Shelly's Guestbook

Marie Myers posted a note for Shelly that says: I also had a bicuspid aortic valve, with an ascending aortic aneurysm and aortic root aneurysm. I knew of My bicuspid valve since my 20’s,but did not realize the associated risk for developing aneurysms with it. My unwelcome aneurysm diagnosis came in August 2016, and I had surgery March 2017. If you click on my name, it will take you to my home page, where you will see “My Journal”. if you Click on my journal, you can read my journal entries and other peoples comments. Bicuspid aortic valve is the most commonly inherited heart valve disorder, affecting approximately 2% of the population. If you have any questions,ask away.There are many people here who have received the same diagnosis, and have been through surgery.

Jill Mullikin posted a note for Shelly that says: Hi Shelly. Thank you for your comment on my post about my son Sebastian’s heartaversary. We found out when he was 19 that he has had a bicuspid valve with severe regurgitation. He had a mini sternotomy to repair his valve at Lankeneau by Dr. Plestis. We live in Northwest Indiana and first contacted the University of Chicago and were referred to Dr. Plestis. Sebastian still has some leakage but his heart did return to a normal size so we are thankful for that. I hope if he ever needs another surgery it’s a long way down the road and they continue to make surgical advances. I understand this process being a difficult journey. There is amazing support on this page and I’m happy you have found this group. It helped me immensely, and I wasn’t even the one having surgery. I’d be happy to answer any questions you may have.