Linda H and Elsie posted a note for Sherry that says:
Hi Sherry, gee its been a long time. Like you, I just celebrated my 5 years out in Sept. It has gone by so fast. Doesn't seem that it has been that long. I am doing ok except I now have a new ugly friend, his name is Arthur. My right leg was exrayed and it showed it was there. Now my left knee is doing the same thing but worse, so this is scaring me a little bit. I'm glad you are doing good. Well stay strong and keep it up friend. Until later
Chris K posted a note for Sherry that says:
Hi Sherry: Thanks for the 2 year update. Glad to know you--and your heart--are doing well. I remember reading your journals when I was preparing for my surgery just over a year ago and finding your experiences and advice very helpful.
I too find it hard to keep the exercises up when there are so many competing demands for my time--but I keep going at it. Some weeks I am better than others and I count all the little things that add up--even walking around the kitchen to cook a meal, up and down stairs for laundry, gardening, and parking in the lot farthest away from the buildings--all count. Have fun in San Diego!
Linda H and Elsie posted a note for Sherry that says:
Hi Sherry, Wow what a post. Did you go to a doctor to get all checked out? I think that is something we all fear. But glad you are ok. You take care and be careful. Happy Easter.
Sherry Bradford I called and we went over symptoms and decided no appointment needed. I am almost back to normal. My leg stopped hurting and I am feeling more "normal". The ... Read more
Sherry Bradford I called and we went over symptoms and decided no appointment needed. I am almost back to normal. My leg stopped hurting and I am feeling more "normal". The good news is my bone scan came back completely normal. No surprise to me, LOL! Thanks and hope all is going well for you!
On April 19, 2014...
Susan Smith posted a note for Sherry that says:
Sherry did you go to a doctor to get checked out after your fall. Reading your post I am sure we all flinched and cringed. God watching out for you and yes life is precious each and everyday. Do take care and keep up the good progress.
Sherry Bradford No, I just called and we talked. I was not feeling "right" for awhile after the fall but that was slowly improving and now seems all ok. I imagine it was a ... Read more
Sherry Bradford No, I just called and we talked. I was not feeling "right" for awhile after the fall but that was slowly improving and now seems all ok. I imagine it was a bit like how people feel after a car wreck when the seatbelt causes deep bruising. It was a shame to get so shaken up and then have such a mundane story to go with it! No bungee jumping or anything thrilling! :-)
On April 19, 2014...
Kathryn Waymire posted a note for Sherry that says:
Sherry, what I want to know is,how is your energy level now compared to before?
Thank you for sharing.God Bless You !
Grateful , Kathryn
Sherry Bradford I would say that I am more willing to admit when I am tired now and so rest more than I used to. Over the past year I have had some very serious stress at work ... Read more
Sherry Bradford I would say that I am more willing to admit when I am tired now and so rest more than I used to. Over the past year I have had some very serious stress at work and some difficult extended family trials. I had some serious anxiety and found that and the stress extremely tiring. So my energy has been down but not because of the surgery. I am consciously being more selective about what I choose to do because I don't want to add to my stress. But when I tackle things I enjoy, I find my energy is very good. I am my own worst enemy because I am not faithful to exercise. When I do I feel MUCH better.
I think a big issue is that we often have this surgery as we are getting older and our energy is different as we age - surgery or not. But I also think sleeping better, eating better, and more exercise would help me feel even better. That's my goal this year - to work on improving those three things.
Now, why do you ask? Are you facing surgery or have you been through it? How are you feeling?
On October 26, 2013...
Chris K posted a note for Sherry that says:
Sherry: Thank you for the one-year update. I am about 9 months behind you and have followed your journal carefully, learning lots from your experience and wisdom.
Like you, I appreciate the challenges of getting enough sleep and exercise to keep me healthy going forward. I am retired, but I do a lot of volunteer board and committee work and babysitting grandkids. It is always a juggling match to free up time to exercise (although, actually the grandkids are great for keeping up the exercise) and then to slow down enough at night to get a good nights sleep. But, keep up the struggle to juggle!!!
Take care!
Sherry Bradford Thank you! So glad you are doing well. I envy you the grandchildren to chase after! :-) We just have to keep forging ahead and making the good changes we ... Read more
Sherry Bradford Thank you! So glad you are doing well. I envy you the grandchildren to chase after! :-) We just have to keep forging ahead and making the good changes we can as we can! Too bad when they put in that new valve they can't plus in something that would make us hate junk food and love exercise! Haha!
On October 25, 2013...
Jean Trausch posted a note for Sherry that says:
Dear Sherry-
So glad to hear that you're doing well! Keep it up and have a great holiday season :)
Sherry Bradford Thank you! You have a wonderful holiday season as well!
On September 23, 2013...
Linda H and Elsie posted a note for Sherry that says:
Hi Sherry, Happy to hear from you. Sounds like you are doing really good. I think getting a new love Mr B in your life is probably just what the doctor ordered. Animals know how to win our hearts over. Just wish they could do better so we wouldn't have to go thru all the surgery stuff. I still have a little nerve pain but it is starting to feel a little different. Once in a while I will get those shooting little pains that make me stand right up. I guess it just one nerve yelling to the other one wondering where shes been.lol. Or can I say it love at first sight when they meet and the hug is so much it makes us take notice. Just pasted both of my birthdays and I have been going around 1 year down 14 to go before I can start this all over again NOT. Unless something happens before I get into my 80's. I don't want to live until 200. Well friend you take care and keep in touch. Until later
Sherry Bradford So glad all going well aside from some of these odd pains. I hope we manage more than 15. Maybe we will shock everyone and they will have to update their stats! LOL!
Hugs!
Sherry
On September 22, 2013...
Rebecca S posted a note for Sherry that says:
Sherry, at rehab I was told as he nerves start healing I would have sharp little pains and they could be even a year from now.
