burke. Echo and everything looks good now. Feel great and doing well with exercise now.
Anybody here for help please. I have bicuspid aortic valve with severe regurgitation. I need urgent medical surgery asap. I need someone to guide me to the best hospital in the field of repair aortic valve or replacement valve. Please help me because in our country the medicine and surgeon knowledge is very poor. My life in the dangerous stage
Kimberly Eisenhut Hello, I wish I could help. but in U.S. I will try to look for some information in Iceland. Also, Ada ... Read more
Kimberly Eisenhut Hello, I wish I could help. but in U.S. I will try to look for some information in Iceland. Also, Adam Pick would probably have better access to help you wit this. He is the creator of this website and very knowledgable.
Mohammed Abdulrahman Thank you Kimberly Eisenhut so much Are you live in USA or Iceland? Do you have Bicuspid leak ... Read more
Mohammed Abdulrahman Thank you Kimberly Eisenhut so much Are you live in USA or Iceland? Do you have Bicuspid leaky aortic valve?
Kimberly Eisenhut No, I am in U,S. I have Tricuspid Leak and other heart problems, but my Dr is watching it and I cann... Read more
Kimberly Eisenhut No, I am in U,S. I have Tricuspid Leak and other heart problems, but my Dr is watching it and I cannot get surgery until it is severe leakage or I have more severe symptoms. Please ask the Dr that did this test and ask about any help they can give you in finding a specialist to speak with. Much LOVE and Prayers for you
Hi All I have been diagnosed with aortic Bicuspid valve with severe regurgitation. I went through internet to understand what can i do in the next stages and what is the proper procedure for treating the valve. I found that repairing valves are better than replacement. There is no need for lifelong blood-thinning and less infections. Please anybody here to explain the best choice?. I am living in Iraq and i also need the experts to help me how can i go to United States for treatment
After i being waiting for 5 years, finally i did it . I replaced my Bicuspid Aortic Valve with On-X valve on 22-10-2023 . The surgery was minimally-invassive process. i left the hospital yesterday.
but i have some questions in mind:
when i waked and found i am in the ICU, i feelt with pain in back and shoulder i could not sleep 3 nights as a result of that. I was fighting to take a deep breathing but i could not. The breathing was very little and i felt out of breathing.
i daily feeling with some fever in the body. Hard to take a breathing normally, its look like a heavy thing on my chest.
the doctor told me this is normal and you should walk . But, when i am walking 5 minutes i am feeling very tired with less breathing with very high sweeting . Before the surgery and while the ARV was severe,i was not feeling with any difficulties in breathing.
my big problem now with sleeping, when i am trying to sleep on my back, i could not breathing normally, so i am trying to sleep on chair
please anybody here explain his experience with heart valve replacement and side effects ?
I was in a great deal of pain, especially back and sho... Read more
I was in a great deal of pain, especially back and shoulder pain, which I wasn't expecting. I learned the back pain resulted from being on my back during surgery on a metal table with my arms extended outward (like a "T") for several hours. The pain was so intense I couldn't sleep in the hospital bed, but instead slept in the recliner chair each night. The hospital provided me with muscle relaxant to help with the back pain. I'm 4 weeks post-op and I'm still sleeping upright in a recliner due to back discomfort.
Regarding breathing, a nurse in the ICU would tell me every hour or so, to make sure I'm breathing. She said I need to re-train my body to take deep breaths. I was so tense I found myself holding my breath or breathing rapidly. In any case, I found it difficult to breathe (deep breaths) post-op and I had to concentrate and make breathing intentional.
You're only a few days post-op and doing well. Walk for as long as your body permits -- even if it's only 5 minutes. Hopefully, you'll notice small improvements each day.