Joan Saddington posted a note for John that says:
Hi John and nice to meet you.
Thank you for your contact. I need the reassurance of the group at the minute but feel like I am floating around on the outside of it all. I have severe Bicuspid Aortic stenosis and am in the waiting list for Bristol. Angiogram on the 14th June in Taunton. It’s been a long 8 months of tests. The most worrying thing for me at the minute is having to tell my two adult sons that they may have inherited the Bicuspid valve from me and that they have to be checked. Anyway, I am so glad to read your story and see how well you are doing and congratulations on the birth of your three grandchildren. Joan
Ashley posted a note for John that says:
I had surgery in April 2017 and have been on two sunny holidays to the Caribbean since. Once was 6 months post op and the other was 8 months.
I used the hy tape both times and it was excellent (I got a good deal on Amazon and bought a few rolls). I'd stick it on dry skin in the morning and then not worry all day long in the pool and ocean. Peel it off later in the shower - worked like a charm.
My scar has had zero sun exposure in the last year and is quite pale.
Enjoy your holiday!
Congratulations on a steady INR reading. I wish you good health everyday and a consistent INR. Will stay in touch. By the way, I’m living in Singapore and agree that this group here has been so helpful. Thank you.
Wendy posted a note for John that says:
Thank you John for your detailed reply. Your sharing has helped. We met with 2 surgeons, one was a clear cut mechanical and said even with TAVR, a valve within a valve may be leaky, the same surgeon also said warfarin is rat poison essentially so therein lies the risks. This surgeon is very experienced and as the cardiologist says a safe pair of hands. The 2nd surgeon was more like yours, didn’t want to make a decision but leaned a little towards tissue. I suppose what we need to do now is to research into the types of tissue valves and the odds. Thanks again for sharing. I will keep you posted.
So glad to read that you are well post surgery and have such a great positive outlook. My partner who is 52 years of age is facing aorta valve replacement and we are currently faced with the decision of the type of valve; mechanical or tissue. Would you be kind enough to share with me more on your journey with regards to the choice of valve?