Sherry Bradford I have heard that too from some folks who have had other kinds of scars. Makes sense! Thanks for posting and best wishes!
On August 19, 2013...
Ernie B.S. posted a note for Sherry that says:
Thanks Sherry for your post. It's very encouraging for those of pre-op. Hope you continue to heal well and get sronger every day.
Linda H and Elsie posted a note for Sherry that says:
Hey Sherry, Speaking of vertigo.I get it to but not to your degree. I thought it might be my bp meds as it does cause dizziness. I got off my bp meds for about a week and I still got a little dizzy and loose my balance often. So now I am going to be telling the doctor this month when I see him. Do you get ringing in your ears? I do off and on. When I got off my by meds Elsie started to beat real hard. I could hear it. It sounded like I was drilling for water. I got back on them and it isn't so bad, so guess Im doomed for that but I take it at night now instead of the morning.
Well until later.
Sherry Bradford Hi there!! Sorry it took me so long to get back to post a reply. Yes until the Ear, Nose, and Throat doc performed his voodoo procedure, I did get ringing from ... Read more
Sherry Bradford Hi there!! Sorry it took me so long to get back to post a reply. Yes until the Ear, Nose, and Throat doc performed his voodoo procedure, I did get ringing from time to time. But that has all gone away. I hope you get help soon! I have been having really low blood pressure off and on lately and am thinking maybe I need a smaller dose of my BP meds. But the nurse told me that it is not likely I would ever be completely off BP meds after this surgery. She said one reason it is often needed is the valves are too efficient and thus creat additional pressure. Also when people are not on them there are spikes in the BP which is not good. So the meds evidently help flatten those spikes a bit. But maybe your dosage is off. Also there are lots of different meds for BP so it may mean you need a different one. Keep me posted! I go to my cardiologist in a couple of weeks for my first post- surgery full checkup. Fingers crossed it will be a huge non-event! :-). "
On July 21, 2013...
Chris K posted a note for Sherry that says:
Hugs to you Sherry for sharing so many of your ups and downs as you recover from your surgery. My turn is coming--July 29th. I find myself going back and re-reading your journal as I prepare for the big day and as I try to plan for what it will be like after. I expect that you won't want to update your journal as often as time goes on--but it is most appreciated when you do!
Lynn E. posted a note for Sherry that says:
Hi Sherry,
I enjoy your blog so much...it has given me a lot of reassurance as well...I am similar to you in age/diagnosis and will have an AVR in October. I have no symptoms so it was hard at first to wrap my head around this but I accept what is real, even if I cannot feel it. I am having a cardiac cath in a few weeks. I hope I do as well as you post op!
Sherry Bradford You will do great! And I am so glad the postings are encouraging and helpful! So many folks on this site helped me through my prep, surgery and after. And ... Read more
Sherry Bradford You will do great! And I am so glad the postings are encouraging and helpful! So many folks on this site helped me through my prep, surgery and after. And still do! I just reached out to Mitch Friedman about getting rolling with running and was so encouraged by his response. This is a great place! The cath is not bad. You will be under anesthesia for most of it. Afterward they have you lay very still so you don't have any bleeding. Sometimes they have to put pretty hard pressure where the cath went in to be sure the area clots well. That is the only uncomfortable part and it is over very quick and sometimes they don't have to do even that. Just take lots of deep breaths and think about how great you are going to feel once all the waiting is over and you are on the way to your new life with a happy and healthy heart! Even though my symptoms were subtle, during the cath they were unable to get the camera through my very calcified valve. That convinced me firmly that the surgery was the right thing to do. I do believe getting through the surgery before symptoms are severe helps with recovery time. Hugs and prayers heading your way! Keep us posted!
On June 21, 2013...
Deb Ziegler posted a note for Sherry that says:
Hi Sherry,
I just read your latest post about memory issues and sleep, and it reminded me of my dad. Last October, at age 85, my dad had emergency mitral valve replacement. He was not in good shape going in, but he did survive the surgery. At four months out, it was very apparent to me that he was more tired than he should be......he was sleeping for about 20 of the 24 hours every day. and the hours he was up, he was extremely tired. His memory was also declining, but it wasn't good to start with. Anyway, at five months out, his doctor sent him for a sleep test. Turns out he has sleep apnea and was waking up 50 times an hour! He now wears a sleep apnea mask at night, and he is like a whole new person. He is literally at least ten years younger both physically and mentally. He is now up and actually working most of the day, and his memory is better than before surgery. It is pretty amazing. So, it might be worth getting a sleep test (especially if your deductible is used up...they are expensive). I'm considering getting one for myself, as I have never been a good sleeper, and after seeing what a transformation it made in my dad, it sure can't hurt!
Just thought I would pass that along. Hope you continue to improve.
Sherry Bradford Deb thanks for the tip. I may do this. I see a huge difference when I get a good amount of rest. I feel like I am sleeping pretty well once I get to bed but ... Read more
Sherry Bradford Deb thanks for the tip. I may do this. I see a huge difference when I get a good amount of rest. I feel like I am sleeping pretty well once I get to bed but I am not getting enough hours for sure. I will keep you posted and hope to hear from you if you get one done!
Best wishes always!
Sherry
On June 10, 2013...
Bill Bard posted a note for Sherry that says:
Just saw your journal today as I am just two weeks away from the Big Event. I agree that this supportive community is really helpful, and I think that blogging these last few weeks has relieved most of my pre-op anxiety.
Your writing about courage with such passion and honesty was inspiring. I have a similar diagnosis as you did, and really had no choice but to proceed now. And I intend to follow your progress as I hope that we both reach the best new normal possible! Thank you for sharing your experience so eloquently.
Sherry Bradford Bill, thank you so much for your comments and I have you in my prayers for your upcoming surgery! I look forward to hearing about your recovery! We live in ... Read more
Sherry Bradford Bill, thank you so much for your comments and I have you in my prayers for your upcoming surgery! I look forward to hearing about your recovery! We live in amazing times and the prognosis for a good recovery has never been better. Whatever lies ahead we have wonderful folks on this site with whom to share the journey!
On May 29, 2013...
Michelle Wanke posted a note for Sherry that says:
Hi Sherry,
I just read your latest post and wanted to let you know that you are not alone with the memory issues. I have sticky notes everywhere and the timer on my phone set to remind me of when to take my medication or appointments. I still struggle to get words out of my mouth and sometimes forget where I am going with a story right in the middle. It's so frustrating. But I survived and so did you. If I have to have sticky notes around forever it was not a bad price to pay for a healthy heart and a longer life. Don't get down on yourself for your feelings. Everyone recouperates at different rates. I have to remind myself of that. Take care and remember that you are not alone.
Sherry Bradford Michelle thank you! You don't suppose the maker of those sticky notes and the doctors are in cahoots do you? Haha! The worst moments for me are when I have ... Read more
Sherry Bradford Michelle thank you! You don't suppose the maker of those sticky notes and the doctors are in cahoots do you? Haha! The worst moments for me are when I have to recall someone's name or title at work. It was literally a no brainier in the past and now I dread those moments. Sometimes people who have known me a long time give me the saddest look - as if they are feeling sorry for me for slipping. But like you, I try to focus on the fact that I am alive and have a chance to enjoy so much more than I would have had without the surgery. I just ran a mile on my treadmill this evening and I could not have done that at all prior to surgery without feeling sick for days. Just hoping that I can post a year from now about a big improvement. Thank God for this site and wonderful folks like you! Hugs!
On May 29, 2013...
Ron Wilson posted a note for Sherry that says:
Sherry, God Bless You for taking the time to write what you do and help others. I'm four months out and you have helped me tremendously. Vertigo is at night and the Lipitor makes my muscles ache a little. As a macho and loving Grandfather, depression is something I never, ever worried about before, at 62 now. Doing great for what this body has endured, no regrets, no complaints. Sure am looking forward to, as you say, "Normal" again, or close to it. Please keep writing. God Bless. Ron
Sherry Bradford Thank you for your encouragement, Ron! This site was truly a Godsend to me and I am glad to hear some of my experiences are helping others as they helped me! ... Read more
Sherry Bradford Thank you for your encouragement, Ron! This site was truly a Godsend to me and I am glad to hear some of my experiences are helping others as they helped me! This sure is an adventure, isn't it.?! I tell folks I don't recommend it for fun but it sure beats the alternative! :-). You are so right that our bodies have been through a lot and I try to remind myself of that when I am discouraged. Time is an amazing healer. I just wish it would do its work a little faster so I have more time to enjoy it when I get there! :-). Hugs and prayers for your continuing recovery!
On May 29, 2013...
Lee Castro posted a note for Sherry that says:
Hi Sherry,
Yup, I have short-term memory issues as well. I've changed my routine at home where I try to keep everything in it's place (like my keys!!!). And......although I didn't like using them in the past, I use those yellow post it notes to write anything down, or I'll forget. I also try not do do too many things at once. Perhaps my memory will improve, but these strategies help a greatly. Congrats on your recovery!!!!
Sherry Bradford Thank you, Lee! I will have you in my thoughts and prayers (if I remember!) Haha! Just kidding! I will remember that! I do the same. Sticking to one thing ... Read more
Sherry Bradford Thank you, Lee! I will have you in my thoughts and prayers (if I remember!) Haha! Just kidding! I will remember that! I do the same. Sticking to one thing at a time is my prime strategy also. I am going to look into a brain games type computer program. They have mixed reviews but I figure it can't hurt! So glad you are moving forward also. It is very frustrating sometimes, but I am grateful to be alive. Life is good!
Hugs!
On May 29, 2013...
Deb Ziegler posted a note for Sherry that says:
Hi Sherry,
Glad to hear you are doing better overall, but I know it is not what you were hoping for at this point. After reading your symptoms, I was wondering if you are taking Amioderone. I know that can cause all the symptoms you are discribing. Many surgery patients are sent home from the hospital on Amioderone, but usually only for a short time. It is usually used for treating Afib.
I hope you continue to feel better. I would say it took me a whole year before I felt more normal than not. Still can't say I'm 100%, but I'm good enough!
Take care,
Sherry Bradford I was lucky and never had any afib so I didn't have that med. I am just on things I was taking prior to surgery except they added meds for High Blood Pressure ... Read more
Sherry Bradford I was lucky and never had any afib so I didn't have that med. I am just on things I was taking prior to surgery except they added meds for High Blood Pressure and daily aspirin. I think they may take me off the high blood pressure if I keep improving. They were hoping it was just the impact of increased throughput of blood and as my body adjusted it would go away. Hope so. The memory issues started immediately after surgery but were not really scary until a few months post op. It has improved in some ways but it is still much worse than before surgery. I am hoping things will continue to improve and it is encouraging to hear from you and others that they felt better and more themselves as time went on! Thank you so much for that encouragement! It means a lot!
Hugs!
On May 29, 2013...
Connie T posted a note for Sherry that says:
Hi Sherry..
It was great to see your post & know you are doing better... I have been wondering how you were doing.
I too still have memory issues, vertigo, dizziness etc...etc... I was sure hoping by now that would be all behind me...but......not all of us are so lucky. The neurologist I saw tried to tell me my vertigo dizziness & loss of sight in one eye (TIA) had NOTHING to do with my AVR!... Reading the many journals here I found others suffered from the same, but when I tried to tell him about this site and others experiences...he said "I don't know what those people are feeding you".....so you guessed it...I never went back to him! lol.... anyway...another doc said it could be 1 yr to 18 months before the memory issues are resolved....yikes...like you said ...it can be a little embarrassing....I am sure my two major surgeries in 1 year didn't help that cause....he states it was from the heart-lung machine...so until my 18 month anniversary....I guess I will try not to worry about it!.....thank goodness for this site....otherwise... I really would have thought I was losing it!
Continue to keep your posts "real"....I am sure you have no clue how many you have helped along the way feel "normal"...
Thinking of you!
Connie T
Sherry Bradford So good to hear from you! I hope they are right and the memory gets better over time. Some posts on other sites say pump brain can result in behavior changes ... Read more
Sherry Bradford So good to hear from you! I hope they are right and the memory gets better over time. Some posts on other sites say pump brain can result in behavior changes that are similar to post traumatic stress: anger, depression, etc. but no studies are published that I can find. That's why I think the doc you had before was so unbelieving. They have to get over that as they are doing more of these surgeries earlier in the cycle of heart dysfunction in hopes of keeping the really bad symptoms from occurring. But that won't help if folk's have diminished quality of life. We have to keep telling them so hopefully some will hear and make things better. They have changed how slowly they warm us up after the operation in hopes that will help. But more needs to be explored.
I don't know what I would have done without this site and folks like you, Linda and others! It helps so much to come someplace where folks are experiencing the same things and can help with kind words and tips!
Hugs!
On May 28, 2013...
Adam Pick posted a note for Sherry that says:
Hi Sherry,
Sherry Bradford Thank you, Adam! Hope you and your family are doing well. Appreciate all that you do to make this site available!!
On May 9, 2013...
Hey Sherry, Well said. You said some things in here that fit me to a T. Thank you, made me feel a litle better as I have been having some of the depression, and that is not me, but I am fighting it by myself. Guess its time for another little blog as I havent't done so for a little while. You take care.
LInda H and Elsie AVR 9/19/1
Sherry Bradford Hugs my friend. One step at a time is all we have to take. The journey will take care of itself. I hope some doctors and nurses read these posts so they ... Read more
Sherry Bradford Hugs my friend. One step at a time is all we have to take. The journey will take care of itself. I hope some doctors and nurses read these posts so they gain a better understanding of what we go through. We are a huge research population and hopefully they will learn and keep finding ways to help us recover better and with more information. Take care and do post! Hugs again!
On May 4, 2013...
Thank you for your sage advice--and especially the reminder that it isn't over just because the surgery is over!
Sherry Bradford You take care as well. The wonderful thing about this site is that there are so many different experiences described. There is a lot of commonality to some ... Read more
Sherry Bradford You take care as well. The wonderful thing about this site is that there are so many different experiences described. There is a lot of commonality to some of the experiences, but each of us arrive at the table with different overall health, adaptive strengths and weaknesses, and expectations. It helped me a lot - and still does - to keep reading how people are doing as they move along the recovery line. John's note below is a terrific reminder that it is a journey. And thank God we get to make the trip! We are truly blessed with that for sure!
On April 27, 2013...
Hi Sherry
Today is my fourth rebirth day. In four years I find there was never a defining turning point. I look at it as a long gradual uphill course with lots of milestones along the way. There was the first walked 5k, marathon, triathlon, 5k, 10k, 2mile swim, gradually working full time on the farm, daughters wedding,new granddaughter and lots of other things. Oh ya there were a few molehills also, but you always get over them. Good luck on your blog, I always thought writing one would be interesting. I look foreword to reading yours. Last night my son and his wife took us out to supper and told us that without any medical intervention this time they are very unexpectedly expecting. Life and God is GOOD!!
I still get tired in the early evening and don't sleep so well, but the sleeping was a problem before surgery.
We just had our first shirt sleeve day yesterday(68degrees). Sure was better
than all that snow the previous weeks.
My surgery was before Adam started this so it is on caring bridge johnoneill
Good luck on your recovery. Time does fly.
John O'Neill
Sherry Bradford Thank you John and congratulations! Nothing so precious as new life! I had hopes before surgery about the outcomes and though incredibly grateful to be alive, ... Read more
Sherry Bradford Thank you John and congratulations! Nothing so precious as new life! I had hopes before surgery about the outcomes and though incredibly grateful to be alive, I cannot get past this feeling that I am no longer me. It is a new reality. My guess is this is common after any major surgery. When I was young I underwent a horrific event and it was sort of this same thing. Always feeling like I was no longer me. It may actually be some kind of physical response against the trauma. I recovered then but it took a long long time and I guess I don't feel I have as much time at my disposal. But I am alive and some days ARE good. So hopefully I will look back in a year or two and be able to see how far I have come and will have arrived at a better place. Hugs!
On April 8, 2013...
Your welcome Sherry, I'm always here. We are so close in our surgeries, it helps. The other dayI thought I was going to have my party lol. Elsie kinda quieted down and wasn't pounding so hard and the irritation pain was hardly there. I woke up as usual and I couldn't feel anything beating. Had to pinch myself to see if I as still living. Its been so long since I felt so normal. I d o think going to the Y is helping and the water. If I miss a week or days I feel it. The water feels pretty good cause I can do a little more stretching without the hurt. I have been doing 2 classes in water back to back but now I think that might just be a little to much as I feel kinda dizzy getting out and have to move slow. Its not a bad class just long as my rehab papers said not to go over 1 hour. I think the worse part is getting out of the water. I don't care what you weigh it is like 2 tons. When my daughter had her problem I thoght Elsie turned into a bull and was going to stomp right out of my chest. I know bp was kinda up there. Hope that never happens again, wasn't fun. Getting out and doing the exhibit that you went to sounds like fun. Maybe you should tell your doctor whats going on, I dont think you should feel tired like that. Maybe you need something to help you get over those feelings. If you feel tired when out and about sit down for a little while for a break. Maybe that might help. Oh well until later. We are getting there. You will see that silver lining again and soon. The weather is getting better except now everything is turning green with all the pollen. Oh well.
Linda H and Elsie
Hey Sherry, Your post was a bingo. I feel the vey same way. I dread going to bed so therefore I stay up late at night and still get up kinda get up early. But I do think how lucky I am now and dont have any of the problems I use to have. I here other people with other health problems and I think God for what I had, it could be worse. We just have to be patient.
I just heard Andre Bocelli on Dr Phil. He said you have to enjoy life to its fullest. He s blind and do you know he goes windsurfing? Wow. My doctors all have said it takes a good year to completely get over this and back to 100% normal. So hey kid we are getting there. Like you when I realize I have no more pain at all it will be a party. I think we all deserve it. Keep doing the good work.
LInda H and Elsie.
Sherry Bradford Linda, I honestly do not know what I would have done without this site. Had I been going through all this without the wisdom of those who have gone ahead of ... Read more
Sherry Bradford Linda, I honestly do not know what I would have done without this site. Had I been going through all this without the wisdom of those who have gone ahead of me, I would be even more depressed than I am. I told my doc that one of the problems is life doesn't stop while we go through recovery. The same difficulties, issues, irritations, financial issues, other medical issues, family stuff all keeps going on. But we have so much fewer emotional/physical resources on which to draw to get through them. It will TRULY be a party when I can look back and say it has been a long time since I felt bad. I believe - HAVE to believe - that day will come. I have the greatest stamp that I used just this weekend: I'm Looking For A Blessing That Doesn't Come In Disquise! And that is so true. I don't want to look for the silver lining - I just want it to be there. I believe it will again. Hugs to you - you inspire me and keep my spirits up! Thank you!!
On April 3, 2013...
Take care Sherry! I guess it can be so frustrating some times -- that it takes so long to totally recover. I will bear that in mind when my turn comes. Thanks for sharing. Hope today is a better on for you.
Sherry Bradford Hi, Chris! Today is better! Some days are very frustrating. You just want things to heal faster and get on with things. But it takes time and there just ... Read more
Sherry Bradford Hi, Chris! Today is better! Some days are very frustrating. You just want things to heal faster and get on with things. But it takes time and there just isn't any magic shortcut. But the alternative is no good so we have to just keep going. Thank goodness for the wonderful encouraging examples here on the site. I truly would have been so discouraged at different points without knowing how others have gotten through this! I reread comments and posts often to keep my spirits up.
On April 3, 2013...
Well, I just read your recent entry.
You sound like me and I haven't even had the operation yet. I am going to meet my surgeon (Dr. Paul Hendry) for the first time April 8th, next Monday!!!. I am so mad about having to have this supposedly life saving operation. I feel great.... no symptoms of having any heart problems ..... but the cardiologist insists that I need surgery.
I Too keep a brave face, and I am sick and tired of being told everything is going to be alright..especially .After reading everyone's post surgery pain..... I wonder if I will ever be myself again afterwards also.... I must tell you, that your journal has brought so many smiles to everyone.... you are a great writer....I am so sorry that you are feeling down .... you have brought so much joy to everyone who reads your journal....
I tell you, next Monday, when I speak to my surgeon for the first time, I am telling him that once I am better, I am going to apply to see if I can be a guest on the tv show DANCING WITH THE STARS... AND I AM ASKING MY SURGEON IF HE WANTS TO JOIN ME. ....
SO MAYBE all of us can apply to the show too.... what do you think???
ps. I live in Ottawa CANADA, and my surgery will be at the OTTAWA HEART INSTITUTE, on April 24th - (Tentative date) we should all apply to the show, well, at least some of us.... the brave ones.
I am brave now, but I know, after the operation, I probably won t have big ideas of dancing with the star, but rather hang out backstage with them. KEEP SMILING, you got me smiling today after reading your journal. Love you for that, since I was so depressed yesterday.....DIANE XX
Sherry Bradford I think that sounds like a great idea and would be a real hoot! Thank you so much and I am glad I could bring on a smile! Most days are much better than yesterday ... Read more
Sherry Bradford I think that sounds like a great idea and would be a real hoot! Thank you so much and I am glad I could bring on a smile! Most days are much better than yesterday and my prayers for me and everyone on the site is that we all can recover and have far more good days than bad! Hugs!
On April 2, 2013...
Like I said before.....give it some more time. It really does take awhile to heal. And as John O'Neill wrote below, try to think of all the good things you have going for you. Did you know that it is impossible to be grateful and feel stressed at the same time? I haven't had a real smooth recovery either, but I have practiced being grateful for every little (and big) thing in my life, and it really does help to make to things easier. I remember a year ago being so sick of going to doctors and not feeling "normal", but now I am feeling so much better. So hang in there! Close your eyes and be glad you are on the other side of the surgery. Ask God to bring you His peace, and just try to imagine how you would feel if you hadn't had the surgery.
Godspeed and God Bless,
Deb Ziegler
Sherry Bradford Deb I am really clinging to stories like yours and praying for that day when I feel better most of the time. Thank you for your comments. I really appreciate ... Read more
Sherry Bradford Deb I am really clinging to stories like yours and praying for that day when I feel better most of the time. Thank you for your comments. I really appreciate the kind encouragement and reminders. Hugs!
On April 2, 2013...
Hey Sherry, First of all hope you had a Happy Easter. If it helps out, I am y6 monts out and still have pain. Thought it would be over by now. Dont really have to take pain pills very oftern but last week was a day. Guess I better put a new jornal in here and explain. You Connie T and I will all have to join hands and march on. We can do it together. Yes we can. Hugs
Lina H and Elsie AVr 9/19/12
Sherry Bradford Thank you! Easter was nice. I hurt a lot over that weekend. It isn't that bone grinding pain but more of a persistent feeling of discomfort and tenderness. ... Read more
Sherry Bradford Thank you! Easter was nice. I hurt a lot over that weekend. It isn't that bone grinding pain but more of a persistent feeling of discomfort and tenderness. Like you I don't take prescription pain pills too often any longer. Usually an Aleve will take care of things. But the continuing fatigue and sleep issues wear me down most. I keep forging ahead and hoping sometime in the next few months I will just wake up one day and realize I haven't had a bad day for a long while. That will be a day for celebration! Hugs!
On April 2, 2013...
Sherry, I feel your pain (literally). lol I am three months post op for BAV repair. I know how lucky I am to have been diagnosed and repaired. I know and hear of so many others that suffer from other alilments and are not as lucky as I am for recovery. But with that said, I agree with how you feel. I have felt that way many many times. I kept saying that I didnt want a new normal, I wanted my old normal back. If all that I read is correct, I think as time goes by we will feel the same way. Life is ever changing right?? All we can do is take the good with the bad.
Good luck, I have enjoyed reading your journal, it makes me feel less guilty when I am not feeling so so lucky.lol Take care and I will keep you in my prayers.
Sherry Bradford Thank you for your comments! I knew if I was feeling that way that others have felt the same and I just needed to get it out! I truly am grateful to be alive ... Read more
Sherry Bradford Thank you for your comments! I knew if I was feeling that way that others have felt the same and I just needed to get it out! I truly am grateful to be alive and have this chance at a longer and healthier life. I truly cling to the hope from all the wonderful recovery stories here on the site. They keep me putting one foot in front of the other on those down days! You are right - we have to keep moving forward! :-)
On April 2, 2013...
Hi Sherry
Whenever I felt frustrated in recovery I would just think of all the positives. When the rehab team would ask about depression I would just tell them hey, I just survived major surgery, I have a loving wife taking good care of me, three succesfull children, three wonderful grandchildren, that I will be around to dance at their weddings. Why would I be depressed? Maybe I was just lucky, so list all of the positives and realize that the negatives will eventually go away.
Happy recovery,
John O'Neill
Sherry Bradford Thanks, John! I do the same but there are just some days when it all piles up. I am so grateful to be alive, and my hope is that my recovery is on the same ... Read more
Sherry Bradford Thanks, John! I do the same but there are just some days when it all piles up. I am so grateful to be alive, and my hope is that my recovery is on the same trajectory as all the folks here who have continued to feel better with each passing month. I am certainly better on some days than others and hoping the better days will start to be more the norm. Hugs and so happy that you are experiencing such a great outcome. It is encouraging!
On April 1, 2013...
Hi there Sherry!
You took the darn words right out of my mouth! Some days it just sucks to be me! ;).....and a good tantrum & pitty party is just what I need...lol...then up I jump...and back on the recovery trail I go.... I am determined to be ME again....may take me a bit longer than others...with many more bumps along the way then I ever bargained for......but....we can do it.....take my hand....RECOVERY OR BUST!...
Thinking of you with smiles...
Connie T
Sherry Bradford Lol! I like that! We should get some bandaids printed up that have that printed on them and send them to folks having the surgery! Would be good to cover some of those port holes as they heal! Hugs!
On March 24, 2013...
Hi Sherry,
Love your pet stories. they bring so much love into your life, it's so sad to loose one though. I have 4 dogs that I love dearly. Three years ago my tiniest disappeared from our back yard. It's a long story but in short we never saw her again. I've always joked, she broke my heart (and therefore the need for OHS).
You make a great analogy to cage guarding and looking at our lives from a new perspective. I've been trying to do the same and need to constantly remind myself I'm lucky to be alive.
Take care,
Nancy B
Sherry Bradford That had to be awful to just have her gone without warning or knowing what happened! I am so sorry! They truly carve out a special spot in our lives. I am ... Read more
Sherry Bradford That had to be awful to just have her gone without warning or knowing what happened! I am so sorry! They truly carve out a special spot in our lives. I am cage-dominant in so many ways. I guess it is something we have to work on always. It is so easy for these big things like OHS to trigger lots of fears. We just have to keep reminding each other! Have a great week and thank you for leaving a note!
On March 19, 2013...
HeySherry, Still lol.about the tatoo. That was to funny. I will be your first customer at the tiki bar. I would love to have a"fuzzy navel" drink or sex on the beach drink. Havent had the guts to order the last one yet but fuzzy navels are really good. We use to call that our office drink cause we all ordered it. It has peach schnapps in it yum yum. Take care.
Linda H and Elsie
Sherry Bradford Haha! Go for it! What's the worst they could do if you ordered it? Hugs, friend!
On March 17, 2013...
Hi Sherry:
I tend to do the same as you, when busy,-- just cut back on sleep. I have read about research that shows the negative impact on one's mental health and cognitive functioning. So, I do try very hard to get a good night's sleep. They also say that exercise helps you sleep better.
I am still waiting for my surgery date and appreciate reading your regular updates so I know what to expect.
Sherry Bradford It's funny how our brains think our body doesn't know what it really needs! I'm trying hard to give myself permission to nap when I need to and get to bed ... Read more
Sherry Bradford It's funny how our brains think our body doesn't know what it really needs! I'm trying hard to give myself permission to nap when I need to and get to bed earlier. I have you in my thoughts and prayers about your surgery date! Hang in there!!
On March 15, 2013...
Hi Sherry,
Thank you for sharing so much helpful and insightful information and personal experiences. My husband Steve is 6 weeks post op and is also experiencing low bp. We see his cardiologist on Monday. His stamina also comes and goes. His next step is cardio rehab. How long did you do it for? And what exactly did you do?
Aida and Steve Bond
Ps. Love the list...can I suggest that everyone gets a new birthdate?
Sherry Bradford I will definitely add that to my list!! Congratulations to Steve and to you - 6 weeks is a great step forward! The stamina is a tough one - but one that you ... Read more
Sherry Bradford I will definitely add that to my list!! Congratulations to Steve and to you - 6 weeks is a great step forward! The stamina is a tough one - but one that you and Steve will see improve more and more as time passes. At first his body has to spend a LOT of energy just reknitting everything, adjusting to a new blood flow, etc. Cardio rehab was AWESOME in making leaps forward in stamina. Unfortunately I had to return to work after just a few weeks (about six) - but I am SOOOO grateful for the time I spent. I hope that Steve can spend longer. The more the better. He will be exhausted after the first few sesions but the improvements are amazing. They started me slow - 5 minutes in gentle warmups, 15 minutes on a treadmill, 10 minutes on an eliptical bike and 3 minutes on a step (step up, down on a 6" step) then 5 minutes cooldown. Even that much would make me need a nap for a lot of the afternoon! But they gradually increase the minutes and repetitions and by the time I left I was doing a pretty good clip of a mile on the treadmill, lifting 3 pound weights and 15 minutes fast on the eliptical. But many folks who can go longer got up to MUCH more - and that is so helpful. It is much harder once I went back to work to get in my exercise. Congratulations and all my best wishes to you all in your journey! I'll be reading Steve's posts!
On March 14, 2013...
Hi sherry
One for your top ten. With my mechanical valve I no longer have to feel for a pulse, I can hear it if it is quiet and I lay the right way.
Happy recovery,
John O'Neill
Sherry Bradford John - I LOVE that! Even my biovalve is much louder than my sick valve and I have to turn my head just right so it doesn't keep me awake! I'm adding this to the list!
On March 13, 2013...
Hey Sherry, Love your 10 strategies esp. number 1. Thought that was cute. Lets see my scars come in an upside down T with a little flag off to the side lol. From a hysterictomy years ago and the flag was a bypass for this surgery. No bikini for me lol.
I started going to the Y today. I think it is going to be very good. Now I am hurting a little after not doing to much after rehab of about 3 weeks ago. Silver Sneakers was good. Didn't miss a muscle but slow going. Then the next class was balance and strength. It was just what I did in rehab except something new for lower back and adomonal. She made sure I was'nt doing anything wrong. Next week think I might try the aorbics in swimming.
If it helps the YMCA here opens up at 500am. Im not a morning person either.
Keep doing the good work. Life is good.
Linda H and Elsie AVR 9/19/12
Sherry Bradford LOL! We do tend to collect more scars as we go along, don't we!!!??? I'm not a tatoo person but I would love to get a zipper pull at the top of my scar just ... Read more
Sherry Bradford LOL! We do tend to collect more scars as we go along, don't we!!!??? I'm not a tatoo person but I would love to get a zipper pull at the top of my scar just for the shock value! HAHA! I may just have to pen one in with a marker sometime! I think I am definitely going to have to "learn" to be a morning person. I really think the more exercise I can get the faster I can dump these darm blues. Life really is good - despite all these bumps! I was telling my regular doc about being so weepy depressed and told him I thought I really just need to move to Cabo and start up a tiki bar on the beach! He said he thinks that might do the trick. Now if insurance would just cover it! :-)
On March 8, 2013...
HI Sherry, I went to the Y and I think I am going to really like it and even get more out of it. I am goin to be doing Silver Sneakers and a balance and stretch. She said that would be real good for me since surgery. After I get a swimming suit, I will do the pool for arthritus and see where else it takes me. It would probably be real good for you too. They have all the equipment and can pretty much do whatever you want. Cant wait. Will let you know how it goes.
Linda H and Elsie AVR 9/19/12
Sherry Bradford So glad to hear you like it! I have to figure out something. As Dave said in his note to me a few weeks back - you have to put the exercise first. That just ... Read more
Sherry Bradford So glad to hear you like it! I have to figure out something. As Dave said in his note to me a few weeks back - you have to put the exercise first. That just isn't happening with work, a two hour total commute each day. By the time I eat and rest a bit, it is 9:00. But I may just have to forget that I am not a morning person and try to get up 30 minutes early and exercise then. I still try to get in some walking at work - but it just isn't strenuous enough. Keep me posted!
On March 4, 2013...
Hey Sherry, Well said couldn't agree more. Since I have gotten out of rehab and not doing anything rigt yet, I feel pretty ansey(sp) Today I am going to check on the YMCA. It has been cold here to and I don't feel like going out to walk in a clold wind. I had to get my doctors blessing to go so now that is done along with paper I got from rehab to continue.
Can't believe its almost 6 months, how time flies. Well keep doing good. Talk later.
LInda H and Elsie AVR 9/19/12
Sherry Bradford I hope you like the Y! Let me know as that was something I had thought about and then once I started work again was so tired at end of day and got home so ... Read more
Sherry Bradford I hope you like the Y! Let me know as that was something I had thought about and then once I started work again was so tired at end of day and got home so late I just didn't want to go out again. But I bought myself a step like we had at rehab and I'm going to make myself use it for exercise in front of the TV. I have two friends at work that are going to walk with me each lunch hour so that will help a BUNCH. You keep doing good too! Six months YAHOO!!!
On February 26, 2013...
Hi Sherry, I have an idea. See if you can find a relaxation CD. When I had my stress management class in rehab she gave us each one and I just played it tongight. It really works. I felt so relaxed afterwards, wow. I plan on using it again. Have you been getting blasted with bad winter weather where you live. That could make your bp go up to. Thats why we moved to SC to get away from the snow. I remember when I had to drive 5 miles just to get across the street to drive 3 miles to work. My bp was so high, I said that was it, but I was getting to retire anyway so it all worked out anyway. Hope everything will work out ok for you, spring is around the corner lol. Good luck
LInda H and Elsie AVR 9/19/12
Sherry Bradford Good idea! Thank goodness not much in terms of ice or snow around here but The freeways of Texas make Los Angeles look like a parking lot. People are crazy ... Read more
Sherry Bradford Good idea! Thank goodness not much in terms of ice or snow around here but The freeways of Texas make Los Angeles look like a parking lot. People are crazy on the roads during rush hour. Hopefully I can get back to riding the train soon and at least relieve the traffic stress! It will be several more years before I can retire so I have to find a way to manage this. I think exercise is going to be the key along with a better diet. Hugs, friend!
On February 26, 2013...
Hi Sherry, well put: just a "bump in the road" to recovery. You are so dedicated that I know this will just help you find the right pace. Lots of love, Vanessa
Hey Sherry,
Well said loved your post. I am 5 months today and checking out Silver Sneakers program. Stay well Life is good
LInda H and Elsie AVR 9/19/12
Thank you Sherry for your wonderful insights. I am expecting surgery in May or June of this year and have been following your journal with interest. It is helping me know what to expect. I think that I too will cluster in the "middle" like you.
I found your comments about your symptons pre-surgery interesting. I too don't feel leel like I have any serious symptoms. But from what I have read, and what my cardiologist said, it sounds like it happens so gradually that maybe you don't notice it. My cardiologist said that I will feel a lot better after the surgery. So, on days when I question the need for the AVR, I will remember what you said here.
Sherry Bradford Chris I so hope the postings help a bit! Those of others certainly helped me along the way! Sometimes average is nice - and especially medically! :-). There ... Read more
Sherry Bradford Chris I so hope the postings help a bit! Those of others certainly helped me along the way! Sometimes average is nice - and especially medically! :-). There are days when I am walking around and it suddenly strikes me that I have not felt as well in many years. It really does seem to creep up. I am grateful I was not in surgery for a medical emergency. I think those folks have a much harder time in recovery. You are having this done at a great time and you will do great! I will be following your progress and have you in my thoughts and prayers!
On February 8, 2013...
Hi Sherry, you're doing great. My trick is to put exercise first. Not that I always can, but once I got in the habit, it became the default. So other things have to displace it, not the other way around. If you can make it social, that helps too as then you have a peer group and peer pressure comes to bear to get you over that hump of "do I really want to go?". Yes you do, and yes you can, and yes you will! After a few months of consistent exercise you will feel better (its also an anit-depressant) and look better. Someone is going to ask you "Do you work out?" And you are going to answer "Yes!". Now that will be sweet. Best to you -- DVB
Sherry Bradford That is so true. A lady in my office who also stays late told me she is trying to change and is telling herself that no one is strapping her to the chair each ... Read more
Sherry Bradford That is so true. A lady in my office who also stays late told me she is trying to change and is telling herself that no one is strapping her to the chair each day - it is a choice she is making. That mindset of exercise first and other things second is definitely one I want to cultivate! Thank you for the encouragement and wise advice!
On February 7, 2013...
Hey Sherry, I am proud of you going back to work so soon. I really dont know what you do but any job would probably make you feel that way. I am retired so really don't have to worry about it so I really dont get all those feelings. I think most of my pain is just all the healing going on. Some days are better than others. I think it depends on what I have been doing. And I have been trying to do a little more all the time. So that way I guess I am lucky. But I have been told that it takes months for it to heal. So just hang in there better days are coming, I think lol.
Linda H and Elsie AVr 9/19/12
Sherry Bradford Haha! I hope so! Overall, I definitely feel better than before the surgery so that is a blessing. I have to figure out a way to lower the stress and take ... Read more
Sherry Bradford Haha! I hope so! Overall, I definitely feel better than before the surgery so that is a blessing. I have to figure out a way to lower the stress and take care of myself. I will be so glad when I can retire! I know there are other pressures then, but it will be nice just to have a change in the "scenery"! LOL!
On February 5, 2013...
Hey Sherry, I;ve been thinking about you. Reading your last post to yourself I say slow down girl. Take some time for yourself. Just like everyone told me around Christmas time when I just started rehab and decided to decorate the house, I wound up pretty sore. Well I was reminded that I just like you just went thru major surgery and it takes a long time to heal. The outside might look good but the inside is trying to catch up. You dont want to wind up back in the hospital. You are about a month after me and I still hurt. So friend dont go shooting yourself in the foot that hurts even worse lol. Keep up the good work. Talk later.Oh Elsie agrees with me. She is still a baby and getting use to her new home.
Linda H and Elsie AVR 9/19/12
Sherry Bradford Linda thank you so much for posting! I am sorry you are still hurting but I have to also say that encourages me too. I am just so surprised at how tired I ... Read more
Sherry Bradford Linda thank you so much for posting! I am sorry you are still hurting but I have to also say that encourages me too. I am just so surprised at how tired I am at the end of the day and on weekends and that sometimes it hurts quite a bit. Having you blazing the trail ahead of me is a blessing and I appreciate your support and hard earned wisdom about this journey! Hugs to you and Elsie!
On January 20, 2013...
Sherry--
Diagnosed a year ago as a candidate for AVR, I soon stumbled onto HVJ, and have read 95% of the Journal postings since then. Those postings have done more to keep the puzzle of my life and re-hab together than has any surgeon, institution, or cardiologist.
About a week ago, I read your posting "Pieces of the Puzzle." It is a work of art, the most beautiful and touching post on the HVJ that I have seen. I re-read it often.
You are to be praised for your talent, understanding, and compassion.
Thank you very much.
John Teeftt AVR at CClinic 5/4/12.
Sherry Bradford John, thank you so very much for your very kind words! This site has been such a blessing to me and I too have learned more here than through any other source. ... Read more
Sherry Bradford John, thank you so very much for your very kind words! This site has been such a blessing to me and I too have learned more here than through any other source. I hope I can pay forward the wonderful encouragement that people have so generously shared with me. Hope your recovery is going well!
On January 19, 2013...
So happy to hear that you are feeling better! Continued prayers coming your way!
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